3 new diagnoses and one to be confirmed with surgery
#236060 - 01/05/06 04:28 PM
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Drum roll please...
1) Pelvic Floor Syndrome
2) Vulvodynia
I was for the 1st time (though I'd diagnosed myself with this...it doesn't count) diagnosed with a 3)autoimmune disorder. THIS is why, according to the doc, I have rashes and welts that come and go.
And IC on the way.
The doc told me I can NEVER deviate from the IC diet.
Surgery the 26th of Jan. Will be put out with generalized anisthesia. Possible biopasies of legions during procedure and catheter to wear home.
I am being given an antihystamine for the rashes. I am HAPPY about this! At least I know why now, y'know! 
This doc rocks...spent over an hour with me! Explained things. Believes diet is KEY! (But there are other things too...some of them not so nice.)
Still in gobbs of pain. Have lots of charts the doc gave me to keep track of foods, pain, acidity, and such.
I'm overhwlemed! Busy day y'know   Def glad I found such a good doc! That's for sure. NOT happy to have so many new Dx to add to my name. (Even though I suspected them...it's NOT cool having them confirmed. Can't I be wrong?!)
P.S. Am having the ultrasound for endo. done at the hospital the day I have the pre-op surgery. Could actualy be a total of 5 Dx when all is said and done. And lets not forget the thyroid nodule that they keep checking for cancer....
Oy.
Long day. No chocolate for this gal. Must find new fix. Any ideas? 
Please send all ideas on how to have fun and forget new diagnoses to Ruchie  
And don't forget those gentle hugs you have to share
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Formerly known as Ruchie
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Ruchie, OY! That's a lot to deal with, I grant you, but we're here to help! And help we WILL.
Quote:
Please send all ideas on how to have fun and forget new diagnoses to Ruchie
You know what I'm gonna suggest, don'tcha? DON'TCHA!? One guess. Here's a hint: how's that slip knot?
I SOOO can't help you with Pelvic Floor Syndrome, Vulvodynia, IC, rashes, etc. I'm having enough problems just trying to figure out the IBS crap! Oy.
No chocolate, eh? Okay, how about JACK DANIELS?!?
OR -- how about a HUG? {{{{{{Hugs}}}}}}}}
Bevvy
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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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I was trying to wait until my knitting class before starting something new and I didn't make it!
I will be praying for you!
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Have a blessed day!...Rachel
stable and sooooooo thankful!
I have IBS but it doesn't have me!
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Thanks for mentioning the knitting. My mind was going in a TOTALLY different direction and I was wondering what the hell the slip knot was for. KINNNNNNKY ...
Oh God, I need a life.
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Carol
nós somos o que nós somos e o descanso é merda
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Hugs sweet Ruchie! I wish I could offer some advice but I am not familiar with these diseases. Just know I am supporting you!
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gentle *HUGS*
#236074 - 01/05/06 04:58 PM
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melitami
Reged: 02/23/04
Posts: 1213
Loc: Ewing, NJ, USA (IBS-D, Vegetarian)
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On the bright side, you have what sounds like an awesome doc to treat you!
I think the knitting is a great idea (still haven't found the time to get supplies and teach myself, though I want to). How about buying yourself some flowers? Reading a new book or watching a movie is what I do when I'm fibro flaring (and don't have schoolwork to do) and need to forget the pain a bit.
Here for you if you need me, sweetie. Don't hestitate to let me know if you need ANYTHING!
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Melissa
Friendship is thicker than blood. ~Rent
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Dearest Ruchie,
I am so sorry you are having a tough time. I don't really know what to say except that I'm sending you bunches of hugs to feel better soon.
Mega Hugs
Barbie
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Well, its great to know what's wrong adn it sucks to know something is really wrong! I really feel for you and we will all be here for you to help you get through it. I don't know what Pelvic floor syndrome is - sounds like something purely muscular? If so I may have some ideas for you when you get through the surgery, I'm guessing that one's not the priority right now?
For now, I think you need some escapism - fun/or trashy novels, renting some of your favorite movies, something that is just fun and mindless and can take your mind off of things for little bits of time. I'm sure the knitting idea would work too, its probably kind of meditative once you get into it, but I'm thinking something that will just let you shut down for an hour or 2 here and there to rest your head!
Who do you have for support outside of your husband? - It would be nice if you have any family or friends who are close, and could both see you now and help get your mind off things and maybe be there for support during your surgery - I mean someone who will help you and your husband out a little with making some meals or doing a sink full of dishes for you. It will be nice if you can have support right now, and also know that you don't have to worry about any of the little things. Oh this sounds like it will be hard, but hopefully by the end of this month, you will be telling us how much your symptoms are relieved!
Take care of yourself, Dan
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Ladies & gentlemen take my advice, pull down your pants and slide on the ice.
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Goodness, Ruchie, you sure have a lot on your plate, little lady! Well, hon, stay as close to God as you can and pray till the cows come home. Listen to some uplifting, soothing music and relax as much as possible.
I would definitely try to find some things to keep me occupied. Movies, reading, crafting.
Big hugs to you, sweetie.
Terri
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{{{hugs}}}
Diagnoses are GOOD, aren't they? Glad you've finally got somewhere and have a good doc.
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Ah, Ruchie
#236169 - 01/06/06 06:20 AM
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BL
Reged: 06/01/03
Posts: 3522
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You poor thing! You sure have a lot to deal with. I'm sorry you're going to have to go through surgery, but at least you now know what you're dealing with. I'm it sounds like you have a wonderful, caring doctor.
I'm not familiar with #1 or #2. Can you tell us more about those?
Sending you lots of gentle hugs that hopefully will brighten your day! (((((Soft hugs))))
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BIG HUGS RUCHIE!! You are taking this in stride with a lot of grace. I'm so glad you have a doctor who's looking for this kind of stuff!! My fibro doc appointment is on the 31st, and I hope they find something to treat, because I'm suffering right now!
No fear!!
~nelly~
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Big hugs to you. I admire your strength little one.
I think these diagnoses are a step in the right direction. Maybe the treatmenst will take away some of your pain. I really hope so.
((((((BEAR HUG TO YOU))))))
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Linz is right, it's good to know what is wrong, now you can treat them all properly. Delighted that you found a good doctor too, it makes all the difference.
Not much good at fun at the moment, although I love a good book to lose myself in, it always puts me in good form.
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S.
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and for fun- knitting/painting???I know you do both! and also maybe some snuggling with your dog? or your husband!
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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Progress means answers and answers mean healing....We're all hanging in there with you! Keep us posted as time permits!! Many gentle hugs!!
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God is Faithful!
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Take care,
Michelle
...the greatest of these is LOVE. (I Cor 13)
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I can't really thinkg straight.
I was up till 2:30 w/ the pain...couldn't lie down! I cried most of the night 
Thanks for all the support you all give *hugs*
I'm gonna try and hope I get this right...(sorry if it makes no sense)
I don't HAVE to have the surgery. What surgery does:
-Confirms the diagnosis.
-Can put you into remission (but the surgery can cause MAJOR complications including MAJOR PAIN...worse than before the surgery...for up to 6 months!  )
-Some people do ok w/ just diet alone...they are few and far between
-If you DO have surgery and it puts you into remission...it is NOT permanent! one woman on the IC site has had the surgery at least 35 times!
My question for you: If you could do surgery for IBS to make the pain go away (and IBS was actually doing damage to your intenstines) would you do it or would you try to just do it with diet alone and see what happens??
I can give more info. soon I hope. I'm just so groggy...so worn out from all the pain 
I know it's going to be ok. I am well prepared for this.
I have done soo much research on celiac which I am very thankful as this is "celiac" of the bladder. Foods cause inflimation of the bladder. So if I eat the wrong foods...I am actually doing damage to my bladder (no cheating allowed!!) But it's not gluten...it's a whole list of foods!!!
I am on an elimination diet for 2 weeks. Then I add in one new food at a time. I eat a bunch of it that day. If it hurts or causes urinary frequency...it's gone for LIFE.
This is serious stuff.
PFD, pelvic floor dysfunction, is not something I understand as of yet. I'll tell you more when I do.
Vulvodynia is also not something I get. I know it causes painful intercourse and has ANOTHER list of foods to avoid. Forever.
Sorry if this isn't comprehensible?? Will edit later if neccesary.
*hugs* I love you all...
Ruch
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Formerly known as Ruchie
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You give AWESOME hugs Bev
I am hoping hubby will take me to the high country as we say here to see some snow this weekend (hope it's snowing...gotta find out!) LOL
I need to get away...
I plan to practise knitting today even if only for a few minutes! This migraine won't get me down for long
*hiiiiya!*
Jack Daniels.....sounds good! Will you have some for me. No more alcohol...not even a sip! Can't even have things cooked in wine anymore!! Can you imagine? Lots to get used...but at least I have lots of help *hugs*
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Formerly known as Ruchie
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So what did you start making...tell, tell!
Thanks fo the prayers...i need them
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Formerly known as Ruchie
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Carol, you have a super life! I'm glad you're in mine *hugs*
P.s. You always make me laugh...you know that?
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Formerly known as Ruchie
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Angela,
Thanks for the support! I need it right now...
This is a LOT to deal with! It was tough with the doc throwing all that info. my way while I could hardly stay in my seat!! I'm thankful for the internet so I can learn some of this stuff AND go the bathroom in/be
Anyhow...I truly appreciate all the love you are sending my way...thanks! *hugs*
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Formerly known as Ruchie
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Ruchie, I send an infinite supply of perma-hugs (totally gentle! only upon demand/request). Hey, I've got tons in reserve as I never hug anymore physically (no-body here!) and more where they came from.
Autoimmune disorders SUCK. They never go away. I have 2. So, apart from that I send prayers & empathy. At best they are managed. Yes, we adapt. And you're strong. So, I'm sending prayers for G-d to send you what you need. Courage & strength my dear friend. Treat yourself with positive distractions as you learn/process more. Magazines? Journals? Your newfound knitting hobby? You're worth the small very affordable treats/delights.
Tons of VANILLA hugs.
Katie.
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Well...for now I'm doing research trying to learn as much as I can. The more I know the better I feel about the decisions I am making.
I had better go to the library and get some good books...what a fab idea! Thanks for that :-) :-)
Hoping to do something out-doory this weekend (but some of the pain will have to go away so I can get a good night's sleep...and the frequency will need to slow down...)
If not...I can DREAM/WRITE about it.
You all have such wonderful ideas!
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Formerly known as Ruchie
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I don't know what to say!  On the one hand, I think it's great you actually saw a doctor who listened and who was able to give you some answers. On the other hand, it must be overwhelming to deal with all this and understand what it will mean in your life. But, you know what? You ARE a strong person and you have the support of your IBS family, your doctor, and your hubby.
So, how are you doing today? What did your husband have to say about it?
*Gentle hugs*
Edited by SPASMTASTICAL! (01/06/06 11:11 AM)
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Thanks for the hugs Barbie!! It means a lot...
I told hubby that I have friends here all over the globe...I'm so thankful! If I have to be in pain at least I know I'm loved
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Formerly known as Ruchie
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Thanks Dan.
Yeah...something IS wrong. And it is pretty serious.
I don't really understand it yet, PFD. Or vulvodynia for that matter. I will keep you posted!!
Maybe you all can help me...I am SO intimidated by knitting! All my life I've had ADD and LD's and been told what I can/cannot do. And the truth is...I've never been able to follow instructions from a book or things from pictures. I've always been more of a hands-on learner. So i am having a tough time even TRYING knitting. I try and I leave it for a few hours. I try again...leave it. It's like I get sooo psyched out! I WANT to learn but I'm sfared or something, make sese? 
Anyway...
No fam around. Other end of the country No close friends here I can go to for hugs or anything...
But I have a super therapist and all of you, friends in other states who I talk to and hubby. I need to find a way to talk more to others and less to hubby!
Ahh...the idea of having someone come over and shmooze and do the dishes is a DREAM for now...
I think I will do some writing and perhaps write about why I'm so scared of knitting even...and perhaps write about what I'm experiencing...not really escapism huh?
Keep thinking
Thanks for the concern and caring...much appreciated!
Ruchie
P.>s how are you doing? No attacks today I hope!!!
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Formerly known as Ruchie
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Thank Terri! *hugs*
It means a lot to hear from you :-) :-)
Yes...it's SO import. to stay close to G-d right now! I asked Him to help the doc help me...and He def answered my prayers by giving me such a super doc
Thanks for the support and ideas....you're super
*hugs*
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Formerly known as Ruchie
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I am SO thankful to have the Dx as much as I hate that I have to them...at least we can help me get better
Thanks for your positive attitude Linz *hugs*
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Formerly known as Ruchie
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Hey BL! 
IC, interstitial cystitis, is an inflimation (sp) of the bladder wall.
My understanding is that eating harmful foods ebbs away at the bladder wall (like eating gluten ebbs away at your intestinal wall with celiac...if I'm wrong someone correct me!) and some rare cases people get their bladder replaced (these are very very bad cases!) Basically...eat right or HURT! Seriously...it causes pain as well as frequency and probs w/ intercourse as well as incontinence.
PFD, Pelvic Floor Dysfunction is not something I understand yet. I think Dan is correct that it is muscular...but I have to learn more.
Vulvodynia I don't really have a clue yet! I just know diet helps.
Thanks for asking about it...the fact that you want to learn more makes me feel VERY supported *hugs*
Yeah, it's a full load. But I believe I can carry it (esp. with so much love from all of you!) if G-d gave it to me. Easy to say...not easy to do...
How are you doing? How's the house? Update me
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Formerly known as Ruchie
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Oh I am so sorry Ruchie. I hope you feel better soon. I hate to see you not feeling well. All the best and I will keep you in my prayers.
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I'm So glad you get to see a doc this month! Having a good doc is SO important!
I'm thankful for this doc for sure! *hugs*
Thanks for your support Nelly....I hope your SAD goes away soon...
I LOVE winter...but I am hoping Spring arrives soon so you can feel better
Love you!
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Formerly known as Ruchie
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Awww...bear hugs rock!
How's being married? I hope you are as happy as you look
I think things will get better. That's my attitude! Right now it's hard...and it's a LOT to adjust to. But I have sooo much love and support here...when I fall all the love you guys have for me will lift me up.
I feel like the most loved lady in town!
Sending you a great big Bear Hug back!!
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Formerly known as Ruchie
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Yes, she IS right! A good doc can yo take VERY FAR in clues to get better :-)
How are you doing? How's married life?
Thanks for your love Cailin *hugs*
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Formerly known as Ruchie
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Have a blessed day!...Rachel
stable and sooooooo thankful!
I have IBS but it doesn't have me!
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Thanks Amie!
I know my life will never be the same. These diagnoses are pretty heavy duty!
But it IS good to know. Now maybe I can begin to do something about it...
Snuggled with the dog last night. Perhaps with hubby tonight...that would be a nice Shabbos treat, thanks for the idea! *hugs*
P.S. How are you doing? Have a Gut Shabbos
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Formerly known as Ruchie
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Yes! Exactly! Thank you for your wise words...
How are you and hubby and son? I think of you often...keep me posted *hugs* You're in my thoughts!
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Formerly known as Ruchie
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Formerly known as Ruchie
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Katie!
This means so much. Esp. the VANILLA hugs!
How is the non-smoking going? Where are you holiding with caffeine?
I didn't know you had more than one autoimmune disorder...which ones do you have? What are your symptoms?
That prayer is exaclty what I need...thank you! *hugs*
Can you believe in the midst of all this, I'm still making Shabbos? LOL It's true....
I love you!!!
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Formerly known as Ruchie
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Ruchie
#236294 - 01/06/06 11:49 AM
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I made my daughters scarf and then a dish rag though I still think it's too much work for something you wash dishes with!
I am working on another dish rag now as I am learning to "purl". Not too difficult having mastered the basic knit stitch.
I am trying to wait until after class before starting a big project. Poor Bevrs has been putting up with my gazillion questions about knitting...faithful friend that she is, she answers each and every one!
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Have a blessed day!...Rachel
stable and sooooooo thankful!
I have IBS but it doesn't have me!
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Maria...you are seriouslty awesome!
Hubby doesn't have anything to say. Just listens and that's his way. I need to talk and get it out, y'know.
Oh boy...it's hurting to sit down...I'm gonna go stand up for a while...sorry to cut my response short *hugs* I love you!
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Formerly known as Ruchie
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ooohhhhh big hugs ruchie!
Diagnoses may be a good thing and a bad thing. Its good you know whats wrong, but just another thing to worry about!
take care of you! huuuuuuuuuuuuuuuuuuuuugs
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Awww...
#236328 - 01/06/06 01:00 PM
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I'm sorry, Ruchie. I guess knowledge is power, right? Hopefully getting all these diagnoses will help you and your docs to understand which sicknesses influence each other. That way you can fight many birds with one stone, so to speak.
Reading, scrapbooking, crossword puzzles, yoga, writing... You should be working on your memoirs, don't you think?
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Christine
Those who can do; those who want it done better teach.
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just crust, sauce and veggies for me... but it will be nice and a treat... and then gonna snuggle with DH and our friends who are coming for dinner.
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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Carol
nós somos o que nós somos e o descanso é merda
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Yup. Still standing firm with resolve not to smoke. Hey, it's classier to wear a patch versus freeze my boney butt out in the middle of the Canadian winter inhaling, huffing & puffing.
I have asthma & alopecia areata & osteoarthritis. Just when all my hair grows back, it falls out. I have a family history of autoimmune diseases. Most of my Dad's side develops diabetes. So...I've got to be careful. I'm at that age (early 30s) when stuff really manifests. My mother's side has thyroid disorders. So far, so good in that department. Damned endocrine systems! But the baldness, all over again really really hurts.
Hugs. It's going to be okay. You just need more info. re: specifics so you can figure out coping strategies.
Kate.
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Bear hugs so rock!
Being married to Tommy is amazing. His first day back at work brought him home with sunflowers for me!!! And my own cell phone too! I have been feeding him nothing but vegetarian meals and he likes my cooking alot. YAY!
Soak up all the love sis!
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Tina!!!
I'm SO happy that you are SOOOO happy! ! ! !
I'm glad Tommy likes your cooking...hurray! (Knew he would though... ) What did you make?
Sunflowers rock don't they?? He sounds like a wonderful hubby *yay*
You two keep enjoying each other...
Thanks again for being here for me Tina...it's rough right now but it will get better *mwah* and *bear hugs*
Ruch
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Formerly known as Ruchie
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Hey Katie!
You know I am SO proud of you?? You are doing so wonderfully...I know it's not easy breaking addictions all too well. I'm glad you are done hurting yourself and are loving yourself.
So where can I get my sugar patch? Seriously...I could use one!
You truly are a beautiful soul.
*hugs*
Thanks for your love and support ALWAYS
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Formerly known as Ruchie
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Thank you...how'd you know that would make me smile?
How are you doing sweet lady ?
Thank you again...for being my friend and part of my IBS family of support
Love you!
Ruch
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Formerly known as Ruchie
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Sounds like fun Amie! How'd it go? I bet you make a mean pizza
It sounds like you have lots of friends where you live...that's terrific! How often are you able to get together...
Enjoy hubby
Thanks again for your love ans support *hugs*
Love you,
Ruch
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Formerly known as Ruchie
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Have you tried stevia, Ruchie? Research shows that it actually significantly reduces sugar cravings. It's natural, non-carcinogenic. It's been around for over 1500 years. The Japanese use it versus aspartame (which is banned in Japan). Why not try that? It's supposed to be good for digestion, even. I've read that taking 10-15 drops prior to a meal reduces appetite, even. It's available in powder form as well as liquid drops. Don't expect it to be sweet in quite the same way as sugar, though. Seriously, give it a shot. It's supposed to be really helpful for hypoglycemia. Zero calories, zero carbs. Hey, they put it in the new toothpaste I switched to, even--this one doesn't nearly make me gag or cause an a.m. attack.
How are you doing, today?
Kate.
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Bad for the IC. Can you believe it?
Sugar btw is one of the few foods I CAN eat. Sugar and bread and dairy and meat YIKES! (Haven't had the sugar tho. None! I want to avoid it. But I'm hungry and I need food!)
I'm doing better! The doc has me alkalizing my urine. I went from a 6 at the doc visit to an 8 that night to a 5 this am and now back to an 8. It hurt most when I'm at low numbers...but it isn't the only thing that causes pain.
I am not eating very much still as I am terrified and it actually does hurt a bit to eat. I figure as I get better and have eliminated problem foods, the pain will become less and less and eating will be ok.
I can explain more details if you're interested...but my abdmone, vulva, pelvis, vaginal area, and bladder are a mess! And I will do what it takes to stop my bladder wall from being inflamed and harmed. So no cheating.
Sorry for rambling I guess this is how I'm doing today...still in pain but significantly improved...and determined to get into remission!!
*hugs*
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Formerly known as Ruchie
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I love this stuff. It has really helped me to reduce my intake, and now that I read Kate'ss words I realize my cravings aren't as bad as they were....
Alyson
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Everything in life happens for a reason, patience will eventually tell us what that is......
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with my new diagnoses...I can't touch the stuff!
I'm glad it's helping you though...it really does help w/ those cravings.
Have some Stevia on me
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Formerly known as Ruchie
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not really with it with this stupid stomach flu of the last 2 days.
you surehave a few new things on the list...sigh! But you sound so upbeat about it and I'm proud of you for that. I'm going to research your new things, so I can better understand them.
hugs to you and hey, diagnoses means treatment, which means feeling better. hang in there.
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Keep on keepin' on...
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I really feel for you, or at least I'm trying..:) I know I can't possibly know how you feel, but I know it must be a real bummer....Big hugs....
Alyson
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Everything in life happens for a reason, patience will eventually tell us what that is......
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Hmmm...a toughie.
Are you on Elavil? I know that's often rx'ed for Vulvodynia...and I think the new drugs for nerve pain (Neourotin?) can help with that too. There's lots of options anyway.
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Quote:
My question for you: If you could do surgery for IBS to make the pain go away (and IBS was actually doing damage to your intenstines) would you do it or would you try to just do it with diet alone and see what happens??
Well, I'd definitely have surgurey for my IBS is there was such a thing. For sure. I wish there was surgery. Of course, this is after years of trying diet alone...so maybe my answer would have been different at the start...but now, I'd most definitely have it.
But please don't let my choice influence your decision. It's your body, Ruchie.
I wish I could take some of this away from you...but just know I love you and send you infinite gentle ((((((((hugs))))))!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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I HATE that you're still in pain!!
You are MUCH TOO SWEET to have to be going through all this crap!!! We gotta get you better!!!
Kate is right about that Stevia! It's awesome stuff as long as you get the kind that doesn't have that bitter aftertaste! I use it everyday. I use it for everything...I want to get the powder so I can sprinkle it on stuff. I only have the liquid and it doesn't taste very good saturated on my toast!!! LOL!!
I will definitely keep you in my thoughts and prayers and if you need anything, I'm only an email away, K???!!!
LOVE YOU, HON!!
((((((((HUGS))))))))
Michelle
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IBS-D. Hiatal Hernia, GERD
Unstable
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I am just so sorry that you have this all going on! How much can a person take you probably ask yourself!?!?! I wish there was something that I could do or say that would take all your pain away
Being informed helps a lot though so read, read, read all about your conditions and educate yourself. You mentioned that if surgery could take IBS completely away, guaranteed, would you have surgery. My answer is probably yes. I've tried dealing with it for 17 or more years and get so frustrated sometimes with it. I'm a big chicken when it comes to any kind of surgery, probably because I've actually never had any. But yes, I think I'd really consider it. Again, if it was guaranteed!!!
Geez, makes my OCD of germs and our antibacterial stuff infactuation look minor to all the things you have going on. You can control these and get past it I know you can. Please keep being your great self and listen to everyone that tell you that you are a great/wonderful person!
Take care my antibacterial friend! HUGE,BIG,SOFT HUGS!!!!
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~~~Lisa~~~
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Info. truly IS power!
And with all the research I've done and info. I've gathered I pretty much have decided to have the surgery Lis.
It is NOT a gurantee it will help the IC. 50-50 chance. It IS a guarantee for a diagnoses though.
Complications include: A UTI. This means the possibility of pain worse than I had before surgery. It also means the infection can cause complications and keep me from healing for weeks.
BUT this is not too too common.
Thing is...I need to know. a)It will help me do the diet (no cheating!) for life because I will KNOW eating harmful foods is actually eating away at my bladder wall. b)It will help doctors to treat me properly in the future. c)It MIGHT (50-50 chance!) put me into remission for a while.
So....surgery seems to be the thing to do. *sigh*
Please do not EVER minimize out anxieties!! They are hard to deal with! G-d only gave all of this to me btw because I can truly handle it. If I couldn't He would have sent all this someone else's way. (Keep in mind...can only do this with HELP and lots of LOVE. Thank G-D for these boards!!!!)Just as He sent OCD your way...and IBS--and kids! I don't have any kids. You are truly an AMAZING lady Lis and you have overcome a LOT in your life. We cannot compare. Perhaps it is more difficult for you to get over your hardships than me with mine. in any case...no comparing *hugs* (I hear what you are trying to say...and I thank you from the bottom of my heart...but one person's suffering cannot be compared to anothers. I send you *mega hugs* for all you have overcome...you truly are special and wonderful and I love you!) P.S. I hope all of this made sense? If not please disregard and attribute it to days of pain causing delirium
Yay for big, soft hugs! Need those right now!
I'm so glad you're my friend Lisa!
*hugs* Ruch
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Formerly known as Ruchie
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Thank you Michelle...I needed those! Keep em' coming till between now and after I recover from surgery, ok? I need em' (I'm a scarydy cat re. the surgery!)
Pain is better today! Hurrah! Still have frequency issues. But things are def. getting better. The IC/vulvo diet HEPS! AS does the supps the doc presribed. I am thankful!!!
How are you feeling? How's the nausea, D, etc.?
No Stevia for this gal. It's on the "do not eat list" for IC. I stay FAR away....I miss it though!
Hoping you are having a terrific weekend....must e-mail you soon (the pics you sent were lovely btw! You are gorgeous!!!!)
Love you!
*hugs* (gentle ones)
Ruch
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Formerly known as Ruchie
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I have pretty much decided on surgery.
Only 50-50 chance it will help the IC. BUT it will give me a definitive diagnosis that eating the wrong foods actually harms the bladder wall...much more incentive to stay on the diet FOREVER as the doc said. It will also help me to be treated properly.
I'm scared. But I have a wonderful fam. here to get me through....keep the hugs coming, please!
Bethie...you are very special. *hugs* *love* I wish I could take YOUR pain away! It hurts me that you suffer day after day with things. Perhaps you should consider doing research on the IC Network (google it). Many ppl with IC have IBS and your pain might not be where you think it is. Just a thought for you. If Heather's Diet isn't working...I'm guessing something else is wrong. I hope you feel better soon!
Sending you love and all the pain-free days you can have,
Ruchie
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Formerly known as Ruchie
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I took Neurontin for the pian. it helped! So did Elavil. But it seemed to effect weight gain (Elavil I gaine about 30 lbs! Yikes! Took me about 8 months to lose it!)
Extra weight is extra pressure on the bladder as well.
I am confused btw if I am on a pain med or am helped by the surgery if I am still harming the bladder wall...or if only pain is a prob? (I know how low pain with frequency atm...so I assume there is still damage. If that's the case I still have to eat the diet. At least with the surgery I will KNOW what's wrong and have a 50-50 chance of remission for a year or so).
With all that info...what would you do Linz? (I know...some of the info. is missing, sorry for that! Plan to speak to the doc Mon.)
PLEASE feel free to argue with me why/why not you would have surgery. It is a BIG decision and the best thing I can do right now is feel like I am making the best one possible.
Thank you Linz for being such an HONEST friend. I know I can come to you for the BLUNT and HONEST and IYO (in your opinion) way of looking at it. I value your friendship and I am glad to have you in my life *hugs*
With love,
Ruch
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Formerly known as Ruchie
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I'm sorry too Alyson! But at least I have all the support I do here from people like yourself! *hugs* Thank you for writing to show me I'm NOT alone!
How are you doing btw? What's new in your life?
Sending you abundant hugs
Ruch
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Formerly known as Ruchie
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my pizza dough recipe is simple and for me I just put a few veggies that are sorta safe and some sauce and with all the crust I normally do ok... everyone else gets all kinds of goodies as they want and cheeses as they want.. we have a few close friends who are all single and basically come over every shabbos... its kinda nice and a few matches have come out of it over the years... people just let me know early in the day if they are coming.. but we aren't shomer shabbos and neither are they.. so dinner isn't fixed until after work... it makes it nice since we don't have any Jewish family locally to share shabbos and holidays with... my local Havurah has a # of households that host most weeks and keeps track as a place to send new members and new people to the community as well...
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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