I feel your pain and frustration. 5 years ago, when I finally decided I had it, I went to the doctor. It was a military doctor. Anyway, she told me to take Fibercon. I had a flare up. It left me on the floor in the bathroom at work. I called, the fit me in 2 weeks later. She ordered an x-ray. The radiologist saw signs of IBS and put it in the notes. A few weeks later she ordered a small bowel follow-through. It took 8 days for me to get 'rid' of the barium. At the follow up appt. she told me everything looked normal. Um, is 8 days normal to pass barium? I thought it was around 3. Could I see a specialist? No...So what does she say? Try putting Karo syrup in everything you drink. My grandma did that for me when I was a kid and constipated. I was soooooo mad. I asked her if next she wanted me to dance around a fire naked on a full moon and walked out of the office vowing never to return. 6 months later I had another episode. I have a high tolerance for pain, so when I say episode, it means leaving me unable to function. As it started to pass, I went to their ER. They took an Xray and found that my colon was completely dialated. They considered admitting me, but to be honest, by that point military doctors had about as much of my respect as a serial killer. I passed on letting them admit me but did return the 3 weeks later for a colonoscopy. That just found that my colon was longer than it should be and had a few loops.
Luckily, shortly thereafter we moved. I moved back home and was able to go back to a doctor that I trusted. He is working with me and my gastro doctor. I had done a lot of research about diet (anyone else wonder if the reason IBS seems to be on the incline is the Atkins diet??) and they have been wonderful and supportive.
I am frustrated that I can't get 'rid' of it, but the tools I have to work with it are a Godsend. Luckily my doctors listen and treat me as though what I am going through is important.
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