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My IBS Story (sent to Nutrition Action Newsletter)
      #6910 - 04/23/03 11:00 AM
Zaftig1

Reged: 03/12/03
Posts: 92
Loc: USA

Sorry I have not been here lately, the holidays kept me offline.

I subscribe to a newsletter called Nutrition Action, which shows you which foods are good and which are not. They recently sent out a call to anyone who had lost weight, asking for their stories. While my story to me is not really about weight loss but about IBS, I decided to send them my story anyway. Here it is:

>>>>>>>

CSPI--Thinning Ideas
Suite 300
1875 Connecticut Avenue NW
Washington, DC 20009

23 April 2003

I feel strange writing this...for 3 years now I have been an activist in the size/fat acceptance movement, and still am. I believe it is fully possible for a person to be happy at whatever size she/he happens to be. I also do not believe most people need to lose weight to be healthy unless they have other health issues affected by their weight. I have been a big woman for about 21 years and not once has it ever impacted my health negatively or my social life. Having said that...

Let me say that two years ago I began losing 100 pounds without trying to or intending to. Ever since the age of 16 I have suffered from Irritable Bowel Syndrome, or IBS (I was quite thin at the time I was diagnosed, by the way, so weight had no bearing on it.) At the time (1976), they didn't know much about it, except that it comes and goes, and at the time was treated with Donnatal for stomach spasms.

Two and a half years ago I discovered a book called Eating for IBS by Heather Van Vorous. This book outlined ways to treat IBS naturally to prevent attacks (I had been having attacks frequently, induced by my recent pregnancies, after having seen them go into remission when I was 21) Heather's plan included:

Avoiding high fat foods, or eating them only in very small quantities and not very often;
Exercise to regulate bowel function;
drinking plenty of water;
avoiding artificial sweeteners;
reducing red meat intake and dairy intake;
eating plenty of soluble fiber;
eating smaller, more frequent meals as opposed to three larger meals daily.
Avoiding stress as much as possible

Because of the severity of my IBS attacks (which often left me fearful to leave the house), I adopted her plan immediately. That was 2 years ago and I have lost 100 lbs as a side effect. I'm not really excited over the weight loss, because I enjoyed being a large woman and was content with my size. What does delight me is that my IBS attacks have stopped entirely! At this point I cannot even remember how bad they were, and all my Imodium and Bentyl meds that I used to practically live on have expired from non-use!

But as for the weight issue, I went from an all time high of 305 lbs to my current 200 lbs. I continue to lose weight. I do not weigh myself at home (I never have), but I know what I weigh when I visit my doctor, who weighs me there. Basically what I do every day and will do for the rest of my life to keep IBS attacks away, is:

Eat smaller more frequent meals--
Drink nothing but spring water, and occasionally skim milk and fruit juice--
Eat low fat or fat free foods--
Eat an occasional junk food treat, but in small quantities so as not to trigger IBS--
Exercise aerobically (recumbent exercise bike) for one hour to 90 minutes five days a week (used to be 7 days a week but my doctor told me to take two days off for a break)--
Add extra complex carbs to my meals since I am exercising daily (complex carbs also help keep IBS at bay)--
I also do not eat sugar very often, but this is not IBS-related (sugar does not cause IBS attacks yet artificial sweeteners do). We have avoided most sugar in our home ever since my husband was diagnosed with Type 2 diabetes 4 years ago.--
Using meditation and visualization to reduce stress (stress triggers IBS attacks too.)--


Please note that I must eat this way and live this way for the rest of my life. It is not a quick fix and because of the permanency of my new lifestyle, I doubt the weight will ever come back. Or the IBS!

(For your information: Irritable Bowel Syndrome, or IBS, is a non life threatening, non health threatening condition found mostly in women. It is usually diagnosed in the teen years, and manifests itself with sudden, severe diahrrhea alternating with constipation sometimes, occasional vomiting and nausea, and severe stomach pains. The unpredictability of attacks and the fact that different things can trigger attacks in different people, tends to leave IBS sufferers with a fear of traveling or being anywhere without immediate access to a restroom they can occupy for extended periods of time, since spasms during an attack can come every few minutes.)



Sincerely,

XXXX

--------------------
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
"A waist is a terrible thing to mind".

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Re: My IBS Story (sent to Nutrition Action Newsletter) new
      #6912 - 04/23/03 11:06 AM
britsarah

Reged: 02/16/03
Posts: 253
Loc: United Kingdom

Excellent post!
That was really well written and explained things clearly - let's hope it sheds some light on the syndrome for anyone out there who may be suffering and not knowing why.
Also, I like the 'non-apologetic size' tone of it, I wish I could be that strong about the shape I am.

--------------------
Sarah

Looking for inspiration...

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My Story new
      #6933 - 04/23/03 12:22 PM
yolie

Reged: 04/23/03
Posts: 28
Loc: Phila, PA

I found out that I had IBS last year after 3 months of very painful testing and loss of 45 pounds but I thank GOD that every morning I wake up and see my children. I honestly thought I was going to die because no one could explain what was happening. I was told about Eating for IBS by a fellow co-worker and it has worked wonders for me. My only problem is when I start to feel better I start to cheat on my diet. My husband helps me a great deal with my diet. He has been a tremendous help to me because no one in my family understands what I am going through. My mother went as far as to tell me that I was faking for attention. How could I have faked it if I had never heard of it!! I was looking through the postings and decided to reply. I just ask for support so I can stick to my diet and lead a healthy life. I don't want to see my kids cry because mommy has a tummy ache. Thanks for hearing me out and God Bless!!

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Re: My Story new
      #6943 - 04/23/03 01:47 PM
britsarah

Reged: 02/16/03
Posts: 253
Loc: United Kingdom

Welcome to the board yolie
I know how you feel, I posted last weekend about 'cheating'on the diet. It is hard to deny yourself things you like but can no longer have, and then putting up with the consequences. I think it's almost diet mentality of ' oh, that tastes good but I'm not allowed it', whereas it's needs to change to 'that will make me feel bad, so it's not worth it'.
We're all struggling the same, so don't feel alone and keep posting.
Sarah

--------------------
Sarah

Looking for inspiration...

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Re: My Story new
      #6945 - 04/23/03 01:49 PM
yolie

Reged: 04/23/03
Posts: 28
Loc: Phila, PA

Finally, someone who understands!!! Thank you! I am trying my best to stick to the diet and my husband has been very strict with me. Please keep in touch!!!

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Re: My Story new
      #6949 - 04/23/03 01:57 PM
britsarah

Reged: 02/16/03
Posts: 253
Loc: United Kingdom

No problem!
Feel free to post when you need the support, I worried at first about posting when I felt down or just needed to know other people were feeling the same, I thought you should only post questions. However I think the support from everyone is amazing and really important to all of us, otherwise we wouldn't all stick around. I feel like I have an extended family now, who includes you in everything and doesn't make you feel bad for butting in with your own ideas.
definitly *hugs* to Heather for setting up this board!!

Sarah

--------------------
Sarah

Looking for inspiration...

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Re: My IBS Story (sent to Nutrition Action Newsletter) new
      #6951 - 04/23/03 02:04 PM
SharonMello

Reged: 01/22/03
Posts: 996
Loc: Groveland, CA

Anita - glad to hear from you again. I thought you just settled into lurkdom!!!!

That was a great letter. Being a large size woman too I know what you're talking about, but my size made it impossible to even bend over to tie my shoes without not being able to breathe. I lost the 40 lbs because I wanted to. I feel better now (I can actually bend over to tie my shoes and breathe at the same time) and would really like to lose another 20 lbs. I've had several surgeries which involved incisions on my abdomen (women problems) and now the scars which have been stitched from the inside to something (I don't know what) is making that extra "tissue" appear rather strange. If I could get rid of that extra stuff, I sure would feel better.

Did you ever get any replies or comments from this article?

Keep on posting, my little zaftig kreplach! LOL. We love to hear from all of you, now matter what you have to say.

Sharon

--------------------
Sharon
"Anything Chocolate"...that is all!

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Re: My Story new
      #6955 - 04/23/03 02:11 PM
SharonMello

Reged: 01/22/03
Posts: 996
Loc: Groveland, CA

Yolie - Welcome to our IBS boards. It's nice to have someone from Philly--my old stomping grounds. I used to live in NJ and worked at Gimbel's in Philly in the office for a VP. That was in the old days, tho. I now live in sunny (well, not today) California up in the mountains.

It's great to hear that you're feeling better now. And, it's also terrific that your kids are so compassionate. I wish adults could be like that!

It's very hard to adhere to strict rules, but when it comes to IBS, I guess we have to or suffer the consequences. I, too, cheat sometimes because I dearly love chocolate. So, if I can't have Hershey's bars, I make desserts with cocoa powder instead and they're just as satisfying, although I do wanna eat the whole recipe at one sitting!!! And, if that isn't bad enough, the Hershey's chocolate plant is only an hour away in Oakdale, Ca. There's one in Hershey, Pa too, right? And, if that really isn't bad enough, their gift shop is enough to make you go into a diabetic coma by just walking through the doors!!! Needless to say, I don't go there, except if we take visitors through--no charge for the tour and, of course, they pick you up and drop you off at the gift shop. How convenient!!! LOL

--------------------
Sharon
"Anything Chocolate"...that is all!

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Re: My Story new
      #6957 - 04/23/03 02:13 PM
SharonMello

Reged: 01/22/03
Posts: 996
Loc: Groveland, CA

Yolie - Welcome to our IBS boards. It's nice to have someone from Philly--my old stomping grounds. I used to live in NJ and worked at Gimbel's in Philly in the office for a VP. That was in the old days, tho. I now live in sunny (well, not today) California up in the mountains.

It's great to hear that you're feeling better now. And, it's also terrific that your kids are so compassionate. I wish adults could be like that!

It's very hard to adhere to strict rules, but when it comes to IBS, I guess we have to or suffer the consequences. I, too, cheat sometimes because I dearly love chocolate. So, if I can't have Hershey's bars, I make desserts with cocoa powder instead and they're just as satisfying, although I do wanna eat the whole recipe at one sitting!!! And, if that isn't bad enough, the Hershey's chocolate plant is only an hour away in Oakdale, Ca. There's one in Hershey, Pa too, right? And, if that really isn't bad enough, their gift shop is enough to make you go into a diabetic coma by just walking through the doors!!! Needless to say, I don't go there, except if we take visitors through--no charge for the tour and, of course, they pick you up and drop you off at the gift shop. How convenient!!! LOL

I read your bio and see that you're a traffic controller...meaning air or???? That's enough stress right there to trigger attacks!

Welcome, again, yolie.

Sharon

BTW, I'm one of the Recipe Exchange board moderators. Please feel free to ask for any chocolate recipe I have--I love to share (and any other recipe for that matter).

--------------------
Sharon
"Anything Chocolate"...that is all!

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Re: My IBS Story (sent to Nutrition Action Newsletter) new
      #6977 - 04/23/03 02:59 PM
Lana_Marie

Reged: 01/31/03
Posts: 1968
Loc: Saskatchewan. Canada

This is wonderful. We all had a discussion recently about educating people about IBS. (And FYI Sharon - now I feel bad just saying I have food allergies - I feel I have to explain exactly what I have - thanks! LOL)

Anyways - I agree with you to be proud of the size you are. I do not exactly have major weight issues. I would say I am overweight for my height. But I know it's merely because I don't exercise.

However, I watched my mom struggle with her weight all her life. She always thought that thin was the best. I always told her, if you are dressed nicely and well kept people only comment on how nice you look. You will never hear someone say "Oh my, that's a pretty lady even for being overweight".

She never believed me though and now she is pretty much anorexic looking. I worry about her. She looks terrible. She looked way better when she was bigger than she is now.

I think your story is a true inspiration as well as educational.

Wonderfully written!

--------------------
Lana_Marie
Proud Mommy to Bentley Taylor
Born May 12, 2004 9lbs, 3oz



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