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Re: Hugs Beth new
      #257099 - 04/08/06 08:22 AM
Double J

Reged: 03/09/06
Posts: 900
Loc: High Rocky Mountains ibs-d

Hi Dott. How are you feeling today? I hope that you are better. I am lucky, I guess, I never have had much pain. Just a lot of diarrhea over the years. I have always tried to stay busy, even with my symptoms. Like I said, I must be lucky to be without the pain all the time. I pray that you are comforted in your life and that you find some relief.

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Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, “I will try again tomorrow”. Mary Anne Radmacher

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Re: BTW... new
      #257114 - 04/08/06 09:28 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Hi Beth, I can answer questions 1 and 3 a). In regard to 1,
point out the contradiction to both doc's and ask for an
explanation. If you're talking about Dr.'s J and K, there
shouldn't be any contradiction because they should be, and I
would think hopefully are consulting with each other on your
case. If the contradiciton is with your primary doc and them,
that wouldn't be surprising at all. Dr.J has never contact-
ed my primary doc here, but as you know, he has talked sub-
stancially with my GI doc's at home,and also has kept me
informed of what he's said. Well, except for the last call
you mentioned, but that was relatively recent. -Bob

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<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Beth, I'm thinking of you... new
      #257119 - 04/08/06 10:17 AM
renee21

Reged: 06/02/05
Posts: 486
Loc: Toronto, Ontario, Canada

hi Beth, I am sorry so to hear you are feeling so badly. I know it's been very hard for you - so dedicated to this diet and to your health, and yet finding no relief. I know that I am not alone in saying that I LOVE your presence on the boards - you always ask the very question that I am thinking in regards to someone's post. And I so appreciate you taking the time to write me that 3-part email last week! I am so sorry that I have not responded, things have gone a little haywire for me here, but I will do so very soon. I am also curious to hear how things went with your health psychologist. LOTS OF HUGS!!


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IBS-C, lots of spasm and trapped gas.

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Thinking about you, Beth..... new
      #257162 - 04/08/06 05:08 PM
barbie

Reged: 04/22/04
Posts: 2435
Loc: Texas


I am so sorry to hear of all your pain. I wish there was something I could say or do to take it away. Just want you to know I'm thinking of you and sending you prayers and bunches of hugs.

Barbie

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Re: Beth new
      #257346 - 04/10/06 08:15 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I'm so sorry you are going through all of this. I'm not sure what advice I can offer as I'm sorry but I can't remember what you said the other big problems besides IBS is. I know I'm seeing 4 different dr's right now and it really is difficult to keep everything straight and figure out what treatments go with other treatments.

I understand how chronic pain can wear one down. I spent the whole hour last week talking with my shrink about this. She really didn't have any magical words of wisdom for this but she told me that I need to BELIEVE that I will improve and that it will get better. Thats very hard to do some days when you wake up each day in pain. I'm not sure that I can help but I do understand. You can vent to us anytime you need. Love and hugs!

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Taking it one day at a time.....

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Do you believe, Michele? new
      #257388 - 04/10/06 12:31 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

It is so hard to do when everyday, before you even open your eyes, you feel the pain. And the last thing before you fall asleep is your pain.

And it didn't help that the PCP told me I will most likely always have pain.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Do you believe, Michele? new
      #257401 - 04/10/06 01:23 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Well, yes, I have to keep telling myself that the pain will get better. When? I don't know! I just keep telling myself that everyone has something to deal with, some people seem to have to deal with much more than others. Why? I don't know that either! Is it fair? Absolutely NOT!

I know its hard and it just plain sucks. Some days my pain is so bad, I have to ask Will to brush my hair because I can't even hold a hairbrush. Does it get me down and make me cry, yes. Does it get harder each day the pain continues, yes. However, we only have three real choices as I see them. 1. Suicide, not a good option, especially for you religious people. It would be an easy way to stop the pain but think of what it does to the people we leave behind. Also, what if they come up with a new drug or treatment to help us in the future? We have to keep hoping! 2. Be miserable and make everyone else around us miserable. To give in to the pain and let it ruin our lives. 3. Try and deal with it the best we can. My friends and family can see the swelling from the RA, can see the bruising from the medications, can see my tears every time I hold a baby. Sure I get angry and upset when, at 35, I can't even rake leaves for 15 minutes or weed my flower beds but if I let it consume me, than there is nothing left but the pain.

So, my house is dusty and my garden is weedy and I can't go out with my friends very often but I try and look at what I DO have, my husband and Harley and friends, even if they are cyber friends!I try to enjoy the sunshine even if it is just sitting on my deck starring at the weeds! LOL!! Sure, after an especially bad day or days, I'll look at all the pill bottles next to the bed and think it would be so much easier to just go to sleep and not wake up but to do that is to let the pain win. To do that is to let down my friends and family. I know you don't have a husband but you DO have a lot of friends and people who care about you!

If your PCP is telling you he can't do anything for your pain, then you need to find someone who is willing to help. Remember, I had THREE doctors tell me I was JUST depressed when, in fact, I have RA and Fibro. Unfortunately, not all doctors are good doctors and not all doctors really listen to us. I know you don't like to take medications but I'd be lost without my antidepressant and RA meds and pain meds and everything else I take. I just can't believe there is nothing to help you. Even if it is an anti anxiety medication or an anti depressant medication. If you can't afford it most pharmaceutical companies have drug assistance programs. Talk to your local social services. You should at least qualify for some counseling or pain management. You have people who care about you, look at everyone who replied when Alicia said you needed support! Love and hugs!!

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Taking it one day at a time.....

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Re: Great post, Michele! new
      #257422 - 04/10/06 02:54 PM
lalala

Reged: 02/14/05
Posts: 2634


I just started Plaquenil yesterday and on Wednesday my PCP gave me a prescription painkiller for those really bad days when the pain is so bad I can't think beyond it. Well, I'm feeling more hopeful and your post just put a lot of things into perspective for me.

I've been REALLY emotional the past couple of weeks. I started crying when I was choosing new glasses on Thursday. (The visual field test was fun, but I didn't enjoy the part where my eyeballs got poked. I have to do this every six months now? ) Anyway, my old glasses are missing the nose pieces and the technician asked me how long I was wearing them like that. I told him it had been a year and then I blurted out, "I've just been feeling so bad and let a lot of things go." I really surprised myself: I never cry in public, but when attention was drawn to the state of my glasses I realized how that reflected how I was feeling and how my life has been the past year.

I was feeling better than usual today so I made myself go out and buy some beauty products. I decided that just because I feel horrible doesn't mean I have to look like crap. Now, I just have to figure out how to use eyeliner...

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Re: Beth new
      #257424 - 04/10/06 02:57 PM
lalala

Reged: 02/14/05
Posts: 2634


Have you been giving anything at all for your pain? Or has your PCP even talked to you about learning how to cope or manage chronic pain? It isn't fair that you have to suffer when there are pain medications and programs that could help. When I'm feeling really bad and the pain is so intense, I almost feel like I'm losing the ability to rationalize and remember that the pain will eventually subside. I feel fortunate that I do have days without pain. I can't imagine what you're going through!

Beth, my thoughts are with you and I'm sending you big hugs!

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Hugs Beth new
      #257434 - 04/10/06 03:26 PM
Janey

Reged: 10/25/03
Posts: 1716
Loc: Maryland

I will keep you in my prayers Beth that you will be feeling better soon.

--------------------
Janey

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