Frazzled new diagnosee seeking similar friends?!
#622 - 02/10/03 08:13 AM
|
|
|
|
|
UKKath
Reged: 02/10/03
Posts: 27
Loc: Britain
|
|
|
I chose a little Gremlin yellow man who looks like a frazzled head as that is what i feel like! I have just been diagnosed with IBS with predominant diorreah (which i can't even spell!!!) and associated stress/emotional problems (cause or symptom not sure!) just looking for someone out there to chat to about it who knows how i feel, most people seem to be predominantly constipated on this page?!!
Kathryn
PS Heathers books are great, i hope you have all bought them?
Print
Remind Me
Notify Moderator
|
|
|
Hi Kathryn,
I do know haw you feel, as I am also IBS-D! I am doing quite a bit better right now after years of major problems. I also have a lot of anxiety both as a cause and effect of IBS. It is a vicious circle because anxiety is a powerful trigger of symptoms and also a reaction to those symptoms. I can tell you what I currently do to help my symptoms and hope that maybe something will be beneficial to you!
For the anxiety, I take 2 tablets of SAM-E (S-adenosylmethionine) each morning on an empty stomach with a bit of water, along with my synthroid as I am also hypo-thyroid. SAM-E is available in stores.
I take plant-based digestive enzymes with each meal to help with digestion.
I take 2 tablets of Fibercon (actually I use cheaper store brands) before lunch and dinner for soluble fiber, as well as follow Heather's eating advise. I previously tried Citracel which made my diarrhea worse, and Metamucil which only helped a little and made me more bloated, so for me, the Fibercon (calcium polycarbophil) has made a huge difference in firming up my BMs, and I used to have around 5-10+ a day, and now I have 2-4!!
I also have a prescription for sublingual levsin, which in the beginning I needed a few times everyday, but now I only take it occasionally as a precaution when I have to go somewhere and am anxious about making it through an event!
I drink lots of herbal tea, peppermint after lunch, and peppermint chamomile after dinner, and my new favorite in the morning is Celestial Seasonings decaf Original Chai with a little soy milk added.
I hope this has been some help, I realize everyone is different and needs to be treated individually, but these things have helped me alot!
Mary Kay 
Print
Remind Me
Notify Moderator
|
|
|
Hi Frassled,
I've had IBS-D for 25 yrs. Some were real nightmare ones. So glad to have this site. My tips: Imodium helps me leave the house, when I must be somewhere and can't stay home. Oyster shell calcium 600mg (with vitamin D) 3 times a day with meals helps me. Luckily I like soy milk, rice, french bread,cooked veggies and fish. Sure miss fresh crunchy veggies and fruit though. Bananas everyday (glad I don't get tired of them) If you mash one in a bowl it tastes like rich pudding. Meditation and Journaling (writing out my troubles) saves my sanity. Remember to be kind to yourself.
Your IBS buddy,  paintlady
Print
Remind Me
Notify Moderator
|
|
|
Hang in there, Kathryn....
I am an IBS-D sufferer, too. For the better part of 35 years now. Have just in the past few years, however, become aware of how to control it. Imodium has been a lifesaver for me as well as many others on this board. I use the chewable tablets. The directions on the box say not to take more than 4 per day so I don't leave the house without 4 in my pants pocket. That way they are handy when I am in a restroom if I need them. Usually if needed I can make it with only taking 2. I drink lots of water and try to eat all the right foods, but occasionally I am a bad girl and allow myself something I'm not supposed to have...of course, then I pay for it the next day. I try to control my anxiety by writing poetry, crafting, walking and yoga.
Take care and come in here often...I just recently found this place!
Nugget
Print
Remind Me
Notify Moderator
|
|
|
Hi, I just found out I have IBS, too. Your post was funny. I'm not sure about how this goes, so forgive me for breaking any e-mail rules. I'm not a computer person. Do you know if there is a list of foods to look at, like sugar how much, stuff like that. Thanks I have the other problem from you. Can't go enough. You must be thin with that kind of a problem. At least what goes in comes out. I worry about going out to eat and not having to double over. You look all nice and your feeling good and the whole time your thinking what an I going to eat that won't kill me. Or are your friend going to be embrass because you need all the special stuff. Waiter do u prepare pasta wth oil or butter r sorry cant have the oil or the cheese, Life stinks
Print
Remind Me
Notify Moderator
|
|
|
Hey, everyone, i am having a fragile, emotional day today as i was off work with my IBS yesterday and was a struggle to come in today. The first thing i did was see if anyone had replied to my message and you guys nearly made me cry (would have if wasnt at work!!!), is so nice to not feel so alone!
Not sure how to reply to everyone at once but here goes, please feel free to read/reply to everyones!! ...
Dondonb90 - i found this page from Heather's book "first year IBS" have you read it as it seems to have the food lists you are after? Luckily i have some great friends who would never take notice of me making a fuss in a restuarant, hope you can explain things to your mates too? My problem with going out is that i get really tired (stress, not sleeping, food going right through!) by the time i am all dressed up and ready to go i need a nap!!! Only 7st4 at the moment so pretty thin!!
Nugget - I have been very lucky to have had a GP right behind me from the beginning (i cant imagine having IBS for 35years and only just gaining some control, hell?!) she has given me Lopermide which is good, sent me to a consultant for a colonoscopy and a phychologist too. Psychologist seems to be helping but only had two sessions, so still feeling left on my own a lot, trying yoga for the first time tonight so i'll let you know how it goes?! Walking, a good book and a warm bath seem to be good to, do you find the same?
Paintlady - Have just started on Heather's diet, luckily i like a lot of the foods too, not soy or rice milk though unfortunately so am trying low fat milk for now, hardest thing is missing cheese and chocolate, but i am well aware that they make exorphins, like feel-good endorphine when we exercise, when digested so they are just plain mean foods!
MaryKay - Hi! aah, the vicious circle of anxiety, something i am getting to know well! I have not been prescribed anything for anxiety, just seeing the psychologist but early days yet as i said. medical peeps keep talking about anti-depressants for it but i am really against them as part of my problem is not feeling in control and i dont like the idea of anti-depressants controlling me, sound right? i spoke to my GP yesterday about Soluble fibre supppliments, but she didnt seem impressed and said they might make it worse, maybe you could explain more about them?
Anyway guys, lovin you all
Kathryn
PS Where in the World are you?!
Print
Remind Me
Notify Moderator
|
|
|
Kathryn - I really "feel" for you, although I'm mostly G (gas) with mild C. Anyway, if a doc doesn't seem right for you, go to another. Some are not very responsive to a woman's complaints and think these are head problems. Anyway, I'm supposed to have a colonoscopy soon (I keep putting it off because I don't like IV's), but I'm going to have to succumb really soon. My husband is starting to sleep in another room because he can't stand the "aroma" emanating from this gas-filled body of mine!
Truly you are not alone--some of us have it worse than others w/physical symptoms. I'm doing a little sleuthing with my OTC meds and found methylcellulose in about 5 of them and just posted to Heather if she thought it might be one of my culprits.
As far as weight goes, I'm on the opposite end. Don't know how thin you are because I don't know the UK equivalent of lbs vs. stones. So how much is 7s4?
As far as antidepressants go, if my husband didn't take them, he wouldn't be able to function (he's bi-polar). Seems the older he gets (he's 57 now), the worse it gets leaning toward the lower end (depression). So, don't poo-poo antidepressants. But, looking at it from another point of view, maybe you're just down because of what's happening to you and wouldn't need the a-d if you were feeling better physically. It's like a vicious circle of events, and I don't like it any more than you or anyone else. Maybe HEATHER could help you out mental-wise. Just a suggestion.
Good luck and welcome to our "family".
Sharon (in California USA)
--------------------
Sharon
"Anything Chocolate"...that is all!
Print
Remind Me
Notify Moderator
|
|
|
Thank you for welcoming me to the "family" i have felt surprisingly better knowing i have contact with other people with similar problems, another one of Heather's great suggestions!!! (Except you suggested Heather might be able to help me herself and i don't know how to contact her directly?)
Lukily i have a partner who is happy to laugh at my gas as much as i am!!!
I think 7st4 is about 46kg, according to an online weight converter but dunno if that sounds right?!!!
Anyway...thankyou for understanding my vicious circle and please keep in touch?
Kathryn
Print
Remind Me
Notify Moderator
|
|
|
Hi again Kathryn,
Soluble fiber is VERY important for helping with your IBS-D! Soluble fiber helps with both diarrhea and constipation. For diarrhea, it absorbs excess fluid in your intestines and forms a gel that firms up your BMs and gives your intestines some bulk to fill them up and slow them down. I was very hesitant to try fiber for diarrhea because I always thought that fiber was just for constipation. But believe me, it does wonders, just start out gradually. Heather explains it all in her book and on her website.
http://www.eatingforibs.com/eatcook.htm
Don't get too discouraged, things will get better! If you really work on modifying your diet and start seeing things change for the better, your positive outlook will greatly help your anxiety!! 
I've definitely been there!
Mary Kay
Print
Remind Me
Notify Moderator
|
|
|
Hi Mary Kay
Nice to hear from you again, and thanx for your advice, i am certinly going to look into soluble fibre, maybe its just the suplement i need?! Thanx for the words of encouragement on the diet too, i've not much willpower and is just what i need, my partner is great but doesnt want to nag me so your sentiments are spot on!
Take care and keep in touch,
Kathryn
Print
Remind Me
Notify Moderator
|
|
|
Hi Kathryn,
Yes, a soluble fiber supplement will help you alot, take it before you eat your meals so that your system has something mellow to start out with. But also center your meals around soluble fiber foods like rice and french bread. I find that bananas help as well. Keep smiling!
Mary Kay
Print
Remind Me
Notify Moderator
|
|
|
Kathryn - to get Heather's attention, put her name up in the subject line in Caps, type in your message, and she should respond. I still don't know kilograms vs. lbs. Do you?
Sharon
--------------------
Sharon
"Anything Chocolate"...that is all!
Print
Remind Me
Notify Moderator
|
|
|
Sharon,
Excellent, thanks!
I think that 1stone is 14lbs so 7stone4 must be 102lbs????????
Hope you have been well?
Kathryn
Print
Remind Me
Notify Moderator
|
|
|
Kathryn,
Hello. I am just writing to see how you are doing today. I know you have had a rough few days and wanted you to know that I was thinking about you.
My fiance is British and we will be spending our Christmas in the UK this year. How is it finding IBS friendly products over there? I still have a few boxes of Marrowfat peas to make mushy peas (got those from the mother in law last Christmas  ) and work great!
Thank you and hang in there you are not alone!
Sheri
--------------------
So much baking, so little time.....
Print
Remind Me
Notify Moderator
|
|
|
Sheri
Hi, great to get your message today, although i have had a really bad week this week i have definately found some comfort in the friends i seem to have made here, your personal message was like icing on the cake (the cake i can't eat of course)!!!
My GP was great this week too and has asked to see me next week as she knows how alone i am feeling in all this.
I tried a new solution to my tiredness, headaches and anxiety last night which is acupressure plasters, dunno if you can get them in the US, but i didnt realise they make symptoms worse before better so was in a complete state and D was terrible this morning, i'm sorry to admit i gave up and took it off, maybe i will try again on a weekend as it was certainly doing something and supposed to be at its best after two days!!!
Had my first yoga session on wednesday too, which seems to have done some good until this morning, which was my fault so looking forward to that next week.
Also...psychologist on Monday and the more he gets to know me the more he can help so that is good too.
Life seems to revolve around IBS at the moment but when i get in a routine i'm sure it will be fine, things like yoga have loads of other benefits too.
Happy Valentines day by the way, hope your fiance got you something nice, white tulips from my fella which was perfect! Where in the UK is yours from?
I have heard a lot about IBS support groups in the US, is this a common thing? Certainly isnt in UK which is a shame.
Take Care
Kathryn
Print
Remind Me
Notify Moderator
|
|
|
Hello Kathryn,
How are you doing today? A bit better than the last? I hope so and by the sounds of it you are slowly making it one day at a time and I think that is briliant!
Today has been a pretty good day except the past 2 days since that time of the month has come, has manage to slow my progress down with regulating my bm. Fingers crossed that will change again in a few days!
My fiancee lives and is from Doncaster which is in South Yorkshire. I really like it up that and in the UK for that matter, but he wants to move over here so we are working on that now.
I don't think we have those kind of plasters or if we do I have never heard of them before. As for IBS support groups, I am not sure since I have only last weekend joined the IBS world. I have an appointment with my GI doctor on the 25th and I will see what else he has to say.
I am glad that my letter to you helped and know that if you ever need to chat I am here to listen. I am sure in due time you will be able to feel like you again only healthier!
Take care of yourself! I will speak to you soon,
Sheri
PS
Happy b-lated Valentine's day to you!
--------------------
So much baking, so little time.....
Print
Remind Me
Notify Moderator
|
|
|
Kathryn - I've been okay except I'm trying to find some soluble fiber tablets/pills to take every day that won't give me gas. I just bought Benefiber and, boy, I didn't have to use my feet to get around yesterday! Today, I tried Citrucel and it was almost as bad. My husband is getting ready to divorce me or better yet, hook me up to the car and save on gasoline! Anyway, any suggestions on another kind of daily fiber?
Thanks.
Sharon
--------------------
Sharon
"Anything Chocolate"...that is all!
Print
Remind Me
Notify Moderator
|
|
|
My GP is not too keen on fibre supplements, which i found a bit confusing. I have had a terribly windy weekend too, and off work Monday with craps, so just to let you know people out here know what you are going through!
Kathryn
Print
Remind Me
Notify Moderator
|
|
|
dondonb90 - Haven't heard from you in a long time. Are you doing OK? You didn't seem like you were in such a good mood in Feb (the date of your post). Please let us hear from you.
Sharon
--------------------
Sharon
"Anything Chocolate"...that is all!
Print
Remind Me
Notify Moderator
|
|
|
Jeanne - Haven't heard from you in a while. Are you doing okay with your IBS? It seems a shame that we're so close and don't "talk" much. Hope you're feeling okeydoke. Have you been cooking lately? If so, anything scrummie?
Sharon
--------------------
Sharon
"Anything Chocolate"...that is all!
Print
Remind Me
Notify Moderator
|
|
|
Hi Kath,
I am IBS-D too.I used to get day to day bad D. But, im now following heathers diet, eating plenty o fiber, taking calcium and im on an antispas called 'Levsin' so now i get d less frequently. Welcome to the family! If you ever have any questions, dont hesitate at all
--------------------
-Angela
Healed in Jesus' Name
Print
Remind Me
Notify Moderator
|
|
|
Kathryn,
I don't have IBS D...but I want to say welcome to the board! Everyone here is GREAT...you've come to the right place Happy holidays!!
Ruchie
--------------------
Formerly known as Ruchie
Print
Remind Me
Notify Moderator
|
|
|
Hi Kathryn,
Your GP sounds really quite sympathetic which is worth a lot (especially in the NHS!)!! I've learned though that when it comes to IBS, doctors don't usually know everything, they probably can't with all the details of all the different health problems. But I find they are often willing to learn if I've successfully tried something out(non-dangerous of course) and I always tell them because I think they will advise their next patient to try the same thing!
Anyway, your GP might be mixed up, maybe she's read somewhere that, after all, INsoluble fibre's not good for many people with IBS (that used to be one of the big dogmas). My UK GP was very much in favour of soluble fibre supplements and I was lucky there because she happened to be acquainted with the 'big' GI specialist at the hospital whose 'secret' remedy was a product called 'Celevac', that's a rather unknown product you can buy over the counter at your local chemist's (though it gets cheaper when prescribed by your GP). These tablets really saved my life at the time. They're completely harmless, (Methylcellulose otherwise used in wallpaper glue). They definitely did not cause any side effects like bloating or so.
I used to chew 8 per day (with one glass of water at least, be careful with the water, it may trigger the D reflex, so it has to be lukewarm and sipped). You will know within a day whether they have an effect on you or not. With me the effect was so extremely soothing in my bowels within 20 mins, I couldn't believe it. So I urge you to try them, whatever your GP says!
In a way, soluble fibre is just a 'mechanical' helper, like a hot water bottle, and I would give it to my children or anybody else with digestive problems. For example my mum, she takes my Psyllium capsules (another soluble fibre supplement) when travelling as a precaution against constipation, and it works.
Good luck
Susaloh
P.S. I used to live in the UK (Kent and Cambridge) but now I'm in Kiel, Germany
Print
Remind Me
Notify Moderator
|
Posts
