I know you all will understand....edited
#235294 - 01/02/06 09:56 PM
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I have nothing left to eat. (Ok, that's an exxageration...but that's how it FEELS!)
No dairy (bad for IBS and sinus probs)
No fruit (bad for IC)
No cruciferous veggies (IBS)
No store bought bread (HFCS is bad for IBS and ascorbic acid is bad for IC)
I can eat no vinegar, (this means no mustard and no mayo), I can have no caffeine (no more migriane help...and caffeine actually gave me a loose stool--which is a nice change when you can't have a BM day after day), the only spices I CAN eat are basil, garlic, and oregano.
I'm allergic to tomatoes AND they are bad for the IC.
No more avocados. No more bananas. No soy either. no brown rice or whole grains. No white rice (allergic...can you believe the stuff gives me welts?? But I'm not having probs with gluten anymore...so it's not the gluten. My body changes SO much I can't keep up!!)
Ok...now for what I CAN eat! 
I CAN eat meat, fish (not smoked thank you), plain white bread, lettuce, the OCCASIONAL pear or apple, sugar (bad for the hypoglycemia and immune system so I usually stay away), and a few veggies (like corn is ok and lettuce and and maybe one or two others), and eggs (though I'm not sure yet).
I am just feeling sorry for myself and need some hugs. I went to the store and bought all these foods cause my IC was in remission and it came back.  
It's just so frustrating. 
Ok...so here's my plan: 
Eat leftover flanken soup w/out the flanken. Make baked garlic chicken one night this week. Another night I'll have baked oregano chicken. Another night I'll have a sweet potato for dinner with some fish.
Lunches will be hard. I suppose I could just eat the same thing for lunch and then again for dinner? 
Breakfast will be french bread every morning, all the time  
I'm concerned that I will have probs with gluten soon though if I eat it too much! I guess I can get myself re-adjusted to things and then try to eat less wheat all the time?
I just hate that my body is so warped and that I am constantly re-adjusting my menu to fit it. And that I buy stuff and have to throw it away.
I know many of you are SO much worse off than this...so please forgive me for complaining. I'm hurting right now...and it makes me very emotional and irrational. Thanks for letting me post to try to figure it all out. You all rock!!
If you have any suggestions...or even just some extra love to give...please sned it my way! I'll get through this...but I need the help and support and LOVE from my IBS fam. I know you guys and gals understand pain (can you imagine though having pain not only in your gut but your abdomen, fibro muscle stiffness, AND your ahem....!) Sometimes it's just too much to cry alone....I need hugs!)
I hope everyone here feels GOOD and is healthy as can be!!! *hugs*
I love you all, thank you SO MUCH for reading,
Ruch
Edited: After giving this some more thought, this could be a very good thing for me! It will cut out the fruit (sugar) and it will make me take inventory of every bite I take. It will help me appreciate life more and the times that are pain-free more. This will help me live a healthier life...just like the IBS diet has!
This will be for the good. It's just up to me to make it this way.
Thanks for teaching me soo much through all your posts and love everyone *hugs*
Umm...don't forget the hugs, ok  
--------------------
Formerly known as Ruchie
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*hugs!*
#235334 - 01/03/06 07:01 AM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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I don't have any real good advice, except that if you can have eggs, and you can still have almond milk, you can make yourself french toast for breakfast. I love french toast. Between that and pancakes (which, I think, you'll also be able to make, if you can have the eggs and almond milk), I could seriously just eat that and die happy, haha. It's a lot more interesting than just eating "bread" for breakfast!
I would do baked potatoes for lunches. Regular potatoes, sweet potatoes, whatever. Make them into piles of oven fries. I have definitely eaten nothing but oven fries for lunch many, many times. If that makes you feel a little unbalanced, have a veggie that you can eat with them.
Sounds like you have a pretty good handle on dinner already.  Something my mom likes to make for dinner now and then - a total throw-together - is to saute up a bunch of veggies (she usually uses onion, garlic, broccoli, and carrots, but you can use whatever you can eat), throws in some diced chicken breast, and cooks it till it's just done, and then mixes the entire thing with some cooked shell macaroni. Back when I was still struggling to eat, with the bad IBS, I often just made it with chicken and macaroni and whatever seasonings I could handle, and it was still a nice change from baked chicken night after night.
Ok, so maybe I did have a few ideas. LOL
*hugs*
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Re: *hugs!*
#235339 - 01/03/06 08:03 AM
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michele
Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan
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Casey had some good ideas, as usual! The french toast for breakfast sounds very yummy!!! Can you make some extra chicken when you make it for dinner and then slice it thin for sandwiches the next day for lunch? Can you eat hummus? Will usues that instead of mayo on sandwiches a lot!
I don't really have any other food suggestions but wanted to send more hugs your way! You are a wonderful person and I value your friendship!!!!! Lots of love and hugs!!!!
--------------------
Taking it one day at a time.....
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first of all, I just want to give you BIG BIG BIG BIG ((((((((HUGS))))))))))!!!!!!!
I didn't know your diet was so restricted!! We're like twins!!
Casey is right with the whole potato thing, if you can handle those. I can't handle A LOT of stuff right now but I can ALWAYS seem to handle potatoes okay.
I wish I could cure you! This sucks......hang in there!!
Love you!
BIG BIG *HUGS*!!
Michelle
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IBS-D. Hiatal Hernia, GERD
Unstable
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Dearest Ruchie -
I think the most difficult thing is to realize that a chronic health problem is just that...cronic! DH has bad lungs. To hear the doctor tell us that a bad x-ray was "normal" for him was hard. That cloudy, infected place is his "normal". His coughing/perpetual anti-biotic refills ect is his normal.
My son had his seizure follow-up yesterday. Another year and 1/4 of nasty meds and blood work,,,all the time praying there are no more seizures...is his new "normal".
My IBS...thinking I'm stable one minute and doubled over in pain the next...is my normal. We do understand. Acceptance and adjustments ARE hard! And extra hugs, love and prayers always help!!!
I am sending you a heartful of love and many prayers that 2006 will be blessed with much happiness and love and that you will always be the steady voice of encouragement to all of us who come here for support and friendship! YOU are a champ and I appreciate you!!!
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God is Faithful!
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I can eat meat, fish and eggs too, and the ever popular plain white bread. I can't do lettuce or apples or pears tho. I don't do any of the foods you listed you can't either, plus I can't have fruits or veggies unless they're green veggies boiled within an inch of their life.
In short I can completely relate!
Listen, don't fret. The key is to write down each dish you prepare. At the end of the week you'll have 21 dishes. Then try some variations. I'll do boilled chicken with salt, chicken broth, plus some toast tips drizzled with olive oil. Freeze some ginger ale in the freezer for a frozen dessert.
You're just going to be eating to survive for a while, but then cheating will be so worth it later.
Hang in there!!!!!!
~nelly~
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I know how you feel, your post has brought me to tears. I with rice and baked fish. Hot ginger tea. Today. I got nusea with chicken soup. My doctors all looked confused. My family wants me to chnage him.
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I don't get to post much anymore but I was lurking about here during a brief break and wanted to offer a great big
((((((((((((((((((((HUG)))))))))))))))))))))))))
to you, my friend. We DO understand. It is totally normal to get into a "funk" about how limited and controlled we have to be... especially when we may not be seeing immediate results that it's doing much good. Hang in there!!! You seem to be gaining some insights about yourself and that in and of itself is progress.
Vent away!! It is healthy.
Hugs again!
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Take care,
Michelle
...the greatest of these is LOVE. (I Cor 13)
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thats why I bought a bread machine- but seperate from that... if oyu can have the other things in it- try bisquick light pancake mix made with egg whites and any type of milk (soy, rice, almond all work) as an option for breakfast or even lunch or dinner...
Bill gets so sick of eating what I can that we fix our own dinners.. that helps a lot, and just eat together on occasion.. another question- can you handle hummus? if you can handle the beans- mix them with garlic and water and pita is a safe bread...
if you can handle beans in general- mom bean dip works well on sandwiches and can be adjusted to use the spices you can handle easily- beans with some OJ/water and spices mashed... works well as a paste (like peanut butter) on bread or as a dip if made a little thinner on carrots- I have been known to add tomato paste and all kinds of other things to it but not always!
Good luck!
Amie
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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Ruchie,
That is a huge pain in the butt you have! Geez!
I mean, I can eat anything pretty much right now, but I shouldn't....and my pain is far from excruiciating. I can't imagine how frustrating that feels for you right now.
Hugs, and you have such an incredibly positive attitude about this, it's VERY inspiring! You amaze me.
Question for you, What's IC-interstitial cystitis? And if so, how does food affect it? And why do people get ovaries that are so mean to them?? Not fair!
All my love,
Shan
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Keep on keepin' on...
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that bothers me too. I wonder why?
And nausea, if I didn't have that 24/7 I don't think I'd HAVE IBS very much at all. That's my only continuous symptom. I get paranoid thinking I'm pregnant.
Ok, I'm rambling.
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Keep on keepin' on...
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Quote:
My IBS...thinking I'm stable one minute and doubled over in pain the next...is my normal. We do understand. Acceptance and adjustments ARE hard!
It's funny you should say this, because it took me a while to get used to the fact that I'll be fine for weeks and then knocked on my butt with IBS for 2 days straight, over something previously safe.
and yet I am so totally cool with the fact that I ahve to take my ventolin 4x a day every day, and am on 2 other strong asthma meds, and this is one of the most serious asthma cases out there...but it's normal.I'd give anything to be an athlete, but, this is what God gave me and I'm OK with that. I guess after 30 years, you don't have a choice!LOL!
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Keep on keepin' on...
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Ruchie, big hugs to you!
I completely know how you feel. Sometimes I get so frustrated when I'm in an IBS funk and feel like I can't eat anything at all. Especially when it's during the holidays, it just gets so darn depressing sometimes. I actually cried this past weekend for that very reason. But then I heard from a woman I talk to online who was having terrible problems with her MS, and that helped put things in perspective for me. It's sad that sometimes it takes something drastic like that to do it. Does IBS suck?? Oh yes!! But Casey had some great ideas for you, so try to remember that life will go on, and I'll do the same. Take care!
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"Anyone can exercise, but this kind of lethargy takes real discipline." -Garfield
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Ruchie, I totally understand.
What works for awhile can change overnight, and then change again.
That's what being an organic human being in a human body is all about.
So, eat what works RIGHT NOW. Don't get stressed out about it. Don't be pushy with your body. Just listen/respond.
Don't feel guilty about trashing stuff that you cannot tolerate/eat. Honestly, I stopped feeling this way. If it's not something I can put in the Food Bank box then I toss it (unless my mother will eat it/wants it).
Focus on being nourished physically, mentally, emotionally, spiritually. It does have the bonus of a simplified menu.
I am the same way! Sometimes I go through long spells of just not being able to tolerate basic foods, so I don't eat them & feel better eating what I know can eat. I'm starting to go through this with certain foods, too & I feel MORE GUILTY re: feeding myself something that makes me feel unwell or ill. SO...(and I know this is borrowed from an age gone by) go with the flow.
And...sometimes things that manifest in the physical, it is my belief, are a part of psycho-spiritual lessons/journeys.
Don't worry about it. Just...respond. I can go for years with not being able to consume poultry or fish or certain veggies, specific grains, colours, herbs/spices, etc., only to have a complete changeover for no known reason seemingly overnight. We also need more of different nutrients at different times.
All will work out. It is just food.
Kate.
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at least we're not eating through tubes in our guts. we Can have food, at least.
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Keep on keepin' on...
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Re: Hugs!
#235508 - 01/03/06 04:12 PM
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hawkeye
Reged: 06/16/03
Posts: 705
Loc: NYC
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The biggest e-hug for Ruchie! there's no need to apologize for feeling bad - Its true that there are worse things out there, but IBS Sucks! Plus all the other issues you have to deal with, its no easy task. Still you manage to be such a great support for so many of us on the boards. I was so down last week and your posts really helped. So thank you and hang in there!
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Ladies & gentlemen take my advice, pull down your pants and slide on the ice.
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Too bad you have to deal with the breathing problems AND the IBS! At least at our house it is divided. (I know, sick humor! ) My DH's diagnosis is still kind of new to us, so I guess we keep hoping that place will just heal up and go away. We're beginning to accept his new normal and still waiting to see what my son's new normal will be!
God never allows anything He won't give us strength to handle! For that, I am thankful. THANK YOU for understanding too! I love this board!
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God is Faithful!
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Thanks Dan *smiles* You sure know how to pick someone up when they feel blue
How are you feeling btw?? No more attacks I hope!!
--------------------
Formerly known as Ruchie
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Y'know...we HAVE talked about this before Kate!!
Our bodies change so frequently...it's hard to keep up. Thank you for speaking out for me...and for always being there...and for keeping it in perspective:
It truly is JUST FOOD.
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Formerly known as Ruchie
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That hug is just TOO CUTE Kree *smiles*
You're right...there are worse off people than me for sure (unfortunately!) and it does help keep things in perspective. But at the same time...you're also correct that we're only human and sometimes it DOES hurt to have so much wrong.
You're so sweet and I want to thank you for being my friend...here's a *hug* backatchya!
P.S. How are you doing these days?? Did you get to have a yummy treat for the holidays after all?
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Formerly known as Ruchie
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Hi Shannon,
Thanks for your support
Yeppers...IC=interstitial cystits=whole list of foods you can't eat (including most nuts and seeds, anything acidic and even some alkalizing foods like avocados!)
Go to the ICNetwork.com (or do a google search for IC Network) and you'll see what I'm talking about...
How are you doing? How's your tummy? How's your awesome fam doing
--------------------
Formerly known as Ruchie
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Thanks Amie!
No beans or almond milk...but I think I have a plan (will share later)...
I truly appreciate you and your positive attitude and loving advice...thank you!!!
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Formerly known as Ruchie
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I'm glad to see that you have a plan inspite of all this, your confidence to help yourself is inspiring to others. Keep your head up, this will work out!
--------------------
Kiwi
IBS-C
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Michelle,
Thank you for your sweeter-than-ever post
I AM learning a bit about myself...so go me
It IS def difficult to keep with it...but I'm doing my very best. Thank G-d I can sit down these days without too much pain Hurray for that!
Thanks for the support...it means a LOT *hugs*
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Formerly known as Ruchie
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Oh no! *hugs* I didn't mean to make you cry!!
What everyone has been saying is true...it WILL get better. Sometimes I'm in pain and can eat nothing and sometimes I live a mostly normal life!
How are you feeling today Mara? Keep posting here so we can support you ok? Take care my friend
--------------------
Formerly known as Ruchie
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Nelly, you just plain rock!!
So far so ok. LOL
Ate chicken for din din having fish for lunch (egg and potato for bf this a.m.). Carrots as a snack. Din din tonight will be chicken I think. Not much in the "dish" department yet...but I bet I'll get there...esp. since you motivated me so well!! I like the idea of writing it all down so I have my own what-to-eat cookbook...
Thanks again for the super idea...and the love and support and sympathy! *hugs*
How are you doing? How's the fibro? SAD? It's great hearing from you :-)
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Formerly known as Ruchie
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YES! Exactly! Sometimes I forget it's chronic and I just indulge in VINEGAR!  I had cole slaw with vinegar and mayo and well...I thought the IC was gone so I could have this stuff. My oh my....will I ever learn?
How are you doing? How are hubby and son? Is your son still on tegretol?
Thanks for posting...write back soon
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Formerly known as Ruchie
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HI Michelle!!
Well, when I eat smart, it's sooo restricted! But...it's tough never ever cheating! What do you do about hubby? Do you cook stuff for him and eat your own thing?
I CAN eat potatoes *big phew* LOL I'm going to have to find Kate's recipe for zuccini taters...perhaps you can do the same thing with potatoes??
And who doesn't love baked FRIES?? (Ok...need recipe please )
Things are DEF looking up! I am SO glad I reached out and posted
How are YOU doing Mrs. Michelle?? Are ya making it through the night yet? Any days without popping the pink stuff?
Sending you lots of love *hugs*
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Formerly known as Ruchie
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Casey, you have advice coming out of your ears! (Much better than steam
Thanks you sooo much for your ideas! *hugs*
I would like to request recipes for all the stuff you posted about (or links if available). I can't really do any of the milk subs...at least not in a flare. But I can when I'm in/be flares!! So I have something to look forward to *yay*
I just want to say thank you truly...
*hugs*
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Formerly known as Ruchie
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Chicken sandwhiches sounds absolutely scrumptious! Thank you Michele...I'll let you know when I try that!
I value your friendship too *hugs* How's Harley doing? Any piccies for us yet? (Had to bug ya...just so excited!)
How's everything else? How's your friend doing?
Thank you again Michele...mwah!!
--------------------
Formerly known as Ruchie
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How are you doing Kiwii?
It WILL work...but I couldn't do it without all the wonderful support I get here
How's your IBS doing? I hope you have a happy tummy!
Thanks for supporting me and sending me hugs...I truly need em'
*hugs* back
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Formerly known as Ruchie
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I'm glad we have each other to share with! Thanks for asking about my family. Yes, son is still on the tegretol cousin, trileptal. Doing fine, so far...very thankful for that!! DH is improving from his last infection. I'm glad I have a doctor that understands that a $4.75 generic antibiotic helps him recover from an infection as well as those $90+ new drugs on the market!!
You hang in there and keep on keeping us encouraged! Like I said earlier, you're a champ!!
--------------------
God is Faithful!
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I send hugs! I have a few ideas re: how to jazz up your food without vinegar/lemons. I use these alot, too.
SOUPS!--splash organic broth or a funky Imagine soup on top of lettuce leaves/foods. (Veg. or Chicken stock is a great vinegar-free tuna flavour enhancer that I've used tons of times in the past!) Mix in whatever herbs you tolerate or leave it plain. Ultra fast, too. (eek, too healthy?) How about a portabella or shiitake mushroom dressing/sauce? Maybe something with roasted beets or borscht (beet soup)? (Actually I've done the beet one!) Cucumber juice really rocks. Oh man, now I've got a weird craving/thirst! A corn soup dressing? Butternut squash soup dressing? Potato leek sauce/dressing? GO NUTS!!!
VEG. JUICES--Carrot juice is a fabulous sauce/dressing. Explore other juices/combos. Can you handle a splash of organic apple juice here & there? Wouldn't pom. juice be a funky condiment? Mango/pear? Wild blueberry? (Actually wild blueberry/apple/beet is really really really yummy & interesting!)
A lot of cultures cook in tea, cook with tea. Hey, if you can drink it...uh, is booze okay?
I love using pureed veggies as condiments! Seriously. All the time! I guess this is sort of along the line with the soup idea, but much more interesting. Probably cheaper too.
Also, it gives you creative CONTROL!!! Nice, thick, yummy, creamy without a milk alternative...In the past, I've even used pureed veggies as salad/lettuce "dressings." SERIOUSLY. I have ultra-low mainstream market "product" tolerance. Hey, I eat organic mustard because it's the only kind my tummy can handle tiny doses of!
Anyways, those are a few post lunch notes I thought I'd "flash" you with, besides a MONSTER HUG. (Actually, I need a huge one too. Getting balder & balder each day due to alopecia areata, an autoimmune disorder that nothing much can be done to help & because I'm skinny & pale...I'm already starting to get looks/comments from people who misunderstand it as cancer, when it's hardly fatal just a kind of quirk of nature I lucked out with! Eeek. I wish I knew why my immune system launched this attack. Anyways, no more "poor me" about it. I just can't pretend to deny it for much longer.)
So, HUGS & total understanding.
Kate.
Edited by Wind (01/04/06 11:57 AM)
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Ruchie
#235789 - 01/04/06 08:16 PM
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lalala
Reged: 02/14/05
Posts: 2634
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I just wanted to say I admire your attitude. You always offer the positive side of any situation, and when you do that it encourages me to look at the positives in my life as well. Thank you!
I can't imagine all the pain you're going through. How do you manage during the day? Are you able to enjoy your hobbies and have some fun?
Please take care. I'm sending you hugs and positive thoughts!
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Re: Ruchie
#235858 - 01/05/06 07:24 AM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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I'm with Maria...I really admire your attitude, Ruchie. You know through my emails how down I get about my limited diet and lack of progression and all my multiple diagnosis.
But YOU help to keep me going with your positive outlook....accepting your lot in life with dignity. When I feel really bad (a lot) I think of you and remind myself that I am not the only one...and I strive to be more like you in my attitude.
Much hugs and love as we venture through this challenging life in spite of our circumstances.
--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Today is particularly rough. It is hurting to sit down.
BUT I go to the urologist today (2nd opinion) and I am hopeful that he can tell me what's wrong. If it IS interstitial cystitis then I will have this chronically. Bleh. Just like IBS. (IC is however more challenging than IBS. This could be why it hurts to sit so much...it can effect the bladder wall......I'll leave it at that.) If it's something else (like my appendix--which I doubt!) I want to KNOW! I don't want to walk around with appendix probs. *no way* So whatever it is...I am hoping G-d will help this man help me get better. *praying*
Having to force myself to eat this a.m. I feel SO full. Trapped gas, bloating, and pain throughout my abdomen (my whole right side hurt last night!) all make me feel like eating and drinking are more than I can handle. Got down a roll last night (small dinner roll) and one bite chicken. Working on my half a small sweet potato and water as I write...and I am DETERMINED to nurse this potato till it's done!
I need more hugs please...I truly cannot do this alone
I know I'll get through this...cause no matter what happens I have my IBS family to help me through it! Sending you all *love*
P.S. The hugs you send...genlte please
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Formerly known as Ruchie
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So sorry you are having such a rough time. I hope the urologist will figure out what's wrong and can get you feeling much better soon.
I will keep you in my thoughts and prayers today! You are loved! Lots of (gentle) hugs, sweetie. You can get through this. We are here for you.
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You CAN do this and you are NOT alone! We are all hear for you sweetie! I know its hard and unfair and frustrating when the dr's don't seem to help but just remember that you are loved and we are all sending you strength and love and very gentle hugs! Please update us when you get back from your appt!!!
--------------------
Taking it one day at a time.....
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Positive Thoughts
#235909 - 01/05/06 09:10 AM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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I'm sending positive thoughts your way, Sweetie. With such chronic symptoms, I have to believe there's a doctor out there who can figure it out for you! I thought I had IC, but the urologist said no. However, he seemed more interested in giving me a physical exam than checking for the IC.
Please update us after your appointment today.
Your Number One Fan
P.S.: How's the slip knot?
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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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So sorry to hear it's even worse today. Okay, I'm sending you the gentlest, softest, lightest hugs this morning.
It's good that you're getting a second opinion. I hope you get some answers and information on the best way to manage the pain.
I hope you let us know how your urologist visit goes today.
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...I was searching for when I posted last night. Ruchie, you do have a lot of dignity.
(But so do you, Beth! Even though you're struggling with your own issues, I see you trying to help out other folks.)
Edited by SPASMTASTICAL! (01/05/06 09:30 AM)
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Maria. You are a gift. A dignified, sweet, intelligent, wonderful gift.
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Formerly known as Ruchie
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Bevers!
The 1st doc just sent me home with an Rx.
My gyno Dx me with IC and said we need to check for endo (wouldn't even consider vulvodynia even though I have sooo many symptoms! I plan to find a gyno who has a broader sense of what's out there and is willing to talk to me and hear me out!)
Anyway...I believe we're gonna figure this all out!
Thanks for the positive thoughts...they mean so much!
How's WW? I'm still routing for you (not that ya need it...you're doing SUPER!)
P.S. I'm about to tkae a nap (I'm wondering if all the pain is wha'ts knocking me out...not the meds??) And I hope to have the energy to try the knitting then. Thanks for sticking with me!!!
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Formerly known as Ruchie
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Thanks BL...hugs back to you!
I'm soo glad your trip went so well! And I'm excited for your new home!! A Feb date...yahooo!
Thanks for your endless support...you are truly a gift in my life
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Formerly known as Ruchie
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When I feel down, I know I need help. So I ask for it. And that' the way I get through. I can't do this alone.
I'm glad you e-mail me and that you post here so often Beth (wouldn't mind if it was more either!!) As long as we get the help we need...we can do anything!
That's why I have Bev working on me to learn how knit. She won't stop bugging me til I've got it down pat I asked for help and I am getting it!
Sorry if this makes no sense and is rambly...I think the pain is making me sleepy...ok...gotta stop posting and head towards bed (sleeping is not fun though LOL)
*hugs* Bethie!!!
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Formerly known as Ruchie
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Ruchie..
#235941 - 01/05/06 10:00 AM
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epa_ginger
Reged: 02/23/05
Posts: 1158
Loc: Chicago, IL
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I'm sorry to just now respond, I haven't been vocal in the boards lately, I think I was just getting used to regular life and being back at work. My week off with my husband, just staying home, was the BEST, and I didn't want it to end.
But more importantly--I'm sorry for your pain!! It's a good thing you don't work, cause how on earth would you?!?! I have a feeling you will get through all this though. You ask the right questions, and see the right doctors, and have a lot of perserverance and that will make a big difference.
Sending you gentle hugs....
Ginger
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This is no joke, it's got to be super hard for you. I would also be overwhemed hon.
Could you meet with a nutritionist? I did when I cut out dairy to ensure that I was getting enough nutrition.
HUGS!!!!
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I am SO thankful I see the doc in a couple of hours! It's not getting any better.
You're right Tina...it's no joke. No nutritionist atm...my naturopath is another country (must look into when he will return )
I know that it will be ok though. Whatever the diagnosis...I have a super fam that are right here by my side *hugs*
Now Tina...you go enjoy hubby! No worrying about me aloud today...it's your first FULL day of marriage! I'm SOOO happy for you! *squeals*
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Formerly known as Ruchie
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God is Faithful!
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Verbal D.
#236027 - 01/05/06 01:56 PM
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_Willow
Reged: 04/06/05
Posts: 2090
Loc: Canada.
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Ohh, I'm having a D day, very few and far between, lately. But it's a D day! I'm relieved but can't go anywhere, LOL!
I had ice cream three days ago, and accidentally had avocado in sushi(I'm allergic, recall...IBS intolerant especially.)but was FINE that day. Scary, eh?
Then I had a laxative two days ago,due to some pretty serious C, but felt flushed out by early yesterday, and now as of last night, I'm crampy and D. Weird.
Oh well, like I always say, when I am A, I'd prefer to be D than C, because I feel sooooo much thinner, LOL! I will take it however I can.
My little pumpkin had a GI infection show up on the 29th and it brought a fever, diarrhea, pukes and major listlessness.It peaked on New Years eve, so we were there in the hospital with her.
Ironically, that was the only NYE I've ever spent WITH my husband...the nature of the restaurant industry. But we came home and she's OK now. Thank God, because it scared Mommy.
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Keep on keepin' on...
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Shannon! I'm sorry to hear about your daughter being so sick! That must have been so scary for you.
I hope you start feeling better too.
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Yep, it was so hard to watch. She's been in the hosp. before but never poked, never prodded, just for mini-asthma attacks.This was awful; watching her get a catheter almost killed both of us.
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What is your DH's lung condition if you don't mind my asking?
And yes, if it wasn't for God, I don't know who or where I'd be.
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Keep on keepin' on...
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Ruchie, you are so brave. I hope they solve this situation & provide helpful information. It's unfair that you must experience such discomfort & pain & suffering daily. You are in my prayers, dear friend. I hope hubby is comforting/helpful as well. Please keep us posted. I'm so worried about you.
More very gentle hugs,
Kate.
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Hey, girlfriend....First of all ((((((BIG HUGS))))))))~~~
I really hate to hear that you're going through all this.
You don't have to go through it alone.... It's good that you can come here where there are soo many people that support you..... I can tell that you are very loved!!
You want my recipe for baked fries??? Okay it goes down just like this....... Peel the potato using one of those carrot peelers (don't do it with just a plain knife, it takes forever!!)....cut it up, spray the pan with light cooking spray (Pam or whatever). Put the potatoes on the pan, spray them very lightly with the cooking spray if you wish (I do, they turn out crispier) and bake at 400 for about what.......40 mins...Viola!!! I don't use any spices or anything because of my GERD.
Thanks for asking about me!! I have went 4 nights without waking up with reflux!! I'm very excited!!
I still have bad days, but they're NOT AS BAD, as they have been. I do feel like I'm getting ready to have a mean attack right now, though.......I took 2 Imodium to stop my D attack two days ago and haven't went since then. So, it's about that time!!! Uh....Oh....gotta go!!
But, my GERD is definitely getting better!!
I hope you get better sooooooon, girl!!! I will keep you in my thoughts and prayers.
Love you!
Michelle
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IBS-D. Hiatal Hernia, GERD
Unstable
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Bronchiectasis. He was first misdiagnosed with a pulmonary sequestration, but further tests and two more doctors later, we are confirmed Brochiectasis. I'd tell you more about it, but in a nutshell, it is a damaged place on the brochial tree that won't clear properly. This results in repeating pneumonias/infections that set off the worst coughing you've ever heard in your life! Antibiotics clear it up, and inhalers keep it clear most of the time.
The doctor treating said that the surgery to remove the lobe would become necessary only if the infections get untreatable/unresponsive. We've been "medically managing" this since 2001. There are periods of wax/wane...sometimes as long as 4 months without antibiotics....sometimes 10 day rounds that repeat every 6 weeks. Just depends on weather/rest/exposure. Hope this makes sense.
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God is Faithful!
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I must have missed this....
Is she alright?? Are you alright? That's why I hadn't heard from you...
I'm SO sorry you had to go through all of this *hugs* Please update...
*hugs* Love you!
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Formerly known as Ruchie
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Formerly known as Ruchie
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Formerly known as Ruchie
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Yes, I'm happy to report, kayleigh is doing juuuust fine now, But I definitely have something going on. I've had D about 20 times in the last 2 days, which is HIGHLY unusual for even my D episodes. But no fever or vomiting. But, serious pain in my small intestine, so don't think it's IBS.... but it's MISERABLE!
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I know what the coughing's like. I've been hospitalized for asthma, bronchitis and pneumonia over 55 times in my 29 years. Not fun. then again my parents chain smoked(guess what I DO NOT DO!) and just made things worse.
But I've gotten better as I've gotten older-only hit hospital for asthma attacks every year or so now, I'm proud to say.
I had some alveoli rupture once, so I know the damaged lung bit. But he sounds like he's going through so much. I am sending you all my hugs!!!
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