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I'm off to see a new GI today!!
      #81434 - 06/21/04 08:13 AM
jules

Reged: 06/17/03
Posts: 1140
Loc: Michigan

Here's the notes that I'm bringing with me to share with him:

PROBLEMS (began in August '02):
*Painful, uncomfortable bloating (daily)
*"Trapped" gas under left rib cage. Can push around.
*Lots of mucous. Sometimes go in for a BM and only leave behind mucous
*Do not have BMs daily. But not completely constipated. Will explain.
*Sometimes I look at food and my stomach cramps, then bloats up. Sometimes I eat anyway, because I have to.
*Depressing and causes stress cycle.
*Very hard to accept that "this is just the way my life is"
*Gained 10 pounds in the past year.
*Getting married July 10 and DO NOT want to have to be concerned with my tummy.
*Conscious of my stomach 24/7.

MEDS:
*Zelnorm...very bad stuff
*Levbid...seemed to work. Ran out of Px and never refilled.
*Anti-histamine stuff...knocked me out cold.
*Peppermint oil...works well.
*Relora...sress control and appetite suppresant...workes well.
*Acidolphilus...too soon to tell, but seems to work well
*Exercise (think of that as medication)...6x/week. Works really well.

TESTS:
*Blood work, stool sample...normal
*Upper GI barium test...normal
*Not sure if I've been tested for celiac, food allergy, lactose intolerant.

Is there anything else you'd advise me asking? I've never actually been diagnosed with IBS. I "quit" my old GI doc before he could slap me with that label. Long story but he was an arse.

Any words of wisom, advice, etc. you can give me would be great!!!

Thanks all!
jules

--------------------
~jules



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Good luck! new
      #81437 - 06/21/04 08:20 AM
atomic rose

Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)

I don't have any advice, as I still don't have an IBS diagnosis myself, and it's been years since I've been to a GI doc. I just wanted to say good luck today, and add that your notes seem really thorough to me. In fact, you've just inspired me to start jotting things down for my appointment on the 8th - I figured I'd trust my memory, but that's probably not a good idea. LOL So thanks!

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Re: I'm off to see a new GI today!! new
      #81439 - 06/21/04 08:24 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Jules,
The only thing I can say to you is best of luck, I hope you have the kind of GI that we all wish for!!! Other than that, you look very very prepared and you know what? I'd say 98% of your problems/symptoms match mine. I've actually saved your thread for future reference, so thanks!

Please let us know how it goes. Keeping my fingers crossed for ya...

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Re: I'm off to see a new GI today!! new
      #81464 - 06/21/04 09:11 AM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

Jules, Wow, I am impressed with your list!!

Wasnt it he Levbid you ran out of? Girl, that is the best thing I have taken for the cramps. I take the timed release once a day, my GI told me to take it every day. It helps me so much, that is all that I am concerned with. Though it does cause my eyesight to be blurry! That is a bother!!!

I hope this doc is a good one, I want to see you feeling better for that wedding!!! You are a beautiful young woman!!!! What a lucky guy!! Good Luck today !! gayla

gayla

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Sending good thoughts your way today! new
      #81473 - 06/21/04 09:37 AM
Stephie

Reged: 03/10/04
Posts: 2696
Loc: Vancouver, Canada

Hiya,
First of all, good luck today at your doctor's appointment! I think it's a good thing that you have all the things you want to talk to him/her about clear in your mind. I usually write them down and bring them along with me because sometimes I get flustered once I'm there and end up forgetting all my questions.
I hope you get a really good doctor, and he can help you out. I feel about 70% better than I did 3 weeks ago, and I think a lot of that isn't just my new meds but actually seeing a doctor who was nice to me, understanding of my condition (ie. not dimssive like all the others I'd seen) and seemed really eager to get my stomach stuff sorted out. Before I went, I was really hopeless. I was on the diet, getting more and more sick and the last doctor I saw had been useless. After I saw this new doctor, I felt so much better right away, just becuase I got some hope back!
Good luck!
--Steph

--------------------
~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.

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Good luck and I have a question..... new
      #81487 - 06/21/04 09:55 AM
barbie

Reged: 04/22/04
Posts: 2435
Loc: Texas

Hi,

Good luck at your doc's visit. It sounds like you have been pretty thorough and it's a great idea to take along your notes. I do that, too.

I have a question about Relora. I looked it up on-line and it sounds pretty interesting. I don't really need to lose weight but the stress part sounds good. Does it really help with the stress? Can you sleep better? Do you get it online or through your doc? Did you have any side effects? I am on Librax (prescription) to help relieve my stress and relax my stomach. It works really well.

Good luck
Barbie

--------------------


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Re: Good luck and I have a question..... new
      #81496 - 06/21/04 10:06 AM
jules

Reged: 06/17/03
Posts: 1140
Loc: Michigan

Hi all,

Thanks for your speedy responses. My appt. is at 2:15 and I'm getting really anxious. I'm hoping that I will not be dismissed like I was before by the other GI doc that I saw. I'll keep you posted as to how it goes.

As for the question about Relora. I think that it's working. I need to lose about 8 pounds or so, and I'm definitely a stress eater. I got it at a health food store but I've seen it online. It's not a prescription med. I started taking it about halfway through my Power 90 workouts, and I've lost weight and seem to have gotten my appetite under control.

But, I'm also going to be wearing a strapless wedding dress in three weeks and I'm consciously trying to eat better so that I can look great.

Thanks all again for the comments that everyone posted. I hope that this guy IS the "GI of my dreams" lol... the hopeless diagnoses that I got last time just depressed me. I hope that this guy is more positive and open to different treatments until we get this under control.

~jules

--------------------
~jules



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Update on my visit... and QUESTION FOR ALL OF YOU!! new
      #81800 - 06/22/04 05:52 AM
jules

Reged: 06/17/03
Posts: 1140
Loc: Michigan

My new GI is awesome! He used words and phrases like "I need to do a full work up before I toss out the diagnosis IBS...Ok, let's get started on our battle plan...IBS is not all in your head...I lecture on IBS and know that while a person can look healthy, they are feeling really really bad inside..."

And on and on... it was great!

Here's my question:
I'm scheduled for a colonoscopy (my first ... EW!!) and have it scheduled for July 6, THE TUESDAY BEFORE MY SATURDAY WEDDING! Will I be ok? I just don't want to be all messed up on Friday (rehearsal dinner) and Saturday (wedding).

I am also scheduled for lactose intolerance test, celiac, thyroid test, and other blook work.

He said that he knows the cause of IBS and will aggressively treat it once he has ruled out all other possibilities. He also said that diet has nothing to do with IBS and that all the supplements that I'm taking (sfs, acidolphilus) are really not helping. He said that IBS is possibly caused by low (or messed up) seratonin levels. So, we shall see.......

Thanks for reading. I was so uplifted after leaving the office (I waited an hour and a half b/c he was running behind... but he didn't try and rush me at all) because I felt that there was finally hope.

He did say that I was a touch overweight. He was very frank about it and, for some reason, I wasn't offended at all.

Anyway, thanks for reading and for any input you have about the colonoscopy question.

~jules

--------------------
~jules



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For Jules new
      #81803 - 06/22/04 06:03 AM
bz

Reged: 06/18/03
Posts: 105
Loc: Brooklyn, NY

Hi Jules,

I am so happy for you. I'm glad you found a nice doctor who is concerned and takes the time to listen to you.

As for the colonoscopy, I was fine the next day and didn't have any lingering effects. I know everyone reacts differently but those I've spoken to are ok the next day.

Best wishes and congratulations on your upcoming wedding. May you always have love, health and happiness.

Barbara

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Re: For Jules new
      #81805 - 06/22/04 06:08 AM
jules

Reged: 06/17/03
Posts: 1140
Loc: Michigan

Thanks Barbara for your kind words and also on how you reacted to the colonoscopy. I think that I'll keep my appointment.

Amazing what a little positive energy can do...



--------------------
~jules



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Interesting Doc! new
      #81834 - 06/22/04 07:44 AM
Bevvy

Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State

He knows the cause of IBS? REALLY? Well, please, share with us! I think we'd ALL like to know that one! Wow!

He's got you scheduled for all the right tests, Girlfriend, so this is great! And you'll be fine for the Big Day, not to worry. I loved my colonoscopy (well, if you can actually "love" something like that). Those drugs are marvelous! No kidding. I had the best sleep I've ever had, but unfortunately it wasn't nearly long enough. It seems to me I fell asleep instantly and it was no time that I was waking up -- and it was all over. I felt so good, I didn't even mind farting in front of everyone (you have to do that or they won't let you leave there), hugged all the nurses and kissed the GI. What was I thinking? Boy, did I feel GOOOOOOD.

The only bad part of the whole thing was the prep you have to do the day before. Starving myself, drinking all that laxative and having a full day of diarrhea ain't fun. But once you get through that, the rest is a piece of cake. And once the drugs wore off (damnitall), I was perfectly fine -- my old self again.

This is SOOOOO nothing you want to worry about. My Canadian realtor friend went through it amazingly well. The day of the prep, when she should have been at home pooping, she was out on calls, visiting homes and possible buyers and sellers -- I was blown away! She said it was no biggie, she just asked to use their bathrooms! Can you believe that? AND -- AND, after the procedure, she climbed off the table, walked out the door, and came by my house to let me know the status of our house sale!

Amazing woman.

So you'll do perfectly fine, Cutie-Pie.

And as for your being overweight, Girlfriend, if you're truly overweight, then I'm OBESE! Puh-LEEZE. However, he's right about the seratonin levels. I totally can't tolerate hot weather because it messes up my seratonin levels, which in turn REALLY messes up my IBS. Oh, I will have the WORST attack in the heat, oh yeah -- and it's always been that way.

However, "diet has nothing to do with IBS"? I disagree completely. When I changed my diet (thank you, Heather), I was much better. When I quit the coffee, I was SOOOO much better. I, for one, am living proof that he's wrong about that.

Still, I like him. Don't forget to keep us posted on his incredible discovery of the cause of IBS!

AND -- no more worry about the colonoscopy thing. Okay? Spend all that effort on excitement about the impending wedding. You're gonna make one helluva gorgeous bride! Oh yeah.

Bev

--------------------
<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy


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Re: I'm off to see a new GI today!! new
      #81842 - 06/22/04 07:58 AM
mspaschal259

Reged: 05/28/04
Posts: 144
Loc: North Carolina , USA

Jules,
Great post. Sounds like this new dr. can really help you. Sometimes thats half the battle Don't get discouraged at all, with your wedding coming up you need to just relax and enjoy it.. Your BIG Day. I had an upper and lower GI test at the sametime and did just fine. They drug you up. Good Luck.. Congrats on your wedding.

--------------------
-----Marilyn-----

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Re: I'm off to see a new GI today!! new
      #81890 - 06/22/04 09:47 AM
jules

Reged: 06/17/03
Posts: 1140
Loc: Michigan

Thanks everyone for your posts. Bevrs, I remember reading your story of your realtor friend. There's no way that I would be able to do what she did. When I get D, I HAVE to stay home, no way around it. I'm actually looking forward to "getting it all out" before the wedding. My fiance actually pointed that out to me. Plus, I'm going to be so busy with wedding planning, that I doubt I will get a chance to worry about the colonoscopy.

As for my doc "knowing the cause of IBS" I don't really believe him. But, I'm willing to try WHATEVER he wants me to to make me feel better. I find that any food messes with my tummy. IBS diet safe or not. Anyway, I went out and got some 5-HTP which is supposed to increase your seratonin levels. Heather also has a library archive article on seratonin levels testing in IBS patients that was a good read.

I'm feeling positive, so that in turn makes me feel 50 percent better.

Thanks all for the kind words. Two more weeks until the big procedure. I'm actually looking forward to it. How sick is that??

--------------------
~jules



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Sounds like a great doctor new
      #81974 - 06/22/04 12:32 PM
heather robin

Reged: 04/22/04
Posts: 279
Loc: S.E. Pennsylvania

Someone who listens, will do the tests and doesn't rush you when you are in his office! He deserves a big pat on the back. As for your colonoscopy I was fine the next day, maybe a slight gassy, I am IBS-D. As for SFS they have really helped me where my doctor didn't think they were necessary. Good luck with the test and keep us posted. What do they do for the lactose test? I didn't have this one done I just avoid it.

--------------------
IBS-D

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Such a relief about colonoscopies new
      #81980 - 06/22/04 12:46 PM
ChristineM

Reged: 05/31/04
Posts: 1662
Loc: soCal

I will be having my first colonoscopy in the next few weeks, and I'm so relieved to hear that they don't trigger massive D for weeks on end for us Ders. I thought it was going to throw off my new-found stability!


--------------------
Christine

Those who can do; those who want it done better teach.

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specifically for JULES but also for anyone else interested in what my new gastro had to say - Possible new diagnosis for my IBS symptoms. new
      #82132 - 06/22/04 10:19 PM
DanaNoel

Reged: 04/06/04
Posts: 144
Loc: Houston, Texas

Hey Jules or for anyone else reading this post,

I was so glad to read your post. I went to a Neuro gastrointerologist on the insistence of my OB/GYN. My OB told me that he is one of the few Gastrointerologists that is actually a NEURO gastro. He actually works on the NERVES of the gut. The center of all of our dysfunction. This particular gastro also gave me the "no, it is not all in your head" speech. He also said that seratonin levels play a big part in our IBS symptoms. He tested my actual intentines with a brand new revolutionary machine called an EEG (or something like that). He told me that the contraction pattern was indicative of insulin sensitivity. I am still trying to understand this, but it had something to do with the fact that my hormones are out of whack, causing my body to not process sugar correctly, increasing seratonin levels and in turn causeing my severe gastro problems. This sounds possible as my IBS started the day after I had my baby suggesting a hormonal connection.

He told me that he is actually going to treat the PROBLEM not just the SYMPTOMS. His name is Dr. John Mathias out of Houston, Texas and works at the Texas Women's Hospital. He has done EXTENSIVE research on this and has been well published. This is supposed to be a revolutionary finding on IBS. He has put me on a diet that is actually the opposite of the IBS diet. It is actually a diet for diabetics - low carbohydrates (which turn into sugar in your system) and high protein and low glycemic carbohydrates (that do not effect insulin rates) like certain vegetables. He said that anti-spasmotics were worthless and has put me on Klonopin, an anti-seizure type drug to stop the contractions in my intestines. This drug is supposed to help with the actual nerve that controls the contractions. He also put me on another medicine called cyproheptadine. This is usually used as an antihistamine, but also helps with the seratonin levels and hormones.
He said that if I did not seek tretment, my condition would eventually lead to endometriosis, fibromyalgia, or diabetes later. He said that this is why there is such a strong connection between IBS and fibro and endo.

Like I said, I am brand new to this diagnosis and I am certain I have not explained this new diagnosis or the medications very well at all. And because it is soooo radically different from what I have heard I am still extremely cautious about it. I have another appointment with him on the seventh of next month to go over his findings once again and to get a better understanding of his diagnosis and the medications I am on.

Now, this is NOT to say that this diagnosis and treatment is right for everyone who has IBS and that Heather's diet is wrong. I AM IN NO WAY SAYING THIS. Please do not misunderstand me. IBS is a diagnosis when nothing else is found. But in reality, there are so many other things that may cause IBS-like symptoms that have not been discovered as of yet. This is JUST what my doctor said and could only be specific to me or other women with hormonal problems that have caused this strange biological/hormonal/seratonin/gastro imbalance. I would love to help anyone else out who was told they have IBS but may in fact have this problem. I am actually still not convinced this is it, but I know that all of the women that took part in his published studies have been greatly helped or even put into remission, including one of his nurses, as long as they keep their sugars low by sticking to the diet.

Ok, the point to this post. I would really love to hear what kind of medications your doctor will put you on. They may in fact be the same as mine? My personal email is available if you would like to discuss this further. As I said, I am still very confused about this new diagnosis, and aside from the diet issues, our doctors are pretty much stating the same conclusions. Please, please, please keep me posted and for anyone else who may have read this post, any comment would be greatly appreciated.

confused and frustrated

--------------------
Dana

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Re: Sounds like a great doctor new
      #82154 - 06/23/04 05:18 AM
jules

Reged: 06/17/03
Posts: 1140
Loc: Michigan

heather robin,

i believe the lactose intolerance test is where you drink a cup of lactose, then blow into a machine. i was told that it takes 3-4 hours. i'm going in on July 19 for mine. i'll update when i can.



--------------------
~jules



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DanaNoel new
      #82156 - 06/23/04 05:32 AM
BL

Reged: 06/01/03
Posts: 3522


I found your post very interesting. One thing that sparked my interest was your mention of the medication Klonopin. I'm curious---do you have IBS-C or IBS-D? I'm wondering because I take a small dose of Klonopin occasionally (for an unrelated medical problem) and I haven't noticed that it has helped my IBS at all. I'm IBS-C and sometimes I thnk this med has actually made my C worse.
Did your doc prescribe it to help you with C or D????

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Re: DanaNoel new
      #82233 - 06/23/04 08:29 AM
DanaNoel

Reged: 04/06/04
Posts: 144
Loc: Houston, Texas

I am actually an IBS-D, but my doctor did say that this would work for both. I am still so confused about it and I really hope this works for me. I will definitely keep everyone posted.

Thanks so much for your reply

--------------------
Dana

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Re: DanaNoel new
      #82247 - 06/23/04 08:55 AM
BL

Reged: 06/01/03
Posts: 3522


Thanks. Do you mind me asking how much he told you to take? I usually only take it at night-- if needed--- because it makes me so drowsy!
I never knew there was such a thing as a neuro-gastro doc. I will have to check and see if there is one in my area.


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Re: Update on my visit... and QUESTION FOR ALL OF YOU!! new
      #82292 - 06/23/04 09:37 AM
Stephie

Reged: 03/10/04
Posts: 2696
Loc: Vancouver, Canada

Hiya Jules,
Your experience with the GI sounds a lot similar to mine, with just a few differences. Mine _didn't_ offer me any more tests (the only one I haven't had is the colonoscopy) and he said it would just be putting my system through something I didn't need. He said none of my other tests pointed to ANYTHING except IBS, so it would be a waste of time.
He also didn't say he had the cause of IBS figured out. He did say the same thing about the diet not being the way to getting it under control. His theory is that it's the way food moves through your body, not WHAT is being moved. I am too scared to take the chance now.

Doesn't it feel so good to see a good doctor, though? I think I am feeling about 70% better now, but I think I must have jumped a few percentages as soon as I walked out of the office, before I even took new meds or anything because he'd been so good to me.
I'm happy for you, and I'm glad everyone agrees that your colonoscopy won't interfere with your wedding day. You must be getting so excited! I am excited for you.
Take care,
--Steph

--------------------
~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.

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Re: Update on my visit... and QUESTION FOR ALL OF YOU!! new
      #82302 - 06/23/04 09:53 AM
geeta

Reged: 05/22/04
Posts: 2
Loc: Northern California

Hi Jules, Please do NOT have a colonoscopy before a wedding. When I had mine, the anesthetic made me groggy for three days. You need to be happy and alert for that week preceding the wedding. Just have the procedure the following week. Your colon can wait! Love, Geeta (married 40 years)

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Re: DanaNoel new
      #82466 - 06/23/04 02:45 PM
DanaNoel

Reged: 04/06/04
Posts: 144
Loc: Houston, Texas

No problem. Actually I take 2 wafers (0.125mg each) 4 times a day. I have not experienced any drowsiness but I am suppsedly on a low dose. What is your dosage? Also, do you take the wafer or pill?

--------------------
Dana

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Re: Update on my visit... and QUESTION FOR ALL OF YOU!! new
      #82505 - 06/23/04 04:27 PM
jules

Reged: 06/17/03
Posts: 1140
Loc: Michigan

Yep, I believe that the actions of my doctor have helped a bit. I feel as though he wants to determine the cause and the best course of action for me.

Uh-oh......geeta! You're the first person to tell me that your colonoscopy left lingering efonfects. Now I don't know what to do. I think that I'll call my doc's office and discuss again.

Thanks for posting on this thread, everyone. I've reverted back to lurker-status for the most part, but totally appreciate it when I get input when I ask for it.

You guys are rad!!

--------------------
~jules



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If it were me... new
      #82515 - 06/23/04 04:57 PM
crampgirl

Reged: 02/23/04
Posts: 514


I would definately not have a colonoscopy the week before my wedding. Even two weeks. It can mess your tummy up for a few days or so. I would wait until after my honeymoon! I'm not being negative or trying to worry you cause everyone is different but THIS IS YOUR WEDDING...THE MOST IMPORTANT DAY OF YOUR LIFE...so why take a chance on not feeling your very best.

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Re: Update on my visit... and QUESTION FOR ALL OF YOU!! new
      #82516 - 06/23/04 05:04 PM

Unregistered




Jules, considering your age (25-35?) you should not have a problem recovering from this colonoscopy. I was 30, last November, when I got mine and was just fine the next day. If you are not ultra sensitive to drugs, you'll do just fine. I'd get it overwith if I were you, because it will be off your mind and behind you come wedding and honeymoon time.

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Re: DanaNoel new
      #82549 - 06/23/04 06:32 PM
BL

Reged: 06/01/03
Posts: 3522


I've never heard of wafers! My prescription is for 1 mg. pills---but I only take 1/4 or 1/2 of a pill--on an as-needed basis. I only take it occasionally since it can become addictive if taken on a regular basis. (it's in the same class of drugs as Valium). Thirty pills will probably last me a year!

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Re: Update on my visit... and QUESTION FOR ALL OF YOU!! new
      #82551 - 06/23/04 06:36 PM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

Jules, I did just fine after my test. Everyone reacts differently, but at your age, you should bounce back and be ready for that wedding! I understand the fear of the unknown, try not to worry about it, just immerse yourself in getting ready for the big day and before you know it, you will be waking up and heading home!

You are going to be such a BEAUTIFUL BRIDE, he is a lucky guy!!

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Re: Update on my visit... and QUESTION FOR ALL OF YOU!! new
      #82560 - 06/23/04 07:01 PM
susan127

Reged: 05/25/04
Posts: 49
Loc: Vermont

Jules - a couple things here
First, the colonoscopy is no problem - I had my first one at 53, and it turned into a non-event. Even the prep wasn't bad considering what us D's live with - nothing out of the ordinary. BUT...I kinda go along with the others in saying put it off a few weeks. Your wedding week should not be spent with 2 days of down time and anxiety (1 day in prep and 1 day in procedure). Leave it for later.

Second - in response to other posts here about hormones and seratonin - my attention went right up. My IBS has really been triggered by menopause - hormones. I've been following Heather's diet - though not religiously, and I really have stabilized. Of course I'm back on very low estrogen with an Estring, so that could be helping.

Third - some of your symptoms remind of something I went through a number of years ago. It turned out to be some weird intestinal thing - clostrydium difficile - or something like that. Took forever to get it diagnosed and I was ready to buy stock in Immodium before it stopped. But I was pooping straight mucous and the smell of food would have me running for the john. Major cramping and I just didn't feel very good. Anyway, you should have that checked, but no doubt you already have.

Fourth - I believe that medications can mess you up even more. Find a way to get under control without doing any prescription drugs. You have no idea what is going on if you are pumping your young body with medications. And all medications can cause other problems which only complicates the picture more.

Last - enjoy these next few weeks leading up to your wedding and have a wonderful day. You are beautiful!

S.
oVerly Verbose in Vermont

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Re: Interesting Doc! new
      #82570 - 06/23/04 07:21 PM

Unregistered




I totally agree that colonoscopies are a piece of cake. The prep isn't pleasant but hey, you just stay near the bathroom. After that's over the actual procedure is no problem at all! My doc ruled out other stuff and said I have IBS. I've done some research on some stuff and am pretty stable.

Bev if you're reading this...taking equalactin has totally made my condition non existant for the most part. It's become a non factor which is what I've wanted. Hooray!
Sandy

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Re: Interesting Doc! new
      #82571 - 06/23/04 07:23 PM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

i would have a colonoscopy just to clear myself out. *pout*

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DanaNoel new
      #141596 - 01/23/05 04:05 PM
Niesan

Reged: 01/18/05
Posts: 22


Hi, I really hope this doctor works out for you. I also have a very bad case of IBS_D. I take lotronex for it and it has really changed my life. Not to say that I dont have bad attack but it went from everyother day to once every two weeks. But still feel bloated every 3 days. Now in one hand I can understand why the Klonopin would work but this is a controled substance that can be habit forming. I have never heard of it to treat IBS. It would be interesting to see how it works out. Good luck.

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I take Klonopin too new
      #141609 - 01/23/05 04:26 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

It's often prescribed to help with anxiety that goes along or accompanies IBS. It's not that unusual.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: specifically for JULES but also for anyone else interested in what my new gastro had to say - Possible new diagnosis for my IBS symptoms. new
      #141646 - 01/23/05 05:58 PM
taroh73

Reged: 12/28/04
Posts: 184
Loc: chicago, il

Can you update us on your progress with this doc? I am an IBS-C and have found two contradictory things. 1.- I can follow an almost purely sugar diet and have very few reactions (sugar meaning refined soft and in the form of junk food -not fruit!) OR I can follow something like the atkins diet, which is amazing at eliminating the bloating and gas and horrrible twisting discomfort- but it leaves me absolutely constipated and bound so that I have no choice to resort to laxatives and diarrhea every week or so just to have a BM. Sometimes its worth it though just to have those few peaceful days in between.

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DanaNoel new
      #141781 - 01/24/05 06:49 AM
XXXXX

Reged: 11/23/04
Posts: 210
Loc: South East Texas

What part of Houston do you live in? I am close to the Woodlands off of Highway 45. Boy am I ever interested in your doctor! I hope he is on my insurance.

I was on a medication several years ago that was to treat epilepsy and it didn't work very well for me...I then learned that it was also used to treat schizophrenia...great for those with schizophrenia but I don't have it and really didn't want to be treating myself with that. I have done relatively well for the last year or so until December and have been rather discouraged as of late. I think I am going to look your doc up!

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Sounds great! You should be fine with that! Keep us posted! -nt- new
      #141841 - 01/24/05 08:45 AM
bamagirl

Reged: 04/02/04
Posts: 1407
Loc: Alabama



--------------------
God is Faithful!

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Re: DanaNoel new
      #141962 - 01/24/05 12:17 PM
DanaNoel

Reged: 04/06/04
Posts: 144
Loc: Houston, Texas

Hey there,

My doctor's name is Dr. Mathias and he works in the hospital district of Houston called Texas Women's Hospital. He also does a lot of work with patients who have endometriosis, pibroids, and poly cystic ovarion syndrome. Oh, and by the way, I live way out in katy.

Good luck!!

--------------------
Dana

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Re: specifically for JULES but also for anyone else interested in what my new gastro had to say - Possible new diagnosis for my IBS symptoms. new
      #141966 - 01/24/05 12:25 PM
DanaNoel

Reged: 04/06/04
Posts: 144
Loc: Houston, Texas

Oh sure,

I am doing sooo much better. I had constant pain and diarrhea for 8 months straight until I found this doctor. Now, one thing to remember is that he did not exactly diagnose me with IBS. All of my IBS symptoms happened after the birth of my baby. He said that when you are pregnant, your hormones switch, some turn on and overproduce, and others turn off or underproduce. After the baby is born, they are all supposed to return back to normal, but mine did not - especially my pancreas. I became Insulin Resistant - meaning my pancreas does not work the way it should at processing sugars - and when I intake too many sigars, my pancreas overproduces the hormone to level off your insulin and it unfortunately makes my bowel over sensitive and effects it's motility. Now I am no science major and he has triend on numerous occassions to explain this connection with the pancreas and the bowel to me but I frankly am always left confused. This is not for everyone who has IBS. But, as you know, IBS constitutes any abnormal GI function that they are unable o find any other reason for. Well, this doc has done extensive research on women who have been misdiagnosed with IBS but who really have an Insulin Resistant type disease whose condition resembles IBS. It sounds like if you are able to eat sugars and feel fine than this might not be the right course of action for you, or for many of the people on this board. It's just good to bring new findings to everyone's attention because doctor's are still trying to figure out new diseases that were previously referred to as IBS that are not really IBS. They are so quick to diagnose.

--------------------
Dana

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DanaNoel new
      #141970 - 01/24/05 12:44 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Maybe you cannot answer this, but do you know if this only happens in women who have had babies?

I have never given birth, but I have a problem with my periods (I am not getting them!) which is causing my hormones to be off kilter.

Also, is Diarrhea the only symptom or can it cause Constipation, which is my problem along with constant pain! If it only causes the D then I know not to pursue this further.

I know I should ask my doctor about it, but doubt he will take it seriously.

Also, so you don't need to take an SFS or do the IBS diet anymore, but just your own diet?

So glad you have found your answer! I wish I could find mine.

Thanks so much.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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LaPorte...Katy...I wonder if any Houstonian lives near me?~nt~ new
      #142011 - 01/24/05 01:52 PM
XXXXX

Reged: 11/23/04
Posts: 210
Loc: South East Texas



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depakote is what my former GI had me on...did anyone else take this? ~nt~ new
      #142014 - 01/24/05 01:54 PM
XXXXX

Reged: 11/23/04
Posts: 210
Loc: South East Texas



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Re: DanaNoel new
      #142183 - 01/24/05 07:02 PM
DanaNoel

Reged: 04/06/04
Posts: 144
Loc: Houston, Texas

Great question. Actually, my doctor said that the pregnancy was the catalyst that caused all of this to happen, but the disease was lying dormant in my system for quite some time. He went through my medical history and what stuck out the most was the fact that I either never had a period or if I did, it was like twice a year. My female hormones were messed up bad. He said that that was one sign that I have pre poly cystic ovarion syndrome which runs hand in hand with insulin sensitivity. He said that if I didn't go on this diabetic diet, I would probably end up with poly cystic ovarion syndrome and type 2 diabetes. Diabetes runs in my family and so do fertility problems. Actually we were quite suprised when I turned up pregnant. Hello!!

Now, he has me on this diabetic diet but has also added essential oils to my diet like flax seed and olive oil 3 times a day. These are essential in proper body functioning. He also had me take out all of the food that would excite my stomach like caffeine, chocolate, artificial sweeteners (except for stevia), and red meats. Basically what heather told you to take out. These are called Tyramine foods and the cause your GI tract to become excitable. All I knowis that since I have been on the diet, i have felt 90% better. i went from being bed-ridden to actually having a life. Now, I am not perfect and I still have my days - like today - but for the most part, it has been a miracle for me. Now this diet is not for everyone who has IBS because I really don't have true IBS. I actually have to stay away from high glycemiccarbs like white bread, pastas, potatoes etc... as it raises my blood sugar and causes my GI symptoms. This is just another possibility for people that may have been misdiagnosed with IBS but really have other issues going on in their body.

May of his patients aren't able to even have kids ,so no, this is not just a pregnancy thing. For me, pregnancy just kick started my issues into high gear. I keep telling my baby she's lucky she's cute or I would have to give her back. I will stop saying that when she can actually understand what I am saying. She's only 1

I know it's confusing, but I hope this info helped.

Dana

--------------------
Dana

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Thanks for the info new
      #142195 - 01/24/05 07:43 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

I wish I could go see your doctor. If I mentioned this to my doctor, he would just look at me like "here we go again, trying to self diagnose". I think I've gone to him with 3 other possibilites that may be the cause of all this pain and constipation.

How did you find this doctor?

Oh, that reminds me, is Diarrhea the symptom or can Constipation be a sign? Diabetes runs in my family too, brother, cousin, grandma, aunt...

So if you can't eat potatos, rice, bread, pasta, what grains/carbs can you eat? And you don't need to eat these first before fruits/veggies anymore? What do you eat?

Thanks for the info. I don't know how to approach my doc about this one. How where you diagnosed? What tests did you have done to confirm this?

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: I take Klonopin too new
      #142823 - 01/26/05 07:29 AM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

Augie, HI!

How long have you been taking Klonopin?



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Re: LaPorte...Katy...I wonder if any Houstonian lives near me?~nt~ new
      #143327 - 01/27/05 09:37 AM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

Tia, I live in Brazoria County.

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