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I am just so sorry that you have this all going on! How much can a person take you probably ask yourself!?!?! I wish there was something that I could do or say that would take all your pain away 
Being informed helps a lot though so read, read, read all about your conditions and educate yourself. You mentioned that if surgery could take IBS completely away, guaranteed, would you have surgery. My answer is probably yes. I've tried dealing with it for 17 or more years and get so frustrated sometimes with it. I'm a big chicken when it comes to any kind of surgery, probably because I've actually never had any. But yes, I think I'd really consider it. Again, if it was guaranteed!!!
Geez, makes my OCD of germs and our antibacterial stuff infactuation look minor to all the things you have going on. You can control these and get past it I know you can. Please keep being your great self and listen to everyone that tell you that you are a great/wonderful person!
Take care my antibacterial friend! HUGE,BIG,SOFT HUGS!!!!
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~~~Lisa~~~
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Info. truly IS power!
And with all the research I've done and info. I've gathered I pretty much have decided to have the surgery Lis.
It is NOT a gurantee it will help the IC. 50-50 chance. It IS a guarantee for a diagnoses though.
Complications include: A UTI. This means the possibility of pain worse than I had before surgery. It also means the infection can cause complications and keep me from healing for weeks.
BUT this is not too too common.
Thing is...I need to know. a)It will help me do the diet (no cheating!) for life because I will KNOW eating harmful foods is actually eating away at my bladder wall. b)It will help doctors to treat me properly in the future. c)It MIGHT (50-50 chance!) put me into remission for a while.
So....surgery seems to be the thing to do. *sigh*
Please do not EVER minimize out anxieties!! They are hard to deal with! G-d only gave all of this to me btw because I can truly handle it. If I couldn't He would have sent all this someone else's way. (Keep in mind...can only do this with HELP and lots of LOVE. Thank G-D for these boards!!!!)Just as He sent OCD your way...and IBS--and kids! I don't have any kids. You are truly an AMAZING lady Lis and you have overcome a LOT in your life. We cannot compare. Perhaps it is more difficult for you to get over your hardships than me with mine. in any case...no comparing *hugs* (I hear what you are trying to say...and I thank you from the bottom of my heart...but one person's suffering cannot be compared to anothers. I send you *mega hugs* for all you have overcome...you truly are special and wonderful and I love you!) P.S. I hope all of this made sense? If not please disregard and attribute it to days of pain causing delirium
Yay for big, soft hugs! Need those right now!  
I'm so glad you're my friend Lisa! 
*hugs* Ruch
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Formerly known as Ruchie
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Thank you Michelle...I needed those! Keep em' coming till between now and after I recover from surgery, ok? I need em' (I'm a scarydy cat re. the surgery!) 
Pain is better today! Hurrah! Still have frequency issues. But things are def. getting better. The IC/vulvo diet HEPS! AS does the supps the doc presribed. I am thankful!!!
How are you feeling? How's the nausea, D, etc.?
No Stevia for this gal. It's on the "do not eat list" for IC. I stay FAR away....I miss it though!
Hoping you are having a terrific weekend....must e-mail you soon (the pics you sent were lovely btw! You are gorgeous!!!!)
Love you!
*hugs* (gentle ones)
Ruch
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Formerly known as Ruchie
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I have pretty much decided on surgery.
Only 50-50 chance it will help the IC. BUT it will give me a definitive diagnosis that eating the wrong foods actually harms the bladder wall...much more incentive to stay on the diet FOREVER as the doc said. It will also help me to be treated properly.
I'm scared. But I have a wonderful fam. here to get me through....keep the hugs coming, please!
Bethie...you are very special. *hugs* *love* I wish I could take YOUR pain away! It hurts me that you suffer day after day with things. Perhaps you should consider doing research on the IC Network (google it). Many ppl with IC have IBS and your pain might not be where you think it is. Just a thought for you. If Heather's Diet isn't working...I'm guessing something else is wrong. I hope you feel better soon!
Sending you love and all the pain-free days you can have,
Ruchie
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Formerly known as Ruchie
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I took Neurontin for the pian. it helped! So did Elavil. But it seemed to effect weight gain (Elavil I gaine about 30 lbs! Yikes! Took me about 8 months to lose it!)
Extra weight is extra pressure on the bladder as well.
I am confused btw if I am on a pain med or am helped by the surgery if I am still harming the bladder wall...or if only pain is a prob? (I know how low pain with frequency atm...so I assume there is still damage. If that's the case I still have to eat the diet. At least with the surgery I will KNOW what's wrong and have a 50-50 chance of remission for a year or so).
With all that info...what would you do Linz? (I know...some of the info. is missing, sorry for that! Plan to speak to the doc Mon.)
PLEASE feel free to argue with me why/why not you would have surgery. It is a BIG decision and the best thing I can do right now is feel like I am making the best one possible.
Thank you Linz for being such an HONEST friend. I know I can come to you for the BLUNT and HONEST and IYO (in your opinion) way of looking at it. I value your friendship and I am glad to have you in my life *hugs*
With love,
Ruch
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Formerly known as Ruchie
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I'm sorry too Alyson! But at least I have all the support I do here from people like yourself! *hugs* Thank you for writing to show me I'm NOT alone!
How are you doing btw? What's new in your life?
Sending you abundant hugs
Ruch
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Formerly known as Ruchie
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my pizza dough recipe is simple and for me I just put a few veggies that are sorta safe and some sauce and with all the crust I normally do ok... everyone else gets all kinds of goodies as they want and cheeses as they want.. we have a few close friends who are all single and basically come over every shabbos... its kinda nice and a few matches have come out of it over the years... people just let me know early in the day if they are coming.. but we aren't shomer shabbos and neither are they.. so dinner isn't fixed until after work... it makes it nice since we don't have any Jewish family locally to share shabbos and holidays with... my local Havurah has a # of households that host most weeks and keeps track as a place to send new members and new people to the community as well...
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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