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Sorry I haven't been posting
      #264088 - 05/18/06 07:31 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I've had a major flare of the fibro and Ra. I did a couple hours of garden work Sunday and I guess that was too much. I hurt like heck Monday and by Tuesday, I couldn't get out of bed. My eyes flared so much, they looked like something out of a zombie movie. I've been using steroids drops several times a day but they still hurt. Will had to drive me to work because I couldn't see well enough to even drive.

My knees are agonizing. I can't even get up off the toilet without help. My hands are throbbing masses of useless flesh. Will has the pony tail perfected since I can't do my own hair. I haven't been able to read the computer screen much less type.

Its all a little better today but not doing so well. Called the rheumy was told to give it more time. Thinking about looking for another rheumy for a second opinion but don't have the energy right now. Well, thats all my two functioning fingers can manage to type right now. Just thought I'd let you all know that I'm still here.

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Taking it one day at a time.....

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Re: Sorry I haven't been posting new
      #264091 - 05/18/06 07:42 AM
nomorepooch

Reged: 04/18/06
Posts: 285


I was just about to e-mail you! I am so sorry you are in pain and discomfort. If I lived closer to you I would come and help you!!!!!!!!! I will be praying for you.

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Have a blessed day! Rachel
Formerly poochibelly...
I have IBS but it doesn't have me!

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Gentle hugs and prayers for you, my friend!! new
      #264092 - 05/18/06 07:47 AM
bamagirl

Reged: 04/02/04
Posts: 1407
Loc: Alabama

I just learned yesterday that my MIL may be dealing with RA too. They did hip xrays yesterday that looked suspicious and sent her for labwork.

I'm so sorry you are in this kind of pain! I'll be praying for you!

--------------------
God is Faithful!

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Re: Sorry I haven't been posting new
      #264113 - 05/18/06 09:41 AM
lalala

Reged: 02/14/05
Posts: 2634


I was just going to post to see how you've been doing. I'm really upset that you're going through a flare right now. Ugh! I've been thinking about you a lot and really hoping that your meds would start working soon.

I'm sending you lots of gentle hugs, Michele.

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Love to you, Michele! new
      #264117 - 05/18/06 09:50 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

I knew there was something wrong, I can't say exactly why... I just had a feeling it was not a good day for you. Emotionally it's not a good one for me either.

{{{{{{{{{{{{{lots of gentle HUGS}}}}}}}}}}}}}}} Michele!

The image of Will doing your hair really warms my heart right now...

~nelly~

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Re: Sorry I haven't been posting new
      #264120 - 05/18/06 10:13 AM
Angela E.

Reged: 10/14/04
Posts: 2518
Loc: Michigan

I was wondering if you were ok. I am sorry that you are not feeling well. I really wish you didn't have to deal with all of this pain. I would really like to try and get together this summer. I am off in 2 weeks. If you are feeling up to it I would love for you to come down with Harley to see our place, but if not then maybe we could meet halfway to do something. **gentle hugs**

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Re: Sorry I haven't been posting new
      #264123 - 05/18/06 10:23 AM
pinkprincess

Reged: 08/17/05
Posts: 415
Loc: Manchester, u.k

awwwwwwwwww big, big, big, hugs. get better soon

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http://www.myspace.com/jo_elsmere

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Re: Sorry I haven't been posting new
      #264133 - 05/18/06 10:58 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Angela. I'd love to bring Harley over to play, we should pick and afternoon and work the details out later. I have a graduduation the weekend of June 10 and a wedding the weekend of June 24, otherwise I'm open.

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Taking it one day at a time.....

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Re: Thanks pinkprincess-nt new
      #264134 - 05/18/06 10:59 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan



--------------------
Taking it one day at a time.....

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Re: Love to you, Michele! new
      #264135 - 05/18/06 11:01 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Nelly! Yes, Will has been a dear! Good thing he used to have really long hair! He's not a stranger to how the rubber band works! If I don't start feeling better, I'll be shaving my head though like he does!

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Taking it one day at a time.....

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Re: Sorry I haven't been posting new
      #264136 - 05/18/06 11:03 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Maria. I was glad to see that the placquenil is helping you!! Hopefully the longer you are on it, the more improvement you will see!

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Taking it one day at a time.....

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Re: Gentle hugs and prayers for you, my friend!! new
      #264138 - 05/18/06 11:05 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I'm sorry about your MIL Bamagirl, I hope the dr's are wrong. Just last week I posted a great article on RA, did you happen to read it? If not, heres the link again http://www.arthritis.co.za/ra.html. You may want to send it to her, it's a bit technical but does a good job of explaning the basics.

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Taking it one day at a time.....

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Re: Sorry I haven't been posting new
      #264139 - 05/18/06 11:08 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks Rachel. Two of my girlfriends said they would come over and if I coach them, they would weed for me and plant some annuals in my pots on the back porch for me. Will has been a dear but I know its taking a toll on him as well. I just hope it turns around, we can't afford for me to not be able to work. He did offer to pay for a cleaning lady once or twice a month when business picks up as I just can't keep up.

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Taking it one day at a time.....

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Michele new
      #264142 - 05/18/06 11:30 AM
nomorepooch

Reged: 04/18/06
Posts: 285


It sounds like Will is a good man!

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Have a blessed day! Rachel
Formerly poochibelly...
I have IBS but it doesn't have me!

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I did see this, but will copy it now for MIL. Thanks!! -nt- new
      #264148 - 05/18/06 12:13 PM
bamagirl

Reged: 04/02/04
Posts: 1407
Loc: Alabama



--------------------
God is Faithful!

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I hope that you start to feel better. -nt new
      #264212 - 05/18/06 04:22 PM
hohoyumyum

Reged: 05/28/03
Posts: 2263
Loc: SacTown, CA



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***********************
If you're not dead, you've still got time.



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Re: Sorry I haven't been posting new
      #264219 - 05/18/06 04:41 PM
Janey

Reged: 10/25/03
Posts: 1716
Loc: Maryland

Michele,

I am so sorry that you are feeling terrible right now. I haven't been on the boards all day so I didn't know what was going on with you when I sent you an e-mail earlier.

How long does the doc think you need to wait? I know this is difficult for you feeling bad and having things that you want to do. Dont' push yourself to do the gardening. I know you love too but you need to take care of yourself.

Hugs sweetie. I hope tomorrow is a little bit better for you.

Love,

--------------------
Janey

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Sending lots of hugs.... new
      #264239 - 05/18/06 06:05 PM
Natalie1985

Reged: 08/09/04
Posts: 1329
Loc: UK - Leeds for uni, Merseyside for home!

so sorry you've been having a bad time of it michele....hope you get better real soon....thanks so much for all your support recently by the way...it has meant alot...you give yourself as much time as you need to rest and get a bit better...dont worry if you dont get a chance to post....am thinking of you...and sendinf LOTS of get well wishes.........

((((((((((((((((((HUGS))))))))))))))))))

--------------------
Natalie



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*HUG* new
      #264298 - 05/19/06 06:32 AM
khyricat

Reged: 08/05/04
Posts: 3612
Loc: Michigan

sorry to hear this, but let me know if you need anything I can do for you...

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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant


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Re: Sorry I haven't been posting new
      #264326 - 05/19/06 09:09 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks girls. I'm not sure how long the current rheumy expects me to wait. My next appt with him is june 5th. However, I just scheduled an appt with a different rheumy for a 2nd opinion for june 27. Not sure what else they can do but I feel like I need a second opinion as I just can't imagine living the rest of my life like this. My hands are really miserable and its difficult to type.

I've got a couple of friends coming over this weekend to garden for me and other than playing supervisor, I'm going to rest and hope I feel better next week. Love to all

--------------------
Taking it one day at a time.....

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Re: Oh honey, new
      #264369 - 05/19/06 11:58 AM
Kiwii

Reged: 09/27/05
Posts: 546


I'm sorry to hear that. I sure hope you feel better soon!!! Take it easy! Love ya!

--------------------
Kiwi
IBS-C



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Re: Sorry I haven't been posting new
      #264459 - 05/20/06 03:04 AM
Blondie13

Reged: 02/28/06
Posts: 641
Loc: Sheffield, England

You poor thing! I really don't know how you cope with so much going on, you're a real inspiration!

Hope you're still feeling better, lots of hugs and admiration heading your way...

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http://ibsblondie13.blogspot.com/

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