Dear Becca,
Thankfully, the tube changes went ok today and I got to get a few hours of drug induced sleep. I'll take sleep anyway I can get it.
It's hard for those that do not suffer with gastroparesis to understand the horrible suffering we go through. I try to educate then move on if they do not catch on.
I know my story sounds horrible, but I am lucky in some ways. Since I have the tubes, I do not have to worry about how I'm going to get calories into my system. I can drain my tummy, so I only throw up 6-8 times daily as compared to nearly all day long before. The central line makes it nice that I can keep myself somewhat hydrated thus I can avoid the ER a little more now.
Rather than concentrating on what's wrong with me, I spend my time trying to help others in the same boat. That's why I am trying to do EVERYTHING possible to help make Domperidone available again to all that suffer. I remember well the days I would run across the border to Windsor, Ontario, Canada to pick up my Domperidone. At least I had the option of trying it even though it didn't help.
If you need anything even if it's only somewhere to vent, feel free to email me privately. I also make my phone number available, so patients can get instant feedback.
You can email me at bethellen1965@comcast.net
Bethellen
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Re: DOMPERIDONE
