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New Member with a question
      #347501 - 06/24/09 12:37 PM
DebinTx

Reged: 06/24/09
Posts: 1


Let me know if this isn't the right place, but it was the only board that looked like it would fit.

I've had IBS a long time and it has become primarily the D form. Due to it and other conditions I'm now declared fully disabled and homebound. Thank God I found a place where I can be frank and honest about this. It has progressed to where eating almost anything triggers it, and I get no cramps but only a few seconds warning to run to my bathroom. There's no holding it back. I fear going out in public because often there's no restroom or it's full or even locked and you have to search for someone to open it. I have accidents even going the few feet from my bedroom to my bathroom. I've read about the medications to help this, but no Dr has ever offered them. I'll see my primary next week, so need to find out which one works best with least side effects for IBS-D. If she refuses to give me anything I'll "fire" her and get another Dr to refer me back to the GI specialists.

Thanks for your help
Deb

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Re: New Member with a question new
      #347506 - 06/24/09 01:25 PM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

Hey, Deb, welcome to the Boards. In general, this Board (the IBS Fitness Board) is for talking about exercise and losing or gaining weight and is not about IBS directly. You'll get a lot more response to your questions about handling IBS if you post on the "IBS Diet" board. As long as we're both here, though, here's some info on the site. I'm not sure how much reading you've done on this Website outside of the Boards so I'm going to start with the basics.

The Boards are designed to support an approach to managing IBS developed by Heather (that's her picture up at the top of the page) and called "Eating For IBS" (EFI). A lot of Heather's approach is dietary but she also discusses stress management, the use of herbals teas, and prescription medicines.

In order to really understand what people are talking about on the Boards you need to understand the basics of Heather's dietary approach. You can click here for an old post I did that will walk you through the basics. Once you understand what Heather is recommending you can try her approach and see how you do with it.

As for medications, Imodium has proved useful for many people with IBS-D. Some people take it as needed, some people take it regularly once or even twice a day, at least until their problems calm down with time on Heather's diet. My own experience was that before I followed Heather's guidelines, Imodium didn't do much for me. Once I started eating based on the guidelines, Imodium worked wonders. It seemed that the EFI diet has gotten most of my symptoms under control and Imodium could take care of the rest. The more stable I got, the less I needed Imodium.

The prescription drugs usually discussed for IBS-D are anti-depressants, anti-anxiety meds, and Lotronex. Anti-depressants work wonders for some people and do nothing for others. My Family Practice doctor says she's had great success with Elavil although it did nothing for me. Other people on the Board use other anti-depressants - just remember that ones that work for those with IBS-C may not work for those with IBS-D.

Anti-anxiety meds address the fact that stress can make IBS worse. Worst of all, stress about having an IBS attack can actually bring one on. Some people on the Boards report success with anti-anxiety meds, some do not. Some who do use fairly powerful ones and take them regularly, others - like me - use a very low dose one and take it infrequently.

Lotronex is the big gun in the IBS-D arsenal. This is a miraculous drug for some people but it can be a dangerous drug. Unless the rules have changed, you can only get Lotronex from a subset of GI doctors who understand the risks of the side-effects.

You should be sure you've had all the tests you need to be accurately diagnosed with IBS. There are other conditions that can mimic IBS and they need to be ruled out before your doctor concludes that what you have is IBS.

Finally, let me say that when I found this Website years ago I was sick as a dog and was hardly willing to leave the house. Heather's approach has worked miracles for me and I hope it will do the same for you.

I hope this helps. Take care and good luck.



--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: New Member with a question new
      #347556 - 06/25/09 09:14 PM
glasgowgirl

Reged: 09/01/08
Posts: 413
Loc: Vancouver, Canada

Hi Deb

Sorry to here about your trouble. Unfortunately doctors can be incredibly ignorant about IBS. You totally have the right attitude with the diagnose or fire approach. I did that with my last doctor and I'm much happier with my new one. http://www.ratemds.com/social/ is very useful when it comes to checking out doctors.

I would definitely recommend Heather's diet but I would also check out the criteria http://www.helpforibs.com/footer/rome_guidelines.asp for diagnosing IBS. Doctor have a disturbing habit of diagnosing IBS without referring to this. Other possible causes for your problems are listed at http://www.helpforibs.com/footer/ibs.asp. You might also want to consider habba's syndrome as a cause.

Immodium helps me a lot as does yoga and the EFI diet.
Hope this helps!

--------------------
Stable IBS D

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