Re: Update
#312454 - 08/02/07 08:06 AM
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michele
Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan
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Thanks everyone. Will did meet with an IRS guy and got that figured out but it will take 10 days to get our money back! 
My mom did call and so did my friend here. I was really tired though so I just had some dinner and went to bed early. My bosses wife though did bring me in a little try of treats, they are Jewish so I have no idea what any of it was but boy, it was tasty!!
At the moment, just waiting to get the tests back. I won't give up the search but I do need a break for a bit.
I have tried the anti inflammatory diet but probably didn't give it long enough. I really need more protein than it allows. There are several people on my ra support board though that do follow it and they say it helps a bit.
I stopped the acupuncture, had about 15 weekly treatments and it just didn't seem to be doing much anymore and at $70 a pop, well just couldn't afford it. However, they have figured out how to bill massage under physical therapy so I am still getting my massages and I look forward to them. Have not pursed the disability yet, I need something concrete in my blood work to show them.
Right now, trying to muster the energy to vacuum the office. 
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Taking it one day at a time.....
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Oh wow! I wasn't expecting that news. I really wish you would have had better luck. I also wish the rheumy that I saw there would have still been there but the last time I saw her she said she was leaving to work more on research . She was a great lady around our age and just really was thorough and I didn't have any of the symptoms that you have. Her name is Dr. Kristen Johnson and you might call to see if she is still around. Maybe she changed her mind. I hope you at least got to enjoy your birthday a bit. Did you do anything fun? I won't be online at all next week as we are leaving for vacation. I will talk with you soon!
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I'm so sorry you're having such a hard time, Michele!! I'm sending good thoughts and HUGS your way. Happy Birthday, too!!!
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Lisa, IBS-C (Vegan)
Stable since July 2007!
Mommy to Rhiannon Marie (Dec. 13, 2008)
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Re: Update
#313039 - 08/11/07 07:25 PM
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jen1013
Reged: 05/06/05
Posts: 1322
Loc: the wabe
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Ugh!! I'm so sorry you had such a crappy day.  Just wanted to say one thing, though ... I've also had lots of health problems over the last couple years, and I have made two trips to the Mayo Clinic and three trips to the local hot-shot university hospital/clinics. None of them helped me in the slightest and just served to make me feel even more bitter/depressed/angry/etc. I think it's because you expect more out of a place like that, and yet when you go there they aren't interested in you because you're not doing anything cool like bleeding out your eyeballs. So try not to feel too badly that they didn't help.
I imagine you've seen just about every -ologist there is but have you done a really thorough evaluation with an endocrinologist yet? I hate to even bring this up because my mom does it all the time and it drives me up the wall, but apparently there are thyroid problems that don't show up with the usual thyroid tests. My mom was sick for years with autoimmune-like symptoms (including severe swelling in hands/feet/joints, fatigue, weakness, pain) and went several rounds with all sorts of doctors before she finally started taking thyroid medication and felt a million times better. But, she has to take T3, since T4 (like Synthroid, which is typically prescribed) just makes her feel worse. It's worth a shot, anyhow. I seem to recall that you did possibly already have a go-around with an endocronologist but I can't remember for sure.
Anyway, frankly it always drives me crazy when people ask me "So have you tried ... ?" but I am unable to stop myself from doing it to other people. Apologies.
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jen
"It's one of the most serious things that can possibly happen to one in a battle -- to get one's head cut off." -- LC
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Re: Update
#313192 - 08/14/07 09:32 AM
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michele
Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan
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Jen, you hit it exactly, about the big clinics!!!
I have seen just about every ologist there is but no, haven't hit the endocrionologist yet. I saw a reproductive endocrinologist with the fertility things a few years back but not a regular one. I have an appt in 2 weeks with my regular gp and I assume the endocrinologist will be my next appt.
I saw my regular rheumy last week and she said yes I do have seronegative ra, to continue my humira shots and the steroids. But, she thought my biggest complaint at the moment was due to the fibro. They started me on the lycria again, tried it before and couldn't take it but we started at a lower dose this time. It was just fda approved for the use of treating fibro.
My overall pain is down to about a 6 or so with specific joints hurting worse at the end of the day. It was a screaming 8 all the time. But, they have me doped on so many pain pills and crap that I am more than dazed and confused all the time!
The swelling in my neck has gone down but my hands and feet are just as bad. I am not on much anymore because its hard for me to type. Hopefully my gp can sort things out a little and point me in the right direction. My blood pressure and my pulse have been sky high lately. I get these attacks that are sort of like a panic attack without the panic. My rheumy was rather startled the other day when I was in her office but I assured it that it happens frequently. My bp gets up to 180 over 110 and my pulse gets over 120, I shake and sweat and get breathless and dizzy, than it goes away and comes back whenever it feels like it. Crazy stuff, I am just a medical mystery at the moment!
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Taking it one day at a time.....
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How are you holding up? Did you meet with your GP this week? Are you going to be seeing an endocrinologist after all?
Just checking! 
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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]
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Re: Update
#314483 - 09/03/07 05:49 AM
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Ulrika
Reged: 08/20/06
Posts: 581
Loc: Uppsala, Sweden
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Thinking of you sweetie.
Hugs!!!
/Ulrika
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Cassandra
Live like there's no tomorrow. Love like you've never loved before.
IBS A 20+ years, Chronic Migraines, Chiari Malformation (decompressed June 22, 2010), Brachial Neuritis, and ??? the list just keeps growing, but I'm still shiny side up!
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