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Searching for the cure or at least improved quality of life.
      #117433 - 10/31/04 03:23 AM
als53051

Reged: 10/25/04
Posts: 11


I was on top of the world when I found out my chronic cough was from GERD after an EGD. My biopsies were positive for H.Pylori. I took the 2 weeks of the Prevpac---amoxicillin, biaxin and prevacid. The day it ended was the day my lower GI system went to hell. Months of unrelenting diarrhea and abdominal pain and multiple tests...I had ileitis that is now resolved..unsure the cause (maybe a dose of ibuprofen.)

Anyway, my pain and bloating is still there 14 months later, but diarrhea is improved (things aren't still great there either, but better). Recent colonscopy showed everything to be normal...including pathology on biopsies.

I was intensely curious if anyone else had this many problems after treatment for H.Pylori or the Prevpac? If so, have you recovered? Details would be much appreciated. I am desperate for my old GI health so I can enjoy mylittle 8 month little boy more.


More specifically, I was on fiber (fibercon) and probiotics right after the Prevpac. The diarrhea, diffuse abdominal pain and bloating have continued. I was on flagyl, cipro and flagyl after the Prevpac..for possible c. diff and bacterial overgrowth. I had a colonoscopy which showed terminal ileitis (mild with nonspecific biopsy findings). I then had a capsule endoscopy which showed slight improvement of the terminal ileum redness.

During this time I tried all the antispasmodics (bentyl, levsin, levbid), diets (elimination, scd, lactose free, nut free, nsaid free, alcohol free, coffee free, soda free ), an empiric course of entocort, amitriptyline)

I'm taking VSL #3 for the second period of time. I've taken floragen several months ago as well.

I've also had a CT scan (5 months ago) and several weeks ago another colonoscopy which was normal. I've seen 2 GI docs and have been left with a diagnosis of antibiotic associated diarrhea and IBS. My first GI doc who has done all the tests thinks it will gradually go away with time. The older one (who trained the younger one) didn't seem as optimistic.

I have also recently tried fecal bacteriotherapy on myself with not much difference. I've also been on this sites diet (aside from occasional Mike's hard lemonade or coffee once in a great while) for 3 weeks now. I have the peppermint capsules, the acacia fiber and the teas. I've bought the C.D.s but haven't listened to them yet.

I have abdominal pain which is a diffuse and most intense in the right lower and sometimes in the upper on a daily basis---constantly. It hurts to press in those areas most of the time when it didn't before. It does fluctuate time to time. I have bloating most of the time as well. The loose stools don't bother me much other than they serve as a reminder that things have gone south for my GI tract.

I occasionally get very depressed about the situation as it is sometimes very difficult to work in constant pain I know I have no choice as I have to provide for my family.

Is anyone else's pain and bloating this constant? I try tylenol for pain, but it helps minimally...I can't take narcotics at work. I do get wrenching pains not infrequently, like someone is squeezing my intestines like a wet rag they want dry. Otherwise it usually feels like someone just punched me in the abdomen (i.e., like a bad bruise).

Does this type of story sound for familiar to any of you? I research this topic almost daily and really long for GI health. Eliminating the pain and bloating forever would be my Christmas present for a lifetime. It seems after training in medicine for all these years, that I have been deprived of actually enjoying my career and family

Any ideas out there would be very much appreciated? Does anyone know where you can get Clostridium botyricum Myriah strain 588 (sp?) and/or germinated barley foodstuffs. These are my next alternatives to try. I am searching hopelessly, plz help

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Re: Searching for the cure or at least improved quality of life. new
      #117434 - 10/31/04 04:23 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Well, try the diet. It works for IBS. You don't actually say that you've avtually been diagnosed (by a GI doc) with IBS, But I'll assume you have been! This diet does work, especially if you use SFSs as well, but it does take time. You can't decide to start eating the foods again just because it hasn't worked after a week or two. It can months to stabilise and I wouldn't be surprised if you takes you a while because of everything your gut's been through! But it DOES work.

I'd recommend you take Acacia as a SFS as it seems to be gentler on most people than other SFSs and I guess you're pretty sensitive right now!

You should definitely continue taking probiotics as well. They can certainly help, particularly in cases like yours.

And yes, bloating/aching all the time can be part of IBS. Try fennel tea for the bloating and peppermint tea for the aches. Or mix the two together.

Good luck. Stick around and you'll get there. But remember while you search - there is NO wonder cure for IBS. Sorry, but it's true.

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