Very Disappointed
#363756 - 02/28/11 01:54 PM
|
|
|
|
LtDanFan
Reged: 12/17/03
Posts: 588
Loc: Ohio
|
|
|
I have been part of this group for a while and last year "had" been my best year with my IBS, despite losing my dad to cancer and having to deal with watching my mom go through Alzheimer's - I have been doing great! Then this year 2011 came and I have been sick more this year then all of last year combined and I don't know why. No new meds, eating has not changed, stress is always the same (no worse, not better) - I just cannot understand why this is happening all of a sudden and with such vengence.
Does anyone have any suggestions. My biggest (and always has been) is the flippin spastic colon cramping, which feels like labor pains. I had an episode the other night that last 3 1/2 hours of constant labor pains before I finally went to the bathroom, after the initial bout I will go anywhere for 2-10 times always (D). I don't think I'd mind the D, it's the cramping. It's draining, nauseating, painful, annoying.
I cannot take this anymore and there are times when I'd rather not eat then experience one of these attacks. My GI doctors have done all they can do or offer. I'm like a big ? with them. Any help please.
Are there any new meds out for IBS cramping?
LtDanFan
--------------------
IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13
Print
Remind Me
Notify Moderator
|
|
|
Do you think it could be a delayed reaction to all of your crises of 2010? I know that may sound a bit strange, but I know that has happened with me. I went through some issues with my mom in 2009, and did not have a good first half of 2010. I think, at least for me, I am great through the crisis and then seem to fall apart afterward. Just a thought for you to ponder.
Also, I did 3 rounds of the hypno and that helped me to realize it wasn't so much about the food, but more about what was going on in my life. The hypno is what saved me the rest of last year.
Print
Remind Me
Notify Moderator
|
|
|
I don't know. It's really been so long since I've had to deal with it. I don't know if that's an option of not. I did have to put my mom in a nursing home the beginning of this year and I know that liked to kill me. I was sick for 3 straight days, but she has been doing well, so that's what boggles my mind. Should I increase my anxiety meds I wonder or my Librax - I'm just so confused. It's odd when you get pretty stable and then wham.........it's like I'm back to square one and I just don't know what to do. Thanks!
--------------------
IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13
Print
Remind Me
Notify Moderator
|
|
|
Also, I'm unemployed right now and I can't afford the hypno (are you talking the hypno tapes through this group)?
--------------------
IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13
Print
Remind Me
Notify Moderator
|
|
|
Hi - I replied to you over on the hypno forum, but now I have 'the rest of the story' over here -
Firstly, hypnotherapy does not work for everyone, however, the author of the IBS Audio Program also does emotional recovery therapy for those who have gone through breast cancer and other cancers, because after going through all the treatments, etc. the emotional aspects lag behind the physical and can result in other physical symptoms - so too, you may be having a delayed reaction to all the many stressors you have gone through. And my heart goes out to you for all you have been through - ((HUGS))...
Hope this helps - If you have any questions, let me know, and I may have some help for you as well.
On a side note - saw the Lt Dan Band this summer at a fund raiser for soldiers - is that who you are a fan of? 
Take care.
--------------------
My Journey and Success with the IBS Audio Program Hypnotherapy Program: www.helpforibs.com/messageboards/ubbthreads/showflat.php?Cat=&Board=hypnotherapy&Number=224850
Print
Remind Me
Notify Moderator
|
|
|
Well, I really can't answer to the meds, because I don't take any and never have.
I think the key is really learning yourself. I know that I have learned answers to many questions I have about myself and my patterns, but it took some time. That is when I realized that I don't suffer immediately but seem to have delayed reactions to everything.
I often wonder about being stable for a long period of time and then "wham" as you say, right back to square one. I think it is often times about more than the food, especially if you have not changed your diet. I have been stable for quite awhile now, and really don't give it much thought. I find the less I focus on it, the less I am bothered by it.
I know that does not help you now, when you are going through a tough time, but that is what has worked for me. I finally realized there are no quick fixes. It took time and patience to get where I am today, and the hypnotherapy tapes are, I am convinced, what put me over the hump.
Print
Remind Me
Notify Moderator
|
|
|
Yes, those are the tapes. Unemployment is tough, but I know sometimes the tapes go on sale. I got mine on sale.
Print
Remind Me
Notify Moderator
|
|
|
I am not at all sure how these things work, and I do accept that trauma and stress can exacerbate IBS (that was what triggered my IBS in the first place) but what I found is that if I eat according to the FODMAP guidelines (see Syl's signature) cutting out lactose and fructose and severely limiting fructans, polyols etc AND I am careful about my meals only having a 20% overall fat intake AND I only ever eat permitted IF-food (-no wholegrains apart from oatmeal) with a SF supplement/ food that is scientifically proven to have resistant starch/ more SF than IF, ie cooled rice, pasta and potato/ green-yellow bananas (white bread does not really work as a SF base from a scientific point of view), no matter what I was going through psychologically/emotionally etc I did not have pain or D.
You do have to be disciplined and have to cook entirely for yourself, have to look out for getting all vitamins and antioxidants, as I only eat a maximum of 25 types of food, no more. (Syl may eat even less) But I function as though I didn't have IBS. (almost, as I do have bloating, but no pain, no D). it's not convenient esp to start with cos you can't eat out and so on, but you can still eat healthily and I for one never minded the lack of variety in terms of what I eat. and as I said there is no D or pain.
--------------------
Susie, born in 1985,
(pseudo-)D and bloating April 2007-December 2010, now stable
Print
Remind Me
Notify Moderator
|
|
|
I have followed "the diet" faithfully for over 4 years, even though I've been a memember of this group since 2003. Yes, I was in denial for many many years over, the lactose/lactaid thing. Decaf coffee, gum etc. So I follow the fat ratio, eat within the guidelines. Use her tummy fiber, peppermin oil caps, tea etc. I guess I just don't get when I know I'm a crazed lunetic and having a very stressful time, my tummy is fine, but when I'm fine, my tummy is not. Doesn't make sense.
I have cooked for myself for years and it's very annoying because my husband is helpless (in the kitchen) so cooking two meals every night is ridiculous!
--------------------
IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13
Print
Remind Me
Notify Moderator
|
|
|
Oh, I know there are no quick fixes - I have had IBS for 25+ years. And have only became stable the past couple. It just seems it doesn't matter how closely I follow my diet, stress, it always finds me. I read that the older you get the better it gets and last year I was beginning to believe that, but not this year.......good grief
--------------------
IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13
Print
Remind Me
Notify Moderator
|
|
Posts
