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Update, I'm sorta back
      #124602 - 11/22/04 10:24 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Hi everyone, Heather called and said everyone sent hugs and was worried, thanks, I appriciate it. I haven't had time to catch up on posts yet but I'll update everyone on what happened.

Friday am, tested and got a BFN (thats a negative pregnancy tests for those not up to date on the lingo!) Went to foot dr to have cast removed. Removing the cast was horrible, it hurt SO, SO much! My leg from the knee down was fire engine red, swellon and very painful. It hurt just to touch me skin. The dr came in and says, "well, gee, it shouldn't be hurting this bad still" He just lightly touched my skin and I grabbed his arm a screamed at him IT HURTS DON'T TOUCH IT!!!!!!!!! Well, that got his attention!

He had me see a different specialist who said I had developed Reflux Sympathetic Dystrophy. I was sent straight to the hospital. RSD is a problem with the sympathetic nerves. The sympathetic nervous system controls things like, perspiration and your eyes dilating with bright light. Normally, these nerves do not have pain receptors. For whatever reason, these nerves have gone haywire in my foot. The only way to re-set the nerves is by doing a series of "lumbar epidural injections." They take a big needle, stick it in your side until it reaches the spinal cord and injects it with an anastetic. NOT FUN!!!

If this isn't treated quickly and aggresively, it can cause permanet nerve damage and permanent pain. Besides the ankle pain from the sprian, I know also have all this pain form the RSD. My foot is red and feels like someone is pouring battery acid on it. The pain is burning and shots all the way up my leg. Its still black and blue from the sprain and I still can't put any weight on it.

I had one of these spinal procedures done on Friday. It hurt like hell!! Afterwards, my blood pressure dropped to 60/40, I throw up and almost passed out. After an hour my bp was up to around 90/75 so they let me go home. All the way home, I felt awful. I was so weak it was all I can do to make it from the car to the house. As soon as I stepped in the house, my bp dropped again. I throw up again and almost passed out. Hubby finally carried me to bed. All day Saturday, I was very weak and sick.

I was given instructions to call this pain clinic by my house Monday am to schedule these spinal block procedures 3 times a week for a month with physical therapy an hour after each procedure. When I had the procedure done on Friday at the hospital, the started an IV and gave me what the DR called happy juicein my iv. I wasn't asleep but was at least drugged up. They then take a small needle and give you a shot of numbz it stuff in your back before they put in the big needle. They do a series of x-rays and shot dye in so they can see where the needle needs to go. I was very uncomfortable but my foot did feel a little better afterwards.

So, I called this am to get this stuff scheduled and I've got nothing but the run around!! I'm just in tears!! My foot is hurting again really bad, I have to be at the office and I've been on the phone for hours and still don't have anything scheduled!! At first they were telling me that they won't sedate me at all the do this and I told them they were crazy if they thought they were going to stick a needle the size of a garden hose into my spine and go rooter rutting around without giving me some drugs first!!!

The lady finally called back and said she talked to the dr and they will give me SOME sedation but now they can't get me in to do the physical therapy right afterwards!! What happens is after they give you the spinal injection, my foot is supposed to feel a little better, at least from the RSD. They want me to do the physical therpay right after so it won't hurt so much. I'm getting SO frustarted!!

Oh, I told them I had been trying to get pregnant so they made me pee in a cup before the procedure. They said they say a hint of a second line so they ordered a blood test. An hour later the blood test came back negative so they went ahead with the procedure. I retesting at home Sunday and it was still negative but I expected AF today and she hasn't arrived. Just one more thing to worry about! Because of the dye they inject and the x-rays taken it is unsafe to do while pregnant. I was told to "take a break" this month from TTC!

I was mostly ok with this until I've had such a hard time on the phone this morning, now I just can't stop crying!! Patients at my office are mad because the office is going to have to be closed a lot. I have to take the whole day off when I have these procedures done! I'm feeling very depressed and overwhelmed, not to mention the pain I'm in! Sorry to be so whinney but how much must one person suffer in one year?? I think 2 miscarriages and a sprained ankle are enough, now they say I have this RSD and my have permanet nerve damage and pain!!!!! Somebody just shoot me please!!



--------------------
Taking it one day at a time.....

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Big hugs for you, Michelle! new
      #124608 - 11/22/04 10:32 AM
Jennifer Rose

Reged: 04/02/03
Posts: 3566
Loc: Fremont, CA

Aw, Michelle - I don't know what to say except I hope all this clears up soon! You've been through enough and your body needs to let you breathe!

I can't even imagine getting shots in my spine. I shivered just thinking about it! You are extremely brave to get these done.

Hope you start feeling better and that the doctor's office starts working with you!

--------------------
- Jennifer

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Re: Update, I'm sorta back new
      #124611 - 11/22/04 10:33 AM
Janey

Reged: 10/25/03
Posts: 1716
Loc: Maryland

Oh Michele,

You poor thing. I have not been on the boards for awhile and really didn't know what was going on with you. I am so sorry you are having such a horrible year and that you have to go through all of this on top of everything else you have experienced.

I will keep you in my prayers that everything they are doing right now will work and your foot will be back to normal again. I'm sending hugs and good thoughts your way.

--------------------
Janey

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Oh my gosh Michele.... new
      #124614 - 11/22/04 10:37 AM
Cara4503

Reged: 03/20/04
Posts: 1844


You poor thing. HUGE HUGS FOR YOU. I could not imagine going through all that!! I was cringing reading about the needles and your red leg and pain! My gosh you are a strong woman.
I'm praying for you! And you've been in my thoughts!!
I wish there was something I could do for you.

I keep saying 2004 has been the most awful year....maybe the new year will bring lots of good things for us.

Take care of yourself! Call me if you need to talk to someone please!!!
Love,
Cara


--------------------
~Cara~


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Re: Update, I'm sorta back new
      #124616 - 11/22/04 10:44 AM
heather7476

Reged: 08/09/04
Posts: 2996
Loc: South East Michigan

Honey do not even stress about work right now!!! YOU are the most important thing right now!!! I hope things get beter!!! Give me that dam cinlic number and I will tell them what's what!!! LOL Big hugs!!! If you need ANYTHING I want you to call me!! I am not that far at all!!!! Call me when you feel up to it!!! HUGS!!!

--------------------
Heather7476


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OH MY! *HUG* new
      #124617 - 11/22/04 10:46 AM
khyricat

Reged: 08/05/04
Posts: 3612
Loc: Michigan

have you tried calling your primary doctor back for a referral to another clinic? or to see if they can work witht eh clinic on getting this scheduled for you so you don't have to deal with it?

I wouldn't worry about AF- given the circumstances, I'm sure the delay is due to stress and maybe even a reaction to the stuff going on in your body and the meds and injections!


*HUG* again- let me know if there is anything I can do to help.. I am so sorry to hear you are going through all this, but you will get through it!

Amie

--------------------
Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant


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Re: Update, I'm sorta back new
      #124619 - 11/22/04 10:48 AM
StephS

Reged: 09/11/03
Posts: 2123


Michele, I'm so sorry for all that you are going through. I can't even immagine all the pain you must be going through.

I'm hoping for some good luck and good Dr's to come your way! It will be a new year soon, and hopefully a new start for you! This hasn't been your year...at least the last half!


You desierve a much better year in 2005....LOTS of love and prayers coming your way!

--------------------




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Re: Thanks girls, new
      #124629 - 11/22/04 10:59 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I appricaite all hte hugs and support, I really need it right now. The clinic finally called back and they did get everything booked ok. I will have to be there at 8:30 am this Wednesday, than for the next 2 weeks I'll have it done Mon Wed and Fri. They will do the spinal procedure first-ouch-than torment me in physical therpay for an hour afterwards! They are kind enough to give me about 30-40 to recover after the procedure before the physical therpay. I just hope my bp doesn't drop like last time, I really thought I was dying!

I talked to my boss and I found someone who can at least work on Fridays at the office. We will have to close the office on Mondats all toghether and the dr will work alone for a few hours Wednesday am and close in the afternoon. Luckily, December isn't a very busy month for us!

I just can't believe all this is happening. I guess the RSD is pretty rare, the hospital said they only see 6-8 cases a year!! Leave it to me to get the weird stuff!!

My hubby isn't real happy because he has to drive me and pick me up for these appts. I feel bad about him having to take care of me but if it was the other way around I would take care of him!!! He's been a bit grumpy about things lately and its really making me feel quilty! I know I shouldn't but with everything going on its just too much to deal with! I'm sure I'm hormoning as well, if AF doesn't show up by Wednesday am I'll test before getting the procedure done again!

--------------------
Taking it one day at a time.....

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Re: Update, I'm sorta back new
      #124642 - 11/22/04 11:39 AM

Unregistered




Aww Michele I don't even know what to say to make you feel better - I wish there was something I could do! You are such a strong person to go through all of this and you have every right to be upset. My friend with leukemia has to get those lumbar things done all the time in her spine and she says no matter what sort of sedation there is they hurt so unbelievably bad I feel so bad for you! I agree with Heather, your work can take a back seat because you are much more important right now and hopefully your hubby will take really good care of you! BIG BIG BIG BIG HUGS to you and I hope this nightmare is over asap and you can get back to trying for a baby!



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Re: Update, I'm sorta back new
      #124643 - 11/22/04 11:40 AM
Angela E.

Reged: 10/14/04
Posts: 2518
Loc: Michigan

Michele-
Wow you have been through hell and back lady! I am so sorry that you are going through all of this! When it rains it pours! You do really need to take care of yourself first. That is so hard for woman to do. We tend to put ourselves last and our jobs, family, and friends first. Even though your hubby is cranky it is only because he is worried about you. Husbands tend not to handle when we get sick very well. (sorry any men reading this but it is true.) Good luck with everything and let us know if we can help.

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Michele..more hugs new
      #124649 - 11/22/04 11:52 AM
cailin

Reged: 08/12/04
Posts: 3563
Loc: Dublin, Ireland

Michele,
sending you the biggest hugs ever, you are coping so well, and I'm sure that once you are fixed you will be so happy and relaxed that making babies will be breeze after this

Sinead

--------------------
S.

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Sending HUGS to michele! new
      #124654 - 11/22/04 12:29 PM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

That is so horrible, sweetie!
I am really really hoping that these treatments help you out. And YOWCH, that sounds like so much pain! As tough as I am, reading your post made me cringe.
Get better soon
**HUGS**

--------------------
-Sheri

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Oh Michele! new
      #124655 - 11/22/04 12:30 PM
Stephie

Reged: 03/10/04
Posts: 2696
Loc: Vancouver, Canada

Hi there,
I just wanted to say that I am so sorry for what you are going through. The whole thing just sounds terrible, and I don't blame you for getting upset and emotional!
I hope you can just get the procedures over and done with, they do their job and you won't have to think about them anymore. I'll be sending good 'medical thoughts' (or something!) your way!
I'm sorry you have to give trying for a baby a break as well, that must be difficult for you.. But oh my goodness, can you imagine how awful a sprained ankle and this RSD if you were pregnant?? My sister sprained her ankle when she was about 7 months pregnant and she had a heck of a time getting around! At least it's only a month you have to stop trying for!!
Anyway, just wanted to send some good thoughts your way and I hope you start to feel better _really_ soon.
Let us know how everything goes!
--Steph

--------------------
~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.

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Michele new
      #124670 - 11/22/04 01:31 PM
BL

Reged: 06/01/03
Posts: 3522


My gosh, girl, what else is gonna go wrong? As my mother would say, "Bless your little heart!" Your hubby can just complain, but he's gotta take care of you.

I've never heard of this condition you have. And the treatment sounds very painful. I don't envy you! At least they agreed to give you something for the procedure. I can't imagine going through what you are.

Hang in there! And know you can vent with us anytime. You've been through a lot lately. It's gotta get better soon!!!!

((((Big hugs to you!)))) And don't worry about work. They'll survive at the office without you for a little while.





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Re:about rsd new
      #124678 - 11/22/04 02:14 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

http://www.rsdsa-ca.org/What%20is%20RSD.html

this is a pretty imformative site if anyone wants to read about it. Thanks for all the well wishes and hugs, it really means a lot to me right now. I'm feeling really down, very depressed, sad, angry, useless....

The dr's put me on two medications. One is ultram-its just a pain med. The other is nortriptyline-its a tri cyclic anti-depressant. Its supposed to alos help with the pain. These meds have me so spaced out. I feel like I'm sleep walking. I'm SO exhausted but can't sleep. My eyes are red and puffy. Ugh, enough already!!!!!!

Anyway, to the michigan girls, I still plan on doing dinner and beads at Heathers house!! I will need some help carrying stuff in and out of her house and will probably still be on crutches but it will do me good to get out of the house and visit!!! I haven't been anywhere expect work and the hospitals for a month now!!

Thanks again everyone for all the support, it means the world to me! Love you all!!!!!

--------------------
Taking it one day at a time.....

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Michigan Girls!!! new
      #124679 - 11/22/04 02:24 PM
heather7476

Reged: 08/09/04
Posts: 2996
Loc: South East Michigan

If you feel up to it hon no problem!!!! Rich will be here. We will make him carry everything!! Including you if need be!!LOL

I hope you feel better soon!!!! HUGS!!!!

--------------------
Heather7476


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Re: Michigan Girls!!! new
      #124684 - 11/22/04 02:48 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Rich carry me, thats funny!! I sure hope he is bigger than Will because WIll had a hell of a time getting my big butt off the kitchen floor and into bed this past Friday!! LOL!! I do ok on the crutches now as long as I don't get as weak as I did with the last treatment!! I think the weakness was mostly from my blood pressure dropping but boy, was it scary!! I'm really looking forward to it and unless I'm on my deathbed, I'll be there!! I NEED to get out and feel like a normal person again or I'm just going to sink even lower. Its going to be fun!!!!!!

--------------------
Taking it one day at a time.....

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Oh man! new
      #124788 - 11/23/04 02:31 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Poor you! HUGS!!! Sorry I've caught this late.

Re. the nortriptyline, when are you taking it? Cos they give that kind of drugs to us Fibro-mites to help us sleep! So if you're taking it in the morning, no wonder you're spaced out! If you are taking it before bed, the grogginess should ease after a week or so. Ultram's supposed to be a good drug, btw.

{{{{HUGS}}}}

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I'm glad you will be there... new
      #124803 - 11/23/04 06:00 AM
khyricat

Reged: 08/05/04
Posts: 3612
Loc: Michigan

we'll have to make it extra special for you so you can enjoy it more! and get plenty of rest... take care of yourself, and you will get better.. I had actually heard of RSD before, because I know someone who had it- it isn't fun, but I dont' recall her having that response to the treatments (low BP) if you keep having that- make sure they monitor it and see if there is an alternative treatment or something they can do to keep your BP stablized while they are doing it!

Amie

--------------------
Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant


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Re: Update, I'm sorta back new
      #124822 - 11/23/04 07:31 AM
MissS

Reged: 02/11/04
Posts: 837


Oh my! How terrible for you, Michele. I'm so sorry you are suffering!

My husband had some cortisone shots in his spine, and I was in there with him. I thought I'd pass out just from watching it. They didn't give him any sedatives at all before they did the shots and they weren't using x-rays to see where they aimed the needle. The doctor had to go in and out several times to find the spot. My poor husband was so brave!

I'm glad you pushed for a sedative. Good for you! And make sure they're aware of the BP problem you had, too.

It's good that you're planning on a day out. That gives you something good to look forward to!

Big hugs to you and you're in my prayers.
Terri

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Re: Oh man! new
      #124824 - 11/23/04 07:47 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

thanks Lintz, I am taking it at nighttime but boy oh boy, I feel like something snuck some LSD into my oj!!! Driving to work this morning was really scary!! I was to afraid to even change lanes because I couldn't get a grip on where the other cars were!! Everything is all distorted and funny looking. I feel like I'm moving in slow motion but my pulse and heartrate feel really high. I'm not liking this one little bit!!!! I'm already on Zoloft and I think its just too much. I see the dr tomorrow for another treatment so I'll talk to him about it then. I'm SO, SO tired, I went to bed at 7pm last night but didn't get any good sleep, I was very restless and tossed and turned all night! My eyes are all puffy and red today.

Have you even taken the ultram?? I guess I don't really feel like its doing much of anything. I ended up taking a couple of Darvocet last night before bed.

Just so everyone doesn't worry, I won't be on-line again after today until like next Tuesday! I have treatments scheduled for tomorrow, they are closed friday and I'm taking the day off to rest. Than I have treatments scheduled Monday, Wednesday and Fridays for the following 2 weeks. The days I have the treatments, I'm not allowed to work, so home to bed for me.

We were supposed to go up north to visit family for turkey day but we are staying home now. I'm in no condition for a 4 hour car ride one way! Will went out and bought a turkey yesterday so he will make us dinner on Thursday!

I still haven't seen AF!!! She is offically late now. They did a blood test on Friday and they said it was negative even though the hospital got a slight positive on the urine test. Ok, so what exactly is a slight positive??!! I will retest Wednesday am before I go get my treatments!
'

--------------------
Taking it one day at a time.....

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Re: Oh man! new
      #124829 - 11/23/04 08:03 AM
Angela E.

Reged: 10/14/04
Posts: 2518
Loc: Michigan

Take care of yourself and have a great Thanksgiving! I look forward to seeing you on the 4th! Hope that AF doesn't show up! and maybe a little Christmas gift is on the way?? LOL

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<<<<hugs>>>> new
      #124853 - 11/23/04 09:06 AM
Natalie1985

Reged: 08/09/04
Posts: 1329
Loc: UK - Leeds for uni, Merseyside for home!

Oh michele...I started to feel pain in my ankle just reading your post....Im so sorry you're in so much pain...I cant even begin to imagine what it feels like....this at any time would be bad enough but to get it whilst you're TTC and have had such a traumatic year already....all I can say is that you are one very brave, tough person and I know you'll come through all this...lots of hugs from this side of the world...we're all thinking of you....take care and keep us updated!

--------------------
Natalie



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Michelle new
      #124956 - 11/23/04 01:30 PM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Yikes, you've REALLY got the side effects bad, haven't you?!? They should ease down after a week or so, but I guess you might not think it's worth it!

Ask your doc about Ultracet if you don't feel the Ultram's helping enough. Ultracet has acetaminophen in it (like Darvocet) as well as the tramadol. The tramadol supposed to be a lot healthier to take than opiates and is supposed to act in a similar way, but I don't think it has such a mental affect (making you not care about the pain and not notice it so much), which might be why you prefer the Darvocet so much.

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Re: Thanks Lintz new
      #124970 - 11/23/04 02:16 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I've used Ultracet before and found it to be ok for mild pain but I'm having some SERIOUS pain now! I've been taking the ultram during the day so I'm not anymore loopey and taking the Darvocet at night. I get another treatment tomorrow and that should cut the pain some more.

I can't belive how swellon and black and blue my foot still is!!! So, not only do I have severe ankle sprian pain but I've also got burning, cramping pain from the RSD! Somebody just shot me, ok??!!

--------------------
Taking it one day at a time.....

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