in need of help asap
#288228 - 10/28/06 12:02 AM
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joji
Reged: 10/27/06
Posts: 2
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My sister has been very ill with all the symptoms of IBS. SHe has even had bleeding ulcers. The doctor's have run a lot of tests and have her on all sorts of medication. I don't believe they are helping, I think they are making it worse. I need any suggestions on a diet she could try that would maybe lesson her symptoms. I have read all the previous pages of information on heather's site. My sister basically is at the point of not eating anything because it irritates her stomach so much. She is lactose intolerant, cannot eat fruit or fruit juices because of the acid content. The doctors have ruled out diabetes, hormonal imbalances, thyroid, and cannot pinpoint anything. I have suggested a few herbal remedies that I know of but if anyone has a list of foods or a diet that would be simple and inexpensive for her to follow I believe her health would improve.
thanks,
joji
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hi,
well the diet that most people follow on these boards is called the eating for ibs diet.
It is based on soluble fiber foods avoiding trigger foods (which are high fat products, red meat and dairy) and eating as much insoluble fiber as you can.
There are lists on this board which tell you what foods are soluble, insoluble and triggers.
A lot of people find help from this diet, hopefully you will too.
I would definitely recommend Heather's book 'ibs-the first year' this details lots of things that can help ibs.
Godbless
xxx
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Hi, Check out the IBS Diet board as Heather has a post there on reading for before anything else - it helps to explain the diet. Search through the site as there is alot of information. I feel for your sister as I too have suffered from bleeding ulcers and they are very painful. Anti-inflammatories worsen mine so they are no longer part of my life! Heather's IBS diet is worth a try and it is basically very healthy. I did find that even some of the safe listed foods can be triggers for some people so you do have to personalise it as you go along. Keep me informed of your sisters progress - this too shall pass! God Bless! Debbie IBS-A
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hello, i have a few suggestions, first of al the EFI diet previously mentioned is a very good start for her to calm her insides and get on a better track. secondly get a bottle of l-glutamine capsules or powder and have her take between 3500mg and 5000 mg a day spread out over the course of the day and always on an empty stomach. L-glutamine is an amino acid that helps heal the lining of the intestines and reduces inflammation. Also introduce probiotics to her system to help get things in order as well. all of these things you can read about here on the site buy doing searches and by googling, good luck.
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Hi Miso
I have seen you recommend l-glutamine a number of times. Do you have a reference to some research data that shows l-glutamine helps heal the intestinal linings? Thanks
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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http://www.helpforibs.com/diet/what_to_eat.asp
I would start there.  Hope that helps.
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Courtney (IBS-D)
"Do your part to live in peace with everyone, as much as possible." Romans 12:18
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i do not have any on me but you can find it out there, i have been recommended to take it by several doctors, i western, i naturopathic and one sports medicine. I recommend it based on there recommendations and personal experiences with it. Also i have been told by some doctors that they include it in the tube feeding preparations in hospitals to help intestinal muscle tone and healing following any kind of traumas that require a patient to be on tune feeding, it keeps the muscles from atrophy. I have also read about l-glutamine heloing to heal stomach ulcers and leaky gut. I know that you are very scientific, so i would be love to hear what kind of info you come up with when and if you look into it.
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Hi Miso. I have done a bit of research. Here is what I have learned.
Glutamine, a 5-carbon non-essential amino acid, is the most abundant free amino acid in the body. It is consumed by actively growing cells such as the lining of the gut and other viseral organs. Skeletal muscle synthesizes and stores glutamine. Almost all of glutamine in the blood is derived from the intracellular glutamine pool in skeletal muscle.
The intestine uses about 1/3 of the total glutamine in the body. It is absorbed into the viseral organs and it is rapidly metabolised within the intestine. About 25% of the glutamine in blood is removed each time it passes through the small intestine.
Patients maintained on TPN become depleted in glutamine. However, there is a lack of evidence from clinical trials demonstrating that supplementation with glutamine has specific clinical advantages.
References
Coster, J., R. McCauley, and J. Hall, 2004: Glutamine: metabolism and application in nutrition support. Asia Pacific Journal of Clinical Nutrition, 13, 25-31.
Griffiths, R. D. and F. Andresw, 2001: Glutamine: a life threatening deficiency in the critically ill? Intensive Care Medicine, 27, 12-15
Rhoads, M., 2001: Glutamine Metabolism: Nutritional and Clinical Significance. Journal of Nutrition, 131, 2532S–2534S.
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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Funny, this post reminded me about my doctor...just yesterday he told me that there is no real evidence that probiotics help IBS patients. Well regardless of what he says I know probiotics are very beneficial.
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There is clinical evidence to support the use of probiotics. I suspect your doctor might not familar with the recent research.
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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IBS-C with pain and bloat
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As I understand it your body produces all of the glutamine it needs. It has no need for an external source of l-glutamine and even during serious medical situations there is no evidence to support the use of l-glutamine supplements.
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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IBS-C with pain and bloat
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So why does it help so many people? Why do some people only look at facts? If something's not proven, it doesn't mean it is not true.
Up until a few years ago most of the modern western civilization thought naturopathic medicines or treatments were hocus pocus things that had no merit. Over the last 20 years or so, there has been a shift in thought, and belief because research has been done and they conclude those methods do work too.
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Hm, I don't know why it helps people, but I certainly like the facts. It could be that we are only hearing about the cases where it helped people, and those cases are just normal variation.
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My understanding is that healthy people generally shouldn't need L-Glutamine supplements. From what I have read, it is supposed to help with immune function and help to strengthen the lining of the stomach and gut. Just what I've read there.
What I do know for certain is that when I don't take it, I'm in an awful lot of pain. When I do take it, I'm fine.
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***********************
If you're not dead, you've still got time.
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Source?
#289433 - 11/09/06 05:30 AM
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Syl
Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA
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Quote:
So why does it help so many people?
Can you provide me with a reputable reference that supports this claim?
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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Re: Source?
#289449 - 11/09/06 07:58 AM
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Miso
Reged: 04/20/06
Posts: 559
Loc: Calgary, Alberta, Canada
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i think that she means she has heard from many who seem to benefit from it. I feel that for myself it has amde a difference and so i continue to take it, i seem to have less adverse reactions to foods and it seems to have helped my reaction to acidic foods the most. Every natural type doctor i have ever seen has suggested l-glutamine to me as they have seen it help many people with stomach issues in their own practice. Sometimes the facts are not all its about, but i feel i need to knwo the fact first before i jump into something as well,i do remember reading this is accurate that it helps with healing of leaky gut and ulcers etc, i should try and find th einfo again.
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Re: Source?
#289456 - 11/09/06 08:29 AM
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Syl
Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA
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Okay - I understand. I have seen reports that suggest l-glutamine is helpful as an amino acid supplement for extreme sports such as body building. However, the research literature has mixed indications about that too.
The complementary medicine group at the University of Maryland suggest that l-glutamine supplement may be helpful for IBD and other things. However, even they say the evidence about its use with IBD is inconclusive.
They summarize the use of l-glutamine as follows "Adequate amounts of glutamine are generally obtained through diet alone because the body is also able to make glutamine on its own. Certain medical conditions, including injuries, surgery, infections, and prolonged stress, can deplete glutamine levels, however. In these cases, glutamine supplementation may be helpful."
One thing that is for certain l-glutamin is safe to use even in doses as high as 15 grams per day. It sure cannot hurt to take it if you feel it gives you some benefits. It just is not evident in the research literature that there is a benefit to taking l-glutamine supplements.
Good Luck
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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I think you have missed my point.
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Yes Miso, that is what I meant. A few naturopaths I know recommend it, and I have talked to and read about many people it has helped...and it helped me too.
Syl - I do research too, but sorry if I'm not the type to go around and writing down who wrote what, and when, and quote them and give links to articles. I really can't be bothered to do that. I do make very well informed and educated decisions though.
I'm not knocking you for doing all your research, but sometimes you can't go on facts alone. Sometimes you need to take a leap of faith.
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I agree ...
#289550 - 11/09/06 07:00 PM
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Syl
Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA
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we need to make leaps of faith. I prefer to have as much information as I can before I leap 
Eventually I will post a message that recounts a leap of faith I made recently in a herbal supplement that is known to have particular medicinal properties. It triggered one of the worst IBS events I have had in years. I forgot to think about one of the fundamental tenants of EFI related to IF.
Good luck.
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STABLE: ♂, IBS-D 50+ years - Science of IBS
The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS
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Joji: I can tell you what helped with me. November of 2005 I had an ulcer and then in May 2006 I got another set and they were bleeding. I had to take something called a Prevpack, 3000 mg of antibiotics a day with a Prevacid pill, for two weeks. Then I was put on something called Karafate that coated my stomach. But more than that I went on a very bland diet, that is a lot like Heather's, for bout a month. It was BOOORING but it did help my ulcers to heal. I would eat oatmeal, not the flavored type, cream of wheat or plain grits with no seasoning such as pepper. Lunch was sandwiches with a little low fat mayo . I ate plain chicken, rice, fish, applesauce, popsicles, soup, some veggies such as carrots, potatoes, squash and broccoli that was steamed or sometimes stir fried. SInce I did nt want to deal with what to drink I kept to plain water. I ate small meals, basically nibbled all day.
I have to tell you that I also have severe reflux so I was also working around that. SOme foods such as eggs did not agree with me so I did not eat them. But basically I kept my diet very bland and used the meds to stop the acid so that my ulcers could heal.
Not to scare you but I will tell you that after my last bout of ulcers I developed my IBS. My doc said that it could have been the meds and the trauma to my stomach.
I also had a upper EGD after a three month period to see if the ulcers were gone. By the way I knew they were bleeding before the EGD since I had dark blood in my stool.
I hope this helps and I hope that your sister gets better since it ws very painful and scary to have the ulcers.
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