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Re: help me please... new
      #169586 - 04/13/05 12:15 PM
Bobster

Reged: 04/21/04
Posts: 46
Loc: tampa, fl.

I dont think enough resources are used to find a cure for IBS. I also think the drug sponsored researches wouldnt want a cure. Like all other diseases and illnesses, they only want to try and treat symtoms. Thats where the moneys at. Cynical? yes maybe so. But I do not and will not believe that someone with the brains to find the underlying cause for this, cant find it. Especially what causes severe pain with this condition.

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Re: help me please... new
      #169703 - 04/13/05 05:16 PM
celestial7381

Reged: 07/01/04
Posts: 18
Loc: Everett, Washington

I am sorry to hear about you pain, but it sounds like me. I have found a great pill called Triphala. You can find it where supplements are sold. I would get pains daily that were so painful it would take all my energy and I couldn't even walk because it would hurt so bad. I have been taking Triphala for about 4 months now and it has really cut my pain back. I maybe get pains once a week, but they are not has painful. I take the pill right after I eat dinner, since that is the biggest meal I eat during the day, and it help your food digest. It removes toxins from the digestive track. I have had no problems with it. I also drink a lot of peppermint tea during the day.
We all know what you are going through because we have all felt it before. Keep in contact with us and let us know how you are coming along.

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Re: help me please... new
      #169724 - 04/13/05 07:13 PM
Bobster

Reged: 04/21/04
Posts: 46
Loc: tampa, fl.

I bought some probiotics and acidophilis today. I need to check out that triphala also. thanks

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I'm with Beth (Augie) new
      #169746 - 04/13/05 10:00 PM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

So far I've found no relief from my pain. I'm a D rather than a C so my pain is possibly different but it's 24 hour pain none the less.
I understand where you are, I'm there often myself, but I hang in there hoping that one day they'll find something to help us. Heather's diet has helped so many, Beth and I were 2 of the unlucky ones who haven't managed to find relief with it. Sending thoughts and well wishes your way. I hope you start to feel a little better soon.

--------------------
Amy


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Re: help me please... new
      #169753 - 04/13/05 10:56 PM
STAYLO

Reged: 04/13/05
Posts: 4
Loc: SOUTHERN CALI.

I think most of us have all been there on one day or another, & it truly is the worst pain. I am sooo sorry, I know how irritating it is. I always feel like this is the most ridiculous thing to have to go through. Why cant we have normal bm's? It's really not fair & the pain is just unbearable at times. I know that feeling when you feel like just giving up. I dont know if this will help but here goes, i usually cry first, whine a little bit more & then pray, pray to whoever & whatever you believe in. For me I feel that since nothing else & nobody else can help, maybe a higher power can. It may sound silly, but asking for help outloud brings me peace, so I can stop stressing out,& making it worse. If all else fails I try to take a nap if possible.Most the time when I wake up, I feel alot better. Take care & hang in there!!!

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Re: help me please... new
      #169762 - 04/14/05 04:05 AM
Jennifer1946

Reged: 02/13/05
Posts: 123
Loc: Karachi - Pakistan

Hi there,
Hope by now your pain has gone. Just prayed for you. I know exactly what you must be going through as I too went through all this. Try and relax and keep to your strict diet and eventually you will get rid of the pain. Have you seen a doctor? He would give you something for the pain. Let us know when you feel better. Jenny

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BETH new
      #169810 - 04/14/05 07:42 AM
Sara-Sage

Reged: 02/04/04
Posts: 5508


Ok, you are scaring me. I hope you have not considered doing anything drastic!!! I will go and kick your butt personally if that's the case. You can never give up hope. NEVER!!!!!!!

Thinsg are going to get better Beth. You need to be positive and hopeful. Email em abytime you are feeling low. That is an ORDER!

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Augie and doubletrouble new
      #170069 - 04/15/05 06:28 AM
puffybelly

Reged: 02/04/05
Posts: 99


I am another who has not benefited from Heather's Diet...giving up is giving in and you both have too much going for you to quit now.

I kept trying (I have had IBS for 22 years) and modifying my diet until I found what worked for me. Keeping yeast and refined sugar to a minimum and paying attention to my own triggers and really not worrying about what did or did not work for others is what has brought me to a stable point.

These boards though wonderful can also be a detriment in a way. I think if we were all honest with each other it is somewhat addictive and you can obsess over stuff which is unhealthy.

Focus on yourself and listen carefully to your bodies...consider other peoples "fixes" but try not to get frustrated if they don't work for you. IBS is an inexact science.

Hugs,

--------------------
"puffy"

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Re: help me please... new
      #170072 - 04/15/05 07:07 AM
BJake66

Reged: 10/17/04
Posts: 126
Loc: PA

I am so sorry for your pain..this was me last summer. That is when my IBS pain started. I was down on my knees calling 911 with my two little girls watching..long story short (with a week in the hospital and a couple ER visits later)..I am now seen at Yale University. But, now I am seen 6 months from now. I used to take 2 or sometimes even 3 vicodin every 4 hours at my worst point. NOW, with the help of good/knowledgable/caring/concerned doctors I am taking zelnorm, bentyl, hycosamine, anti-d's, acacia, miralax, and I am at day 97 of the hypno-cd's. I was doing accupuncture (I am not sure it was working that well for me - as I also had gastric bypass surgery three years ago). I follow Heather's diet to a "t" - (except when I bake..must have several tastes of raw mix). I also drink peppermint tea throughout the day (especially when I have a cold fruit ice-pops and it starts to trigger spasms).
I understand your pain as I am a IBS - pain predominant. Please see a GI specialist...let them prescribe meds that will/can help. All the best to you - please come here to vent - and let these wonderful people help you.


--------------------
Lisa

IBS-C, pain predominant

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Re: help me please... new
      #170086 - 04/15/05 07:52 AM
Stephie

Reged: 03/10/04
Posts: 2696
Loc: Vancouver, Canada

Hi there,
I don't have a lot to add because I too am IBS-D and I think pain management might be different (I'd be in agony if I took stool softeners!) so I am not entirely sure what advice to give.
I did want to reply, though, so that you know that we are here to support you and be here for you to vent to and to offer any help we can, whenever you need it.
I know how exhausting dealing with chronic pain is, and how devestating it can feel. It is very hard to go from one day to the next, not knowing how your body will feel. Please don't give up, though... there are limitless amounts of things and combinations of things to try, and you mean to much to someone I'm sure to just give up!

As for pain predominant IBS, I know that Heather (of this site) has pain predominant IBS. If you post on the Eating for IBS board for her attention, maybe, she might have some more helpful advice than I do. I know that she swears by peppermint capsules to help with the pain, have you tried that? What about diet? Are you on any sort of SFS? Have you tried any alternative therapies like accupressure/accupuncture or yoga or hypnosis?
Good luck, let us know how you are doing, we'll be waiting for updates!!
--Steph

--------------------
~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.

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