|
|
Hey Jen - I'm glad you finally got a diagnosis - but I'm sorry that's what it was. 
I never really knew exactly what it was. I just looked on Peaches website (thanks Peaches) to find out some info.
I hope you find something that can help you out.
Print
Remind Me
Notify Moderator
|
|
|
Aw Jen, sorry to hear about that
At least you have an actual diagnosis though, so that you can go ahead and start treating things properly 
Hope you feel better soon! I'll be thinking about you.
Print
Remind Me
Notify Moderator
|
|
|
Aw, Jen, welcome to the club. Not fun at all, but what can we do. When I was diagnosed, it was actually kind of relief, as it validated my symptoms and explained a lot about my life.
The FMNet site is one of the best. I subscribe to their newsletter which is excellent, especially on new research on meds and stuff. There truthfully isn't a lot that doctors can do, so don't be too frustrated if they can't "fix it" immediately. The two main things are exactly what you've been started on, correcting the sleep problem and treating the pain.
FYI, I'm on Elavil and OTC benadryl for sleep and for the pain, I take generic Tylenol and Ultram, a non-narcotic prescription pain killer. That keeps me pretty stable, except when I overdo it or have a crisis like my poor kitty dying last weekend.
The good news is it's not progressive and it's not fatal. It just a pain in the neck...and the back...and the legs...and the arms... and the feet...and the hands....and the head...and the neck. Oh, I said that already. Oh yeah then there's the fibro fog. The other day I put the bread in the refrigerator rather than the breadbox. Two days before that I put the cat's container of food with the plastic lid on it carefully down on the floor where her dish goes, rather than in the refrigerator. So you might want to dye your hair blond, so you can say you're having a "blond moment." (No offense to all you pretty ladies on the board, it just sounds a lot sexier than a "senior moment.")
Seriously, Jen, I'm so sorry to hear you've got it, too. But hang in there. Throw a great big pity party for yourself, then gradually move on.
I wish I could give you a great big (((((((((((((((((HUG)))))))))))))) right now.
Love ya.
--------------------
Laura
Keep it simple!
Print
Remind Me
Notify Moderator
|
if i may....
#66093 - 04/29/04 05:37 PM
|
|
|
|
jenX
Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA
|
|
|
some fibro and CFS experts think that their patients have trouble using T3. they make enough of it, so the test results are normal or even a little low-normal. but it's not really being used correctly by the body. by treating the patients with a T3 supplement, the body has even more T3 to use and some patients start to feel better. i have a lot of hypothyroid symptoms, so i'm definitely interested.
(if i botched that description, i'm sure LS or Kandee will correct me. i'm wiped out.  )
i'm also interested in B12 supplements. there's another theory that CFS and fibro patients are able to metabolize B12 in their bodies but not in their brains and that's part of the cause of the fatigue and fibrofog and other neurological symptoms.
g'nite. it's best i log off now... i'm starting to ramble. 
--------------------
Print
Remind Me
Notify Moderator
|
|
|
Print
Remind Me
Notify Moderator
|
Fibro!
#66111 - 04/29/04 06:22 PM
|
|
|
|
Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
|
|
|
Fibro! Well, you and LS have a lot in common then....
Fibro! Jen, how do you feel about that? And how did he confirm it? What about the IBS? Do you have both then?
Fibro! Wow.... well, we're here for ya, Jen. I was wondering why we hadn't heard from you today..... I had a feeling in my gut something was wrong.
Fibro! Are you a little relieved, at least, to finally have a diagnosis? Now you know what it is and you can get meds -- can't you? I know my Canadian friend was on meds for his fibro.
Fibro.... is he sure? What now? What's he gonna put you on?
Jen, are you okay? I know what will cheer you up. Where's our Canadian fly boy?
--------------------
<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
Print
Remind Me
Notify Moderator
|
|
|
I love your attitude. Girlfriend, you're a champion. You really are, you know that? Don't ever lose your marvelous sense of humor.
I hope we can help our Miss Jen. If anyone can, it's you.
Bev
--------------------
<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
Print
Remind Me
Notify Moderator
|
|
|
Jen,
You know what. It's almost eight oclock at night where i live right now which means i think that it is almost eleven pm where you live, so I hope you are sleeping like an angel right now. I'm sorry for you but you are my hero, OK? I'm sorry you have to deal with being sick and tired of being sick and tired (and in pain). When you lay your head down on the pillow every night (or afternoon..or heck..every second  ) just know that you are admired because through all this you are still so kind and manage to lift my and everyone else's spirits every day. I don't know how you do it. Well...you're an angel..that's how!!!!!!!! Sleep tight..don't let the bed bugs bite!
Hugs nHugs nHugsnHugsnHugs...and after a good meal with soluble fiber, a hershey's kiss
--------------------
If you live life to love, you'll love to live life.
Print
Remind Me
Notify Moderator
|
|
|
PMA is a good thing to have and just stay motivated!
My Aunt has Fibromyalgia and as my IBS-D symptoms have gotten worse, I have wondered if I shouldn't be tested for it too since it is in my family...I said a little prayer for you!
Print
Remind Me
Notify Moderator
|
OH, Jen
#66153 - 04/29/04 08:47 PM
|
|
|
|
|
StephS
Reged: 09/11/03
Posts: 2123
|
|
|
Jen,
I hope your getting some good sleep right now...so by the time you read this you will feel rested!
I'm sure pullin for ya over here!!! I hope now that you know what you have you can get better...or some what better! Now do you just have fibro or CFS too??
Take it easy and now that we all love you! I'm really sorry you have to go through all of this!
--------------------
Print
Remind Me
Notify Moderator
|
Posts
