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Pages: 1 | 2 | (show all) whats left for the doc to discuss?       #364639 - 05/05/11 12:05 PM Edit Reply Quote Aly Reged: 08/16/04 Posts: 669 Loc: Columbus, Ohio I schedule an appt with my NP since I've been feeling so crummy, but I am at that point where I don't know what else they can do... So, here's what I've had. What's left to ask about? Colonoscopy- inconclusive, non-specific colitis Gastric Emptying- delayed, diagnosed with gastroparesis Upper GI- mild irritation Stool Cultures- normal TONS of bloodwork- normal, a bit anemic (sure it's dietary) Celiac test- negative for both bloodwork and biopsy Allergy testing- negative for the major allergens- milk, wheat, egg, soy, etc... I feel like there isn't much left. Maybe I could have a gluten intolerance? or a food allergy? Any suggestions on what to ask for? They say I have colitis, but not ulcerative and not chrons, so I have no idea how to treat whatever is making my belly so miserable. Thanks in advance for the suggestions! -------------------- IBS-A Print     Remind Me     Notify Moderator     Re: whats left for the doc to discuss?       #364642 - 05/05/11 07:47 PM Edit Reply Quote Allisonmary Reged: 01/03/04 Posts: 533 Maybe you have food intolerances. Even though the allergies are negative. HAve you ever been tested for that? Print     Remind Me     Notify Moderator     Maybe a SIBO test?-nt       #364644 - 05/06/11 03:59 AM Edit Reply Quote Cyndy Reged: 03/05/05 Posts: 1301 Print     Remind Me     Notify Moderator     Re: Maybe a SIBO test?-nt       #364645 - 05/06/11 04:10 AM Edit Reply Quote Allisonmary Reged: 01/03/04 Posts: 533 Yea thats a great idea especially since you have upper GI problems too, it is very posssible. Print     Remind Me     Notify Moderator     one question--       #364646 - 05/06/11 04:34 AM Edit Reply Quote Aly Reged: 08/16/04 Posts: 669 Loc: Columbus, Ohio is there a test for that or do I just try an elimination diet? I'll def. ask about SIBO! thanks!!!! -------------------- IBS-A Print     Remind Me     Notify Moderator     Re: one question--       #364647 - 05/06/11 05:03 AM Edit Reply Quote capricorn1942 Reged: 10/06/03 Posts: 248 I was positive for sibo, was treated and it did not help. Hope you have better luck. Cheers. -------------------- ibs-d (pseudo)with pain and bloating Print     Remind Me     Notify Moderator     Re: one question--       #364648 - 05/06/11 05:16 AM Edit Reply Quote Syl Reged: 03/13/05 Posts: 5499 Loc: SK, CANADA SIBO is a breath test. Unfortunately, the test has a high rate of false positive results. Over the past few years there have posting from people who have had the test, taken the antibiotics and not had any relief. The clinical evidence shows that only about 4% of IBS individuals have SIBO and of those only 7-12% have temporary relief from antibiotic treatment. -------------------- STABLE: ♂, IBS-D 50+ years - Science of IBS The FODMAP Approach to Managing IBS Symptoms Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach FODMAP Chart & Cheatsheet The Role of Food & Dietary Intervention in IBS Print     Remind Me     Notify Moderator     Re: one question--       #364649 - 05/06/11 05:55 AM Edit Reply Quote capricorn1942 Reged: 10/06/03 Posts: 248 In the Sedars Sinai protocol, if Rifaxamin fails the second step is 2 weeks (or more) of a liquid diet of a medical food called Vivonex. Vivonex is supposed to be digested very early in the first few feet of the small intestine thereby starving the bacterial overgrowth in the lower end near the colon. This was a very difficult diet which did not help me. Cheers. -------------------- ibs-d (pseudo)with pain and bloating Print     Remind Me     Notify Moderator     Re: one question--       #364650 - 05/06/11 06:40 AM Edit Reply Quote Syl Reged: 03/13/05 Posts: 5499 Loc: SK, CANADA Wow - that is a stringent diet. I see Vivonex is 100% amino acids. I guess the lack of carbs is suppose to starve unwanted and likely wanted bacteria in the colon. Too bad SIBO got so much publicity before it was proven to be truly associated with IBS. -------------------- STABLE: ♂, IBS-D 50+ years - Science of IBS The FODMAP Approach to Managing IBS Symptoms Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach FODMAP Chart & Cheatsheet The Role of Food & Dietary Intervention in IBS Print     Remind Me     Notify Moderator     Re: one question--       #364651 - 05/06/11 07:27 AM Edit Reply Quote capricorn1942 Reged: 10/06/03 Posts: 248 It also contains maltodextrin and food starch from corn. It has a sickeningly sweet taste and very little residual (poop) after digestion. What does come ou is light green in color. Cheers. -------------------- ibs-d (pseudo)with pain and bloating Print     Remind Me     Notify Moderator     Re: whats left for the doc to discuss?       #365832 - 08/17/11 08:49 AM Edit Reply Quote Timothy Reged: 08/12/11 Posts: 5 Hi Aly, I think we have some similar problems. I'm also IBS-A and just been diagnosed with delayed stomach emptying. How is your diet for the gastroparesis going? Have you been checked for H. Pylori infection? Giardiasis for diarrhea? I was negative for both. I had an ultrasound to check for gallstones, and it was negative too. Hope that helps! Print     Remind Me     Notify Moderator     Pages: 1 | 2 | (show all)

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