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Pneumatic bronchitus, prednisone, and weight gain
      #50521 - 03/14/04 06:42 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

I've been having a rough go of it. Got pretty sick a couple of weeks back with pneumatic bronchitus. I'm on prednisone, gaining tons of weight, depressed a bit, and starting a new job. There's just so much going on with me right now...

I'm sorry I haven't been here on the boards much. I've been spending my time eating (dairy is all I crave...probably due to a lack of calcium absorption from the prednisone...I also am craving lots of brocolli), trying to organize my home, and make a living.

I'm trying to be upbeat. Most of the time I'm pretty good at it...sometimes I crack.

I feel like I'm in a daze a lot. I think it's the medication.

I hope I will be back to myself soon. PLEASE forgive me for being away...and please don't worry about me. I'll be ok soon...

I hope everyone is doing great...I miss you all lots! I will be off prednison in 11 days I think...so hopefully I'll be back to myself then.

Love,
Ruchie

P.S. Sorry if none of this makes sense, I'm not sure how coherent I am right now....

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Formerly known as Ruchie

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Re: Pneumatic bronchitus, prednisone, and weight gain new
      #50522 - 03/14/04 06:44 PM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Oh you poor thing! We were wondering what had happened to you - would've sent out the virtual search party soon .

Get well soon hon.

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RUCHIE! new
      #50534 - 03/14/04 07:13 PM
Bevvy

Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State

Oh, honey, I'm so sorry you're going through all this. We knew you were going through a bad time -- and have all SOOOO missed you!

11 more days? Okay. You can do this. But can't you switch from dairy to soy? And I've never heard of anyone craving broccoli! (And I love the stuff) -- What does that feel like?

Please know that we are all thinking of you and wishing the best for you. We miss you and want you back, but you do what you have to do -- and come visit us whenever you can.

Your Number One Fan,
Bev

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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy


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Re: RUCHIE! new
      #50542 - 03/14/04 07:20 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Bev,

I feel so out of control! I just eat and eat! This medicine is insane...

I've begun tapering off of it...but I still feel awful! I wake up in the middle of the night sweating, I feel dizzy occasionally...lots of nasty side effects. But I can breathe...

The doc had me on 80mg a day of this stuff. My primary care who works with the ENT I am seeing said he'd never seen the ENT put someone on so much prednisone before. I was pretty bad off...

I feel better in some ways. But I seem to be immune to anitbiotics. I just keep praying I'll get better somehow...but I don't think medicine is my answer...

I'm in a lot of pain right now. My back hurts. If I don't eat enough often enough, I get nauseous.

I just don't feel like me.

Most of the time I can deal ok. But sometimes, like right now, I just feel so down. And so sick.

My husband has been my hero through all this. I could NOT get through this without him.

We've talked about therapy for me to deal with my chronic illness...and we're looking into it. This is just too much for me to deal with alone....

I'm so thaknful I can come to the boards. I know you guys (at least I hope!) won't judge me or think I'm weak for feeling what I do. I need support right now...and It hink this is the place to get it.

I like being the one to help others....but I guess sometimes we all need help....

Thanks for being here!

Love,
Ruchie


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Formerly known as Ruchie

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Re: RUCHIE! new
      #50550 - 03/14/04 07:27 PM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

Oh you poor babe!

Are you taking vitamins and things? I take probiotics, a multivitamin, 500mg vitamin C and echinacea. The last two are just keeping me going - as soon as I stop taking them I get a cold! Anything to help your immune system has just gotta help right now.

Therapy sounds like a good idea. I've thought about it myself, but I'm coping okay most of the time now.

Of course, we'll never judge you! Unless you count judging you to be a lovely caring person that we all miss when you're not around! And as for thinking you're weak, are you kidding. All this and you're still going! I think I'd be a loony bin by now. You're so strong!

Get well soon, honey. I'll be thinking of you.

Love, Linz

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Re: RUCHIE! new
      #50564 - 03/14/04 08:45 PM
tuxedocat

Reged: 02/09/04
Posts: 279
Loc: Ithaca, NY

Oh Ruchie, you poor thing! That is really a whole lot to be going through all at once!! Even if it feels so impossible to stick out in tough times, you're doing it. Just one day at a time (or hour or minute). And no way do we judge you or think you're weak--actually I think you're pretty darn strong, girl!

I do hope the prednisone helps you, even though I know you can't wait to be off it...with those side effects who wouldn't?!? Hopefully your ravenous hunger will go away once you're off the medication, but hey, if you're hungry, you're hungry, so for now just eat (but maybe avoid the dairy and cook the brocoli well )

Hang in there and I'll be thinking of you....BIG HUG to you!!
Julie

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--Julie

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Re: Pneumatic bronchitus, prednisone, and weight gain new
      #50566 - 03/14/04 09:25 PM
MissS

Reged: 02/11/04
Posts: 837


Ruchie,
I'm so sorry to hear that you are so very ill! I'm at a loss for words; except to say that I'm praying for you and thinking of you also. I am hoping you are well very, very soon.
Terri

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HUGS FOR RUCHIE new
      #50585 - 03/15/04 05:31 AM
jenX

Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA

Ruchie,

Hang in there! I'm sorry you feel so bad. I wish I could make it better.

Eat what you want and can tolerate, sweets. It will all balance out in the end. And remember, when you're on Pred, most of that weight gain is water (if you're on it short-term like you are).

As for therapy- it's never a bad idea. I think most of the world would benefit! You're going through a lot and it's not a sign of weakness to say you want to talk to someone about it, hon. It's a sign of strength! It's the weak people who don't fight. And you're not weak, kiddo! That's obvious to all of us.

Hang in there, and come back when you can. You are well loved here, as I hope you can see.

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Re: HUGS FOR RUCHIE new
      #50609 - 03/15/04 06:55 AM
StephS

Reged: 09/11/03
Posts: 2123


Ruchie, I really hope you get to feeling better! Some thing is just attacking you!!! Don't worry...pretty soon it will give up! I'm hope you get to feeling better! I bet once you get of that med...you'll loose the weight you have gained!

I really hope you get to feeling better...now how many jobs do you have now? I hope it's just one...I remember when you had like 3-4. You have been working your self hard! Your poor little body needs rest! Take care!

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Oh no! new
      #50726 - 03/15/04 09:59 AM
Kree

Reged: 10/08/03
Posts: 3748
Loc: Northern NY

Ruchie, I'm sorry to hear about everything you've been going through lately. You poor girl! I just want you to know that I'll keep you in my prayers! You can get through this!



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"Anyone can exercise, but this kind of lethargy takes real discipline." -Garfield

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Re: Oh no! new
      #50747 - 03/15/04 10:24 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Thanks Kree for the kind words...and for the cute tiggerrific pic! Hope all's well with you!

Love,
Ruchie

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Formerly known as Ruchie

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Re: HUGS FOR RUCHIE new
      #50749 - 03/15/04 10:28 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Thank Jen! I wish it was just water weight...I can eat a whole BOX of pasta with cheese and sauce without blinking an eye! (I used to be a measely 100 lbs at 5"6...I weight about 140 now......not just from the prednisone I've been overeating this year....but THIS IS RIDICULOUS!) I hope when I go off I will go on a serious diet! I'm gonna need a new wardrobe if I keeo this up (and we can't afford it!)

I wish I could be strong right now. I wish I could cry. does that make sense? I'm sad...but I can't cry. My whole system is weird!

Have you been on prednisone before? It sounds like you're familair with it...

I hope I can get a therapist. It depends on insurance. I REALLY think I could benefit greatly. Sometimes I just feel so alone going through all this.

I'm glad I have these boards and friends like you Jen! If I can't afford therapy...the boards will be my therapy (not a bad option I gotta admit!!!!)

Thank you SO MUCH Jen....you're GREAT!

Love,
Ruchie


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Formerly known as Ruchie

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Re: HUGS FOR RUCHIE new
      #50753 - 03/15/04 10:31 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

What a great analogy Steph! I hope it DOES stop attacking me soon.....but it'd better watch out! Cause I'm fightin' back

I have 3 jobs now. Tutoring, telemarketing, and an assistant teaching position (which I'm actually still waiting for it to go through with the school disrict). I'm still trying to suport my hubby while he's in seminary. It's tough....

The good news is I have all of you and a wonderful husband....

I feel VERY fortunate to know you all...

Thanks Steph for writing...it really helps!

Love,
Ruchie

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Re: Pneumatic bronchitus, prednisone, and weight gain new
      #50754 - 03/15/04 10:32 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Terri,

Thanks! How's your daughter btw? How are you doing? Are you two feeling any better these days? I hope so!

Keep in touch!

Love,
Ruchie

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Formerly known as Ruchie

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Re: RUCHIE! new
      #50757 - 03/15/04 10:35 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Linz,

Thank you for your support! I wish I was strong...trying to be! I take vitmains, but I doubt they're getting absorbed between the antibiotics I'm on and the prednisone. I'm on meds so frequently...and I've read that they counteract the absorption of nutrients (no wonder I'm so down!)

I'm so happy to hear you don't need therapy because you're coping...that's FABULOUS news! Good for you! I'm sure you worked really hard on yourself...you should be so proud! *hugs*

How i everything else going for you? Wedding plans, job, etc.? Hope great! Thanks again Linz!

Love,
Ruchie

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Formerly known as Ruchie

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Re: RUCHIE! new
      #50759 - 03/15/04 10:37 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Julie,

I LOVE your pic! Thanks for the kind words...they really help! It IS hard and I'm having a rough go of it....but I guess it won't be forever......(although it FEEL like it is.....).

How are you doing? How's your IBS holding up? Keep in touch!

Love,
Ruchie

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Formerly known as Ruchie

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Re: Pneumatic bronchitus, prednisone, and weight gain new
      #50769 - 03/15/04 10:48 AM
suzyq

Reged: 05/22/03
Posts: 630
Loc: Northern Ont. Canada

Ruchie just want to send you a hug (( )) Take care Sue

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Re: Pneumatic bronchitus, prednisone, and weight gain new
      #50771 - 03/15/04 10:51 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Thanks Sue!!!!!!! Keep em' coming...I need all the love I can get...

*hugs back*

Ruchie

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Formerly known as Ruchie

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Get Well Soon Ruchie!! new
      #50779 - 03/15/04 10:57 AM
Kimm

Reged: 03/10/04
Posts: 1171
Loc: Toronto, Ontario, Canada

Sorry to hear you're not feeling well....hope you're feeling better soon!! You're in my thoughts and prayers...

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Re: Get Well Soon Ruchie!! new
      #50790 - 03/15/04 11:04 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Thanks Kimm, that means a lot! you're in my thoughts and prayers too! I give you SO MUCH CREDIT for breaking up with a guy that was great...but not right for you! You're an AMAZING gal!

Love,
Ruchie

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Formerly known as Ruchie

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Ruchie new
      #50795 - 03/15/04 11:07 AM
MissS

Reged: 02/11/04
Posts: 837


Ruchie,
That was nice of you to give a personal reply to my post. I wasn't expecting it since you're so ill, and I hope it didn't drain any energy from you to do so. Just don't be wasting your much needed energy and strength. When I had pneumonia and sinus infection, I was totally exhausted and so weak. It took me several months to get my strength back. I had to drink a supplement with protein for two months (doctor's orders). Even though I wasn't supposed to have dairy, I drank Boost with protein. I was craving dairy, too, but I wasn't on prednisone. I can't speak for you, but I know that the pneumonia was really draining my system of nutrients. Have you had any blood work done that shows if you're depleted or not? Also, I became very dehydrated. Keep in touch with your doctor and ask him about the weight gain and also your craving for dairy and your ravenous hunger. Someone mentioned a dairy free supplement called "Balance", but I haven't seen this in my own neck of the woods. I'm really leary to give advice, because I'm not a Doctor; but I just know from my own experience how truly draining these things can be. It was probably the worst I'd ever felt from anything. It's also quite depressing. Just keep tabs with your Doctor and remember that there's never anything too small to talk about with him. Anything that's going on might be a clue to the mystery of your condition and getting you well. You know, when I did have pneumonia and simultaneous sinus infections and a host of other upper respiratory stuff at the same time; I'd been on 3 rounds of antibiotics, and I just kept feeling worse. No one had really paid much attention to my blood work, until a cardiologist stepped into the picture. He was the one who put the pieces together and said I was malnourished and dehydrated and prescribed the liquid supplement plus lots of water. So, whatever you do; just don't give up. God will guide you where you need to be and take care of you. It's all for a reason, even though it seems so unfair! You're so young! Also, I worry about you getting enough rest. You work so hard! How much rest are you actually able to get? My goodness, you are certainly in the pressure cooker right now. Try to concentrate on wellness and rest, and please keep in touch with your doctor. Let us know how you're doing, but you need to put yourself first right now as much as you can.
(((Hugs!)))
Terri
P.S. My daughter and I are doing okay right now. Thanks for asking. (You sure have a good memory!)

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Re: Ruchie new
      #50863 - 03/15/04 01:24 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Teri,

The prednisone keeps me going...I rarely feel tired, just dazed. It also wakes me up in the middel of the night...

I'm SO GLAD you and your daughter are feeling better *squeals*! That's GREAT news!

Docs have ben doing all kinds of tests on me...blood work included! In fact, I go to the allergist again tom. for blood results and tests. I'll let you know the results!

I can't wait untl I'm off the meds so I can go back to being me...and back to getting good sleep!

What did your bloodwork show? Have they found the cause of your sinusitis?

I hope you and your daughter's health improve and tht you're both happy!

Thanks for the lovely response, Teri!

Love,
Ruchie

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Formerly known as Ruchie

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Re: Ruchie new
      #50881 - 03/15/04 02:04 PM
MissS

Reged: 02/11/04
Posts: 837


Well, when I had blood work done when I had pneumonia, almost everything was too low or too high. I was really out of balance. My protein was low, too.
My respiratory problems are from allergic rhinitis, but I have no idea what on earth I'm allergic to. (Except citrus). Sometimes I think I'm allergic to air! My daughter has suffered from sinusitis and ear infections since she was born and it's never let up. Every year of her life, she has at least 5 or 6 bouts of it; sometimes more. She catches everything that goes around, but it always ends up making her sicker than everybody else.
When I read some of your posts, it reminds me of my own daughter. I just know how you're longing to be well and do what young people enjoy doing without being sick all the time. Just do what you can to help yourself, and give the rest to God. (Do your best, commit the rest). I'm looking forward to the day that you are well again, and that day IS coming. You are such a sweet person, Ruchie. I can't believe that you are able to be so concerned for others, when you are so sick yourself. You get better now; and take care of yourself, little one.
Love,
Terri

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Re: Ruchie new
      #50882 - 03/15/04 02:15 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Terri,

Have you had skin tests done testing for allergies? You may have INTOLERANCES that do not show up on the skin tests...I KNOW I'm intoleratn to many cleaners. They do not have skin tests for cleaners though (I may be allergic who knows). This past Friday I had my husband dust our aartment. This was an experiment. I came home when he was finished. I COULDN'T BREATHE! I am SEVERELY allergic to dust! Even with the windows open letting the air out...it didn't matter! One thing we've noticed is that every time I get sick...it's after I clean our apartment! I LOVE cleaning (I'm a neat freak!) so this is heartbreaking for me. I know I must be allergic to more than just dust...and I'm not sure I trust allergy tests difinitively. They don't tell you about intolerances which can be just as detrimental as allergies are. They may not cause anaphalactic shock...but they certainly are disruptive!

My hubby and I are talking about buying encasings for our matresses and pillow cases, etc. I haven't decided how I feel about allergy shots if the allergists advises them. I've heard both good and bad things about shots.

I'll def. keep you posted. This is my 3rd allergist in a year! One says I have allergies, another says I don't...we'll see what the 3rd one says at my appoint. tom!

I hope you and your daughter get to the bottom of things soon! In the meantime, hang in there and keep your chin up...your attitude is inspiring!

Love,
Ruchie

P.S. I don't have "proof" I'm allergic to dust. It may not even show up on the test. I am sure, though I don't know what yet, that I am also allergic to other things with my body recognizes as foreign and reacts to. I've almost had it with docs. At htis point I feel the best person to tell me about my bod is me....and I know my bod is intolerant to dust! If you have a gut feeling you're allergic to something or something is making you ill...you're prob right! Go with your instincts!

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Formerly known as Ruchie

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Re: Ruchie new
      #50898 - 03/15/04 02:57 PM
MissS

Reged: 02/11/04
Posts: 837


The skin testing showed a mild reaction to some allergens, but not enough for the allergist to declare it as an allergy! It was to a type of grass, mold, and tree pollen. You know I think you're right about listening to your body. I'm trying to learn to do that, but it's hard to teach an old dog new tricks! In recent years though, I have become very adamant about not allowing certain things in my life. Such as cigarette smoke. Oh boy, that's a killer! Oh my gosh, I can't breathe around it at all. I can't stand the ammonia in my floor clearner (Brite). I mop my floors with plain water in the winter time. I have to wait until I can open the windows in warm weather to mop properly. I can't stand Pine Sol either. I just can't breathe around it. I can't stand bleach either. My bronchioles swell and my nasal passages, too. I hadn't really thought of these as allergies; I just thought it was like that for everybody. What kind of cleaners are you allergic to? Anything else that you know of that bothers you? Dust is a bad thing for me, too. I hate it. My respiratory tract instantly swells up. I'm going to try to be more in tune to my body and what it's trying to tell me. You're right about that! It can all be overwhelming at times!
Something I've always been curious about is this. How can having allergic rhinitis lead to infections? Why? I mean, why can't I just have the allergic reactions, without it turning into infections? Do you happen to know any answers to that?
Terri

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Re: RUCHIE! new
      #50934 - 03/15/04 05:08 PM
tuxedocat

Reged: 02/09/04
Posts: 279
Loc: Ithaca, NY

Hey Ruchie! How ya feeling today? From your other posts, it looks like you'll be a human pin cushion soon!! Not fun. And feeling depressed doesn't make it any easier. If you can't cry and want to (a sure sign very deep depression I'd say, at least it was for me), try cutting some onions. I know that sounds silly, but it might help to get those tear ducts working again. And then watch out, once you start crying you might not stop....but then "The more you cry, the less you pee!" (You are supposed to LAUGH now )

My IBS is doing alright--I just got my acacia and peppermint caps in the mail today and can't way to try them. I've still got some bloating and swinging between C and D, but I'm WAY better and I'm sure the acacia will help even things out. Still, keeping stress under control is tough! Maybe I should just sleep all day instead of dealing with real life!

Speaking of sleep, how is your fatigue level these days? Can you get sleep if you really need it or do the meds have you too screwed up?

Hang in there...and I am more than willing to be a pseudo-therapist if you need it(or more likely just a virtual shoulder to cry on). Unfortunately, I know a heck of a lot about the history of psychology and the foundations of modern psychology, but not much about it now. So if you're down with Mr. Mesmer (YES there was such a guy and that's where we get the word "mesmerizing") and Dr. Freud, I'm your woman!

Love,
Julie

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--Julie

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Re: Oh no! new
      #50940 - 03/15/04 05:35 PM
Kree

Reged: 10/08/03
Posts: 3748
Loc: Northern NY

Quote:

Thanks Kree for the kind words...and for the cute tiggerrific pic! Hope all's well with you!

Love,
Ruchie



I thought you would like the Tigger pic! You struck me as someone who would like Pooh... just like me! I think there's so much we can learn from Pooh characters!

I'm doing great, thanks for asking. I have this week off from classes so I'm just taking it easy and hopefully doing a little job hunting. It's so hard to think about a teaching job for next September at this point, but this is the time of year they start being posted! It's scary!

I hope you're feeling a little cheerier today. I know how all these health problems can really weigh on your spirit! But you're a strong person and I know you'll be through with all this soon. Try to smile, it's good for your health!

Love,
Kree

--------------------
"Anyone can exercise, but this kind of lethargy takes real discipline." -Garfield

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Re: Ruchie new
      #51071 - 03/16/04 08:56 AM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Terri,
I also have terrible chemical sensitivities. I wish I could find a line of unscented cleaning products! I did find an unscented shampoo which is heaven.

I also have a mold allergy that I think has resulted in some specific food intolerances, such as mushrooms (a member of the fungi family just like mold). Anything fermented also bothers me. Just a heads up.

--------------------
Laura
Keep it simple!

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TeeCee and LauraSue new
      #51075 - 03/16/04 09:03 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Hi ladies!

Thanks for the posts!!!

Have you heard of melaluca? I have begun using some of their products and I am pleased with the results. Their products are all-natural and they are mostly made from tea tree oil. If you are not allergic to tea tree oil, I say try it!

I know I'm allergic to the ALL detergent and I plan to order melaluca's asap! I'll let you kno how it goes.

Love,
Ruchie

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Formerly known as Ruchie

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Re: TeeCee and LauraSue new
      #52568 - 03/20/04 12:48 PM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

no, what's melaluca? is it unscented?

and how are you feeling today, sweetie?

--------------------
Laura
Keep it simple!

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LauraSue new
      #52579 - 03/20/04 01:39 PM
MissS

Reged: 02/11/04
Posts: 837


What's the name of the shampoo and where did you find it? If you ever happen to find unscented cleaning products, let me know. Wouldn't that be great?
Thanks,
Terri

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Question for Ruchie new
      #52580 - 03/20/04 01:42 PM
MissS

Reged: 02/11/04
Posts: 837


Hi Ruchie,
How are you feeling? I hope much better than you were.
I'd also like to know what melaluca is and what it does. How did you find it? Let us know how you're doing.
Terri

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melaluca new
      #52623 - 03/20/04 06:36 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

melaluca is a company that sells natural cleaning products, make up, etc. look em' up on google.com. (I can't remember their webcite). they're a pyramid business so you order through someone you know. if you want to know more, let me know and I'll e-mail you! (or e-mail me)

ruchily@yahoo.com

I'm ok today, feeling like I'm getting sick again....but hopefully it's just a fluke! I'll keep ya posted!

I love you gals!

*hugs*

Ruchie

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Formerly known as Ruchie

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Re: melaluca new
      #52680 - 03/21/04 07:20 AM
LauraSue

Reged: 01/14/04
Posts: 4812
Loc: New York City

Love you too, Ruchie! Thanks for info.

--------------------
Laura
Keep it simple!

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