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Did I respond to your response? I can't remembrr now?  
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Formerly known as Ruchie
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I'm doing pretty well, other than the lupus. LOL! But it's a mild case, I think, and I'm getting a lot of support from my friends and family. It is good to finally know and understand what's going on with my body.
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Re:Yep!
#256260 - 04/04/06 02:12 PM
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lalala
Reged: 02/14/05
Posts: 2634
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I just haven't been responding to any emails lately.  I've mostly been sleeping and eating - oh, and doing some spring cleaning!
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Re: Sand
#256265 - 04/04/06 02:19 PM
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lalala
Reged: 02/14/05
Posts: 2634
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So good to hear from you!  And thanks for your support. *hugs!*
I'm glad to have an answer too - I was just at that point where I was going to give up and say, "Maybe it is just in my head." Now, I feel like I don't have to quit working or always keep track symptoms or feel so guilty about not being able to do everything I want to do.
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I really like my rheumy. He whistles a lot while he's thinking, which is cute and unsettling at the same time. LOL!
I know you've been going through a lot lately, and I really hope you're getting the help you deserve from your doctors. Please keep us updated on how you're doing! Oh, and I love hearing about your wedding plans - such a beautiful dress you picked out! 
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Give us an update as to how you're doing.
XOXO, A.
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Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.
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Maria
#256279 - 04/04/06 02:35 PM
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Vicam
Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada
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Thanks  You're really sweet to be thinking about me when you're going through this. I think I'm finally on the right track...hopefully I'm right. And thanks for saying that you like the dress...I'm really excited about it! There probably won't be a lot of other plans for awhile just because the wedding isn't until 2008, but who knows?
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I got tested at the free clinic and just came home from getting my lupus tests results back (ANA and RA). I don't have it. Thanks for being so brave and giving me the courage to get tested. 
I hope you stick around to keep inspiring me and others and keep us informed regarding your treatment!
~nelly~
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My urine test came back normal! Whooo! Thanks everyone for your good thoughts and prayers. (I can't believe I'm so excited about my pee.)
I have a "med check" appointment with my PCP and my eye exam this week. I start taking my new lupus med on Sunday. I've stocked up on my safest (for IBS) foods, teas, and Imodium, in case I feel nauseated or have other GI side effects. I'm also working with my work supervisor and someone in personnel about getting on long-term disability; I'm almost out of leave and I want to make sure I don't lose any pay or benefits if I continue to feel so bad or if I get worse.
Here's something strange: I thought I was dealing pretty well with this lupus diagnosis. To me, from what I've read and from what the rheumy said, it's not as serious as it used to be. I mean, it is (the fatigue, pain, and arthritis SUCK), but there are a lot more treatment options and ways to manage it than 20 years ago. I am hopeful that the medicine will work.
Anyway, when I went to pick up the Plaquenil and was talking to the pharmacist I started tearing up! I don't usually cry in public, so it really surprised me to feel so...emotional. I was really happy when I first got the diagnosis ("An answer! Finally!"), but as the days passed I felt stuck and anxious - as though by having lupus I was being forced into a relationship or commitment. Isn't that weird?
I don't remember what I was thinking when I was at the pharmacy, but getting the medication just made the diagnosis REAL.
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