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people with fibro develop sensitivities to all sorts of things, for example to various smells

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Before you (and your wonderful posts), and before having these symptoms that make me feel like just a lump.........I was, I suppose, like most people. They hear the words fibromyalgia and CFS and don't think much of them, that they must be in people's heads or they are minor complaints...........mountains out of mole hills you might say. If Fibro/CFS patients could give the rest of the population these for just one day they'd change their tune!!!

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you know, i wasn't sure if this was in people's heads or not, either. that's why i wasn't too to happy with the CFS diagnosis, though it was obvious something was wrong! but they say they can actually test some of these pain responses and see that not only are they real, they are more intense than other people's pain. it's all quite fascinating, actually! (to me) anyway, finding out you have a chronic illness is like death, you do the stages: denial, depression, anger, bargaining, acceptance. i think i skipped some! when i was in the CFS diagnosis i think that was my denial. now i can't deny anymore! guess i skipped right to acceptance with the occasional anger tossed in for good measure.

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The headache/dizziness, like I said, is driving me nuts.....If I move to quickly the dizziness is much worse.

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The headache is just always there. It goes down into the jaw and feels like I've been clenching yet I haven't. No OTC will touch it. (Funny thing is, reg tea with caffeine is the only thing that helps, but that sparks IBS cramps.)

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a) one of the things about fibro according to this book i am reading is that fibro pain is often non-responsive to regular pain meds. if i sprain my ankle, Advil may help tremedously, but for the pain in my left pinky that comes and goes and is fibro-related, no amount of Advil in the world can touch it. INTERESTING, NO!?

b) here's something i read and i haven't had a headache to test it yet: try putting ice on your throat and/or on the back of your neck! seriously. and let me know how that turns out, please! (there's a trigger point in the throat that can cause headaches - don't even get me started on TrPs! that's another subject all together!)

c) are you sure you're not clenching or grinding at night!? i used to do both but stopped the grinding when i got a roommate in college! the grinding i stopped eventually. guess my body decided to switch up to other kinds of stress relief like IBS. (yay) that jaw thing = TMJ. and headaches and achy jaws were my symtoms.

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I don't have carpal but do have TTS, Tarsal tunnel syndrome, and have had that a few years now, but it hasn't been kicking up until recently. Then you mentioned the restless legs...........OMG, RLS..........horizontal kickboxing at it's best. Funny thing is the common meds for IBS, Bentyl and Donatol make it worse for me. As one pharmascist explained.......it may affect the smooth muscles but can either excite or calm the central nervous system.......with me, obviously it excites it.

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Sleep I'm ok with except up a million times a night, and never ready to automatically go back to sleep.

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YES! see, that's me, too. i don't have trouble falling to sleep most of the time (unless i'm anxious about something, but that's NORMAL). but i wake up a quadrillion times to pee! and that apparently is a sign i'm not getting DEEP, Level 4 sleep (the kind that most fibromyalgics are desperately in need of, the kind in which cellular repair takes place!) (SEE HOW INTERESTING THIS ALL IS!? ) so, actually, that's considered a type of insomnia- not getting enough deep sleep. do you ache in the mornings? do you wake up feeling "unrefreshed?" even if you slept for 10 hours!? do you have what one of my books called "truck sign?" (waking up feeling like you were run over by a truck!?)

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Oh, I could go on and on, but won't take you from other patients, Dr. JenX. Since IBS goes along with this, it makes me think we need another board for just related conditions. After all this board is for fun...isn't it?

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Oh yes, about my one last question. How, briefly does Fibro differ from CFS?

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really, it's in the prevailing complaint from what i read. at least a lot of researchers/doctors think that. CFS is mainly about not feeling rested/being fatigued and FMS is about pain. BUT... while i have fibro, my main complaint was fatigue! the pain... well, crud, i was just used to it. it's been going on so long i hardly give it a thought even though it hurts everywhere all the time. well, i give it thoughts, but never mention it. you know what i mean...

Oh! and i believe if you have the tender points i talked about before in the original post, then that distinguishes it as fibro. i guess some CFSers may not have those, or as many. i tried for years to test my own tender points and it never worked, but boy did the doctor hit 'em right away!

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Thank you again.............what a wealth of information on the subject you are...........you know, you really should have been a doctor specializing in these areas.

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thanks. i'm blessed because a) i remember what i read easily if it's something i'm interested in and b) i like to talk a lot! but if i were a doctor, i would have the same training as the rest of 'em and be just as schmucky! LOL




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as for the smell sensitivities, i don't have that, but i see it on every list i read! i wonder if LS and Linzy have that?

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