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I have no doubt that positive thinking can help ones view on life. However, I would like to see the authors of these types of programs suffer debilitating pain for prolongs periods of time and see what sort of outlook they have!  No, I am not wishing pain on anyone and as I said, thinking positive does help, but only to a point. You can not think yourself well from a physical disease and being in such severe pain for so long tends to make positive thoughts a tad bit harder to muster up! 
I will still checkout the book. As soon as I am up to it, I want to make a t5rip to the bookstore anyways. I do have several self help sort of cds I listen to.
I appreciate the suggestion and mean no offense. I know its not the same but it gets frustrating after a while when people keep saying, oh, you just need to eat mud for a week, or exercise and lose weight or rub this miracle ointment all over yourself or stand on your head and drink water. All fine and dandy but at the end of the day, my immune system is still rotting my body from the inside out.
Sorry, I guess this is very negative but I went down another .5mg on the prednisone and really just wish someone would shot me and get it over with. The physical therapy for the muscle con strictures I am going through is extremely painful, I actually hyperventilated and passed out from the pain Wednesday afternoon, my hips are so swollen from it, my fat pants are even tight. I had to sleep in the recliner because I can't even lay day.
They have started me on Oxycontin slow release and an immediate release pill for the pain. I got another toradol shot yesterday and I am covered in lidoderm pain patches. And, I still hurt.
I am tempted to just stop the prednisone cold turkey if each time I drop its going to be like this. I know that would probably shut down my kidneys and put me in the hospital but man, just not sure how much more of this I can endure. I dropped just half a milligram this time instead of a full milligram thinking it might be easier but, I was wrong. I am so out of spoons.
Hmm, guess I got a bit off topic there. Sorry. Been a really rough week. Will and I are still having issues, money is really tight, I hurt. There is so much I want to do, like clean my house and weed the garden but I doubt I will even get out of bed this weekend. Argh!
Phew, that feels a bit better to at least get all that negativity out! I have not said one word about my health to Will this week and its really hard to deal with this by myself.
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Taking it one day at a time.....
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Oh Michele...
#306014 - 04/27/07 08:57 AM
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Ulrika
Reged: 08/20/06
Posts: 581
Loc: Uppsala, Sweden
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(That seems to be my standard subject when I reply to your posts unfortunately.  )
I'm sorry to hear you're still having such a tough time. It sucks. It really does. Over the last couple of months I have started to get to know a woman here in Sweden who has a lot of health issues from inflammatory bowel disease and she has had so much surgery and it's got to the point where she has taken so much meds that her body has become really sensitive so now the only med she can be on is penicillin. And even with that she has to change the type she is taking every few weeks. She is having a really tough time with it. I bet the two of you would have a lot to talk about...
Sending you lots of hugs and letting you know you're in my prayers.
Hugs,
Ulrika, IBS-D
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Taking it one day at a time.....
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Eat more fist
#306032 - 04/27/07 02:47 PM
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Nelly
Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC
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Quote:
"...it gets frustrating after a while when people keep saying, oh, you just need to eat mud for a week, or exercise and lose weight or rub this miracle ointment all over yourself or stand on your head and drink water."
!!! ROFL and crying at the same time. I know so how you feel. The latest person to give me this kind of sage advice as my pharmacist, whom I'm convinced studied in some sort of supermax prison to get her degree. *sigh*
Sorry, it was my birthday this week and I topped off a really bad week of no candles or thoughtful presents with a long, painful appt at the dentist this morning, starting with a 4 day toothache and resulting with me $1K lighter in the bank account and "emergency gum surgery" scheduled for next week.
And if I hear "eat more fiber" one more time, I swear I'm going to take someone's eyeballs out with a dirty spoon.
Sometimes I just want to never talk with an outside person again, just sequester myself in the warm security of the boards. Pooh.
~nelly~ 
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Quote:
And if I hear "eat more fiber" one more time, I swear I'm going to take someone's eyeballs out with a dirty spoon.
I always go w/ "stick a pencil in your eye" but this is a good one, too.
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If you're not dead, you've still got time.
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Michele
#306034 - 04/27/07 02:53 PM
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hohoyumyum
Reged: 05/28/03
Posts: 2263
Loc: SacTown, CA
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This just sucks a**! I am so mad for you. I wish you could feel better. Big hugs comin' your way.
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If you're not dead, you've still got time.
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Let it all out, Michele!! I wish I could do more than just read your posts. Sending hugs and positive thoughts your way!!
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Lisa, IBS-C (Vegan)
Stable since July 2007!
Mommy to Rhiannon Marie (Dec. 13, 2008)
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If you do a search, you will find a thread on the EFI board that I started about the book, curious to hear what others thought and how it may pertain to IBS/health problems. Sand made some good points about those types of theories. It comes down to SINCERE positive thinking when you truly believe (as in the hypno I guess...retracking your thought patterns) but NOT blaming yourself for your health problems or shortcomings. Read the thread...you'll see what I mean. I have the book only and it was intriguing at first but then I stopped after about 3/4 through b/c I kindof got the jist (sp?). HTH.
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Originally IBS-D for a million years!
Then IBS-A, Now a transformed slightly C
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I know its not the same but late is better than never? Sorry everyone spaced your b-day. The dentist sucks even worse, I hate going their period but this sounds like a pretty big and expensive deal! Ack. Hope you have a xanax or two around to take before you go.
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