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Re: Kate new
      #254461 - 03/25/06 08:03 PM
lalala

Reged: 02/14/05
Posts: 2634


That's exactly how I feel - surprised, yet not surprised once I learned more about lupus. I never thought there was anything really wrong with my immune system...I think I was in denial.

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Re: I know! It's like a twist ending! (m) new
      #254463 - 03/25/06 08:08 PM
lalala

Reged: 02/14/05
Posts: 2634


Shannon, thanks so much for your support and prayers. I think it's enough just knowing that there's always someone here I can talk to.

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Re: Naturapanic new
      #254464 - 03/25/06 08:09 PM
lalala

Reged: 02/14/05
Posts: 2634


Thanks, Naturapanic. I hope I'll feel better too!

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Re: hohoyumyum new
      #254465 - 03/25/06 08:12 PM
lalala

Reged: 02/14/05
Posts: 2634


It's really good to hear about all these people w/ lupus who are leading normal lives. Thank you for sharing that!

I'm really hoping to have enough energy to make it to any future IBS meetings in Woodburn. It would be great to meet other IBS sufferers. Maybe I'll see you there!

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Re: Melitami new
      #254466 - 03/25/06 08:14 PM
lalala

Reged: 02/14/05
Posts: 2634


Thank you so much for the gentle hugs! I sure need them.

I spent most of today reading through past posts on lupus and Plaquenil at the BYDLS boards. Wow! What a great group of people! Sarala (Ruchie) had mentioned them before, but since I didn't know what was wrong I had no idea where to start. Thanks for the recommendation! You'll probably see me post there in the next week or two.

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Re: Just a quick note-- new
      #254467 - 03/25/06 08:16 PM
lalala

Reged: 02/14/05
Posts: 2634


I was so glad to hear that your mom is practically symptom-free since starting her treatment. Wow! I hope she continues to do so well.

Thanks so much for your support.

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Re: I have lupus! new
      #254468 - 03/25/06 08:21 PM
lalala

Reged: 02/14/05
Posts: 2634


Quote:

Wow.... I had no idea you were even being tested...guess that is my fault for not being around much.... Don't worry about it. I haven't talked much at all about it - I think in the last month or so I've only posted twice about it. I was thinking I had fibro or RA or that maybe it was just in my head.

My Mom has lupus...and has since I was in grade school.... but she has it very much under control now with medications... That's good to hear! there was not much available for the first 10 years of her having it That must have been so hard for her - especially having children and everything. Well, I'm glad she's getting treatment now. I wish her the best!

Best of luck to you... {{hugs}} and keep us posted on your progress.... Thanks, Shell. I'll probably be posting a lot if I get D when I start the treatment! I'm stocking up on extra-safe, mostly SF food and snacks right now.




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Re: I have lupus! *DELETED* new
      #254474 - 03/25/06 08:36 PM
Jeano

Reged: 03/20/04
Posts: 1392
Loc: USA

Post deleted by Jeano

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Re: Shelby new
      #254475 - 03/25/06 08:41 PM
lalala

Reged: 02/14/05
Posts: 2634


Thank you so much!

I hope you're in good health. I remember you posting about suffering from chronic headaches - I hope that you're finding relief and feeling much better.

Take care.

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(((big gentle hugs, my Maria))) new
      #254485 - 03/25/06 09:18 PM
_Willow

Reged: 04/06/05
Posts: 2090
Loc: Canada.

You will get through this sweetie. Treat your body with the utmost kindness. Now more than ever, eat healthy. Hmm, tongue in cheek, I should take my own advice...

But really, hopefully you can stave off the self-destructive body stuff...ok? Love ya!

--------------------
Keep on keepin' on...

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