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Gluten free (or former) dieters? new
      #356023 - 02/22/10 07:58 AM
Cyndy

Reged: 03/05/05
Posts: 1301


How many of you have tried or are currently eating gluten free? How did it help or not help, if that be the case. Just curious. Thanks,


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Re: Gluten free (or former) dieters? new
      #356024 - 02/22/10 08:51 AM
Syl

Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA

Gluten free is not likely to help much unless you have celiac disease. If you are concerned about this you might ask your doctor for a blood test. If the test is positive then you likely need to have a endoscopy to take a biopsy to confirm the findings.

One of the primary foods that is eliminated in celiac disease is wheat because of its gluten content. However, there is a fair amount of research to show the some components in wheat other than gluten can exacerbate IBS symptoms. You might try restricting your consumption of wheat to about the equivalent amount of two thin slices of bread per day and see if that works for you.


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Problem new
      #356029 - 02/22/10 10:13 AM
Cyndy

Reged: 03/05/05
Posts: 1301


What is two out of three of the blood tests are positive for gluten antibodies, but the biopsy is normal?
So, while I probably don't have celiac, do I still need to abstain form gluten?

Thanks much, Syl.

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Re: Problem new
      #356033 - 02/22/10 11:13 AM
Syl

Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA

A biopsy is the gold standard test. I guess there are a couple of reason you had a positive blood test and a negative biopsy. Perhaps the blood test produced false positive results, the biopsy was misinterpreted or too few biopsy pieces being taken. It something you should talk to your doctor about to get a clearer understanding of what to do.

--------------------
STABLE: ♂, IBS-D 50+ years - Science of IBS

The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS

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Re: Problem
      #356034 - 02/22/10 11:19 AM
Cyndy

Reged: 03/05/05
Posts: 1301


well, it came back this way 3 times in a row.
Plus, three different doctors told me three different things. Some say it's okay to eat gluten, another said to eat gluten free, and the third told me it was up to me to decide.

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Re: Problem new
      #356035 - 02/22/10 11:25 AM
Syl

Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA

However, you say the biopsy came back negative which is the most definitive test. Of course the biopsy could be negative if you were following a gluten free diet before the biopsy was taken.

Apparently, the blood test can produce false positive results for a variety of reasons including other autoimmune disorders and type I diabetes. It something you should discuss with your doctor.

--------------------
STABLE: ♂, IBS-D 50+ years - Science of IBS

The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS

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Re: Problem new
      #356039 - 02/22/10 01:11 PM
Cyndy

Reged: 03/05/05
Posts: 1301


I wasn't following a GF diet before the biopsy.

Interesting about the the positive results due to other autoimmune disorders. Would that include having a poor immune system?

I talk with doctors about this but they all tell me different things, seriously. They are clueless and have told me so.

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Anyone? Please!-nt new
      #356068 - 02/23/10 07:47 AM
Cyndy

Reged: 03/05/05
Posts: 1301




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Re: Gluten free (or former) dieters? new
      #356075 - 02/23/10 11:10 AM
DanaDivine

Reged: 09/30/09
Posts: 95


I tried it for 2 weeks once... it was hard to tell if it helped anything.

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Re: Problem new
      #356083 - 02/23/10 02:24 PM
fancymom

Reged: 09/17/07
Posts: 506
Loc: SC

HI Cyndy!
You could definitely be gluten intolerant, but maybe not have "celiac disease"

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FancyMom
IBS-A,Constipation predominant, GERD

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