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At my wits end!
      #75156 - 06/01/04 08:20 AM
misslynne

Reged: 05/17/04
Posts: 21


I desperatly need some good advice. I have tried everything to get my intestines back in good shape. I am Ibs-C and take miralax daily which is the only thing that has constistently helped. The Bentyl I was taking helped but I had to take so many that I felt drugged, emotionally unstable and I stopped going to the bathroom (my doc said it slowed stuff down so "well" that it pretty much halted my digestion), so I am now off the Bentyl. I am taking the peppermint caps and they may help a little, I am not sure. I drink fennel, peppermint, ginger teas, you name it I drink it. I do everything right but am getting no relief. I keep reading in the numerous books that once you find your trigger you can end your ibs attacks. Am I the only person who is constatntly having an attack? It is never a case of I eat a meal and get sick for a while and it goes away, I always feel this way. Any advice would be appreciated. I am contemplating hypnotheray and going to a naturopath doctor-has anyone had any luck with these. Thanks for listening!

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Re: At my wits end! new
      #75167 - 06/01/04 08:46 AM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Hypnotherapy has helped a lot of people. Also, I don't see any mention in your post about the three most important things for IBS-C:
1. Eating some INSOLUBLE fiber. C's need it even more than D's.
2. Drinking LOTS of water.
3. Exercise, walking in particular.

Good luck and I'm sure you'll get many more responses, too.

--------------------
Laura
Keep it simple!

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Re: At my wits end! new
      #75200 - 06/01/04 10:22 AM
misslynne

Reged: 05/17/04
Posts: 21


Thanks for the tips Laura. I already drink tons of water and I go to the gym 5 days a week and walk and do yoga on the others. I will up my insoluble fiber intake, I have read so much about not overdoing the insoluble fiber that maybe I have cut back too much. My doctor just called me and wants to do a colonoscopy so she can rule out anything worse, but given my age (27) and that I am female she feels confident that it is IBS and nothing worse-hard to imagine anything worse! I also earlier made an appointment for hypnosis, so I will let everyone know how that goes. Thanks again for the response, it helps having communication with others who know firsthand how you feel

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Re: At my wits end! new
      #75228 - 06/01/04 11:20 AM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

You're welcome! You're right, I bet it's the insoluble fiber. Many people here have had that same experience of cutting back too far and needed to add some back in.

--------------------
Laura
Keep it simple!

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Re: At my wits end! new
      #75235 - 06/01/04 11:36 AM
rlan

Reged: 06/05/03
Posts: 161


I definitely feel your pain. I was in exactly your place a little while back...I wrote post after post about how I just couldn't take it anymore. I exercise (I'm a personal trainer!), drink water, was eating the diet. I have been MUCH better lately. To be honest I don't know what it is there are many possible variables. I did the hypno CD in fact today is my last day, I gained some weight (uped my body fat perct.), and really try to relax when I'm stressed. It's hard to say what helped, there's no way to know if hypno helped and that's frust. but hey I feel better. Oh, and I also take probiotics. I took them awhile back and they helped then stopped when they didn't seem to be and now I"m back on! Ok, sorry to drag on but I totally understand. If you have more questions let me know!

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Thank you for understanding new
      #75248 - 06/01/04 12:15 PM
misslynne

Reged: 05/17/04
Posts: 21


I am relieved to hear I am not the only person with this experience. People think I must feel amazing because I am so healthy in what I eat and my excercise habits. It is so frustrating when you do everything right and nothing helps-but as my doctor said, imagine how bad I would feel if I didn't do all of these things! I really need to put some weight on. I am down to 108 from 119 last fall and it is so hard to eat when I am in pain or bloated or whatever is ailing me. How did yo manage to gain weight? My weight training has suffered because I have lost so much weight, but I still lift at least three days a week. I take a probiotic now, which one do you take? Mine is called Enzymatic Therapy pearls. I am glad you are feeling better, I know there is no way I will feel like this forever, but it is really hard right now. I can't make plans with friends and my social life sucks right now, I am sure you understand. Sorry to vent, thanks for the info. I appreciate any tips you can give me. And again, glad you are feeling better, you give me hope!

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Re: Thank you for understanding new
      #75357 - 06/01/04 07:38 PM
rlan

Reged: 06/05/03
Posts: 161


Feel free to vent! I take Jarrdopholious EPS (spelling?) probiotic, you can get them at whole foods. I like them b/c I can put them in my purse! As far as gaining weight I just sort of founds foods with high calories and I didn't go crazy about everything I put in my mouth. that was hard to do. For ex. I never ate bagels and then a week ago I had two in one day..not a lot of food but a lot of calories! This sounds messed up but something is working for me. Don't get me wrong I'm not perfect I still have problems but I feel more in control. I hope you feel better soon. Stay positive it helps and I am the most pessimistic person!

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Are you taking a soluble fibre supplement? - nt new
      #75401 - 06/02/04 12:31 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England



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Re: At my wits end! new
      #75622 - 06/02/04 01:58 PM
Yoda (formerly Hans)

Reged: 01/22/03
Posts: 3682
Loc: Canada

I understand your frustration. You will feel better. Just a few ideas - hypnotherapy is a great idea - visit the hypno board on this site - they're wonderful. Lots of people have found them extremely helpful.
As for a person finding their "trigger" - well, triggers are universal. A trigger is a trigger. The list is here under the IBS guidelines. Avoid all of them. With that said, individual people have different tolerance levels to them. IE someone can stand a trace amount of dairy, or the occasional indulgence in ice cream, (after a safe meal). Somethings I can't stand even in tiny amounts (ie whole wheat flour).
I know what it's like to feel crappy all the time. No one likes to feel this way. Have you tried a bit of light walking after a meal? Another idea is yoga. Lots of people have found it extremely helpful, as well.
I hope this helps.


--------------------
Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.

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Re: Thank you for understanding new
      #75764 - 06/03/04 03:57 AM
littleone24

Reged: 05/30/04
Posts: 50
Loc: London, Ontario

I UNDERSTAND. I feel like [censored] every minute of every day. I eat something and the minute I swallow my intestines go haywire, they start gurgling and twisting, cramping and still nothing happens. I guess I'm a "C". I've had "D" maybe twice in 2 months, but that I think, is when I'm trying to eat things that will make me go. The one thing I am thankful for, even through all the agony , is that I'm a "C". I feel like commiting suicide now, imagine if I were a "D"! I have no social life either. My friends don't understand, my family doesn't either. I guess I look healthy. I can't go drinking anymore, and what is food???!! This sucks, I feel like my life is worthless. So, believe me, I feel your pain.

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Re: Thank you for understanding new
      #75797 - 06/03/04 06:39 AM
misslynne

Reged: 05/17/04
Posts: 21


You should try Miralax, it has definetly helped with the C. I used to also go out drinking with my friends and I don't even call them anymore because it is all I can do not to talk about how aweful I feel and I don't want to depress them. They also don't understand why I never feel well, they think it is simply depression. I mean, yeah I am depressed about having to think about my colon all the time, but if I could just feel normal again I would feel so happy. I try to tell myself that I am becoming a better person because of this, and I tell myself that it has to go away eventually. I mean, I felt normal once before so, man, I have to be able to feel normal again. I am very grateful for the message board because it makes you feel like you are not alone. Imagine going through this 20 years ago before things like this existed!

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Re: Thank you for understanding new
      #75828 - 06/03/04 08:17 AM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

misslynne and littleone, i feel the same way as you! ah, it can be awful. its like if you wake up feeling like that you have a whole day of it to look forward to!
I "look" healthy too and my family and friends are totally oblivious to what I go thru. ugh. How old are you both?

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Re: Thank you for understanding new
      #75976 - 06/03/04 01:40 PM
misslynne

Reged: 05/17/04
Posts: 21


I just turned 27. I look so healthy, on the thin side, but trying to figure out how to gain a few pounds. I work out so much and do yoga, people are like "you are so healthy you must feel amazing". Too bad I feel anything but amazing. I am single and blow guys off when they ask me out- I am so scared to have to go to a resaurant and sound like a freak when I order. I know the guy would think I have an eating disorder or something. I can't eat wheat or dairy and I cannot have fatty food. I can't drink either. My Dad had all these same symptoms when he was my age, they didn't really have a name for it like they do now. He outgrew it and swares that I will, too. Hope he is right. Seems like it doesn't matter what I do or don't eat, I will get aweful pains from trapped gas and cramps/spasms. I try to be positive. Having people to talk to here on the board definelty helps. So-how old are you?

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Re: Thank you for understanding new
      #76010 - 06/03/04 02:27 PM
littleone24

Reged: 05/30/04
Posts: 50
Loc: London, Ontario

I'm taking antidepressents right now. Never thought I would. The reason I'm depressed is because of my stomach! We all know that, but the Dr.'s think our stomach hurts because we are depressed. They're so wrong. Take away our pain and we'd be sooo much happier, right. I don't have any answers right now. But what I keep reading is that IBS does not go away. Now that's DEPRESSING.

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Re: Thank you for understanding new
      #76011 - 06/03/04 02:28 PM
littleone24

Reged: 05/30/04
Posts: 50
Loc: London, Ontario

I'm 24.

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Re: Thank you for understanding new
      #76014 - 06/03/04 02:37 PM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

Miss Lynne - I know how tough it can be to eat when you feel sooo bad, bloated and already full and feeling awful, hopefully it WILL go away like your dad said. Looks good for you if thats any indicator!!!! In a way its good to have someone in real life, besides these WONDERFUL people, who truly understand what you're going through - my family doesn't really Actually, I think a partial cause of my IBS was a mild eating disorder I struggled with. I think I did harm to my insides by starving myself too much and not giving it the proper "care" Anyway I also used to exercise A TON, and now I can't anymore because of the pain...wahhhh!!! Im gaining weight by being inactive firstly, and trying to eat higher calorie things when I can...but it is hard. I'm in school right now in Canada and I am 18, will be 19 in a few months.

LittleOne - Wow, your story sounds sooo much like mine. My doctor believed it was stress than was causing me my stomach pain, and also prescribed me anti-depressants but like I already told her THAT WASN'T it! Like, you I was depressed a little but BECAUSE of my stomach! Argh, doctors!!!!!! I really really hope IBS DOES go away...but I guess only time will tell huh?

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