Re: Fen
#341597 - 02/04/09 09:46 AM
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Fen
Reged: 03/01/08
Posts: 574
Loc: Central NY
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Jordy, you're back! I've been wondering about you! I don't really blame you for staying away, however. I too think the boards harm more than help lately, particularly the fructose hysteria. I've no doubt that a significant number of IBSers are helped by a fructose free diet, however it is not the answer for all IBSers. And it's definitely not the answer for those of us who have been misdiagnosed as having IBS by doctors who don't really know what else is going on!
I am following a gluten free diet now. The clincher was when they tested my vitamin B12 levels and they are obscenely low, and there is no rational explanation for it. I do not have pernicious anemia, I don't have any pancreatic problems, I do eat meat. There is no reason other than undiagnosed Celiac Disease for my levels to be as low as they were. I've not had an endoscopy done. I have a new doctor and he is talking about doing something called a Schilling Test, but he's fairly certain the results will show CD. So I've been completely gluten and dairy free and gradually upping my IF intake and I've been doing pretty well. Not perfect, still sometimes gassy and bloated in the evening, but I've been consistently going to the bathroom a few times a day with no straining.
The best news is that between following the gf diet and receiving B12 injections, my energy levels are slowly starting to come back. I'd been feeling crappy for so many years, I forgot what it felt like to get through a day without needing a nap! It's amazing!
Enough about me! How are you doing? Are you still following the gf diet?
I'm no longer taking the Acacia or any SFS, by the way. They all make me too nauseous. And I no longer feel I need them.
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IBS-C
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If you are confused then ask you doctor for a fructose breath test  If the results is negative then you don't have to pay attention to posting on fructose and fructans. if you are positive then you should take them into consideration
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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I've called about 7 different hospitals in the state and none of them offer this test.  How do you find a place to do this?
So what do I do???
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IBS-C with pain and bloat
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Talk to you GP or GI doctor who should know where the tests are performed.
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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Re: Fen
#341605 - 02/04/09 10:38 AM
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Jordy
Reged: 08/12/06
Posts: 2095
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Hi Fen,
Not back for long. The boards are just too detrimental for me, personally....although I miss the support and feeling like I'm not so alone in all this.
So, you never even had IBS? You don't have to eat SF before IF or follow this diet anymore? Or watch your fructose?
The most important thing is that you are feeling better! I'm so happy for you.
I still feel like crap most of the time and it's really taking a toll on me....
I do still follow a GF diet..but I'm not getting the same results as you, unfortunately. Still in pain and constipated and bloated.
Do you have any suggestions for a good GF bread? Or some lunch ideas that are GF?
So good to hear from you!
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IBS-C with pain and bloat
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I have and they don't know either. There is no easy answer for me, it appears.
Exactly how much fructans is in zucchini anyhow? Or this bread I'm eating?
Okay, I'm getting highly anxious now, so I better stop. I hate this guessing game and all the fear.
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IBS-C with pain and bloat
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Or an experience to share with me? Please
Who has actually had the test and who is just guessing?
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IBS-C with pain and bloat
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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Illinois!
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IBS-C with pain and bloat
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Try contacting
#341615 - 02/04/09 11:11 AM
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Syl
Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA
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Digestive Diseases Consultants of Kankakee , S.C.
1615 N. Convent, Suite 1 * Bourbonnais, IL 60914
Phone: (815) 937-5200 * Fax: (815) 937-2063
email: admin@ddcofkankakee.com
The may also be able to give you the name of a testing facility closer to where you live.
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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