I have no idea how you folks do it (venting, long)
#78097 - 06/11/04 06:20 AM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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I'm sorry if this gets long and rambly... it's been a miserable couple of days health-wise. Please tell me this gets easier and better with time? *sighs*
Like I've mentioned in a couple other posts, my IBS swung to C when I gave up caffeine. I was starting to be in pain and really worried about it. Wednesday came along, and it was wicked hot here, and between that and the C, I seriously couldn't eat. I tried, I really did, but.. ugh.
Yesterday, I finally managed to go (yay!). But within a half hour, I started feeling absolutely horrible - weak, nauseated, and crampy. Definitely not a bug, but I couldn't eat all day. I tried, but only managed to get down about a half-slice of bread. I did drink peppermint tea, but it did nothing to soothe the cramping (or me!). So I spent most of the day just sipping on water.
I woke up this morning and - big surprise here (sarcasm) - I have D. And I'm so shaky, I can hardly walk from here to the bathroom. I KNOW it's because I haven't eaten or had anything but water (the last time I had a no-food day was pre-IBS-diet, and I would at least sip on soda for sugar and avoid the shakiness), and I just choked down some cream of rice cereal. But the damage is already done... after following the IBS diet for a couple weeks and starting to feel just the tiniest bit better, I'm back to square one. 
HOW on earth do you guys manage to eat anything when you're having an IBS problem? I mean, the LAST thing I want to do when I'm running back and forth with D - or stopped up for days with C - is EAT MORE. What should I do when I get like this? I literally can't even force myself to eat sometimes - should I try to at least take a SFS? (Edit: I do take Citrucel every day... what I mean is, take a SFS in lieu of eating, if I feel like I can't eat.)
My boyfriend's not awake yet, thank goodness, because I'm sitting here crying. I'm so miserable - not even so much because of the symptoms themselves, but because I can't even LIVE anymore. I've spent the past 2 days in bed because I felt too lousy to do anything, and I'm pretty sure I'm going to do the same today. I tried to do *laundry* yesterday, fergodsakes, and the cramping only let me do 2 loads before I was exhausted and had to lay back down. I feel like such a failure as a person - the boyfriend reassures me that I'm not, but he obviously can't change the way I feel about myself right now.
Making matters worse, I can't just GO to a doctor. I don't have insurance, and we're quite poor, but somehow not poor enough that I qualify for any kind of government assistance. (Gotta love that.) There are also no clinics in town that can help me. I feel like I've exhausted my possibilities here, unless someone can suggest something I haven't thought of. In the meantime, I'm trying to rely on the diet to get/keep me at least somewhat stable, so that I can maybe try to work again. It seemed like it was working, too, until the past couple days - and I feel like that's all my fault.
Ugh - I really am a mess today. I'm sorry this is so long and whiny, it's really just been an awful couple of days, and now it's the weekend for us, and the prospect of spending it in bed is just making me twice as miserable.
PS - The cereal helped, at least - I'm not as shaky. Yay! 
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Hey,
Sorry you are having such a rough time. The shakiness you mentioned....could it be low blood sugar. I get that if I don't eat for a while...maybe that's why the cereal helped.
Also, could the peppermint tea have caused the "D"???
I wish you could go to a doctor. I know you can't afford it but have you gone on-line and looked up low income health care for your area. I did that for my sister who has no insurance and there is this thing called the Gold Card here and you fill out some papers to show that you are low income and then you can go to certain doctors or clinics.
Try to eat something small several times a day....maybe toast or mashed potatoes or rice. Immodium might help the diarrhea. The generic is cheaper at Walmart.
Make sure nothing you use like gum, mints, vitamins has sorbitol in it.
It will get better
Barbie
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I haven't had the courage (or thankfully the need) to chew a horse pill...I mean equalactin but it seems to me that it should help you.
Equalactin absorbs water and helps your "D" become more normal and if you are "C", it binds the water in your system to your poop so that it will pass easily.
I paid I think $4.69 for my box...others on the boards swear by the stuff.
I have been miserable with "C" myself...walking at work and nearly doubling over in pain...when my IBS was at his worse, my husband thought it was "all in my mind" (thankfully, he has since invited Jesus into his life and he is a changed man!) I cannot tell you how many times people have asked me if I was preganant.... It's awful and the pain and discomfort can be so depressing. I am so sorry that you are miserable...what about eating plain white rice or other things from the "what to eat when you can't eat anything" list? Even if you eat a tsp. of rice every 30 minutes...it's better than nothing.
I am so sorry that you are hurting...I feel your pain!
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I think the shakiness was low blood sugar, for sure. I've had a little more cereal and I'm virtually shake-free. Today's definitely going to be a rice-and-potato day. 
I think part of my problem today is that I refused to take imodium yesterday. I wasn't having D, but I normally take one if I get cramping... I'm trying to wean myself off the stuff, as it seems to constipate me in the long run. But... yeah, I caved and took some. I'm feeling a little better now.
I did look into low-income health care. Basically, in the state of Maine, if you don't have kids, you're out of luck. I can get gyno care for extremely cheap, but that's it. I'm still looking, and hoping I've just missed something really obvious.
Thanks. 
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Oh boy!
#78121 - 06/11/04 07:22 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Honey, you're IBS-A (alternating). You NEED a SFS. This is so important. Otherwise you'll keep on swinging from one to the other which is not fun at all (I know! ). I assume you've read Heather's notes on what SFS do, yeah? So you know about them giving your colon something good to work on.
Do you have any Acacia? When I feel really rotten, I sometimes don't feel like eating either - my "get-out-clause" is a glass of soy milk with a dose of Acacia in it. It's enough to keep my tummy happy until I feel like eating. Warm milk is best, but I guess you won't want that if it's hot! 
I find that cereal and baby food are the easiest things to eat on a bad day. If you don't get some food down, as you know, you'll end up shaky, weak and having a D/cramp attack!
Can your bf make some nice safe food this w/e to tempt your palate? And my suggestion is.. try and enjoy it! Change the sheets (makes me feel better everytime) or get him to do it! Put some music on and climb into bed with a hot pack, some herbal tea and book or magazine.
Feel better soon sweetie!
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Re: Oh boy!
#78126 - 06/11/04 07:29 AM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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Aha... that's kind of what I was looking for. I am taking a SFS - Citrucel - and I'm slowly working my way up to a decent-size dose. That's kind of what I was wondering, if it was ok to take a SFS in lieu of eating, on a bad day, or when it's so freaking hot that I can't even THINK about eating something starchy.
I feel bad - I'm almost positive all this stuff is in Heather's books - but I honestly can't afford to buy them right now. I'm hoping within a few weeks I'll be able to manage it.
The bf is not a cook. Heh. I think I'll just leave it at that...
Thank you.
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I have no problems with chewing a horse pill... swallowing it whole, THAT I'd have issues with, heh. I'll look into the Equalactin (there was another I wanted to look into... FiberChoice, I think?). I'm taking Citrucel, but I'm having a really hard time increasing from the tiny doses I've been taking. I think I'd rather chew a horse pill than swallow 8 oz of GEL. (Or am I getting it all wrong? Is Equalactin a SFS?)
As for the food, I hadn't thought of it that way. I suppose even a couple bites of something is better than absolutely nothing. I'm still stuck on the idea of having to work myself up to eating full meals like I used to. I'll probably have to give up that idea.
Thanks for the suggestions... and I'm sorry you feel my pain!
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Hey Casey,
I'm sorry you have to go through all this, I've had a so-so week myself...ANYWAY,
You've probably seen it already but here's the list of what to eat when you can't eat anything. Maybe if you feel like you really need to get something down you can choose something from this list:
Safe Foods To Eat When You Can't Eat Anything
* White breads (such as French or sourdough), not whole wheat or multi-grain
* Toasted plain bagels
* Toasted plain English muffins
* Cream of Rice cereal
* Pretzels (salted or unsalted)
* Fat-free Saltines
* Fat-free fortune cookies
* Plain angel food cake, homemade or from a mix
* Plain baked potatoes (without the skin)
* Plain white rice
* Arrowroot crackers
* Cold fat-free cereal such as Corn Chex, Kix, Rice Chex, Rice Krispies, Honeycomb, or Corn Pops, eaten dry. At all costs avoid bran, granola, and whole wheat choices, as well as cereals with raisins, other dried fruits, or nuts
* Homemade dried or fresh bananas
* Plain cooked pasta (not egg), sprinkled with a little salt
* Lots and lots of strong hot peppermint, fennel, chamomile, or ginger tea
Plain and uninteresting, I know...and its probably not easy drinking all these hot drinks when its boiling hot, but drinking something cold will probably make the tummy feel worse! I don't know where I heard this but hot drinks are supposed to cool you down when its hot. I don't know if thats true, now, but anyway!
Also, I know its frustrating that you feel like you can't do anything - I know what that is like because I haven't been able to do half the things I used to do. Going out with friends is a struggle...but you know what, you can't worry about it now. Your health is most important and if you have to be in bed, you should be, even though I know its not what you want to be doing. I agree with the others, get yourself a good book or magazine to read, and maybe watch some TV. Just take time out for yourself today and just do what you can.
I really hope you can feel a little better very very soon!
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Oh yeah...
#78133 - 06/11/04 08:10 AM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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I live by the "what to eat when you can't eat anything" list. The problem is that, some days, I can't even eat THAT. I'm doing better today, but yesterday, I couldn't even tolerate white bread and peppermint tea. I wasn't having an "attack", I just did NOT feel like I wanted anything in my stomach at all.
This is going to sound screwed up, but if I had my way, I'd just never eat again. Of course, that's not possible, for the sake of my intestines, so I continue to wrestle my way through this.
Thanks for your suggestions. I already do feel a bit better (I've had 2 small bowls of cream of rice and my SFS this morning), and I suppose you're right, if I need to rest then I need to rest. Hopefully I can stabilize soon and not spend my entire summer like this.
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Oh no it doesn't sound weird to me at all. I went through a period when I was like that too (still am sort of). Don't you wish food could just not be an issue - like we would be satisfied and "full" but without having to worry about the food and how our wonderful intestines will react to it. sheesh! Anyway when I am like that I like to eat things like popsicles or something that tastes good but is not heavy to eat. Besides if its hot then thats probably good...also I agree with what someone said earlier - take small, tiny if you have to, bites of food every now and then because otherwise when do you get your appetite back and feel like you want to eat a larger portion your stomach might not be used to it and it may make you feel worse. Just eat what you can tolerate, don't force yourself too much.
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Re: Oh yeah...
#78145 - 06/11/04 08:31 AM
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Debby
Reged: 11/05/03
Posts: 460
Loc: Cleveland, Ohio
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I had a bad stomach week last week mostly due to the flu I had. Then I just couldn't get my stomach back on track. It was hard to eat even when I was hungry. I think my stomach shrunk a little and I could only eat small amounts at time. I seem to always feel better with food in me and I never feel good not eating for more than a few hours or so. If I'm at home and close to a bathroom I try to eat the safe foods if I can. Even if it's just small amounts, then I take Immodium if I really need it.
I do hope you feel better and know that you are not alone if your feelings of desperation and frustration and we all go thru it especially when you feel like you can't do anything right to make yourself feel better. Then I just eventually get back on track and my spirits are lifted and I can live my life normally again (until the next attack or the next stomach flu). It's a vicious cycle!
Take care,
Debby
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The books
#78149 - 06/11/04 08:42 AM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Although I love having Heather's books, so much of the stuff is on this site that you could cope without them (Heather really does want to help people!). When you've got time, print out and read all her pages on IBS and the diet - it explains a lot.
Can the bf make smoothies? That just requires destructing some fruit! Boys are usually good at messy stuff 
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Not eating full meals is actually GOOD for IBS. The best way to get your food with IBS is lots and lots of tiny snacks! So, that's fine! 
Acacia dissolves completely and is tasteless (practically), so you can put it in ANYTHING. It's also gentler on most people's tummies.
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Yep, I agree with Linz, I haven't got the books (university student here  ) but I've still learned valuble info just through the site and messageboard alone. And those with the books would be more than willing to answer any additional questions, I'm sure
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I think...
#78172 - 06/11/04 09:20 AM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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I've read the entire site twice through, but I have a head like a sieve, so I'm betting you're right - printing it out and having it handy might be the most helpful thing for me right now. I don't know why I haven't thought to do that sooner. I swear, IBS is rotting my brain.
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I may have to try the acacia. Soon. (I just wish this stuff wasn't so darn expensive.) The citrucel is fine in tiny doses - less than a teaspoon - but as soon as you mix up a teaspoon or more, it's like swallowing glue. Unless you're one of those people who can chug down a glass of liquid quickly, which I can't.
Hmm...
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do you mix it with a fork? someone said that helps! 
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Mixing it with a fork would likely make it less "clumpy", but Citrucel doesn't have that clumping problem anyway. The problem is that if you let the stuff sit for more than a minute, it starts to thicken and get more gel-like. Unfortunately, I'm a "sipper" and it takes me 5-10 minutes to get through an 8-oz glass.
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I do that too...I take Acacia now because I HATED when it Citrucel turned into glue. Made me gag. The Acacia is not that expensive considering you get much more fiber than I did with the Citrucel. It lasts me a lot longer. And - it doesn't have that gross taste, so it's easier to drink for me.
I hope you feel better soon.
I had a bad attack last night and I can't figure out what it's from, so I'm a little depressed. Plus I'm going out of town this weekend and I feel all screwed up inside now! IBS can be such a downer. I can't wait to be stable for even a month! Seems like I have an attack at least every 2 weeks.
Feel better!!
~Cara
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~Cara~
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Try making an orange "slurpee" with the Citrucel. Blend it with water and ice and pour it into a large cup. This makes the thickness a lot less noticeable, but it obviously only works if you can tolerate cold...
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Christine
Those who can do; those who want it done better teach.
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Oy...
#78218 - 06/11/04 12:28 PM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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Sorry to hear you had an attack last night. That stinks. Maybe anxiety about going away this weekend? I think I remember you being kind of nervous about that even days ago... I know that if I'm anxious about something, it'll hit me days later. Stupid IBS.
I know the acacia is a better deal in the long run... I just meant that I don't have the money to get it right now. Once we move - a month from now? 6 weeks? - we'll have a little more cash for things, and the acacia is tops on my list. The citrucel isn't exactly disagreeing with me, but I would prefer something a little easier to take.
I think I'd even be happy going 2 weeks without an attack, at this point. Right now, between actual attacks and nausea and panic/anxiety from both of those, I have maybe 1 good day a week. It blows.
Hope you're feeling better too!
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Hi Atomic Rose,
I just wanted to say that I read through the posts here and I'm glad you're feeling better and I'm sending good vibes your way that it keeps getting better!
I think the eating small bits throughout the day is definitely a help!
Feel even better soon!
Ana
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Hi, I am new to this board and thought I would introduce myself. I've read some of the post and relate to each one . My story is most likely like a lot of yours . Although until just now , I thought I was alone . I just ordered Heather's books and am excited to learn more as the Drs, nutritionist and specialist have not addressed or simply do not know . I've been ill since March. Lost 15 lbs of my only 100lbs . Hospitalized twice for dehydration, giving every test known and was told there are some Diverticli on my Cat scan, this was not my problem as they are not infected or inflamed. My diagnosis is acute IBS . Then sent home with the " Things you can eat when you can't eat anything diet " . ( This was not as clear as Heather's diet. My period is coming again and I fear this for it flares up the IBS and I am in excruciating pain regardless of what I eat . I too, like some of you am a prisoner in my home since I can do nothing. I am weak, tired and have severe anxiety on top of it all . The anxiety I have always had but very controlled until now . Thank God, I have a wonderful husband but, I do see the disappointment in his face each day as I am not better yet. And, I have two grown sons , so that help that I do not have to feel guilty for not being able to care for them right now . They do still live at home and this IBS has really affected all of us . I feel hopeless and that is the opposite of me, I am always the optimistic one or the positive one . I just can figure this one out . I've rambled and I am so sorry, I know most of you have this daily struggle and I my intention was not to add to your burden but kinda let you know who I am . As I open to any and all suggestions you may offer . I've had acupuncture this past week and am getting it again tomorrow . Along with following my Gasenderoligist and Medical Drs orders.
But, I feel like I am singled out. I was so afraid at one point , I thought I had a worse disease and no one was telling me. The thought that someone could be suffering so much made me think this . * shakes head * Thank you for welcoming me to this board and I hope to bring you smiles on days when you need them . God bless you, Tori
I welcome any email too . thank you
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Hi Tori....
#78247 - 06/11/04 01:38 PM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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Welcome. I only found this board myself a little more than a week ago, and I'm already hooked... even when there doesn't seem to be an answer to my specific problem, the support of sympathetic people is PRICELESS. I do hope you'll stick around.
I'm probably the last person you should ask for suggestions right now, in light of my current problems. But there are oodles of people on here, with varying degrees of this awful disorder, who are in various stages of controlling the symptoms, and they really are an invaluable resource. You are definitely not alone!
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Aww I have trouble with nausea and anxiety attacks too. I had the WORST panic attack last weekend of my life. I didn't sleep all night, and I just felt AWFUL. I wanted to jump out the window! I wish those would stop. I am trying to get pregnant (I might be, I don't know yet...) and so I cannot take any meds like Xanax. I would have killed for a Xanax that night! I feel like - what's worse - the baby suffering through my panic attack all night? Or solving the problem with a pill? I just don't know...but my GYN won't let me take it, and I completely understand/respect that. I just wish I didn't have those stupid attacks, it scares me for having a baby and all.
Anyways, I hope you feel better soon. And I hope my stomach holds up this weekend. Maybe we'll have a good week next week. Yeah? I FREAKING HOPE SO.
:P Feel better hun!
~Cara
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~Cara~
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Hi,
Welcome to the boards. This is a great place for info and advice and sympathy and some times a little fun.
I am sorry you are having such a rough time. I also have anxiety and I am taking Librax to help my anxiety and to relax my stomach. You take it 30 min. before a meal. It seems to have helped me. Also, I take Xanax for a really bad anxiety day but only occasionally.
Are you tired because you can't sleep? If so, try OTC benadryl (antihistamine). It really helps me.
Good luck
Barbie
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I'm trying very hard not to. I took a half-dose this morning. And yes, I just saw your other post about imodium... that's exactly why I was trying not to take any. :P It's awful stuff. But I had to take it, or I'd have gone a THIRD day without eating or doing anything, and I couldn't handle that. I rarely take it anymore.
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hmmm
#78347 - 06/11/04 10:00 PM
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I'm glad that you read it cause it adds to the stress and makes you more sick if you are worrying and can't figure out what is making you sick.
Did you cut back your SFS? I know you had just started taking them and you really have to start off at almost a microscopic amount or you get non-stop for the first little while I reduced mine and it took me a week the first time to adjust and 3 days after that when I increased.
Hope you find the answer you're looking for.
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SFS, etc
#78377 - 06/12/04 06:38 AM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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Well, I'm happy to report that yesterday's single imodium did not stop me up. Ya know, maybe my period has something to do with this. It's about my last day today. I don't know why I didn't make the connection earlier.
I didn't actually decrease my SFS when I had that first problem. I took the same dose the next day, but split into 2 doses about an hour apart, and I was fine. The day after that, I took the whole 1/2 tsp again, and I was fine then too. I remembered what you said about the increases doing a number on you, and I was surprised that when I increased another 1/4 tsp the day after that, nothing happened. LOL!
Part of my problem is that I'm still adjusting, and I need to be patient, and I know it. Patience has never been my strong point.
The other part of my problem is that I don't eat enough, and I know that too. I have extreme food anxiety. A friend of mine suggested that I see a therapist, and I don't know why I didn't think of that sooner - mental health care is one of the few things I *CAN* get for cheap/free up here. Duh. So I have some phone calls to make on Monday... maybe that'll help this adjustment period some.
Thanks for all your help.
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Yes, do the therapist thing! I go to a therapist now, and he's wonderful. He's trying to help me with anxiety, but he's also so concerned about IBS, and he doesnt blow it off. It's just nice to have someone to talk to that WANTS to understand you, and wants to help.
My therapist looks like Willy Nelson, totally freaked me out at first because this biker in all leather with gray hair down to his waist and a bandana comes in....lol. He is awesome - nicest guy. Kinda like at my job (that I just quit) - I worked outside a lot of the time with construction workers - the guys everyone says look scary and swear all the time... but ya know what? Some of those construction workers are the nicest guys I have EVER met. Heck I married one. HA. I have definately learned that you can't just anyone by looks at ALL! Ok I got off on a tangent. I do that a lot in my head, but this time I wrote it out.
Good luck. Feel better. We are leaving for the rest of the weekend soon - hopefully it's a good weekend...
~Cara
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~Cara~
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You would not believe how sick I would get in the past from a period.
I was at the gyno and they even had a pamphlet about bad periods and it said that IBS is a trigger because the hormone effect IBS.
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Acacia
#78598 - 06/13/04 01:38 PM
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Linz
Reged: 09/01/03
Posts: 8242
Loc: England
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Although the Acacia seems expensive, you get so much in one bag, it's not really. I know you need the money to start with though!
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Not that this will help your situation, and I am sorry to not have the miracle drug, but I can completely empathize with you and I am touched by your story- so much like the one I experienced on my recent trip to Texas to visit with my boyfriend (who is in the navy in japan so we only see each other but every three months) and to meet his parents for the first time. I got sick about three-four times on the ten day trip, and one morning I awoke in bed, crying my eyes out. Even though my boyfriend is very supportive, I honestly just wanted to die because I cannot bear to live life with this sort of ridiculous disorder. Not that I would ever do anything to harm myself, but I am a perfectly healthy 21 year old and it's just not fair that I live my life in fear because of IBS. I just wanted to share with your story and I thank you for posting it.
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If you are finding life very hard and feel that your IBS is wrecking your life, then an anti-depressant med is likely to help you. IBS is linked to problems with your body processing serotonin, so anti-depressants are often prescribed for IBSers even if they're not depressed. If you are, then you could help two conditions with one drug!
I'm on an SSRI and it's really, really helped me AND my IBS.
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Welcome to the boards. I'm sorry you have to deal with this too, but at the same time, it's nice to meet you and good to have the "company" of people who understand, isn't it?
I don't really have anything helpful to add, either, except to thank you for sharing your story, and for empathizing. It does help to know we're not alone. Here's hoping things only get better from here.
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