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Hi Jen,
No it's not that yucky iodine stuff. I'm probably just not spelling it right. Ask the pharmacist and he can tell you.
Barbie
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-------------------- Laura
Keep it simple!
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So sorry, Jen! Like you said though, at least you KNOW your not going crazy!
Fibro can be difficult, I know, my mom had IBS C, Fibro and Lymes. I see what it does to her. You are strong and have lots of people who care about you! We all love you! You ALWAYS bring a smile to my face!
-------------------- Taking it one day at a time.....
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That's the spirit, Jennie my girl! You're absolutely right, compared to alot of other things and given that it's not progressive, it IS kinda "no biggie." Yet in other ways it's huge, of course.
I can totally relate to the "it's nothing" routine. On some level, I've known all my life there was something wrong with me that made me different from other people. But every time I'd go for a checkup, I'd pass with flying colors. It didn't make sense to me, but what could I do? So for 50 years I passed for what was normal, not knowing that to have all these little aches and pains and to be so tired all the time or to have meltdowns in noisy public places wasn't normal. That's why I said it's SUCH a relief to finally know that there IS something wrong with me and I HAVEN'T been crazy all these years.
And yes, the fibrofog is infuriating and frustrating. All my life I've been an organized, responsible, smartypants overachiever, with nothing but scorn for people who lost their car keys or bounced checks or trailed this little cloud of chaos after them. Now, I always warn people to be careful what they make fun of, because they might end up with it. Like be careful what you wish for? Because my husband and I are now astonished and bemused because I've turned into one of those ditzes we always made fun of!! How ironic is that?! But you get used to it and discover that it doesn't kill you, and gives you some very funny stories, and you go on.
Wouldn't wish it on anyone, sweetie pie, but know you're not alone, and while it will never go away, it is manageable, like asthma or arthritis. And the best thing is, it doesn't seem to impair one's ability to spend incredible amounts of time on the IBS message board!!!!
Love ya.
-------------------- Laura
Keep it simple!
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SILVER LINING!
#66250 - 04/30/04 08:13 AM
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jenX
Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA
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Quote:
And the best thing is, it doesn't seem to impair one's ability to spend incredible amounts of time on the IBS message board!!!!
WHEW!
thanks for the helpful post, LS. i will be postive 'cause it's either that or negative and really... what does being negative getcha?
maybe this IS karmic revenge. i used to get really frustrated with people who i thought were "dumb" because of the things you mentioned. i've always admitted that i'm a bigot in NO WAY, but am slightly prejudiced against stupid people. (not people who have problems like retardation or brain damage! i have a cousin with Downs Syndrome and he's smarter than most people in a lot of ways) anyway, here i am, forgetting simple words and needing a nap after i think of them! (IF i think of them!) ah well, i can accept karmic punishment- guess i earned it, no?
yesterday i got my hair trimmed and bought some shampoo and conditioner in one of those huge "bonus deal" packages, and after i paid for the appointment walked right out and left it on the counter with my bottle of water. the stylist ran out the door to hand it to me and almost knocked me over 'cause i was standing in front of the door looking around the parking lot trying to remember where i left the car.
oy.... well, i'll be gathering material for my future as a stand up comedian!
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Girlfriend, I have a great deal of respect for you. I love how you're handling this. It's marvelous that you're keeping your sense of humor; I believe it'll hold you in good stead -- just like LS. What an inspiration for us.
You two ROCK.
Bevvy
-------------------- <img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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Jen, so sorry to hear about the fibro diagnosis. At least you know why you feel like you do. I feel for ya! I get tired and stupid enough just with IBS. I can't imagine what you, Linz, and LS go through. The nortripyline should help with your pain too, actually. I'm on it for chronic tension headaches, though I had to take it for about a year before it was fully effective, but even with grad school I don't get raging headaches that last for weeks. Now I just take some aleve when I feel one coming on and it goes away! As for the dry mouth, Biotene is the greatest thing ever. It won't get rid of it completely, but I manage to teach for an hour and only need one cup of water. The constipation will go away eventually as your body gets used to the meds. Hang in there
-------------------- --Julie
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silly goose!
#66262 - 04/30/04 08:41 AM
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jenX
Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA
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i am doing what anyone would do--- i'm making the best of it. really, i'm lucky because it could be so much more severe! mine is "low-grade" and therefore merely pesky compared to the plights of some people with fibro!
but thanks. your nice words make me feel good anyway.
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