BAD MRI results
#318527 - 11/13/07 04:48 PM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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I just got the pictures back from my MRI. The bain of my existence.
The docs don't like the glowing white "goop" in the middle section under the nose. They say it has to be biopsied and probably come out. Through a needle inserted into my nose or my eye. *excuse me while I freak out* 
It will be either somewhere left of routine, or quite serious. My BF has emotionally checked out. Here's the picture:
I have been crying for days.
I don't know what to do.
I have the pre-surgery interview tomorrow. I've cleaned my room so many times, it looks like someone else's. I haven't told my friends. I cry all the time. Anyone who wants to post to me please do so. I need the company and can't deal right now. I really just need some company. I feel like I have no one outside of these boards to cry with, and I'm scared.
~nelly~
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Hey Nelly,
Boy it sounds like you have had a scary day. I am sorry that your upset and feeling overwhelmed. Maybe its not anything to major. Yes, the way they have to remove it will be scary but I am sure you will be fine. Big hugs..........sometimes men just dont get how freaked out we get. But I do and I am sure many others will be posting there support too. 
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IBS-C gas, bloating and acid reflux
Babies is the plan for 2008!!Hope this IBS cooperates.
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Nelly, I'm so sorry. That has to be really scary. And having an unsupportive BF doesn't help matters. You know, as strange as it is to say I have this group of "cyber" friends that I love to death but have never met, I've gotten so much support and comfort from people on these boards. We're not just friends in cyberspace...we're friends.
I sure hope your tests come out well. Try not to let it consume you. There have been so many times I've freaked about something and worried and then it turned out to be nothing and then I realize how much time and energy I wasted on the "what ifs". I know it's easy for me to say as I'm not in your shoes. Just try to stay calm and know that we're all here for you whenever you need us.
Hugs.
Lauren
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Flipada - IBS-C "It's a gas, gas, gas"
**Lauren**
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Hi, Nelly:
I know right where you are because we were there last week with our baby girl. I know the feeling of fear and the horrible feeling of powerlessness.
Try to distract yourself as much as possible, and if you're done cleaning, try some other project that will give you a similar sense of control. I know how horrible the waiting game is. Please hang in there!
I hope the pre-surgery appointment will help to put you at ease. If not, maybe you can get some sedatives.  I was *thisclose* to asking for them last week.
Sending you big (((((Hugs!)))))
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Christine
Those who can do; those who want it done better teach.
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***HUGS, HUGS, HUGS***
You are in my thoughts.
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Re: BAD MRI results
#318548 - 11/13/07 06:53 PM
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Toady
Reged: 04/06/06
Posts: 1299
Loc: A small city, Northwestern Ontario, Canada
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Oh Nel!!
I don't know what to say - I'm hear as a e-shoulder to cry on. I'll put a prayer in for you!!
HUGS!!!
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Cassandra
Live like there's no tomorrow. Love like you've never loved before.
IBS A 20+ years, Chronic Migraines, Chiari Malformation (decompressed June 22, 2010), Brachial Neuritis, and ??? the list just keeps growing, but I'm still shiny side up! 
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Lots of Hugs out to you! The waiting game is the worst. Just know some of cyberfriends are just a stone's throw away. You sound like me with the cleaning. Try organizing the pantry and spice cabinet. A sedative probably would be a great idea to help get you through all this. We are all thinking about you.
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Susan
IBS-A, Gas, Pain, Reflux
"The first in time and the first in importance of the influences upon the mind is that of nature. Every day, the sun; and after sunset, night and her stars. Ever the winds blow; ever the grass grows."
Emerson, August 31, 1837
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My mom is over and I'm just getting ready to go out the door. I haven't slept a wink all night, besides taking 7 or 8 tranquillizers. Gonna be quite a day as I fight to understand what's going on with my head.
Thanks for being there, guys. I am so scared right now. And yes, there is nothing left to clean. 
~nelly~
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Nelly! I would also freak out thinking about a needle being inserted into my face. !!! You have sedatives, right?
BIG, GIANT HUGS!
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UPDATE: CAT scan
#318637 - 11/14/07 02:50 PM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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Got to meet a really terrific doc today. A real winner. She took one look at my MRI and promptly declared it bullsh*t. "you're getting a CAT scan," she says. So I go to the front of the line and in 30 minutes I have a CAT SCAN in hand, sitting in front of this awesome doc, who tells me, "You must feel like sh*t."
(!!!!!!!!!!!!!!!!!!!!!)
She tells me I have the worst sinus infection she's ever seen and I need high level antibiotics, pronto. Killer antibiotics they give to elephants. Antibiotics that eat other antibiotics. But they're $70. Problem? No problem! She gives me a giant shopping bag full of the entire cycle. Come back for more, she says.
(Yes, my friends, this means I have probably officially died. I probably never even made it to my appointments, just keeled over in my eggs this morning. This is the most logical explanation.)
Well, I haven't slept for 2 nights, so I'm going to nod off now. You are the best group of friends to listen. You've carried me on your shoulders in this really horrible time. Words cannot explain how much I've needed you and how you've come through for me. A special thanks to the ones who've emailed me.
*still very moody*
~nelly~
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Yea for you! Not that I wish you to even have a sinus infection but so much better than the alternative. Feel better soon!
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Susan
IBS-A, Gas, Pain, Reflux
"The first in time and the first in importance of the influences upon the mind is that of nature. Every day, the sun; and after sunset, night and her stars. Ever the winds blow; ever the grass grows."
Emerson, August 31, 1837
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Nelly- I am glad it turned out to be just a bad sinus infection. I didn't want to say anything before but when I had an MRI done for my sinus problems that's what it looked like. My sinues were so backed up that it looked like a huge white mass exactly where yours is. I had surgery to open them up and it was the best thing for me. Cause I felt like crap all the time before that. I didn't want to try to sound like a doc so I prayed that would be the answer for you! I am glad that it was and I hope you are in dreamland right now!!
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Re: UPDATE: CAT scan
#318657 - 11/14/07 05:07 PM
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Toady
Reged: 04/06/06
Posts: 1299
Loc: A small city, Northwestern Ontario, Canada
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Finally some "good" news!!! HURRAYYYY!!!!! Thank heavens it is a sinus infection and nothing else!! I'm very relieved for you.
I can't imagine how you felt! When they saw white spots on my mum's MRI they said MS - FREAKED ME OUT!! And it took 3 months for my mum to see a specialist to rule it out - no MS, just Meunier's (not that this is a great disease to have though).
I'm happy you have results!! Get lots of rest to catch up on your missed sleep. Snuggle with the BF and relax and get better.
HUGS!!!
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Cassandra
Live like there's no tomorrow. Love like you've never loved before.
IBS A 20+ years, Chronic Migraines, Chiari Malformation (decompressed June 22, 2010), Brachial Neuritis, and ??? the list just keeps growing, but I'm still shiny side up!
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Nelly!
#318669 - 11/14/07 06:47 PM
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Stephie
Reged: 03/10/04
Posts: 2696
Loc: Vancouver, Canada
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Hey there,
I am so sorry that I didn't see this post when you first put it up, before the update so I could be here to offer you more words of support. I can't imagine how difficult this whole situation has been for you, and you are just one tough cookie to make it through everything you have and still have that sense of humour in there somewhere.
I hope BF has come around a little, tell him check out is not available at this time. 
On the brighter side of things, I am so glad that you got to see a doctor who actually seems to get it! And who gives it, it terms of drugs! Thank goodness for this new doctor and I really hope that finding her is just the first step in really being able to identify and treat what is happening.
My thoughts are with you and I'll be checking in on you, young lady!
**hugs**
Steph
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~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.
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Thank goodness! They don't have to shoot antibiotics up your nose, do they? Well, get some rest and take care of yourself. I'm glad you got a doc who knew how to take charge.
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amazing! What a relief!
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Ladies & gentlemen take my advice, pull down your pants and slide on the ice.
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I guess I never really knew what a sinus infection was. 2 days with treatment and I actually feel quasi-normal!
They should really call it something else. something scary.
~nelly~
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Glad to hear you are starting to feel better! Now you can enjoy that spotless apartment of yours! I am getting my hair done at 4:30 today but call me when you can and we will catch up. I don't want to wake you if you are napping!!
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Taking it one day at a time.....
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So glad to hear your feeling better!! These things take some time to go away. So rest and drink plenty of fluids and maybe a probiotic since your taking a high dose of antibiotics. Just think you will be feeling better by turkey day 
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IBS-C gas, bloating and acid reflux
Babies is the plan for 2008!!Hope this IBS cooperates.
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I'mm so so so so relieved for you. I wanted to e-mail you but my hotmail is on the fritz. Sending you huge hugs and kleenexes. (for all the crap you're going to booger out the next week) I don't post a lot, but I'm always lurking, always here, and always with love. Where would we be without our wise, quick witted Nelly?????
Just don't grow any trunks or tusks on those antibiotics, OK?????
XOXOXOXOXOXO, A.
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Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.
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Wow! What a scare! I'm so glad it was a sinus infection and nothing too scary. Glad you are feeling better.
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Oh wow,Nelly, i was so scared until I read this update!!!! This is fantastic news! What is wrong with doctors today?? Can you sue for emotional distress???
Get better soon, Nelly - and take some major probiotics along with those antibiotics!!!!
HUGS TO YOU!!! I've missed you! I need to check in way more often than i have been...
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~~~~~~~~~~~~~~~~~~~~~~~~
Lisa, IBS-C (Vegan)
Stable since July 2007!
Mommy to Rhiannon Marie (Dec. 13, 2008)
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Thank you, friends
#319240 - 11/20/07 04:43 PM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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I wanted to post an extra special thank you. You are the most wonderful, with it, caring, empathetic friends. I am so lucky to have you in my life.
I had a bad test and worried, and now I am blessed with a clear bill of head-health and the security knowing that I have some very good friends who cared for me while I was down. Thinking about the experience I take away from it a real feeling that I have people who care in my life. And it's super special that you're just a few clicks away.
Anyway, my room is still clean (absurdly clean would be the only way to describe it really ) and looking around it, thinking about how much I was panicking/sport cleaning made me think I wanted to post again just to say THANK YOU.
~nelly~
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