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About To Give It All Up
      #290121 - 11/14/06 07:52 PM
Naturapanic

Reged: 02/16/06
Posts: 856


I'm sick and tired of this.
I deprive myself of my favorite foods, milk, dairy, pizza, fries, and for what?

To go through a cycle of feeling good, feeling average, feeling like garbage irregardless of what I ingest in my body.

I've dieted.
Here's my diet.

I workout at the gym.

I take Benefiber, I even switched to the generic brand once Benefiber changed ingredients.
I take Acidophillus.
I take Glutamine.
I take Miralax.
I tried Lorazapam.
I tried Rifaxmin.

I have aspergers.
I need medication to help with anxiety, yet it seems EVERYONE I take gives me the same reaction as McDonalds would:
Trapped Gas, Bloating, C, and D.

I was feeling less anxious on Luvox.
So I went up to 100mg from 50mg.
All of the sudden in the last month I begin having more trapped gas, bloating, c, and d.

So it seems hopeless.
I try everything the doctor's and book say.

I try dieting.
I try supplements.
I try lifestyle changes and medications.

Nothing consistantly works, and I've been trying this for 1.5 years.

I can tolerate NOT eating foods I want.
I can tolerate limiting myself socially by not partying, drinking, and having to embarass myself asking when eating out to have ingedients skipped.
I can tolerate the time consuming nature of dieting, making extra meals, no fast food when I need quick meals, researching ingredients.
I can....WHEN I get results.

But if all this is going to do is give me MIXED results, nothing substanial, consistent, just a tease.
If when I try and treat myself for mental health problems, this is what I get:
Trapped gas, bloating, c, and d.
Then why bother?
Why should I be denied McDonald's?

It's obviously not working and it obviously is not food related.

Dr.s keep telling me it's not food related, that I bacterial overgrowth.
Alright, so I take Rifaxmin, Miralax, NOTHING.
I take acidophillus.
NOTHING.

I take SSRI's to help reduce anxiety, since I have strees, NOTHING.

Why the heck can't they help allieve something as concreate as BACTERIAL OVERGROWTH?
Why should we go to these measures and time consuming extent for crummy results?

--------------------
IBS-C and Bloating

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Re: About To Give It All Up new
      #290123 - 11/14/06 08:04 PM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

I've seen your struggles through your posts online for a while now, and it's heartbreaking. I hope you don't give up on doctors or a diagnosis. There could be more to your symptoms than you think.

I also hope you don't give up on the diet, but on the other hand it's understandable.

I was wondering if you have considered trying the hypno tapes? If anything it might help with the frustration you are feeling, and might help you get your thoughts back to a more positive approach of trying to get better.

I hope something positive comes your way soon,

--------------------
Kat

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Re: About To Give It All Up new
      #290124 - 11/14/06 08:45 PM
franny

Reged: 05/16/05
Posts: 508
Loc: N. FL

If I had tried all this without results I most likely would be like you "what the heck"....Maybe this isn't for you, not everyone has the desired results. I sure hope you find something to give you some relief soon. Good luck.

--------------------
Franny
IBS/D
Celiac

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Re: About To Give It All Up new
      #290132 - 11/15/06 05:57 AM
Miso

Reged: 04/20/06
Posts: 559
Loc: Calgary, Alberta, Canada

i second the hypno tapes, as well as trying digestive enzymes, ones with plant and animal enzymes in them, that was one supplement i didn't see on your list, they can make a huge difference. The GNC multi enzymes seem to do well for a lot of people here. Also you can try Traditional chinese medicine. i had good results with herbs mixed by my DTCM, they were specific to me and they helped tremendously with gas, bloating and the reflux i used to deal with.
Good luck.

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Re: About To Give It All Up new
      #290151 - 11/15/06 07:31 AM
Jordy

Reged: 08/12/06
Posts: 2095


I know, I know. I have the same thoughts...honestly.

--------------------
IBS-C with pain and bloat

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Re: About To Give It All Up new
      #290156 - 11/15/06 07:51 AM
Lisa Marie

Reged: 07/17/06
Posts: 1566
Loc: Lakewood, CO

I completely understand your frustration; I think we've all been there. Some people here have said that it CAN take up to a year or longer to stabilize. I know that's not ideal, but please hang in there.

I "third" the suggestion of the hypno CDs; they have made a huge difference for me. It's definitely an up and down process - you'll feel better, then might relapse a bit, then feel better, etc. But in the end, I think you'll be happier!

If you have bacteria OVERgrowth, is it a good idea to take probiotics? I'm curious what affect the acidophilus has on this?

Also, have you tried acacia? All those regular SFS (benefiber, citrucel, fibercon, etc) always made me feel worse and gave me horrible gas and bloating. The acacia is the only one that has significantly reduced these symptoms for me. And I had to start VERY small (1/8 teaspoon twice daily) and increase my dose VERY slowly! My body can't handle increases of more than 1/8 teaspoon over several days. Perhaps you should give this a try?

I do hope you see some relief soon. I really think the hypno and the acacia would be good ideas to try! Miso's suggestion of digestive enzymes is a good one, too; I think those help a lot. I've also found that the less I eat at each meal, the better I feel. Making dinner my smallest meal seems to especially help.

Good luck! Hang in there!!

--------------------
~~~~~~~~~~~~~~~~~~~~~~~~
Lisa, IBS-C (Vegan)
Stable since July 2007!
Mommy to Rhiannon Marie (Dec. 13, 2008)

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Re: About To Give It All Up new
      #290234 - 11/15/06 09:16 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Thank you all so much for responding.

Tonight I oredered Thai food, asked for limited oil.
No help, two hours later I had a ridicolous amount of gas.

The Dr.'s have told me repeatedly my thing is not food related, and that food only exasberates everything.

I have tried, and still need for other reasons CBT.

I think it is time to stop dwelling on food and
1) Hypno
2) Switch to Acadia
3) Digestive enzyme

What about
1) Acupuncture
2) Dr.
3) Zelnorm?
4) VSL?

Should I drop Acidphillus and go to VSL or drop it altogether?

Thanks guys for offering suggestions and acknowledging this ain't working.
It's been well over a year.

--------------------
IBS-C and Bloating

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Re: About To Give It All Up new
      #290235 - 11/15/06 09:22 PM
Naturapanic

Reged: 02/16/06
Posts: 856


If you really recommend Acadia, I can order it now.
If you really believe Digestive Enzyme will help, the same can be done.

I have to talk the Hypno tapes over with my CBT first, but that also can be arranged.

Considering I have a ton of gas ALL the time which friends complain about, would the digestive enzyme truelly help?
Zelnorm?
Thanks.

--------------------
IBS-C and Bloating

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Re: About To Give It All Up new
      #290237 - 11/15/06 10:48 PM
Meliss

Reged: 11/14/06
Posts: 1


I don't think anyone can truly understand what each individual goes through with IBS (C,D,A) since for everyone it's a different beast. But I do understand the frustration and am experiencing it as we speak. I've been struggling with it for years now and it still confounds me. I suffer from anxiety and depression and firmly believe that my bad bouts go hand and hand with these issues. What I want you to know is this is ALL so frustrating, every little bit. Right now I'm going through the worst bout I've ever experienced - I've got C,D,A,V (for vomit) - the works. It's been non-stop for over a month and it just seems easier not to eat at all. I follow the IBS diet and try to adhere as closely as humanly possible to all the literature but nothing seems to work and I too am hitting my breaking point. I've done yoga, accupuncture, seen countless GI dr.s. Honestly, walking around with an iv for nutrition and just giving up the whole "eating thing" sounds tempting (except I love food ). So I just want you to know there lots of us out there. Does that really make your quality of life any better? Not necessarily, but maybe it will take away the loneliness that you might feel. I know I do often. In terms of the probiotic you take, there have been recent studies that show that it's best to take acidophilis WITH bifidus. Just acidophilis is not as effective. I'm hungry and desperate and I know the feeling of wanting to give it all up. You're not alone, Naturapanic. Let's hope we'll both get through this - my mother says bad situations are character building (though I think I'm pretty character filled already!).
All the best and I hope you feel better soon.

--------------------
Melissa
IBS-D (generally, but these anything and everything goes...literally)

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Re: About To Give It All Up new
      #290238 - 11/16/06 05:15 AM
Joannelcoq

Reged: 10/16/06
Posts: 261
Loc: Long Island, NY

I can sympathize with you. Join the club but I think you are taking too many things at once. You sound totally stressed and the anti anxiety meds arent working. Try to wean of the miralax unless you are extremely constipated. Your on the Benefiber as well? Too much. Also try peppermint caps or tea for the gas and bloating. Get something natural in there. Too many chemicals. Take a breath and have some friends over, have a good time. Relax. I hope things work out for you. I can understand. Good Luck.

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Re: About To Give It All Up new
      #290240 - 11/16/06 05:24 AM
shandy

Reged: 12/21/04
Posts: 85
Loc: Alabama

Oh my, you say so clearly what all of us feel.

I'll give you my two pennies, just so that you can feel even more overwhelmed.

1. I'm going to sound like a broken record here because I've said this so many times, but you might try eliminating soy from your diet. It's much harder than skipping soy sauce and tofu - soy and soybean oil is in every single processed food on the planet. When you go out to eat, you are ingesting huge amounts of cheap soybean oil. Read labels to see how soy has infiltrated all our food. If I have even a tiny bit, I'm absolutely miserable with every IBS symptom known to man and woman. D and C and bloating and gas and it lasts for several days. When I cut soy out of my diet, the majority of my symptoms went away and I lost 10 pounds, almost overnight.

2. If I could follow my own advice (which follows), I think I would kick IBS. Eat small meals. No more than a cup of food at a time. Yeah, that's not much, but when you read about the capacity of the stomach and how it functions, it makes loads of sense. If I eat only a small amount of food, I feel absolutely fine. But my love of the eating process pushes me to eat more... certainly more than I need... to the point of over-fullness. I notice that being "satisfied" isn't satisfying to me - I need to be stuffed to feel full, if that makes any sense. Today I'm going to try my darnedest to eat small portions ALL DAY and see if I'm symptomatic.

It's all a big puzzle... a cosmic joke even. I'm so glad we're all here to vent to!!!

Jennifer

--------------------
Jennifer
42 years old
Neither D nor C - just sluggish

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While natural is probably best.... new
      #290244 - 11/16/06 06:54 AM
Jordy

Reged: 08/12/06
Posts: 2095


...some of us just can't go without medication....like Miralax. And the meds for depression/anxiety/ADD are necessary for some too.

--------------------
IBS-C with pain and bloat

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Re: About To Give It All Up new
      #290252 - 11/16/06 07:58 AM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

I definetly recommend Acacia. If your main problem right now is gas, then I have a few suggestions:

Beano - it's a digestive enzyme which targets gas-producing foods preventing the gas in the first place, take 1 tablet per 1/2 cup 'Beano foods'

Fennel tea/seeds: if you don't like the taste of the tea, try chewing the seeds and then swallowing them with some water.

Gas-X/simethicone: taken with meals or before bed at night, this helps relieve trapped gas

Other digestive enzymes may help, but I don't have personal experience with them.

I hope you find something that helps,

--------------------
Kat

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Re: About To Give It All Up new
      #290308 - 11/16/06 05:11 PM
feelinggood

Reged: 09/11/06
Posts: 745


I hate to say it but I understand exactly how you feel - I am totally frustrated and getting very depressed over my bowel not settling down - you said it all in your post. I can't go on barely eating anything and yet if I add food in I fear I may be worse - I am loosing muscle mass and cannot build up , my body hurts and Dr.'s give me no help- I have a good day and then a bad day ,on and off, on and off - I have the hypno CD's and pray that they offer some help. IBS-A

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Re: About To Give It All Up new
      #290309 - 11/16/06 05:14 PM
feelinggood

Reged: 09/11/06
Posts: 745


I am getting very depressed by it all - I know I already posted but I have to add in that tonight my physiotherapist told me that basically she has done all she can do and no point in me coming back - my body is having so much trouble building muscle and I am in knot over what to eat - back aches, muscle loss, sore joints - I don't know if it is all IBS but Dr's tell me nothing is wrong with me! Sorry for carrying on but I am really at a bad point. IBS_A

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Re: About To Give It All Up new
      #290317 - 11/16/06 07:36 PM
line415

Reged: 09/09/06
Posts: 976
Loc: New Jersey

What kind of doctor did you go to? Maybe you should see a specialist for sore joints, etc., possibly a rhumatologist?? Just a suggestion...it could be more than IBS. I'd want to have a full blood work up.

--------------------
Originally IBS-D for a million years!
Then IBS-A, Now a transformed slightly C

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Re: About To Give It All Up new
      #290324 - 11/16/06 08:46 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Quote:

I definetly recommend Acacia. If your main problem right now is gas, then I have a few suggestions:

Beano - it's a digestive enzyme which targets gas-producing foods preventing the gas in the first place, take 1 tablet per 1/2 cup 'Beano foods'

Fennel tea/seeds: if you don't like the taste of the tea, try chewing the seeds and then swallowing them with some water.

Gas-X/simethicone: taken with meals or before bed at night, this helps relieve trapped gas

Other digestive enzymes may help, but I don't have personal experience with them.

I hope you find something that helps,



Would you recommend dropping Acadia and Acidophillus with these?


I want to thank ALL of you for your posts.
It makes me feel somewhat better that I am not alone.
However, I think WE ALL can agree, it is absurd that for something as clear cut as IBS, they can't cure it.
I personally hate GI doctors, because their purpose is to treat medical disorders.
There are many more disorders more serious than IBS, yet why are they so stupid when it comes to this?
If you know the way they body functions, THEN WHY can't you tell us what to do Einsteins?

They get 200k a year, and what do they do?
They should be paid a commision, by sucess rate for treating IBS.
They don't care.
They don't have the disorder.
They have the Mercedes.

--------------------
IBS-C and Bloating

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Very funny. I like the commission idea. They wouldn't make much. n/t new
      #290327 - 11/16/06 09:03 PM
line415

Reged: 09/09/06
Posts: 976
Loc: New Jersey



--------------------
Originally IBS-D for a million years!
Then IBS-A, Now a transformed slightly C

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Re: Very funny. I like the commission idea. They wouldn't make much. n/t new
      #290329 - 11/16/06 09:47 PM
Naturapanic

Reged: 02/16/06
Posts: 856


They don't deserve anything.
They don't do the job.
This is not cancer, what's the big holdup?
What do they teach you in medical school?
If you are so smart and know so much about the body organs, then why can't you do your job?

--------------------
IBS-C and Bloating

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Re: About To Give It All Up new
      #290330 - 11/16/06 10:23 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Quote:

I definetly recommend Acacia. If your main problem right now is gas, then I have a few suggestions:

Beano - it's a digestive enzyme which targets gas-producing foods preventing the gas in the first place, take 1 tablet per 1/2 cup 'Beano foods'

Fennel tea/seeds: if you don't like the taste of the tea, try chewing the seeds and then swallowing them with some water.

Gas-X/simethicone: taken with meals or before bed at night, this helps relieve trapped gas

Other digestive enzymes may help, but I don't have personal experience with them.

I hope you find something that helps,



OK, I will buy Gas-x tomorrow.

Please tho, I need structure.
Should I
1) Continue Acidophillus, Miralax, Benefiber, and a High Fiber Diet
2) Get Digestive Enzymes
3) Get Acadia
4) Do Tong Reng or Hypno

What should I be taking as supplements and what should the plan be?
I am confused if I should
1) Drop everything and just do Gas x
2) Drop everything and do Gas x with Acadia
3) Do Gas X, Acadia, drop Benefiber, and stick with the rest
Thanks.


--------------------
IBS-C and Bloating

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Re: About To Give It All Up new
      #290333 - 11/17/06 04:59 AM
shandy

Reged: 12/21/04
Posts: 85
Loc: Alabama

Oh, how I hate Gastro-docs. I went to see one last spring... after I told my long, embarrassing story to his nurse, the doc walked in and said "So, what seems to be the trouble?" I had to go through it all again, but of course, this time, I only had about 45 seconds because he wasn't really interested. When I told him that I felt "toxic", he rolled his eyes. When I told him that I'd taken three years of daily antibiotics in my early 20's, he said he didn't see any reason why that would affect my digestion. When I told him how I controlled my diet, he said "Well, you shouldn't be afraid of food.". At the end of the 5 minute visit, he told me to go get some Metamucil, take it twice a day and come back in six weeks.

Big help. I"ve suffered with IBS for almost 20 years and he thinks taking Metamucil might help??? Well, no, it didn't.

I did not come back in six weeks and tried to find another, more sympathetic GI doc. Well, in my small town, there's only one GI practice, so I called them back and tried to get in to see another doctor. Nope, against office policy. I can't switch docs.

I hate them.

Jennifer

--------------------
Jennifer
42 years old
Neither D nor C - just sluggish

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Re: About To Give It All Up new
      #290342 - 11/17/06 06:16 AM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

On a daily basis:
EFI diet, it is a healthy diet anyways, try to follow as best you can. Continue acidophilus. Take either Benefiber or Acacia, be patient with fiber and slowly work your way up to a large dose. Take a digestive enzyme, I would suggest taking the acidophilus with breakfast, and the digestive enzymes with lunch & dinner.

When you need it:
Take Gas-X. Take Miralax as you have been. Also don't forget teas, make some fennel or peppermint tea now and then.

Possible plan:
Breakfast: Acacia/Benefiber, acidophilus

Lunch: digestive enzyme

Dinner: Acacia/Benefiber before dinner, digestive enzyme

Night: Gas-X, Acacia/Benefiber before bed

Miralax I'm not familiar with how to take it, so do what is recommended. Hypno tapes are great. I listen to them every night in bed.

Drink lots of water and eat safe snacks in between meals.
Don't give up trying!

--------------------
Kat

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Re: About To Give It All Up new
      #290347 - 11/17/06 06:38 AM
Naturapanic

Reged: 02/16/06
Posts: 856


K2, how does me taking an SSRI effect this?
I just saw my doc, he says, and is right, I need to be on a theraputic dose of anti-anxiety meds.
But I said until IBS is straightened out, I refuse to put anything into my body which will possibly hurt the IBS.

I said if I can not eat McDonalds, Pizza, or Drink Beer with my friends due to IBS, why should I suffer the conseqeunces of a side effect?
He said I don't have to be so rigid, I can cheat.
I said until somebody does something for my IBS, no more.

What is you opinion of Zelnorm?
He said a GI could prescribe that to help counter Luvox.

How about Peppermint Cap as opposed to Tea?

--------------------
IBS-C and Bloating

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Re: About To Give It All Up new
      #290348 - 11/17/06 06:38 AM
Naturapanic

Reged: 02/16/06
Posts: 856


Thanks to for your help!!!!!!!!!!!!!

--------------------
IBS-C and Bloating

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Re: About To Give It All Up new
      #290381 - 11/17/06 09:33 AM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

An SSRI won't conflict with any of those, but I'm not familiar with SSRIs and side effects, how they affect your IBS etc.

Some have reported that their IBS symptoms were better when taking an anti-anxiety or anti-depressent medication. So in fact it may help.

As for the peppermint caps, I usually take them with dinner since I have more fat/IF at that meal. The teas are easy to take anytime though, as the caps have to be taken either on an empty stomach or with a meal.

Hopefully someone else can chime in here with advice on the meds you mention.

--------------------
Kat

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Re: About To Give It All Up new
      #290413 - 11/17/06 01:12 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Alright, that's it.

I'm ordering Acadia.
I'm buying Gas-x.
I'm getting Enzymes.

What about lactose pills?
Will these allow to me have dairy in limited amounts.

--------------------
IBS-C and Bloating

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Re: About To Give It All Up new
      #290414 - 11/17/06 01:16 PM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

No dairy! I have tried the pills since becoming stable and still had the same bad reaction to dairy. Save dairy for when you have your symptoms under control for a while.

Let us know how your changes work/don't work, how things are going.

--------------------
Kat

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Re: About To Give It All Up new
      #290417 - 11/17/06 01:23 PM
Naturapanic

Reged: 02/16/06
Posts: 856


I just ordered Acadia!
Tho I am very skeptical this is going to make a significant difference.
After all, if Benefiber didn't work, if Lorazapam, Rifiaxmin, Miralax, Acidophillus, and Glutamine failed, why would this do better?

I accidently ate a corn muffin today, which I know was made of milk.
So now I feel worse, bloated, skin irritation, gas.
I took the lactose pills 8 hours later thinking better late than never, no help.
Anything I can do or I am going to have to sit this out?

Take it back a second, bigger picture, still suffering.
I am frustrated I have to forgo dairy, redmeat, and alcohol.
Since I'm not getting results, how is the abscene of these helping, and is occasional cheating of redmeat and alcohol justified and not a big deal?

--------------------
IBS-C and Bloating

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Re: About To Give It All Up new
      #290470 - 11/17/06 08:33 PM
Naturapanic

Reged: 02/16/06
Posts: 856


I went to a Tom Reng therapy session.
It's based on Chi energy healing.
This is the website
http://www.yinyanghouse.com/tongren/tongren_therapy_books_supplies

The instructor felt my body, and was shocked by all the "blockages" I had.
Whatever this means and whatever I can do to clear it up.

--------------------
IBS-C and Bloating

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Peppermint caps new
      #290571 - 11/19/06 08:03 AM
Jordy

Reged: 08/12/06
Posts: 2095


Kat, you only take one with dinner and not with your lunch or breakfast?

--------------------
IBS-C with pain and bloat

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Re: Peppermint caps new
      #290576 - 11/19/06 09:16 AM
Naturapanic

Reged: 02/16/06
Posts: 856


I am sick and tired of Drs. not taking this seriously.
This is not friggin cancer.
I want this fixed.
I am tired of being bloated and constipated.
I am sick and tired of being told its not in my head.
Just because I have AS DOES NOT MEAN I am fabricating this.
I am tired of not being taking seriouslys.
I am have three weeks left in Boston, I WANT RESULTS NOW.
THIS IS BS.
I keep getting told it's stress bla blah, well if it was stress, THEN WHY IS IT after almost ONE YEAR of MENTAL HEALTH TREAMENT there is no progress?
Sound slike people are just writting it off and making excuses, why not put some effort into it?
I want results NOW.
No more waiting.
I HATE DOCTORS.

What good is medical school if they cant treat us?

--------------------
IBS-C and Bloating

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Re: Peppermint caps new
      #290577 - 11/19/06 09:25 AM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

Yep I only take it with dinner. I tend to eat small breakfasts and lunches, spread out so it's not really a 'meal'. My breakfast oatmeal I eat in about 30 mins, slowly taking bites (not on purpose I'm just slow in the mornings). Lunches and snacks I eat small portions too.

For dinner it tends to be with family, one sitting, eat all at once, and I usually have more IF and fat/oil in my dinners. I find the peppermint caps helpful for this.

--------------------
Kat

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Re: About To Give It All Up new
      #290621 - 11/19/06 04:17 PM
Coll

Reged: 10/14/06
Posts: 19
Loc: Maryland

this sounds like fibromyalgia....

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Wait, wait, wait. You have Small Intestine Bacterial Overgrowth? new
      #290697 - 11/20/06 09:06 AM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

Quote:

Dr.s keep telling me it's not food related, that I bacterial overgrowth.
Alright, so I take Rifaxmin, Miralax, NOTHING.
I take acidophillus.
NOTHING.

I take SSRI's to help reduce anxiety, since I have strees, NOTHING.

Why the heck can't they help allieve something as concreate as BACTERIAL OVERGROWTH?
Why should we go to these measures and time consuming extent for crummy results?




If you have an actual diagnosis of SIBO based on the breath test you should be able to be treated for this. Theoretically you should take an antibiotic as prescribed - I think it's important to take it exactly as prescribed - then be retested to see if the SIBO is gone. If not, you may need to be retreated. Your doctor may also give you a probiotic following treatment to rebuild good bacteria. Did any of this happen?

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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: About To Give It All Up new
      #290738 - 11/20/06 02:51 PM
kim123

Reged: 07/18/06
Posts: 543
Loc: Florida

Are you sure it's bacterial overgrowth and not fungal? You can't "test" for fungus,(Won't show up on a report from your doctor).Symptoms may include bloating, digestive trouble, "hung over" feeling, brain fog, memory loss, skin problems, FM, chronic fatigue, anxiety, blah, blah, blah... Have you considered an antifungal diet/natural supplements for awhile to see if your symptoms clear up, or even get better?

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Re: About To Give It All Up new
      #290793 - 11/21/06 06:57 AM
Naturapanic

Reged: 02/16/06
Posts: 856


OK, thanks.
Here are TWO points I want to make.

1)
-Tested in July, found I have bacterial overgrowth
-Given Rifaxamin for 10 days
-No Progress
-Afterwords, resumed acidophillus, and prescribed Miralax.

Questions:
-Does this mean I have SIBO?
-What should I be treated for, SIBO, IBS?
-Was I treated correctly, when the Rifaxamin didn't work, should I have been given other drugs besides Miralax?
-The doctor is now thinking of giving me Zelnorm.
-Is Zelnorm/Miralax the right approach
or neomycicn, Levaquin, Cipro, Flagyl the course to follow?

2) My nutrionist has suggested I be treated with 2-3 days worth of antifungal, the way we do for women with "candida". How would you feel about 2-3 days worth of Fluconazole or Ketokonazole?

-I am VERY confused.
-What do I have? IBS, SIBO, Candida, or do have 2 or all simulateaneously?

-Judging by my symptoms and responses, what do YOU think I have and what do you think the best treatment approach is?
-IBS, acupuncture?
-Or Candida/SIBO with anti-biotics, and if so, why did Xifaxan fail?
-How do you test for Canidida?

DUde, this is SO furstrating and confusing.
Why can't the doctors tell me straight up WHAT I have and How to treat it, and why prior attempts HAVE failed?
What do I have and what do I do?

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Re: About To Give It All Up new
      #290795 - 11/21/06 07:02 AM
Naturapanic

Reged: 02/16/06
Posts: 856


Seperate question.

I am now more C andbloated than ever.
I went on mini-rebellion the past few days, but I didn't anything taboo.
Only having big dinners and lot's of salsa.
Brief sample of the last four days.

Meal 1
Oat Bran applesauce
Egg beaters

Meal 2
Turkey sandwich w/hot peppers

Meal 3
Oat Bran w/applesauce

Meal 4
5 Catfish Fajitas-Night 1
2 large Burritos (1 beef, 1 chicken)-Night 2
2 large Chicken Burritos-Night 3
2 large Burritos (1 Fish, 1 chciken)-Night 4

Meal 5
Protein shake


-Have had no dairy
-My only "bad' food was dinner, where I am guessing four straight days of a large dinner, with salsa, and no Spinach is why I feel C, and crampped?
-Last night after dinner I felt skin irritation, c, and cramps, and I never get cramps.
-The burritos and fajiats had rice, lettace, and salsa.
No cheese, sour cream, or beans.
-I don't get it, they were safe.

-What do you think, eating less at dinner, and having Spinach again should get me on track, RELATIVELY SPEAKING?
-I rebelled because with such poor overall results, I got tired of making dinner and eating Spinach


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IBS-C and Bloating

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What do you mean by "No Progress" (m) new
      #290799 - 11/21/06 08:02 AM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

Quote:

1)
-Tested in July, found I have bacterial overgrowth
-Given Rifaxamin for 10 days
-No Progress
-Afterwords, resumed acidophillus, and prescribed Miralax.




Were you re-tested for SIBO after the Rifaxamin?

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: About To Give It All Up new
      #290854 - 11/21/06 12:34 PM
Jordy

Reged: 08/12/06
Posts: 2095


It doesn't look like you are getting enough IF...although the burritos probably have beans, right?

Maybe your body doesn't like the new Benefiber? Or weren't you having success with the old version either?

It looks like you have cut out soy, which is good to test it's effect on bloating. What about the oatbran? I can't eat oatmeal (I don't think)!

Yes, I often feel like bingeing on forbidden foods when the safe ones don't give me the relief. But, I figure I might be even worse????

--------------------
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Re: What do you mean by "No Progress" (m) new
      #290916 - 11/21/06 07:49 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Quote:

Quote:

1)
-Tested in July, found I have bacterial overgrowth
-Given Rifaxamin for 10 days
-No Progress
-Afterwords, resumed acidophillus, and prescribed Miralax.




Were you re-tested for SIBO after the Rifaxamin?



Nope.
Would it be too late now, 4 months later?
What would that mean in any event, I felt no difference.

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Re: About To Give It All Up new
      #290917 - 11/21/06 07:49 PM
Naturapanic

Reged: 02/16/06
Posts: 856


IBS, SIBO, Candida, I don't understand what I have, if I have all or a single.

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IBS-C and Bloating

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Re: What do you mean by "No Progress" (m) new
      #290919 - 11/21/06 08:02 PM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

It seems to me that the question is whether you still have SIBO or the antibiotics got rid of it. If the antibiotics got rid of it, then you don't have to consider SIBO in figuring out what is causing your symptoms. If the antibiotics didn't get rid of it and you still have it, then two things:

First, I'd talk with my doctor about whether we should try a second round of antibiotics to try to get rid of it.

Second, if the doctor doesn't want to do a second round of antibiotics, I'd focus on taking probiotics in hopes the good bacteria will drive out the bad. By this I mean a really good probiotic with lots of strains.

Forgive me if I have you confused with someone else on the Boards, but I think I remember someone posting that he had started treatment for SIBO but had taken the antibiotics incorrectly or skipped a day or something. If that was you and your doctor finds out you still have SIBO, you should explain you didn't take the first round of antibiotics as you were supposed to. That might explain why the first round didn't work.

HTH.

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: What do you mean by "No Progress" (m) new
      #290990 - 11/22/06 05:34 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Would it ba accurate or best then if I ask my doctor for another test to see if I have SIBO?

Seeing as how I took these pills back in July, is it too far beyond July to determine?
In other words, could the SIBO been treated, but come back, thereby making it so that even if the test shows I still have SIBO, we can't judge Rifamin's effectiveness?

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IBS-C and Bloating

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Re: What do you mean by "No Progress" (m) new
      #290991 - 11/22/06 06:27 PM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

Quote:

Seeing as how I took these pills back in July, is it too far beyond July to determine?
In other words, could the SIBO been treated, but come back, thereby making it so that even if the test shows I still have SIBO, we can't judge Rifamin's effectiveness?




Interesting question. I'm not sure. If I were you I would definitely want to know anyhow and if I did have SIBO I'd want to at least discuss being treated for it again and then tested again right after treatment.

I don't know if you saw this.

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: What do you mean by "No Progress" (m) new
      #291011 - 11/22/06 08:13 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Thanks.

I just got my Acadia today.
I was taking 3 spoons of Benefiber.
Should I switch to 3 spoons of Acadia, or how to transition?
Thanks.

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IBS-C and Bloating

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Re: What do you mean by "No Progress" (m) new
      #291034 - 11/23/06 08:42 AM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

You want to stay at the same amount of Soluble Fiber not the same amount of supplement. There's a sticky post at the top of the Diet Board that talks about how to switch: web page

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[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: What do you mean by "No Progress" (m) new
      #291041 - 11/23/06 09:28 AM
Naturapanic

Reged: 02/16/06
Posts: 856


Thanks.
That answers most of my questions.

Two unanswered ones are
1) I've had it twice yesterday. It did not fully dissolve both times. I placed a teaspoon in cold water, let it sit for a minute, then stirred. Nonetheless, when I drank, I noticed there was a large clump of it at the bottom.
What am I doing wrong, or is having a clump and "spooning" it out not a big deal?

2) I'm confused by the maximum dose. Heather says it is 16 grams, yet she also says you can have 5 tablespoons. She states a serving is one teaspoon, or 2,5 grams, so the maximum 5 tablespoons is more than 16 grams.
What is the maximum dose?
16 grams or whatever 5 tablespoons equates to?

Thanks.

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Fennel new
      #291525 - 11/27/06 07:53 PM
Naturapanic

Reged: 02/16/06
Posts: 856


I am going to be honest.
One thing I have NEVER tried is Fennel Tea.
I hated the notion of having to prepare tea countless times a day, particularly because I find when I make tea it doesn't taste well or come out properly.

Is this something of signifcance?

--------------------
IBS-C and Bloating

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Re: Fennel new
      #291526 - 11/27/06 07:55 PM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

Try instead just getting fennel seeds. You can chew them and then swallow it with some water. It tastes like licorice which I don't really like, but it's quick-and-painless compared to making and drinking a big cup of tea. You can usually find them in the bulk bins of a health food store, super cheap.

--------------------
Kat

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Re: Fennel new
      #291528 - 11/27/06 08:03 PM
Naturapanic

Reged: 02/16/06
Posts: 856


Thanks again K2.
I'll check Trader Joe's or Whole Foods.
Should those work as well as the tea?
Do you really think this could "be the one" to finally help?

I really appreicate your help.
I find your advice to be reliable, consistent, and there.

I followed your advice and bought Gas-x today.
My question is, how much should I start?
It says you can go as high as 4 pills a day, considering my sypmtoms and other medications, how many and how often should I take this?

I don't want to rush it, but I don't want to go to few.
I was thinking of starting with 2 at night, then if a couple days going up to 4?

--------------------
IBS-C and Bloating

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Re: Fennel new
      #291530 - 11/27/06 08:09 PM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

I only tried Gas-x briefly, but if you find your gas symptoms are worse at night try taking one after dinner, and one before bed. I'm not sure what the dosage for them was, if it says take 2 at a time then you can try that.

As for the fennel seeds, it should work as well as the tea, except that the warm liquid of the tea is also soothing for cramping and pain. If you're more focused on gas then you probably don't need the warm tea. Try taking a big spoonful of seeds and chew as much as you can.

--------------------
Kat

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Re: Fennel new
      #292938 - 12/08/06 07:41 AM
Naturapanic

Reged: 02/16/06
Posts: 856


I had my doctor appointment two days ago.

He said
1) We already attempted to treat SIBO with Rifaxmin, the symptoms didn't go away. Tests for SIBO are not that great, and they don't know if my symptoms are even related to SIBO, therefore it's best to not retreat and retest.
2) The best thing now is try to Zelnorm for a month, and see how it is. I can also up my dose of Miralax.
3) I can change my probiotic, but try Align not VSL since there is more data on Aligh and it is cheaper.
4) Non western approaches can help, but there is not much data.

What do you think?
Good plan?

--------------------
IBS-C and Bloating

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