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Re: I don't have a PCP... new
      #209967 - 08/30/05 08:24 PM
ChristineM

Reged: 05/31/04
Posts: 1662
Loc: soCal

Beth, this isn't your fault! It sounds almost to me like the doctor already knew your case or knew you were from the office next door. Try not to take the doctor's rude attitude too personally, okay? Good luck finding someone better!

I think finding a support group would be a good idea. Also, use up those 20 therapy sessions that you get. You need them, even if you will be a few hundred dollars in debt!

Big hugs! We're all here to listen!

--------------------
Christine

Those who can do; those who want it done better teach.

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Thank you! new
      #209968 - 08/30/05 08:25 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

It's confusing because this guy told me to stop community shopping for a doctor...so do I give up trying to find someone..or is this just one man's viewpoint? Is he right? Is looking for a new GI a waste of time? If one GI cannot help you, doesn't it make sense to try and find another? I never thought doctor shopping as a bad thing.

It is so hard to keep the faith that something will fall into place when I get shot down by the 2 doctors I tried to get into see other than the one who I am currently seeing without answers.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Shelby, you are such a good friend.. *DELETED* new
      #209969 - 08/30/05 08:29 PM
Jeano

Reged: 03/20/04
Posts: 1392
Loc: USA

Post deleted by Jeano

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You know... new
      #209970 - 08/30/05 08:31 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

When I was sitting in his offic, I saw a magazine on the desk that had my current GI docs name on it...so obviously these guys are still "collegues" to some degree even though they broke off into separate practices. They used to be one big practice..and split into two. I originally thought this was a good thing because I thought it meant they had a falling out and that this doc would be good for me. My OB recommended him to me after telling me how my old GI had a big chip on his shoulder and should retire.

I just keep coming back to the fact that he told me I need Mayo...is he right? Is it worth is to go to another local GI? It scares me that Mayo would be my only resort. Or the Ohio clinic. Who wants to be that bad?

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Yes, Cleveland clinic was the one new
      #209971 - 08/30/05 08:33 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

My God lift your sister from her pain, shelby.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Just a couple 'outside the box' ideas or something... new
      #209984 - 08/30/05 09:12 PM
Stephie

Reged: 03/10/04
Posts: 2696
Loc: Vancouver, Canada

Hi Beth,

I can't believe what you are going through, it is almost too awful for words.
First of all, let me reassure you that we will be here for your support. We will. Don't feel like you are a burden, or that we will get tired of you. So there.

The GI doctor you saw sounds AWFUL. Everyone else has suggested some good ideas, and I just have a couple of others to maybe get you some attention and hopefully some help...
If I were you, I'd write letters...
First, I would write letters to other doctors and explain what's happened to you. Explain what you NEED from a doctor and try to appeal to SOMEONE'S empathy.. someone has to have some, right?
The other thing that I would personally do is write a letter to local newspapers. When my mom was getting a poor amount of work, her and my aunt went nuts on the phone. The phoned a local government office, they wrote letters to the hospital, to the doctor's office... Everyone they could, they brought into the loop.
I would make a real fuss, I'd really make sure that SOMEONE pays attention to you and fights in your corner.
You need help and you can't afford it, people respond to stuff like that.
And it can't hurt, right?

Otherwise, did you say you don't have a regular doctor? You really should get one... Even if you can see someone regularly at a free clinic or something, at least they can refer you...
I know it might be a shot in the dark, but it might help.

Good luck, Beth, we're all here for you!

**hugs**
--Steph

--------------------
~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.

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Honestly... new
      #209987 - 08/30/05 09:25 PM
atomic rose

Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)

It's NOT just you - I've been sick since age 12 and only finally JUST got a good doctor not even a year ago. You know how old I am, so you can do the math. I probably saw about a dozen a**hole doctors in the meantime.

But you know, I'm really thinking you might have better luck with a PCP. I know it makes sense to see a specialist when you have so many GI issues, but honestly, in my experience of working with them in a hospital, a lot of specialists are pompous jerks. I'm sorry, but it's true... there's really only a very rare few who aren't.

At least here in Maine, PCP's can order up all the same tests and labwork that a GI doc can. If that's the case where you are, I'd try that angle, rather than wasting more time and energy on yet another useless GI.

And I agree with whoever said to go for the counseling: I know you need more, but that little bit will be worth every penny. If you think you have the energy for another phone call or two, look into any community mental health facilities in your area. There's one here, in Bangor, that specializes in helping the homeless. Obviously, I'm not homeless, and I couldn't wait long enough for them to help, but they knew just where to send me so I could get help quickly.

This really just isn't right. Man, they'd better be glad they're not dealing with ME, because I'd have knocked that b**tard's kneecaps out.

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Re: You know... new
      #209989 - 08/30/05 10:06 PM
beeceedee

Reged: 03/30/04
Posts: 4
Loc: SoCal

Beth,

You have been on my heart today, and I have been lifting you up to the Lord. He sees you, and His love for you is so great. I have been in the book of Job in my devotions, and it has reminded me of you.

You are in my prayers.

-Brandy

--------------------
Mostly Stable - sometimes "C"

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{{{hugs}}} new
      #210001 - 08/31/05 05:25 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Oh sweetie, how crap is that? Fyi, my GI didn't do alot for me and he's supposed to be one of the best in this country! He did all the tests and did them well and he tried but it was down to Heather and myself to sort the IBS out. Docs are a bit crap IMHO.

Re. the counselling, I know of some mental health charities in this country that help people to get help. I'll contact them and see if they know of any similar organisations in the States.

We'll never give up on you sweetie! {{{hugs}}}

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Re: Sorry, but I need help again new
      #210002 - 08/31/05 05:25 AM
CathUK

Reged: 05/25/04
Posts: 373
Loc: Cambridge, UK

I'm so sorry. People on this board have definately made me appreciate the NHS!! Although I have had a few arsy doctors (and a I few that I knew more than) on the whole I have been lucky.

You're case is SO not too complicated - there are millions of people with a variety of different things wrong with them who get treated properly and with respect.

I think my cat (who has a rare genetic disorder) gets better treatment than some of us on here and that can't be right.

Hmmm ... good luck.

Catherine

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