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Re: Family doesn't understand new
      #283773 - 09/24/06 06:40 PM
tummalarkey

Reged: 09/05/06
Posts: 131


I know what you mean. Usually it's because they don't understand the disease or don't understand that there are still things doctor's can't do anything about. Everyone I know that knows I have IBS has asked me, "Isn't there something they can give you for it?" They mean well though. It's a hard thing to understand.

--------------------
Courtney (IBS-D)
"Do your part to live in peace with everyone, as much as possible." Romans 12:18

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Re: Family doesn't understand new
      #283782 - 09/24/06 07:40 PM
Kat32

Reged: 11/09/05
Posts: 39
Loc: Denver, Colorado

Hi Marilla,

I'm so sorry to hear that you are stuggling with your family understanding your condition. My family struggles with understanding me at times too, but at the same time, we all seem to have sensitive stomachs when it comes to food, so I don't have as hard a time with my fam. For example, just tonight my mom couldn't answer the phone because her dinner had "gone right through her". Although I am the only one in my family to acknowledge my IBS, perhaps my whole immediate family has a touch of it. I probably have it the worst because I have a naturally anxious personality. And I really think my dad has it almost as bad as me, but he would never give up the foods and the beer he so likes.

I've explained IBS to my parents a few times, but they never seem terribly interested. However, make them a few recipes from Heather's cookbook and they do start to get a little more interested. I was home for a long time this summer visiting my parents and cooked a lot for them, and they loved it, although I know my dad was glad to have red meat again when I left!

My younger sister who I live with probably understands it best and just laughs at me having to really think about what I eat all the time, but also loves when I cook for her. She also has a touch of IBS, but has such a laid-back personality that it doesn't affect her as much.

But even if you don't have family members who can relate to it like I do, just keep being strong in what you have to do for yourself. I can definitely say that the more I was adamant about my condition, the more my family learned to accept it, because they definitely thought I was a bit pscyho at first. I even had a dream that my dad told me it was all in my head and I just started yelling at him and crying and ran out of the room. That's what I was feeling subconsciously, but it has gotten much better.

One thing I do before going to big family get-togethers is just eat a lot of soluble fiber before, and then just take bites of the stuff there. There's often so many people there that no one really seems to notice that you're hardly eating anything. Just eat really slow....:)

So, what I am trying to say is, give it time and be strong in telling your family why you need to do this. You don't necessarily need to tell everyone..only my immediate family knows, and I feel no need to tell extended family. I guess it depends on how close you are to them.

Ok, this is long. Good luck and give it time!

Peace,

Kathy

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Re: Family doesn't understand new
      #283794 - 09/25/06 04:16 AM
kalosis

Reged: 08/20/06
Posts: 71


Its hard and unfortunatly you can only educate family and friends but can't change them. Try to focus on what you need to do to be healthy and self talk and remind yourself that. I often remind myself that people don't understand but to take it out on myself its not ok and to use the support you do have to "vent" to. Hang in there.

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Re: Family doesn't understand new
      #283803 - 09/25/06 06:14 AM
franny

Reged: 05/16/05
Posts: 508
Loc: N. FL

It really sucks when those we love just don't get it and in some cases don't want to. But hopefully as you improve on this diet, and you will if you follow it closely, you will be able to rejoin them in activities. But for me the bottom line was that they were not in my body and could never understand so I do what I have to do for me with or without their approval or understanding. So they think I'm weird, that is not as big a deal to me now as knowing I'll feel better today. Sometimes I'll have a flare up and skip some event but now I don't feel so guilty about it. It's my life and I have to live it daily. Good luck friend and hang in with us.

--------------------
Franny
IBS/D
Celiac

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Re: Family doesn't understand new
      #283826 - 09/25/06 09:06 AM
cejay

Reged: 08/27/06
Posts: 84


Yes it happens to me all the time. My family seems to argue and fuss at every gathering and just yesterday my nephew had a birthday party and I did not go. I knew that the kids yelling and all the sniping with my Mother, niece, and other would have upset me and it is not worth it.
Luckily, my husband understands and even though we go to outings to do with his job they are pretty understanding when I either do not eat or just pick at something.

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gracie new
      #286441 - 10/14/06 09:27 AM
Jordy

Reged: 08/12/06
Posts: 2095


did you start the Acacia yet? If so, how's it going? Are you still taking your flax meal....or did you stop or reduce the flax now that you are on acacia? Thanks

--------------------
IBS-C with pain and bloat

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Re: gracie new
      #286443 - 10/14/06 09:32 AM
Gracie

Reged: 11/25/05
Posts: 1967


Hi Jordy,
I've been taking the acacia for 1 week, and it's been going good. I stopped taking the flax for now so I can see the full effect of the acacia. I'm also going to try to increase my IF too with more fruits and veggies. Yesterday I had a chicken souvlaki salad wrap, and I had no problems.




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Re: gracie new
      #286444 - 10/14/06 09:35 AM
Jordy

Reged: 08/12/06
Posts: 2095


Well, never heard of that wrap...but it sounds awful good!

How much Acacia did you decide to start with? I hope it continues to go well for you. That was brave to stop the flax and try something new. I tend to get stuck in doing the same thing everyday.

are you peeling your fruits and veggies and avoiding whole grains like brown rice or millet?

--------------------
IBS-C with pain and bloat

Edited by Jordy (10/14/06 09:37 AM)

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Re: gracie new
      #286447 - 10/14/06 09:43 AM
Gracie

Reged: 11/25/05
Posts: 1967


It's very yummy!

I started taking 1/4 teaspoon of the acacia 2x a day, and yesterday I increased it to 3x a day. Today I'm going to try to get up to 1 tsp. by taking 1/2 tsp 2x a day.
Before I started taking the acacia I also wondered if I should stop the flax. I'm an A so sometimes I'm C and other times I'm D. I may need to take it, but for now I'm just trying the acacia on its own.


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