Re: Still no diagnosis, still sick and getting worse -- help! (long post)
01/06/05 08:04 AM
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I was diagnosed with D-IBS a about 3 1/2 years ago, I was on imodium (3/day) for about 2 & 1/2 years with paxil to relieve stress. I actually started out only needing 1 immodium a day but the D got worse ove the next 6 months so that i required 3, i've never requirted more than that, and was stable at 3 for the next couple of years. I eventually went off Paxil, completly freeing myself from it in october, but in late november my IBS seemd to subside for a few weeks & then came back with a vengence. I was recently (today actually) put on Celexa, and have reduced the imodium intake by a half by taking the fiber supplements which seem to be working most of the time (except ofcorse last night  ).
I have never felt quite satisfied with my diagnoses of IBS, my symptoms DO match for the most part as i understnd them:
- Chronic D (controlled by imodium & fiber)
- mild pain in abdomen, relieved entirely by evacuation.
- gassiness, mucus in stool at times.
But I only had a few tests done (blood/urine/FOB & Barium X-Ray (lower)). My stupid brain won't let that be enough to make me be sure it IS ibs & only ibs... My doc won't schedule anything else unless other symptoms show that conflict with the IBS diagnoses, not that I blame him, I certainly do not want to take up time on a machine or from a lab that someone else may need more, but I do want peace of mind.
My doc thinking that I have IBS, just isn't enough.. I get frustraited about not knowing for sure, not knowing if it MIGHT be Crohn's or something else, though the X-ray came back fine (3 years ago). Add on top of this that I have a General Anxiety disorder which just makes me worry all the time (hence the paxil/celexa)...
I know others out there suffer like i do & worse, and my heart goes out to them. I hope someday there will be a miracle drug/therapy to make us all better... Until then, this site & the information & people that contribute to it have been an anchor that helps me get through the days. Thank you.
/c
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Christien Lomax (TheCatWhisperer)
thecatwhisperer@gmail.com
http://www.thecatwhisperer.net
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