Re: Ulrika
#306377 - 05/02/07 04:50 AM
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Ulrika
Reged: 08/20/06
Posts: 581
Loc: Uppsala, Sweden
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Hi there!
Wow, glad to see there was no hernia. Too bad they got you worrying in the first place...
Yes, I am happy about my decision. They could probably reverse it if it didn't work well but I hope that won't happen as I doubt that would make things better... 
I have been pretty stable lately so that is nice but it's just a stress in the back of my mind wondering if it will change and if so when. Plus every time something has to be changed in my daily routine I freak out. Like, if I want to try a new supplement et.c. Talk about IRONic:  When I had to start taking iron pills because I had a deficiency back in January I was so scared... But it worked out really great. Now that my iron level is normal I find I'm instead scared to stop taking them... 
Having a colostomy will sure be a huge change. After surgery I will have to be without my medicine for a short period at least to see how it works. That will be interesting. My fiancé and I want to have kids soon and my hope is of course that maybe, maybe I might be able to make it through pregnancy at least without meds, or at least keep them as low as possible. We'll see how it goes...
I hope I won't have to wait for too long to have the surgery done. Though the wait is at least 3 months here and summer is soon here so I'm hoping for September at least. We have to get this whole issue with my bladder emptying sorted out too. I'd hate it if having bladder problems would stop me from having this surgery. I wonder why problems seem to turn up in weird combos like that all the time. Like one problem makes the other one worse or, the medicine for one problem makes the other problem worse... I might have to start doing intermittent catheterisation but that's no fun since it increases the risk of UTIs which in turn leads to having to eat antibiotics which certainly wouldn't help with the IBS. Plus I have nerve pain in "that area" and that's finally under control so I don't want to risk making it worse again by "poking around"  there every time I have to empty the bladder. But hey, with a colostomy at least I will never have bladder emptying problems due to bowel problems again... At least not the kind of problems I've had now when I have to keep the bowels really slow to feel confident enough to get out of the house.
Ok, no point in worrying in advance. Too bad that's easier said than done...
I will sure keep you updated.
/Ulrika, IBS-D
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hey, Little Lisa, I was wondering if you were still doing well on the Elavil. Has your IBS gotten better or worse since the last time you posted? Ive been on Elavil 25mg once a day for a month, and have noticed it does wonders on my IBS-A. 
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Hi. I think that I can safely say that it has helped me.  I'm taking 20mg at bed time every day also. Ive been on it now for for a little over two months. I still have my moments around my period but it seems that I have had less of "those moments".
When I saw my gastro on May 17th I told him that I thought it had helped me 50%. I can say now being on it a little longer that I've noticed it has helped me even more than 50%. I'm hoping the longer I'm on it the less attacks I have. I realize that as long as I'm ovulating and having periods that I will suffer at least one time a month with some kind of attack but I think I'm ok with that
I've had really no major side effects from it either. I seriously needed to gain some weight as I was WAYYY too thin a few months ago and I have gained weight. Not near as much as I'd like to gain but I've gained some. It also seems like I don't lose it as fast either after having an attack as I did in the past. I feel much better about myself being a couple pounds heavier too. I was a little C the first couple of weeks but I welcomed it since I'm D. That passed and I don't notice having any C problems at all anymore.
I hope you continue to feel well also. I'm gonna keep taking it until it stops working which I hope is NEVER. I guess if I notice that it's not working as good, I may "up" the millegrams. He did tell me I could up it to 30 but I kinda wanted to wait and see what happened before i did that.
Now if I can just feel confident about going on long trips. I'm working on that. As long as the Elavil keeps me stable I should be ok. I have a ton of baseball tournaments coming up with my son and I'm a little worried on how my tummy will be. Let's hope for the best  I'll keep you updated.
You also keep me updated on how you are doing too! Thanks so much for asking how I was doing
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~~~Lisa~~~
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