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.. you have celiac's disease and not IBS. So I have to wander if Zara ended up doing badly because a gluten intolerence isn't the problem but the usual IBS triggers which are discussed on this website.
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Stable IBS D
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Yep that's quite possible, although you can do the diet I'm on while still following Heather's EFI diet and avoiding all triggers. Before fully going on my current diet, I started by cutting out grains and that helped a lot. I used sweet potato, potato, squash, well cooked carrots, applesauce, pearsauce and banana as my SF bases, small amounts of IF, and good protein choices like chicken breast, turkey breast, white fish and shrimp. I used mainly olive oil in my cooking and made lots of homemade chicken soup (skinned the fat off the top). No IBS triggers and I gave myself a chance to see that I did better without grains.
While I do have Celiac's disease, the blood test I had for it was negative. So according to my GI I don't have it (he refused to do any more testing). My family doctor is 99.99% sure I have it. I don't have a lot of faith in the diagnostic methods and would suggest anyone with digestive problems at least try cutting gluten out for a trial period. I have seen so many people do better off grains, I would say it's worth a try as well. There are certainly lots of different SF choices on Heather's diet.
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Kat
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That's terrible that the GI will tell you that. I have 4 friends that have Celiac disease and they all had negative blood tests. But it was obvious with Endoscopy. From what they've said, those blood tests are pretty inaccurate so the fact that the GI would just go off that info is pretty ridiculous.
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Flipada - IBS-C "It's a gas, gas, gas"
**Lauren**
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Yeah it was pretty ridiculous. I had to beg to get that Celiac blood test. I begged them for more tests before going gluten-free, knowing that I'd probably never be able to do them in the future. They refused. I was put on a waiting list for another GI and in the meantime went gluten-free. By the time I saw the next one, who probably would have agreed to more testing, I wasn't willing to eat gluten again. It really took me until just recently to fully believe I had Celiac and not a gluten-intolerance or IBS.
One good thing to come of it though, after going gluten-free didn't fix all my symptoms, I just kept searching until I figured out what worked for me. I think if I had been given the label Celiac I might have stalled at the gluten-free diet for a while wondering why I wasn't getting better.
Interesting you know 4 people with negative blood tests. I didn't know anyone except myself. Lately I've know a few friends having the blood test done and stopping at that when they get a negative result. I'll be sure to let them know, might be worthwhile for them to have a scope/biopsy done while they're eating tons of gluten still.
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Kat
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