All my test results are back and there were too many things not right with my biopsies for the docs to say I have irritable bowel only. My gut is attacking itself and ruining my villi, this is what is causing a lot of my extreme pain and throwing up. They put me on steroids and after only two days I;m starting to stabilize. The problems? They don't want me on steroids too long because they are not good to be on for long-term. this is scary because my only alternative would be immunosuppresants and they are scary themselves,even more so. Also, I was told to still follow the IBS diet because my gut reacts more strongly to foods that are harder for it to digest. I was wondering first of all, can I still be in this group? This disease they say I have is so rare that there is no support groups set up for it. I don't know where else to turn. Has anyone ever heard of this? Any experience at all would be greatly appreciated. Thanks for listening. Marla
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now my docs say I have an "autoimmune intestinal enteropathy" ever hear of it?
