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Hang in there Jen! new
      #71148 - 05/17/04 12:54 PM
bamagirl

Reged: 04/02/04
Posts: 1407
Loc: Alabama

I'm pretty new to this board, but I know how wonderfully changed my life has been since I've listened to you all! You lead the group when it comes to compassion and knowledge, so don't get down!

My IBS is a real bother, as it is to everyone, but I've watched my hubby suffer through two years with chronic lung problems, so I know how low illness can take our spirits! Just look up! Know the power of prayer and that there will be those of us lifting you up in prayer today!

May you soon feel much better!

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God is Faithful!

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Re: thanks, all. new
      #71172 - 05/17/04 02:20 PM
barbie

Reged: 04/22/04
Posts: 2435
Loc: Texas

Hey LS,

I take Benadryl, too (Tylenol sleep). I only have to take one and it makes me so drowsy and does help with allergies, too.

Hope you feel better soon
Barbie

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Re: thanks, all. new
      #71178 - 05/17/04 03:38 PM
tuxedocat

Reged: 02/09/04
Posts: 279
Loc: Ithaca, NY

Aw Jen! I feel for you. Having a chronic illness is no fun (to put it mildly). You have really dealt with your diagnosis fabulously, but eventually, I think, it hits you how sick you are. Then the crying starts...think of it as a good release. I know you know this, but I'll remind you anyway: you go through the cycle of grief with chronic illnesses, just like you do with terminal/life-threatening ones or with a death. It is so normal to feel how you do, but, of course, it doesn't feel like that when you're in the middle of it.
I'm glad to see you've calmed down and that you've got your priorities straight--your health comes first. Is there any way you can get an appt for the depression sooner? Certainly the depression is factor here, but good for you to recognize this crying jag as a sign of depression. Lots of people wouldn't be as proactive as you are.
Hang in there, Jen! And here's a link on sleep hygiene

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--Julie

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"young?" new
      #71181 - 05/17/04 03:48 PM
jenX

Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA

i love that! thanks! that made it all better right there!


hee hee....


"young!"

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sleep hygiene new
      #71185 - 05/17/04 04:09 PM
jenX

Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA

hey, LS. hope you're doing better than you were earlier!

i do follow all of the "good sleep hygiene" rules. yup. sure 'nuff. it's funny, but when i first started to realize i was having sleeping problems, i ran across some stuff about sleep hygiene, but i was already doing all that stuff! well, ok, i don't take a bath before bed usually, but i am going to do that tonight....

thanks for the tips. i have a Tempurpedic pillow. it's ok. i really liked it when i first got it, and now that i'm typing this i realized that may be when my TMJ problems started to resolve! hey, cool! anyway, i can't afford the mattress, but i wish i could....

have you heard of the Cuddle Ewe underquilt? um.... here's the site. i read a testimonial about that in a book by a woman who didn't share any information about her own personal treatment choices except a note that she loves her Cuddle Ewe and said it really helped her sleep. (she presented a lot of info fairly and endorsed NOTHING but this!) i'm considering this.... (she says it keeps her cool in the summer and warm in the winter. i wouldn't have bet that sleeping on wool would make you cool in the summer, but hey- what do i know!?)

ok.... i'm off to check other posts while i have an energy.

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Jen! new
      #71203 - 05/17/04 05:19 PM
peaches

Reged: 09/28/03
Posts: 1183
Loc: Fort Wayne, Indiana

I'll be praying for you SOOOOOOOOOO much! I totally know what that feels like!! I had the stomach flu a few weeks ago and I couldn't do ANYTHING and I had so much schoolwork that I had to make up like speeches and tests and project and I was so frustrated! So I tried going back one day to get all of my assignments and I could hardly stand up in the shower. I felt like I was going to faint from fatigue! SO I hope you get better! Do you think that your doctor could prescribe you a stronger sleeping pill of some sort??

**Major HUGS!**

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It comes down to the art of living on [color/red]

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Re: sleep hygiene new
      #71235 - 05/17/04 06:41 PM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Hi, Jen! Yes, I finally rejoined the land of the living about 4pm, which is about the usual time the flare lets up. No more zombie impersonation here -- and I DID make it to MY doctor appt TOO!! YAY, us!! (My weekly therapist appt -- she keeps me sane, or at least sane-er!!)

I have heard of the Cuddle Ewe and it sounds yummy. If I wasn't allergic to wool (yes, yet another allergy!!!!) I'd have bought one already! There are some hypoallergenic versions also that are supposed to be like sleeping on an old fashioned feather bed. My husband also wondered if one of those full body pillows like the advertise for preggys would help me be more comfortable. We haven't bought one, but it's still on the list of things to maybe try someday.

Sweet dreams, chicken!! (And I love your little sick doggie gif.) (Oh, and tell me again the med you're taking and the dose she's increased you to, I can't remember, was it Buspar?) (Oh, and let's start using my hubby's 10 point scale so I have an idea how you're doing. I was a 4 today (BELOW functional) but it sounded like you were a 0 in the morning (Just shoot me now!) but made it up to a 3 (pretty sick but able to leave the house!)) I'll repost the whole thing tomorrow.

Now I've lost my way in the parentheses so I'll say Good Night.

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Laura
Keep it simple!

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All understandable.......... new
      #71258 - 05/17/04 08:23 PM
Kandee

Reged: 05/22/03
Posts: 3206
Loc: USA, Southern California

Oh Jen, Here you are, ALWAYS here for EVERYONE and anyone that needs you yet you have this to go through yourself. I/we all wish there is something we could physically do for you, yet we know that we can only offer a kind word and listen and read and empathize. Talk about feeling helpless!!!

First off, CRY, CRY AND CRY some more. You know that when you do you are getting rid of toxins. It's been proven. Same holds true for moaning and groaning.........that's been proven too. So all the emotional stuff you want and need to get out--do so, and then do some more. You're entitled........and it will do you a world of good. Remember when we were younger and and we'd cry ourself to sleep? Or when we were teenagers and we'd cry ourself to sleep over the break up with some boyfriend........well, that's the kind of crying and sobbing I think you need right now.....It's not a time to be strong, or worry about money, or energy.........it's time to just let it out.......don't feel like you are loosing it mentally..........well, it may feel like that but we who know you know that you wouldn't on a permanent basis......only temporary...........and that's ok too!!!
Don't worry about being lazy or what people think. Like LS said, if you put the peddle to the metal and you can only go 40 when all others are going 80 then that's ALL you can do..........and then sometimes you're in the 15 mph zone and that where you have to stay a while..........All of it's ok. Our prayers are with you, somewhere there will be answers.

On a personal note, had the dr. appt today with the good doc...but more on that another time....my condition has worsened but that too, with time will pass....I'm off to bed myself .

Kandee



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thanks, kandee.... hope you get some rest. when you can, tell us about your appt. -nt- new
      #71332 - 05/18/04 07:29 AM
jenX

Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA



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LS new
      #71334 - 05/18/04 07:35 AM
jenX

Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA

i'm glad i'm not the only one who gets lost in the ((parenthesis!))

i am on.... er.... the new one is desiprimine. i had been on nortriptyline. they don't put me on amitrityline 'cause i was on that years ago and didn't like it (but can't remember why...? ugh. fog!) i started @ 25mgs, but last night bumped it to 50mgs. i have a feeling i'llhave to go a little higher in a few days....

my best friend is allergic to wool, too. now that i'm knitting, i can make her nice scarves and hats and gloves out of acrylic and cotton, so we're excited! usually she's quite limited in her choices! but now we know she's not going to be able to help me if i ever start selling my bags at craft shows, right! oh well!

i'd love to learn your 10 point scale. i'm sure you can understand this: do you have your days where you're not even sure how you are yet, early in the day? it's almost like i'm "on hold" while my body waits to decide what it's going to do! (naturally, still stiff in the morning, but that's a given!)

ok, rest! i'll talk to you later....

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