I need some support
#166154 - 04/01/05 11:46 AM
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heather7476
Reged: 08/09/04
Posts: 2996
Loc: South East Michigan
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I ma going to lose my mind. I swear it I am! I am in so much pain. My Girlie area is no better and my hands and feet feel like I am stepping or grabing glass everytime I close them.
I am am crying and crying because I DON'T WANT TO DO THIS AGAIN!!! I was so gratefull when My DV (Dysesthetic Vulvodynia) went away after Kenna! I had my LIFE back. Now I am sitting here relizing I am going to lose all that I gained again. I can't walk for any length of time It hurts to sit sex is a nightmare. I can't do this again I just can't. My God what am I going to do. My IBS is on full attack mode because I am so upset. Everyone just seems to say well that is bummer. It isn't just a bummer it is a nightmare. I actullay woke up this moring thinking GOD that was horrable dream till I remmbered it wasn't. I just don't how handle this. I can't belive this is happing again. I never had the feet and hand thing before not his bad. I just want it to end. I know having a baby will help but we have been trying for 16 months with no luck.
I just can't get a grip here. I am taking my Ad's but I am still big depressed I want to just stay in bed with the covers over my head. I just don't even want to live if it is going to be like this agian. I would never do anythign because of Kenna but it is the way I feel.
I just feel so helpless and lost and devastated. I know that this is a support group for IBS But I am hoping I can count you all to help through this like you have helped through the IBS.
Sorry to lose it on here but it so hard.
Here is a link where you can read what DV is! web page
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Heather7476
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Heather, honey I wish that I could make it better for you. I can't imagine what you are going through. What have your doctor's said. Is there anything you can take or do?? What about pursuing a second opinion or seeing a specialist of some sort? I am not sure if this is possible but I am just trying to throw out some suggestions. If it is this bad then you need to keep pursuing and bugging any medical person that will listen. There has got to be something to help. I know that you are in pain but you have to try and stay somewhat calm. Stress makes everything worse. Is there something you can do to try and take your mind off of it. Try scrapbooking or watching a funny movie or maybe make one of those great necklaces. Hang in there honey. <<<<<<<HUGE HUG>>>>>>>>>>>>
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but Angela is right- is there some sort of specialist in this you can see? if you need to come to A2, I'll meet you or if I can even go get you to bring you here!
I can't imagine dealing with that.. but I can only hope that there must be something that can be done, at least to ease the pain somewhat!
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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You do need some serious support Heather. Ok, we are all here for you.
It's normal to feel sad when your health is not well. You will get through this though. I read up on it and there must be something you can do. Don't give up. You have a beautiful little girl and great husband to give you as many hugs and kisses as you need.
Cry all you want to!!!
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Oh honey, I'm so sorry. I've been super busy today, the dr is in and we have a heavy schedule. I'll read that link on Monday but I agree with Angela, you have to get another opinion. In the meantime, ask your dr about some Xanax or soemthing to help calm you down. As we all know, getting upset will make our tummies worse. I think I'll be home all weekend so I'll call you tomorrow. Or you can call me tonight if you need someone to talk to. If you want, I can come over and maybe we can go to lunch or something? Hang in there sweetie, this sucks but we will help you through it! Super-dooper Big Hugs!!
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Taking it one day at a time.....
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Lean on us as hard as you have to, kiddo. Pain is pain and we here all get debilitating illness, no matter your flavor. VV sucks, and should be eliminated!! I humbly suggest chocolate as a means by which to administer the magic medication, if I had the power to change bad to good. 
Heather, I'm so glad you're reaching out to us here. You know we're here for you!!! We're frustrated right along with you, so share please! Many bear hugs to you, sweetie!!
~nelly~
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Heather -
Yeah - way more than a bummer! It's awful and horrible and I feel awful and horrible for you and I don't know how in the world I would handle it if it were me - I hope you have lots of freinds and family around - they will love you no matter how bad things feel, alright. And we are here to offer support - IBS, DV, CD, PMS - whatever!!! We will do our best to be here to listen and to be well wishers - always hoping the best for you and saying our prayers.
Big,big hugs.
Min
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Thanks You so much for all your support guys!
My hands are hurting so I am going to do this in one post
There are specialist I will have to go see. I am going back to the doc on Tue I hope and she will referre me out to one. I just don't know how much they will be able to do with me still trying to have a baby. I know Just what they would do if i wasn't trying to get PG I would be going back on elvial.
TIll then I haven't figured out anything to help my hands and feet other than stay off my feet and use my hands as little as poss. For my girlie parts uummmm well I sit with a bag of frozen peas on myself  I cried so hard when I did that yesterday for the first time in over four years. I never thought I would have to again, but it helps for awhile.
Thanks so much everyone!! I knew I could count on you guys!!
Thanks you all so much!
Michele call me tommrow when ya get a chance.
HUGS AND KISSES!!!
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Heather7476
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get rid of those bags of frozen peas that you are using for comfort! When my hubby used them for his vasectomy they kept thawing and gettin all mushy  . So someone suggested getting unpopped corn kernals and putting them in a zip lock bag and putting them in the freezer. Boy was a difference. They don't get mushy and stay cool for quite a while. We use it for the kids boo boo's too!
Feel better! Big hugs!
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~~~Lisa~~~
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I have no wise words for you, but I wanted you to know that I care about you and am sending you lots of hugs. Let's hope the specialist can do something to help. Maybe with another pregnancy it'll go away for good!!!!!! Hugs, Alicia
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Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.
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Hang in there Heather. I'm sorry you have to go through so much pain, but you at least have us here to listen. My prayers are with you right now.
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Oh, Heather, I am so sorry to hear how much physical and emotional pain you're in. It must be just awful. Know that we all support you and lean on us. Trouble shared is trouble halved, you know.
{{{{{{{{{{{{{{HUG}}}}}}}}}}}}}}}}}}}}
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Laura
Keep it simple!
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Oh Heather! How awful! I don't even really know what to say that hasn't been said already, but really, you know where to find us and never EVER apologize for "losing it" - we're your friends and that's what we're here for!
{{{{{{{{{{{{{{{{{{{{{big hugs!}}}}}}}}}}}}}}}}}}}}}
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*HUG*
#166303 - 04/01/05 07:29 PM
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khyricat
Reged: 08/05/04
Posts: 3612
Loc: Michigan
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I hope the doc can help... maybe taking a short break so you can go on the meds and then see if they can control it other ways and you can come off and try to get pregnant- a few months break from the conception cycle if it means less pain, and more chance later (if you are in this much pain- can your body conceive??? sometimes it will abort because of the pain!) might be worth it... just something to think about.
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Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant
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Oh Heather. I'm another one who can only offer masses and masses of cyber hugs! If I could make it to you in person I would give you proper hugs. I'll keep my fingers crossed and be praying that it eases up for you soon. Hang in there honey. We're all here for you.
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Amy
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Re: Heather,
#166322 - 04/01/05 10:37 PM
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gigi
Reged: 03/21/04
Posts: 1442
Loc: South Texas
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I am so sorry you are suffering and in so much discomfort. I read your link, and I have suffered from something similar in the past, but not as devastating.
I am praying for you honey, I hope you get better soon, I just hate it that you have to go through this again.
love to you, gayla
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that sounds painful and extremely uncomfortable, poor you. I'm not sure when you posted, but I hope you've managed to stabilise a bit?! Can't imagine what you're going through - but {{big hugs}} to you... and lots of smiles too     
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Heather Im so so sorry that sounds absolutely aweful I dont know how you are coping you are so brave.....you will get through this....we're all here for you....dont give up hope things will get better I just hope its as soon as possible....stay positive and vent all you need....email me whenever....sending lots of hugs....you're in my thoughts today!!
((((((((((((((HUGS)))))))))))))))))
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Natalie
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