Re: Still no diagnosis, still sick and getting worse -- help! (long post)
01/03/05 11:34 AM
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Judithg
Reged: 07/14/03
Posts: 157
Loc: California
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Hi, Kate--Boy, do I hear you when you say you'd like some kind of diagnosis so you could find a way to fix the problem. I get frustrated when every test comes back "normal" and yet it just can't be normal to suddenly start having diarrhea every single day for months and months on end. I've even had difficulty with the diagnosis of IBS (which has not been definitive in my case as yet), because my symptoms are not completely like IBS, and because the diet hasn't brought about long term changes.
I did realize recently while waiting for some test results to come back that I was actually hoping (for once) that everything would be normal. I was being tested for cancer in the small intestine as well as Crohn's disease. After reading about Crohn's, I knew I didn't want to have that to deal with; and, of course, I didn't want cancer. So I had kind of a turning point--okay, so doctors can't diagnose me. Does that mean I'm crazy or a hypochondriac? Or does it mean that medical science is just not advanced enough to understand our complex digestive system? I think it's the latter.
Anyway, those tests came back normal, and now I'm waiting on tests that have to do with bacterial infections, parasites, food allergies, etc. Those are all things that I can deal with. And if everything comes back negative again, I'm just going to have to keep experimenting on my own to see what works. We're all pretty unique, and what works for one may not work for someone else, right?
I really appreciate your sympathy, and I hope for both of us that we can figure out how to deal with the problem. Thanks for your post.
Judith
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