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      #316742 - 10/16/07 10:18 AM
Zara

Reged: 06/07/06
Posts: 883


I saw a different GI today and basically he said that I should not use Flagyl if I tested negative for parasites/SIBO. He said that even if these tests were false negative I would have more likely had D. So I'm happy since I wasn't that happy about taking it in the first place.

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IBS-C, bloating, cramps
pregnant

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Re: SIBO new
      #322665 - 01/18/08 09:05 PM
CJIBSDG

Reged: 12/24/07
Posts: 153
Loc: Idaho

Zara, I just wanted to let you know that I saw a new GI doc today (for a 2nd opinion). I had a fecal fat test that came back abnormal (the amount of fat in my stool was double the acceptable level) - which is an indicator of SIBO (as well as several other things which we've ruled out). Unfortunately, no-one in my area performs the breath test for SIBO - but both of the GI docs I've seen have said the test is highly unreliable anyway. Also, both have said that when they suspect SIBO they simply prescribe antibiotics, if the symptoms go away within a week or 2 that tells them that the person has SIBO. My doc did ask me if I'd like to start on antibiotics today, but I just need a little more time to think about it (like you, I'm kind of afraid of them - but at the same time, I definitely need to improve my quality of life). Sometimes I feel like we're damned if we do and damned if we don't.

Please keep me updated on your decision and progress - and I'll do the same!!


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Jeanette IBS-D, then switched to IBS-A, now stable with Udo's Choice Super Bifido Plus Probiotic

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Re: SIBO new
      #322682 - 01/19/08 05:13 AM
Zara

Reged: 06/07/06
Posts: 883


Jeanette, I wish I could update you but the truth is I didn't really get anywhere. I didn't take that antibiotic because I was afraid of what it would have done to me. I still have pain, bloating, etc. And honestly, having read your post, now I'm thinking if I should have done it differently and take the ATB. Oh, I wish I knew what to do but there's so much contradicting information .

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IBS-C, bloating, cramps
pregnant

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Re: SIBO new
      #322686 - 01/19/08 06:48 AM
CJIBSDG

Reged: 12/24/07
Posts: 153
Loc: Idaho

Quote:

Jeanette, I wish I could update you but the truth is I didn't really get anywhere. I didn't take that antibiotic because I was afraid of what it would have done to me. I still have pain, bloating, etc. And honestly, having read your post, now I'm thinking if I should have done it differently and take the ATB. Oh, I wish I knew what to do but there's so much contradicting information .




Zara, I know exactly how you feel - I just wish the experts really knew more oh and wouldn't it be grand if all of the experts could agree on any 1 thing!! I can tell you this, if it helps at all - I spoke with my daughter last night who is an RN.... She's very concerned that I'm so resistant to take the antibiotic. She's definitely not an expert on the GI system (she works oncology), but she is in the medical profession and certainly has a vested interest in me I think what I'm going to do is wait for the results of the 72 hour fecal fat test which I'm currently doing (my new GI says it's much more reliable than the 24 hour one which does make sense to me) and if it comes back as high or higher then I'm going to ask my doc which antibiotics he recommends and research the crap out of them and probably give it a shot.... I've also made a post to Heather so my decision could also change based on her feedback. But, my daughter is right in that I have to get some quality of life back (that's not to say that it hasn't improved, but it still isn't good).

I really hate to say this to you, but we're all here to try and help each other (and I'm certainly no expert on any of these subjects), but your new doc has said some things that cause me a bit of concern.. He said that if you had SIBO you'd most likely have D (based on what I've read that is not true at all. According to my readings, It is more common to have D, there are many people who have C with SIBO. They've even defined which antibiotics work best for the individual based on predominiant C or D. I think if I were you, I would definitely request the 72 hour fecal fat test - I know that won't tell you if you have SIBO, but it should give you an indication whether or not you have something else going on other than IBS. The test is certainly not fun especially if you've been following Heather's diet - but honestly, it's no worse than most of the other tests we've been through. But you really need to plan it for a time when you can stay at home for 3 days because you must collect ALL stools in a 72 hour period. Also, if you do decide to get the fat test, I would suggest that you increase your fat intake for 3 days prior to beginning the test. My GIs didn't mention this to me but every site I've found on this test says to do this then on the 4th day you start collecting stools. Here are some links I've found that discuss this test:

cmc

Hope this helps and please keep me posted on your quest...
HealthAToZ

Labcor

permanente

aruplab

I should also mention something to make eating the fat a little easier. The 1.5oz creamy ranch from McDonalds has 22 grams of fat so if you were to pour 5 of these on your normal food, you'd get all the fat you need. I'm going to do that today to make it easier (b/c eating what I did yesterday made me feel a little ill)... But no D yet (which I think is odd) - another odd thing is that I've not had any gas (I can't remember a day without gas).

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Jeanette IBS-D, then switched to IBS-A, now stable with Udo's Choice Super Bifido Plus Probiotic

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Re: SIBO new
      #322687 - 01/19/08 08:23 AM
Zara

Reged: 06/07/06
Posts: 883


Jeanette, thank you so much for the info. To be honest, I am a bit confused when it comes to fat malabsorption. I thought that D is definitely one of the symptoms, and I always only have C.

I agree with your thoughts about the second doctor. I don't think I'll make him my "new" doctor just because I don't believe he's very knowledgeable in the IBS area (he said other stuff that kind of raised a red flag for me). I just found out that Johns Hopkins has a satellite location in my town (I live close to Baltimore) and they seem to have a pretty good gastroenterology program. So I'll have to check if they take my insurance but if they do I'll probably try to get an appointment there.

Lately I've been thinking that my problems must be somewhat bacteria related. I tried the SCD but it got so painful that I just had to stop. So once I talk to the new GI I'll decide what to do. I'll ask about antibiotics and about the fat test and see what s/he thinks.

Please keep me posted on the test results and what you decide to do about that antibiotic treatment.

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IBS-C, bloating, cramps
pregnant

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Re: SIBO new
      #322692 - 01/19/08 08:59 AM
CJIBSDG

Reged: 12/24/07
Posts: 153
Loc: Idaho

Zara, thanks for the update! That is awesome that Johns Hopkins has a location near you - I would definitely check them out. I have a question - what is SCD?

I'll definitely keep you posted on my tests/results.

For breakfast today I had 3 pieces of cheese (total 21 grams fat), 8 club crackers (total 6 grams) and 2 TBS ranch dip (I'm out of the McDonald's so I need to go back and get some) the Lays ranch only has 5 grams in 2 TBSP - but there's 32 of my 100 grams for the day and this combo of food was easier for me than the chicken and ice cream yesterday (but I still feel a little nauseus).

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Jeanette IBS-D, then switched to IBS-A, now stable with Udo's Choice Super Bifido Plus Probiotic

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Re: SIBO new
      #322698 - 01/19/08 10:07 AM
Zara

Reged: 06/07/06
Posts: 883


Good luck with all that fat consumption, I can't imagine what it's like!

SCD is Specific Carbohydrate Diet, Sarah and Kim seem to be getting good results with it. Unfortunately I got really sick. Read this thread.

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IBS-C, bloating, cramps
pregnant

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Re: SIBO new
      #322712 - 01/19/08 04:21 PM
caputsky

Reged: 03/24/07
Posts: 256
Loc: Baltimore, MD

Hi Zara,

I couldn't help jumping in here because I am also located in Baltimore. Anyway, I have a terrific GI doctor -- he has Crohn's himself so he really understands what I'm going through and he is very open to any new ideas/suggestions that I want to try. The office has several specialists in it; my GI is actually a physician's assistant and I've worked with all of them and like most of them and they are very supportive. It is located in Towson, at the GBMC hospital. If you would like the information for the office, just let me know and I can give it to you. I don't know what insurances they take, but it's worth a shot

Julie
IBS-D, GERD, lactose intolerance

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"We cannot change our past... we cannot change the fact that people will act in a certain way. We cannot change the inevitable. The only thing we can do is play on the one string we have, and that is our attitude. I am convinced that life is 10% what happens to me and 90% of how I react to it."

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Re: SIBO new
      #322714 - 01/19/08 04:31 PM
Zara

Reged: 06/07/06
Posts: 883


Hi Julie, thank you so much for the offer, could you send me the info to xxx To be honest I will probably try to go with the Johns Hopkins one first because their location is so much more convenient for me (I live in Columbia and they have a location here) but I would keep your GI doc's office in mind in case I'm not happy with them. Thanks!

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IBS-C, bloating, cramps
pregnant

Edited by Zara (05/14/08 10:07 AM)

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feeling down... new
      #322912 - 01/22/08 05:55 AM
Zara

Reged: 06/07/06
Posts: 883


So I just called that Johns Hopkins location I mentioned above and the earliest they can take me is early April . Why does it always take so long . I'm losing all my hope; diets don't seem to work, my old doctor is of no help either. Do you guys ever feel like nobody cares that you hurt (not meaning family, I have a lot of support from them).

Also, I'm thinking, should I go back to the original GI and ask for that antibiotic treatment (I ended up not doing it originally)? The prescription I got was for Flagyl but I was reading on the internet that Rifaximin (Xifaxan) is more effective. But I feel like if I suggest that one he'll be like "oh, who are you to know which antibiotic to use"? You know, doctors often hate it when you suggest something to them. I'm so lost with this whole IBS thing...



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IBS-C, bloating, cramps
pregnant

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