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Ruchie, sorry but I have another fibro question....
      #170304 - 04/16/05 01:42 AM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

I still haven't managed to get my blood test done but I was wondering, with the insomnia is it the aching that stops you going to sleep or is it the aching pains or is it a combination of both? I had one of those nights last night and despite being on AD's that are supposed to knock me out they are no longer doing their job and I'm spending less and less time getting the sleep that I need. Thanks in advance for the info

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Amy


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A hard one new
      #170537 - 04/17/05 05:02 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

It's all so linked together for me that I can hardly tell. Most of the time, I'm not even woken up by pain or anything...but if I have an achey/painful day, then I know I'll sleep worse.

You can't have Ambien, right? Have you tried Valerian? It really helps me.

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Thanks Linz. new
      #170695 - 04/17/05 08:02 PM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

I'm not sure what Ambien is and I'm a bit concerned about taking a sleeping pill (even a herbal one) on top of the AD's my doc has me on. I don't sleep but I feel completely doped out all day long. Plus with the girls waking up 6 to 12 times a night, I kinda need to be alert enough to get up to them. Thanks for trying to help though. I have a doc app tomorrow, I'll bring it up with him.

--------------------
Amy


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Amy new
      #170738 - 04/18/05 02:55 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Fyi, the AD's don't work for everyone's sleep! Elavil gave me insomnia . The Valerian works way better for me...and no morning effects.

Why do your girls wake up so often?

Ambien is a sedative hypnotic. Thinking about it, you probably wouldn't want to take it as it knocks you out, so mommy-ing would be out of the question!

Good luck with the doc!

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Linz.... new
      #170744 - 04/18/05 03:15 AM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

I don't know what's wrong with the girls. They've ALWAYS been bad sleepers. I even spent 4 days with them at a major hospital sleep clinic when they were about 4 months old and I think I'm the only person who's been through the clinic who's left with kids that slept as badly as when they arrived! It's very frustrating and very hard to continue to be a good parent when you have bags the size of China and can barely function without some sort of caffiene intake first thing in the morning.
Unfortunately the doc I'm seeing tomorrow is my IBS doc (the one who refuses to consider fibro). It's really hard seeing 2 doctors about 2 separate issues which are kind of intertwined.
Yep, this is my 3rd AD. The first one I ever took hyped me up, made my heart beat a thousand times a minute then gave me chest pains. It was great
The second one doped me out like this one did in the beginning but the doping seems to have worn off for nighttime and kicks in around the time I need to be getting up (despite me taking it about 3 hours before bedtime).
It drives me nuts. I can barely drag myself through the day, then bedtime rolls round and I'm so awake I don't know what to do with myself! Nothing seems to help, no amount of reading, meditating, or warm drinks will send me off to sleepland And now to boot I've had the tummy acting up for 48 hours and am back to pretty much SF food only, sigh, I guess there will be an end to it eventually.
Thanks for the help

--------------------
Amy


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Amy... new
      #170748 - 04/18/05 03:59 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

...if I were you I'd try Valerian! It makes such a difference to me....however, being woken up 6 times in a night would put any Fibromite in a flare IMHO. Are there are herbs (like Valerian) that are safe for kids?

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Linz, believe me the thought of drugging them has crossed my mind... new
      #171150 - 04/18/05 09:15 PM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

but I just can't do it to them. Secretly I look forward to them getting a cold occasionally so I can give them something that sends them off to dreamland, my doctor told me today to hang out for the behaviour specialist as it's really not normal for them to be doing this at their age! Thanks for the help

--------------------
Amy


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Re: Ruchie, sorry but I have another fibro question.... new
      #171157 - 04/18/05 10:25 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

I must've seen this late....

I find if I am achy I don't sleep. And if i don't sleep I am achy.

I think Linz said it best

The key to feeling better is sleep. Have you tried magnesium malate. I can't sleep without it! I take calcium/magnesium throughout the day. And then an hour or so before bed I take the magnesium malate. It took me a while to figure out how much to take of what. But once I did...I began to sleep better than I have since childhood!

How are you doing Amy? Did you get my last e-mail? I hope you're okay.... *big hugs*

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Formerly known as Ruchie

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Re: Ruchie, sorry but I have another fibro question.... new
      #171172 - 04/18/05 11:41 PM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

No I haven't tried magnesium malate I don't think. My naturopath put me on magnesium powder that tasted kinda orangey but it gave me horrid belly cramps so I stopped taking it.
As you can tell from my posts about my kids, sleep is a rare thing in this house
I'm not sure if I got your last email, I haven't had one since before you went away which I replied to but maybe it went missing like most of mine seem to do
Thanks for the info. I am okay, tired mostly and stressed and missing DH like crazy but otherwise okay.
My doc diagnosed me with an ED today and has put me on Luvox (simialar to Prozac I think) so hopefully that one might help me out a little.
How are you? How was your trip? I know it didn't work out quite as planned but hope you had a great time anyway
Big hugs back at you!

--------------------
Amy


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Re: Ruchie, sorry but I have another fibro question.... new
      #171178 - 04/18/05 11:52 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

I was at the HFS and a lady there gave me the best advice I've ever gotten:

To take magnesium malate!

It's not expensive. And it can save your sleep/sanity!

I take Nature's Life mag malate.

If you need more info...let me know *hugs*

Feel good!!!!!

*hugs*

Sorry, I'm crashing....I'll tell you more about me soon...

--------------------
Formerly known as Ruchie

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Will have a look tomorrow new
      #171183 - 04/19/05 12:35 AM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

at my HFS. I'll probably have to try another brand thanks to the worldly difference between Australian and American retail markets but I'll take the name with me and give it a go, you never know, I've found Altoids and Stevia in the past so maybe I'll get luck, otherwise will try another brand. Have a good nights sleep and I'll catch up with you later

--------------------
Amy


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Re:To everyone one, new
      #171194 - 04/19/05 02:15 AM
Gerry10

Reged: 10/15/03
Posts: 450
Loc: Las Vegas,Nev.

Hi doubletrouble,I thought I was the only one who couldn't sleep.I'm up every night an I take Ambien for sleep an Lortab for pain,But sometime it just dosen't work.
Tonight my feet an legs burn so bad.an no one will till me what to do for them.I'm also a Diabetic,I have Arthritis,an high blood.an I also have IBS.I use to be on the broad all the time.because I thought that was what the broad was for to help people who ask about different things,maybe I could help them because I'm older an maybe they could help me.but a member of the broad hurt my feeling very bad by saying I complain to much,so I stop writeing.I still read alot of the people who post,I just want to tell you all I'm 70 an didn't start falling apart till I was 60 work up till I was 60 an couldn't work any more because of the IBS.I may have had the IBS when I was younger .but back in them days they didn't know nothing about it.any how I had the D for a long time an now it has turn an I have the C.there are time I won't leave my house.because of everything I just hurt to bad,Please don't think I'm complaining because I'm not.I just want some of you young people to know IBS won't get better.because right now they really don't know to much about it.you have to take care of yourself.eat right,
Heather's food is very good,there is alot I can't eat because of my being a diabetic but I work around it,I have very good days an very bad days.today was a D day so I have to think back an remember what I ate,an cross it off of my list.I could go on all night you know I'm old but not dumb
an I really don't think I complain that much for what I have been thru this past three years,IBS is no fun but read Heathers book an try some of her food,you got to want to get up on your feet an try .I was so bad I couldn't even walk down the street,I have had 2 surgery in the last 21/2 years first I had a my gall Bladder remove they thought that was my trouble,still more pain so they run me thru a lot of test no luck so they gave me a exploratory surgery.
there they found out I had rotten appendix an lose of scar tissue so they took that all out.so if I'm complaining I think I have a right to complain.but I'm not I'm just telling you the way it has been for me these last few years,
I don't sleep at night but I'm lucky I have no kids so I can lay down an rest in the after noon.I hate going to bed because I get up feeling so bad in the morning.just till I can get my legs an body moveing.when I first got Heather books I live on fish,chicken,rice,oats,fennal tea.for about four months,an did a lot of praying an crying.an you have to have a good man to get you thru it an help you all the time.will it is 2:06 am so guess I'll close an try to get a few hours sleep.I could talk your leg off.we are all in the same boot.
Gerry10

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Neta G.Yale

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Hi Gerry, new
      #171246 - 04/19/05 03:45 AM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

Don't know what happened but I'm ALWAYS complaining on here. Maybe it wasn't meant as an insult. I've tried Heather's diet. Unfortunately the D got so bad I couldn't leave the loo! Then my doctor diagnosed me with malnutrician so I had to start eating properly for a while. I've been on both ends of the IBS scale too. C as a kid which turned to D as a teen. Both are awful although I think I prefer the D a little as at least I don't have that clogged feeling.
I know it won't get better as I get older, but I live in hope that by then they might have found something to help. They have to find something eventually, even if it helps just a little bit.
Hope you decide to come back to the boards. It's nice to have many different perspectives from all different ages. Plus it's nice to have support and friends who know what you're going through.
The sleep thing is awful, I drag myself through every day, can't wait for bedtime, then bedtime comes and i'm wide awake!

--------------------
Amy


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