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interstitial cystitis?
      #330534 - 06/03/08 08:11 AM
Kteach84

Reged: 03/31/08
Posts: 181
Loc: MA

So last week I went to the doctor for what I thought was a urinary tract infection. I have had them before and it hurt when I peed. The doctor did an immediate culture and said there were a lot of white blood cells which made him think it was a UTI and he gave me medicine. I haven't even finished the medicine yet and the pain is back. I called the doctor today and they said that the culture came back from the lab with no growth. Do you think maybe I have interstitial cystitis? I haven't experienced increased frequency, just pain when I pee. I don't think I eat most of the foods that make IC worse- except apples which I have had every single day for probably the last 3 years. It is sort of interesting that I had two yesterday and the pain is back today, but I don't know. I'm going to the doctor on Wednesday anyways, but I thought it was interesting and wanted to see what you guys thought.

~Kelly

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Re: interstitial cystitis? new
      #330576 - 06/03/08 07:15 PM
gigi1234

Reged: 06/10/06
Posts: 30


I have suffered from IBS for many years. About a year ago I had an experience similar to what you describe. I thought I had a UTI, was prescribed antibiotics, but then the pain returned with no apparent infection. If you read about IC you will find that IBS and IC are associated. You need to get a book about IC and follow the diet. Between eating for IBS and eating for IC I sometimes wonder what exactly I can eat anymore. I can tell you that, for me, the worst trigger for IC pain is wine or anything acidic. I saw that nearly every fruit was on the NO list for IC. So I quit eating fruit completely. Oddly enough I noticed that when I quit eating fruit one of my most frustrating IBS symptoms (bloating and gas) almost COMPLETELY went away. But it is not all good news. Honestly the IC pain is so bad it makes IBS seem like fun in comparison. I honestly feel bad for you and hope that it is only a passing thing for you. Follow the diet. Also, this is going to sound weird, but I finally went to see a physical therapist who is specially trained in women's issues including IBS and urinary problems. She has helped me enormously. So you might consider trying to find someone like her in your area. Good luck!

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Re: interstitial cystitis? new
      #331546 - 06/24/08 08:31 PM
yoffie

Reged: 08/01/07
Posts: 48


you both mentioned fruit/apples. when you stopped eating apples did it get better? my daughter loves apples.

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Re: interstitial cystitis? new
      #331601 - 06/26/08 09:13 AM
ElenaDragon

Reged: 06/04/07
Posts: 169


I have IC and that is exactly how mine started. I had been having UTI's about once every month or two. Then after a treatment of antiotics for one, the symptoms came back two weeks later, and the culture came back negative. I did a lot of research and went to three different urologists before being diagnosed with IC and getting treatment (along with diet, the IC medication, Elmiron, is what helped me).

Here is a great website with forums for IC: http://www.ic-network.com

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Lisa
IBS-A, Interstitial Cystitis, Migraines

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