Hey, sweetie, vent all you want, it's what we're here for!
I know you're frustrated. This dang disease is a pain in the, um, neck. And getting it under control is definitely a case of two steps forward, one step back. There will always be setbacks because there is no cure and because nobody's perfect. Our bodies have a mind of their own sometimes.
The only way I can manage dealing with things like this is that good old saying, "One Day at a Time." I can deal with something for 12 hours that would drive me to despair if I thought it was going to last forever. So just focus on getting through today. Don't compare it to yesterday or assume that tomorrow will be the same.
It's a matter of acceptance. Until we accept that this is just the way things are for us, we get too discouraged and frustrated. Now I wake up every morning and take inventory to see what hurts what doesn't and what I need to do to deal with it. I can do that one day at a time. I have good days and bad days. So I always have Plan A and Plan B! Plan A is what I want to do if I feel good, but if I don't, then I just switch to Plan B and do something that requires less effort but is still fun or productive or interesting.
So of course it's not fair. It's not fair that we have this dang disease. And of course we're allowed to complain and vent and have just as many pity parties for ourselves and we want and need! And if we don't give up and keep following Heather's diet and suggestions, eventually we get stable and before we know it we have a week with no pain and then a month and then six months and then a year, with occasional setbacks but fewer and fewer. It does happen, Heather, and we're here to help.
{{{{{{{{{{{BIG HUG}}}}}}}}}}}}}}}}}
-------------------- Laura
Keep it simple!
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