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Desperate! Advice sought please...
      #74884 - 05/31/04 03:57 AM
PoorlyTum

Reged: 09/14/03
Posts: 3
Loc: UK

Hi everyone. I've been suffering with IBS since 2001 and unfortunately my symptoms are worsening to the point now that urgency and accidents are becoming way to frequent.

My diet (I'm under my dietician's careful watch!) is now very resticted as more and more food becomes a trigger for me. My "safe" food now consists of grilled meat, steamed fish and rice. No kidding. Suffice to say I'm really miserable missing out on yummy food, eating out (heck going out because of the urgency/accidents!). My dietician encourages me to "test" foods but nothing (so far) seems to agree with my bizarre insides.

Anyway - to get to the point of my post. I initially saw a gastro who excluded IBD etc but I am now considering some kind of elective ostomy although I don't know much about them.

All I figure is that I am now living on the most limited diet known to man which leaves me chronically constipated (so bloated, gassy and uncomfortable) and in pain most days yet anything else gives me d. My health seems to starting to decline now too (bad skin, tiredness with an almost constant bad mood) which I am blaming on my diet. I have tried numerous medications, supplements but found no relief as my IBS is steadily worsening. I've tried two courses of hypnotherapy and counselling but unfortunately no joy there either.

So pretty much I'm wanting to go and see my gastro and beg/plead for any kind of eating-bipass! Whether this would be intravenous food, an ostomy or well whatever because my digestive system has abandoned all reasonable behaviour! So do you think this is is likely to get me laughed out of the room or what!?!

I'm only 22 and I have just completed my university degree and I am wanting to make my way in the world but my quality of life is zero. I am so embarrassed by my bowels that I do not socialise at all, I spend my time with my close family. Leaving the house is becoming more and more traumatic as these d accidents become more frequent. I work part time but am only able to do this because toilets are on hand but my last shift at work I had four urgent d episodes and I ended up being sent home. This isn't a life it's a life sentence. Do you think the gastro will be sympathetic or just fob me off. I am really missing out on stuff here (social life, relationships, employment etc.) and I just don't know what to do as I don't have IBD so does that mean an ostomy is out of the question? Can you have an "elective colonostomy" ???

Opinions and advice appreciated!


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Re: Desperate! Advice sought please... new
      #74885 - 05/31/04 04:13 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

You say you've tried supplements - does that include soluble fibre supplements? If so, which one(s) did you try. Everyone has different preferences and tolerates different supplements better, but for IBS-A (which you obviously have) Heather's Acacia seems to work the best.

A SFS (Soluble Fibre Supplement) is ESSENTIAL for most people with IBS. So if you're not taking one, order some Acacia from the site NOW!

What medications have you tried?

Have you checked out Heather's diet guidelines? What meat do you eat - not red I hope. I assume you have no dairy, coffee, caffeine, fizzy drinks....? Have you tried doing a few days of "what to eat when you can't eat anything" and then adding foods back in? So just eat plain rice, plain pasta, cooked carrots, etc (Heather gives a full list). That's to help settle your system down a bit. It's very close to what you're eating anyway, but you might be including more triggers than you realise. Then when you add anything else in, HOW you eat it is very important - check out what Heather says.

Do you use herbal teas?

To be honest, I don't think that an ostomy would be the way to go. And I don't think a gastro would be at all easy to convince.

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Re: Desperate! Advice sought please... new
      #74890 - 05/31/04 05:42 AM
PoorlyTum

Reged: 09/14/03
Posts: 3
Loc: UK

Hi,

Thank you for the reply. I agree that an ostomy is extreme but I feel like I am running out of options here! Food-wise just a few months back I was able to tollerate potatoes, carrots, cottage cheese and cornflakes but now they are definitely triggers. All I am able to eat is grilled turkey or chicken and steamed tuna, cod, haddock or salmon. All varieties of rice are okay too but this isn't much of a list. I am desperate to eat some form of fruit or veg again but guts-wise this is a real no-no. I am worried because in the long term eating no fruit or veg cannot be healthy and I think I must be setting myself up for other problems in the future.

My GP and dietician advised against the use of soluble fibre supplements (I was presribed psyllium) as they left me in agony. I'd be here all day if I listed the medications!!!

Herbal tea-wise I can tollerate ginger and peppermint. I'm just so desperate for a solution, I don't want to spend the rest of my life eating tuna and rice every day. I am missing out on so much but I don't know if my gastro will be sympathtic or if I'll just be wasting my time and upsetting myself even more. It's no fun being 22 with no mates and stuck indoors/near a toilet all the time!

Thanks for the advice though, I'm sure you are right because there must be people in a worse state than me.

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Re: Desperate! Advice sought please... new
      #74897 - 05/31/04 06:35 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Aaah! Bloody doctors. While psyllium can be helpful, it is also know to CAUSE gas and bloating (which translates to pain in some IBSers! - including me on a bad day). Acacia is a hell of a lot gentler I promise. I don't even notice taking it- except that I'm usually pretty stable!

As you've gone downhill quite quickly, you should really have tests again. You might have an infection or something that's making everything worse. So go and get bloodwork and a stool sample tested. Hopefully an answer will come from that.

Have you tried enteric peppermint capsules? If you can tolerate peppermint (I can't) then they are a GREAT anti-spasmodic. Heather says they work better for her than prescription meds. You can order them from Heather (a good idea if you get Acacia) or you can get them from health food stores or on prescription.

For my IBS-A, I found a low, daily dose of Immodium was extremely helpful when I was stabilising. It meant that I could get on with life and also that I could eat more fruit and veg without getting bad D. Ask your doc - you can actually get it in liquid form if you need a really low dose. As you're swinging (from D to C) so much, this might be a good idea for you - start off at a REALLY low dose and increase it slowly until it helps (without making you too C).

Also, with veg - this might be obvious to you - are you only eating well cooked soluble fibre veg? That's cooked carrots, apple sauce... It's the safest and gentlest way to get veggies.

Btw, please do list the meds you've tried as everyone else will wake up soon and it'll save everyone suggesting their favourite drugs if you already know they don't work!

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Welcome Poorly! new
      #74920 - 05/31/04 07:17 AM
Bevvy

Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State

I agree with Linzy; in fact, I was just about to respond to your post and tell you all the same stuff she just said.

You didn't say what kind of tests your gastro ran on you. Did he give you a colonoscopy? It's an absolute MUST. You have to rule out everything. An ostomy seems terribly extreme, given the fact that you don't really know for sure what's going on inside, and you're SOOOO young!

I'm 59. I'm also a D. I was a mess before I joined the Boards here and got so much help from Heather, Michael (the hypnotherapist), and these incredible people here in the Boards. I thought I was literally dying inside; at my age, I just knew that all my gut problems were cancer and that this was how I was going to die. It was my colonoscopy that set me straight and assuaged all my fears. I discovered that all I had are diverticulosis and IBS. Then I turned to the Boards and Heather, and the rest is history.

You need a colonoscopy. Ask your GI to give it to you. Then, when you're sure of the diagnosis, follow all the excellent advice from Linzy -- and I guarantee you'll get better.

Bev

--------------------
<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy


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Re: Desperate! Advice sought please... new
      #74970 - 05/31/04 10:13 AM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

I am troubled by the GI diagnosis. Linz is right, you need more tests. If for some crazy reason, this doc will not be willing, and I can't imagine that he wouldnt. To get his attention,I have actually reduced myself to tears, GOOD ONES!! There are so many times that the doc's are not HEARING to what you are saying. Do what you have to do to get diagnosed, sometimes we have to fight for our health, if you dont do it, no one else will.
Have you voiced these concerns to your dietician? Has she given you any advice?

Personally, I cannot tolerate carrots no matter how they are cooked.

Do list your meds,there are so many people here that have suffered exactly as you are, it will help.

I am worried about your mental condition, you are much too young for an ostomy,many people have them, your age and younger. We just hate to see you have to go that far, and if the doc says you do, then you do. Have you thoroughly researched this? Spoke with people who live with them? IF not, I urge you to do so, I recently had abdominal surgery, there were many ostomy patients on my ward. Without going into specifics, I thought I understood ostomy, girl, I definitely did not. I left the hospital praying for those people. To have this surgery, you will have to be diagnosed with a grave illness, this is always the LAST approach. Though today, they have a continuim of surgerys that can reverse the ostomy,(for some people,not all) I promise, unless it is the last resort, you dont want go there. Though many people live busy, fulfilling lives with ostomy, that comes with a positive attitude.

I pray you get some relief soon, your body has been through so much. I am so sad for you right now, you are going to get better, it may take some time.

Dont ever give up, with help from everyone here, you stand a chance of drastically improving. You have to re-set your thinking, instead of letting yourself get down because of the food you cannot eat, lift yourself up that there ARE foods you can tolerate. The sadness and anger you are feeling toward the condition of your body right now, are causing you anxiety, and maybe depression. These things do not give you healing power. I have been there too, try the acacia, at this point you have nothing to loose!
goodluck honey, gayla

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Re: Desperate! Advice sought please... new
      #75038 - 05/31/04 04:54 PM
PoorlyTum

Reged: 09/14/03
Posts: 3
Loc: UK

Hi everyone, thank you once again for your replies. I am *really* appreciative of them!

First of all I am really warming to the idea of this tummy fiber because ideally some kind of predicable pattern would be nice rather than four days of pain and c then a mass urgent evauation as my innards wake up and realise the backlog!

I am desperate to include fruits and veggies in my diet so I shall persevere and try that form of fiber first then think about a supplement. Anything I should try first / avoid altogether?

Thank you all!

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Re: Desperate! Advice sought please... new
      #75044 - 05/31/04 05:16 PM
Valerie3kids

Reged: 05/06/04
Posts: 15
Loc: Florida

Hang in there and don't give up. I have only been on the boards a couple of weeks but it has done me a world of good. I am now taking the soluble fiber twice daily and I have seen some improvement. I am still having some problems but it has all but alleviates the urgency and the accidents. I was thinking of asking about surgery not too long ago as I was just so tired of worrying about my bowels. The people on this board are all so knowledgeable and all of us have the same problems you have been through.

Hang in there.
Valerie

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Re: Desperate! Advice sought please... new
      #75047 - 05/31/04 05:22 PM
JosephC

Reged: 01/25/04
Posts: 125
Loc: Kansas City

I want to tell you that while I dont feel that bad-though Ive had those kinds of days-I know how you feel (as do we all). Im 26 and it seems like my life is in pause because of this sometimes. I've told a few friends, but making excuses for everyone else plain sucks. I live with my mother-which was at first a bad thing, but has since become a disguised blessing. I also work for family, so that makes days off, leaving early, and bathroom runs easier to understand. But its not fun.
Its part of a list of fears I still have-getting another job, living alone, friends, a relationship.
And finding out triggers and getting the right foods isnt fun, either. I have days where its broth and rice, and days when I ate fine but still have a problem. Soy isnt easy for me, and there are all those hidden things that some people are ok with and some people cant do at all. I worry Im not getting enough veggies either, but I try where I can and beyond the IBS, I can say I dont usually feel very bad-whcih I can only look at as a positive.

Anyway, when I first got IBS, and before Heather and this place, I was in agony and pain, and angry. I was paranoid about food and sometimes I really just thought I was/wanted to die rather than put up with the pain. But then I learned that there's a lot of us out there, many worse then me, and if they can do it, I can, too.

There is plenty of words of advice on here and some of it WILL help. First thing, as bad as it is, you have to look at the positive and get out that negative energy.
Try the foods Heather talks about. Take all this advice because, honestly, the people here collectively know more than a lot of doctors do. I look at IBS as an almost social disease because the things that tend to help most are things that we can do with others.

But keep fighting because you cant let the IBS win. I KNOW I'll get rid of it because I've basically told my body I will and I wont accept less.

I hope that whatever you decide to do that it helps your life get better. My thoughts and prayers are with you.

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Re: Desperate! Advice sought please... new
      #75053 - 05/31/04 05:33 PM
till

Reged: 02/11/03
Posts: 712


Hi
I feel your pain. I have severe IBS and I'm 21. I had it since I was 17. I'm housebound. I'm doing everything to get my severe IBS-c under control but I can't. My life is hell and I'd rather be dead. I don't know what to do since I'm doing so many things yoga, strong fennel tea, strong ginger tea, eating fennel seeds, taking Acacia, etc. There are so many things but nothing helps a lot. It's a nightmare. I have 24 severe symtoms. I hope you get better soon.

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Re: Desperate! Advice sought please... new
      #75058 - 05/31/04 06:00 PM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Stick with fruits and veggies high in SOLUBLE fiber first, the big two being bananas and potatoes. Stay away from salads and raw veggies for now, you can add them back slowly later. Cooked veggies are okay as long as you eat them WITH soluble fiber foods like bread or rice or pasta. Chopping them up fine, like for soup, also helps.

With fresh fruit, peel it and have it with soluble fiber. Good luck and thanks for sharing your story.

--------------------
Laura
Keep it simple!

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Don't give up!!! new
      #75068 - 05/31/04 06:46 PM
crampgirl

Reged: 02/23/04
Posts: 514


God, I feel for you. To be so young and plagued with this mess. I didn't get it until I was much older. I see numerous people have already posted with great advise, and for sure the suggestions in the book should help you. I've had this mess for over 10 yrs now. In the beginning I felt like you, even wanted to just die and wondered about living with a bag as a preferable way of life. I've known people who have had to go on the ostomy bag for a few mos after colon cancer and also had entire colons removed and believe me, living with no colon or on the bag is no picnic and you are unable to get the nutrients you need that way either & still have problems with food. So, don't give up yet is what I'm saying. This diet has made a world of difference to me, and I don't follow it 100% but what works for me. Come here and vent anytime you want, that is what we are here for.

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Re: Angel honey.... new
      #75077 - 05/31/04 08:08 PM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

You poor girl, I am so sorry you are suffering so terribly.
Dont give up, there are so many people who have found relief here. I am one of them, I thought the rest of my life was going to be down hill. Please hang in there, I care about you, you are too young to give up.

I had my first attack at 17, I am 47 now, back then there was no such thing as IBS. I was so afraid, I didnt even tell my mom how terribly I was suffering. I was laying out in the sun, started feeling weak, and in terrible pain, I tried to walk towards the back door and I collapsed. In too much pain to get back up, laying in the hot sun. It was terrible. I do know how you feel, lets just say it can only get better. We dont want to know what worse would feel like!

take care, I will be checking on you, gayla

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Hey Poorly Tum, I am back new
      #75093 - 05/31/04 09:06 PM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

Are the posts you have received encouraging? I hope they are, I am worried about you. I just want to send positive thoughts your way, always a prayer, please dont ever give up.

You are at a time in your life when you are soooo ready to get out and live. I feel for you, do you have Heather's Book? "IBS The First Year"? If not, go ahead and get it, it is a quick read. I keep it out on my desk, and refer to it often.

Take care, I am so sorry you are hurting, and so depressed.
Do you take anti-depressants? If not, please try them, I take Prozac, it helps me. gayla

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Re: Desperate! Advice sought please... new
      #75094 - 05/31/04 09:07 PM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas



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Re: Angel honey.... new
      #75323 - 06/01/04 05:20 PM
till

Reged: 02/11/03
Posts: 712


Hi
I'm glad you found relief. I had my first attack when I was 19 and I thought I was going to die. The pain was so bad I was screaming my head off. My IBS is so severe I don't know what to do. I get severe migraines and PMS annd that makes my IBS so much more severe. Attacks are so severe too. Heat makes me so sick too and it's getting closer and closer to summer!!
Summer here is so horrible. Humidity is so powerful. It hurts my severe arthritis in my fingers too. I hate summer. I never could handle heat.
What do you do?
Thanks
God Bless

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Re: Desperate! Advice sought please... new
      #75362 - 06/01/04 08:08 PM
heather robin

Reged: 04/22/04
Posts: 279
Loc: S.E. Pennsylvania

I agree with what everyone has suggested. Have you had all the tests to rule out everything else? My gastro said fiber supplements weren't for me, but I am taking them and they help. I hate to be a party pooper but I had a bad experience with a nutritionist and don't care for them. Other IBS books out on the shelves were written by doctors and nutritionists who get it all wrong or half wrong. Have you given Heather's "diet" a try? I am IBS-D and it has helped me so much I could just go on and on. I am now adding fruits and veggies into my diet. Hope you are feeling better soon.

--------------------
IBS-D

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Re:Angel honey, The humidity here is horrible too.... new
      #75385 - 06/01/04 09:18 PM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

I am concerned that you sound at the end of your rope. The humidity makes me feel as if I am fighting for my breathe, I try not to go out of the house until late evening when it is the hottest here, June through October. It is hard though, my yard is 2 acres, imagine trying to mow in the heat, trying to breathe, allergy attacks....I could go on and on.
Do you take SFS? Do you have Heather's book, IBS The First Year? If not, I do suggest it, I cant tell you how it changed my life the first week!
I do understand the extremely painful attacks, when my children were younger I was cooking dinner, out of the blue I was doubled over and before I knew it I felt like my colon had thrown me on the floor, literally. I had nothing for the pain, it was horrible.
Do you drink coffee? Carbonated beverages?

AS for the heat, I do drink water constantly, and I brew peppermint, cherry berry, and peach tea and I keep it in the fridge! Every little bit helps.

Dont you dare give up, too many people here care about you and helping you get better!! Keep me posted, gayla

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Veggies and SFS new
      #75398 - 06/01/04 11:51 PM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Taking a gentle SFS like Acacia will actually help you eat more veggies, so I'd start that first. But note what LauraSue said - start with soluble fibre veggies and avoid the more difficult stuff (like salad) atm. How about unsweetened apple sauce - cooked apple "innards"? Avoid the skins!

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Re: Desperate! Advice sought please... new
      #75625 - 06/02/04 02:03 PM
Yoda (formerly Hans)

Reged: 01/22/03
Posts: 3682
Loc: Canada

Aww, sweetie! I feel so horrible for you. I was exactly the same when I finished my first degree. I went nowhere. I ate potatoes, chicken and white bread. Total.
Peppermint tea. I would start drinking gallons of it. Then, try the odd mashed and cooked vegetable along with some rice or a slice of bread. IE squash, sweet potatoes, carrots. That's a good starting point.
Insist on getting a proper diagnosis. There could be something else going on. You'd think that after your degree was finished your stress level would go down and ease your symptoms.
Yoga?
Hypnotherapy?


--------------------
Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.

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Re:Angel honey, The humidity here is horrible too.... new
      #75690 - 06/02/04 05:12 PM
till

Reged: 02/11/03
Posts: 712


Hi
I have both of Heather's books. I follow them reliously.I have no carbonated drinks, or coffee. Thoses are like poison to me. I drink strong fennel, peppermint, ginger tea through out the day. I drinks lots of water too.

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Re:Angel honey, The humidity here is horrible too.... new
      #75692 - 06/02/04 05:14 PM
till

Reged: 02/11/03
Posts: 712


Hi
What's SFS? I'm not sure if I heard of that b4.
Take Care

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Re:Angel new
      #75745 - 06/02/04 09:52 PM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

Soluble Fiber Supplement, Benefiber, Heather's Acacia...

You drink the same things I do, I cannot find Ginger Tea, I live in a rural area. No Health Food Stores close by, there is one and only one, a thirty minute drive. They have no competition, and are extremely expensive. I could probably order it online and save a little with the price of gas being so high. Guess I'll try that. I chewed on some Fennel seeds tonight, sure made my tummy feel better.

My stress level doubled today, I am usually an A, but I have been doing pretty good lately. This afternoon I felt like my colon was full of cement, its not getting better either. It amazes me how I can be doing better and I can get stressed or upset,and in an instant feel like I have been constipated for a year! Whats up with that?

Are you feeling better? You were so down the first time we talked, tell me how its going!

gayla

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Re:Angel new
      #76336 - 06/04/04 05:25 PM
till

Reged: 02/11/03
Posts: 712


I get ginger tea at an Asian store that recently opened here. I eat sugar coated fennel seeds with every tiny meal I have and I"m taking Acacia fiber. Which fiber are you taking? I'm still really sick. It's killing me.
Take care

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Re: Desperate! Advice sought please... new
      #76339 - 06/04/04 06:00 PM
littleone24

Reged: 05/30/04
Posts: 50
Loc: London, Ontario

i want to die too

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Re: you don't want to die.... new
      #76342 - 06/04/04 06:13 PM
ibsgrl

Reged: 04/18/04
Posts: 1060
Loc: Canada

what are your symptoms? sorry if you've already mentioned them? C/D? Are you taking anything, what are you eating? I'm sorry to hear you feel so bad, sometimes I want to crawl into a hole too

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Re: Desperate! Advice sought please... new
      #76344 - 06/04/04 06:27 PM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Hi, LittleOne,

I just answered your other post to me in the gurgly tummy thread. But I'm really concerned about you, sweetie pie. I know sometimes when I say I want to die what I'm really saying is I want the pain to stop. Is that what you mean or are you really feeling suicidal? I hope not, but if you are, you need to tell somebody fast. I know from your other posts that you're 24 and are taking a low dose of Amitryptiline (sp?) antidepressant. So am I!! It takes a while to kick in though, and the dose that helps IBS is much lower than the dose that helps depression. As to whether you're depressed because your stomach hurts or your stomach hurts because you're depressed, guess what, it's BOTH!! But you're right it's mostly depressing to have a tummy that hurts 24/7. Now if you are really actively feeling suicidal, I want you to promise me you'll talk to somebody, okay? Call a suicide hotline, tell your mother, go to the emergency room and tell them. Because suicide is a permanent solution to a temporary problem. You WILL feel better. I promise, promise, promise!!!!

Okay? Post back and let me know you read this okay??

Here's a {{{{{{{{{{{{{{BIG HUG}}}}}}}}}}}}}}}}.

I know this sucks, but it's only temporary!!

--------------------
Laura
Keep it simple!

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Re:Angel new
      #76404 - 06/04/04 10:01 PM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

Angel, I just started Benefiber. Normally I am a suck it up and take it woman. But, the last few days have been full of stress, and I have had that old tiredness of IBS. I had a wonderful Mexican lunch. Should not have done that, it was a special day, I was out with my girlfriends. They insisted that I go out with them to get rid of some of my stress!! It did help, until it was time to start the drive back home, I started getting queasy and breaking out in hives.

Having a difficult time right now, I am calling my GI Monday, to switch anti spasmodics. The hyoscyamine is causing my eye sight to be so blurry, I just dont want to do anything any more. I am beginning to have a little fear of driving, afraid I might injur someone else. ughhhhhhhh!!

I have researched the Yoga, and am going to try some of the moves before bed. Hope you are doing better!!

gayla

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Re:Angel new
      #76484 - 06/05/04 05:18 PM
till

Reged: 02/11/03
Posts: 712


Sorry your not doing too well. It's great you have good friends. I'm not well at all. You should give yoga a try. I think you would like it.I do lots of yoga everyday. It helps.

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Re:Angelgirl new
      #76502 - 06/05/04 09:46 PM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

Angel, I am so sorry that you are not doing well. I know how you can get on the edge, I just do not want you to get so depressed that you feel like giving up! I cant let that happen to you!

Lets talk about out diets, I have been eating lots of things that make me bloat, or nauseous, or more constipated than I already am. As if it could get harder than cement already is. Are you able to eat anything? Are you loosing weight? Are you under an incredible amount of stess?

I just started Benefiber two days ago, we shall see, I hope it helps with the bloating. My allergies have been so bad I havent been able to get out and walk.

Do you have a yoga tape or dvd? If so, which one do you have? I am waiting to hear from you.

gayla

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Re: Desperate! Advice sought please... new
      #76643 - 06/06/04 05:19 PM
till

Reged: 02/11/03
Posts: 712


Hi
I was wondering do you have severe IBS? I can't seem to find anyone that has severe IBS since it's so very rare.

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Re:Angelgirl new
      #76645 - 06/06/04 05:33 PM
till

Reged: 02/11/03
Posts: 712


I can barely eat. My stomach is so full of gas and I'm so bloated I can only eat a tiny amount of food at one time if I eat more than that my symtoms get so much worse I fell like dying even more. I'm constantly full. It so horrible. Like I am carrying a watermelon in me 24/7. I'm so sorry you have allergies. I'm not losing weight since I can only eat a small amount of food each day. I get alot of yoga poses from magazines. I cut them out and tape them in a scrapbook and do them everyday. I have 3 yoga tapes. Basic Yoga For Dummies,Beyond Basic Yoga For Dummies, and Power Yoga Workout.
Take Care

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Re:I forgot to mention that... new
      #76652 - 06/06/04 06:13 PM
till

Reged: 02/11/03
Posts: 712


I also have severe water retention from severe c so that's also why I can only eat a small amount of food in 1 day. I have tons of stress. I do everything I can to chill but it's so hard when I have to deal with tons of stuff. I'm always praying to God for help. I find that when I'm really angrey or upset my IBS doesn't get a lot worse though. I could be totally relaxed and my symtoms can be really severe. So it really doesn't matter how I'm feeling but of course I hate being being upset and angrey so I do my best to think positive but of course that can only go so far.
My stomach is so big I look like a weigh twice as much as I do. I don't weigh myself since I wouldn't know my exact weight since the water retention is so severe. I look like I'm exspecting triplets!
So, do you have alot of stress and are you losing weight?
God Bless

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Re: Desperate! Advice sought please... new
      #76661 - 06/06/04 06:52 PM
trisha

Reged: 06/06/04
Posts: 2


poorly tum, i hope i'm posting this correctly, i just joined this forum. i am a registered nurse, and i can get around on the comptuer pretty well, although my two children say i'm far from an expert as they are!! i have a daughter a little older than you. and i feel sad that you can't enjoy your life with your new degree. congratulations by the way..first and foremost, always seek a doctor you are thoroughly comfortable with, give you enough time to ask questions and answers you completely. my research in IBS, for no other reason than i have now developed it as well. ( most of my life from my 20's on i suffered the dreadful d when i ate most things but learned to live through it with trial and error) now in my later years i have switched to the dreaded "c" and pain and severe bloating that looks like i am 9 months pregnant!! i have seen 3 doctors, a surgeon, my reg doc and a GI specialists, the most important thing for handling IBS is having a doctor you totally trust, research suggests a good doctor/patient relationship is the first hurdle attacking IBS. i do, however, have some suggestions. try an allergist to see if there is a particular food that may be triggering this, ( although, again most "food allergies" are not directly related to IBS, but it never hurts to cover all your bases) secondly, have you tried the new medication zelnorm? i am on it and it has certainly put me on the path of some kind of "normalcy" i am careful of what i eat, especially when out, but i do know eating 4-5 very small meals a day and not eating after 7pm has helped me tremendously. i'm not an avid proponent for medications but sometimes it is ultimately what benefits outway the risks. no, there is no "elective colonostomies", that is usually reserved for diseases like crohns. IBS is a functional bowel disease in whereas the motility ( contractions of the muscles of the bowel are impaired) it is not fatal and does not worsen the bowel tract. it's a matter of being the best detective you can be and keep a food diary, that seemed to help me a lot. i have difficulty with any "fake foods", diet sugars, dyes, preservatives, msg's etc. i can barely eat a chocoalte cheesecake because of the dairy, or a chocolate cake because of the flour and wheat, but i can enjoy a dark chocolate piece of candy ( my addiction) every once in awhile, even daily in moderation. you have to see what works for you but be diligent. i'm sorry you've been so miserable since 2001. you may need to seek another doctor. IBS is treatable. good luck. and let me know how it goes. trisha.

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Re: OMGosh, Angelgirlfriend new
      #76693 - 06/06/04 10:41 PM
gigi

Reged: 03/21/04
Posts: 1442
Loc: South Texas

Angel, yes, I do know exactly what you are talking about, the watermelon in the stomach thing! I have felt that way so many tims, and yes, my stomach looks distended most of the time, its not too bad today, I havent eaten much. But, right now, I can feel it starting to sweel as I sit here.

Yes, I do have an abundance of stress. I know there are so many people who have it far worse than I do, even though we know this it doesnt seem to make it any better, HUH?

I also suffer from depression, I take prozac, i am not regular with it right now, I just dont really care if I take it or not, and believe me, I need to be taking it. I am still not exercising because of the allergies. I do like your yoga idea, cliping out poses and keeping them!! You need to tell every one on the boards about that, it is a great idea!!

Yoga for dummies, that is me!!!!!!! Got to get that.

I wont be here for a few days, I am leaving in the morning for a funeral. IT is going to be a lot of driving, spending the night, and drive drive drive drive........at least I know the man that passed away is with JEsus!! Amen for that he is in a much better place.

I will check on you when I come home Tues. night. Dont let yourself get down, now!!! Try your best to keep looking up!!! I will be praying for you too. Take care girl!!

gayla

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Re: Desperate! Advice sought please... new
      #76773 - 06/07/04 07:41 AM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Hi, trisha, and welcome! Why don't you start a new post of your own to introduce yourself and get lots of welcomes!!

--------------------
Laura
Keep it simple!

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Re: OMGosh, Angelgirlfriend new
      #76991 - 06/07/04 05:43 PM
till

Reged: 02/11/03
Posts: 712


I'm so sorry a person you know passed away. He's absolutely in a better place. So sorry you suffer with depression. My life is depressing and it's worse since I got IBS. B4 I got IBS I thought my life couldn't get worse but then bam I got IBS. I'll post up a message about putting exercises in a scrapbook. I also do Tai'Chi and Pilates. Pilates really gives your tummy a work out so it's good for c. Now if only my tummy was flat, the exercises would be easier to do. I'll pray that you get there safely and come back safely.
God Bless

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Gayla, condolences on the loss of your friend. Hope the trip isn't too bad. -nt- new
      #76993 - 06/07/04 05:46 PM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City



--------------------
Laura
Keep it simple!

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