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Anyone here take beano?
      #245658 - 02/11/06 05:32 PM
AmberBoBamber

Reged: 12/05/05
Posts: 120
Loc: California

I think some spices that are safe (no MSG, etc...) give me gas. I just get gas pains and extra BM's, but no D or C. I was reading about beano a bit and see that it's a digestive enzyme? I just worry about taking things because side effects freak me out, and I worry way too much about have an IBS attack. Does anyone here take beano? Are their side effects? I've taken beano in the past, after recovering from an eating disorder- my digestive system was all out of whack and I got really gassy from just about anything. I would have sworn the beano made it worse. But I was pretty kooky and unstable back then and let things in my head get to me!
What do you all think about beano and it's (possible?) side effects?

Thanks!

Amber

PS and I hate gasX and mylanta gas (simethicone?) tablets...I swear they make me feel worse, nauseaus and stuff.

thanks again!

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I live on it... new
      #245659 - 02/11/06 05:40 PM
Alyson McG

Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)

if it wasn't for Beano, I wouldn't be able to eat any veggies W/O pain. I use a lot of it and usually take a little over the reccommended dosage, depending on what I'm eating. I've never noticed any side effects. If you try it and like it, I'll give you the name of a site where you can order it at a signifigant savings. I use it so much, I want to save as much as possible.

HTH Alyson

--------------------
Everything in life happens for a reason, patience will eventually tell us what that is......

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Re: I live on it... new
      #245685 - 02/12/06 01:07 AM
AmandaM

Reged: 10/05/05
Posts: 488


Hey Alyson! Could I get the name of the site too?

Amber - I love Beano! It makes eating veggies and spices sooo much easier. I still get a tiny bit of gas sometimes, but it really works to alleviate most of it. Try it and see how you like it. It's definitely worth it!

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About the eating disorder new
      #245714 - 02/12/06 08:51 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Does your doctor think that you will always have problems digesting food without pain and/or gas? Is it better now? How long did you have an ED?

I worry that I have done permanent damage because of a long term eating disorder and will always have pain and gas and constipation.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: I live on it... new
      #245732 - 02/12/06 09:50 AM
Wind

Reged: 04/02/05
Posts: 3178


I "live on it," (i.e. Beano) too!

I use it daily. It eliminates gas/discomfort/PAIN associated with so many vegetables. Seriously, without Beano I doubt I'd eat any vegetables. I also take slightly more than the recommended dose. YES, I find it works EVEN WITH broccoli!

I usually just stock up when I hit Cost Co.

Kate, IBS-D.



Edited by Wind (02/12/06 09:52 AM)

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Kate, here's a website to find it even cheaper than at Costco... new
      #245743 - 02/12/06 10:20 AM
Alyson McG

Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)

www.luckyvitamin.com. I posted info about it last week. For whatever reason, it is $4.72 for a bottle of 60, $13.33 for a bottle of 100 and $4.20 for a bottle of 30. So, as you see the bottle of 60 is an awesome deal. I pay about $12.00 for a bottle of 120 at Costco. Also, on this site, the more you buy, the more you save. I use so much of it I ordered 15 bottles and some of their teas. They also have Yogi stomach ease and another brand of fennel tea bags, plus many many other brands of teas. It's really a cool site with some good things. The best part of it is I have received not one bit of spam email after ordering. Oh, they even have the Sweetleaf brand of Stevia plus.

BTW, I completely agree, I wouldn't be eating any veggies either if it weren't for the Beano. I was still pretty hesitant to try broccoli until last week. I took 5 of them and had only minor problem( stink) with it.

HTH and I would love to hear about anyone else's experience or thought's on this site. Alyson

--------------------
Everything in life happens for a reason, patience will eventually tell us what that is......

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Hi Amanda.... new
      #245745 - 02/12/06 10:22 AM
Alyson McG

Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)

I just posted some info on my reply to Kate(Wind) above. I think you will just love this site! I know I do.

Alyson

--------------------
Everything in life happens for a reason, patience will eventually tell us what that is......

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Re: About the eating disorder new
      #245758 - 02/12/06 10:40 AM
AmberBoBamber

Reged: 12/05/05
Posts: 120
Loc: California

I worry about the exact same thing- I worry that I have done some sort of permanent damage to my body and that I caused myself to develop IBS because of my ED...I don't know if that's true or possible, but I always beat myself up when I'm having bad IBS symptoms because I assume it's my own fault. Starting in high school I always had weird eating patterns. I never ate except at dinner time, but I never really controlled what or how much it was that I ate that one time per day. I jogged for an hour every night after dinner. I don't know if you would call that an ED, but it definitely wasn't normal or healthy. In college is when it got the worst. I cut out most all carbs and exercised for 3 hours a day and took laxatives every day and got really thin and just plain sick (more mentally than anything). That lasted about a year and a half before I just broke down and moved back home to get help with the ED. I can't really answer the question you asked me about whether my doctor thinks I'll always have digestion problems. I changed doctors last year, which was about six months after I started the ED treatment. I haven't mentioned the ED to my new doc. When I first started eating "normal" and getting help, I had TONS of gas. I think I mentioned that. That's why I tried Beano once. I'd say that was my biggest problem, along with bloating. But then, about 6 months after I started treatment I got pregnant. My stomach really got out of whack at that point. My new doctor just attributed the painful gas, bloat, and D to being pregnant and said it would go away when I had my son. Well, he's 10 months now and I still have problems! I'm more of a type A now, with cramping whether I'm C or D at the time. Part of me likes to tell myeslf that it is just IBS that developed after pregnancy- I think Heather even mentions that happening to some women. My doctor says it does make sense that I have IBS symptoms after having my son for a couple of reasons: 1. I've always had a sensitive stomach, even when I was a child. I usually got D after eating out, especially at chinese restaurants. 2. My son was growing really far inside of me...let me explain, because I know that sounds weird! While I was pregnant, the doc worried that he was going to be really small because my stomach measurements were weeks behind what it should have been. I just looked really small while pregnant. But he was born 10 days early and weighed 6 lbs 14 ounces which is a really normal weight. So the doc said it must have meant that he was just growing "deep" inside of me, squishing and compressing all of my organs giving me gas, D, and heartburn. 3. And now, my son still doesn't sleep through the night, so I get very little sleep, which contributes to IBS symptoms. Not only that, but before I knew it was probably IBS, there were plenty of days where I ate WHATEVER I wanted and felt PERFECT.
Sorry this post got so long, but I thought I might as well explain my situation so that I didn't seem like I wasn't answering your questions. I try to remember the six months between ending my ED and getting pregnant. I know I was really gassy at first, but I really do think it improved dramatically. I know I couldn't handle deep fried things, or lots of greasy foods, but I could eat just about anything else, dairy, red meat, etc. And since having my son, there have been days where I feel fine and have eaten whatever my little tummy desired and felt fine. I don't think our ED's will permanently effect us if we really make sure to change our destructive patterns. How long did you suffer from your ED? What type was it? Have you felt stable at all since it? When/how did you develop IBS?
I didn't know anyone else here previously had and ED. It's always in the back of my mind as a cause of this. It also kind of sticks with you a bit. I mean, I hate thinking that I need to stick to Heather's diet. This probably sounds dumb, but I hate thinking that I can't eat whatever I want. It's like, I restricted myself from so many foods in the past because I "wanted" to due to the ED, but now I have to avoid foods. I don't know if that makes sense. Well, I'll stop babbling now, and again I'm sorry this is so long!

Hope to hear back from you,
Amber

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Re: Anyone here take beano? new
      #245765 - 02/12/06 10:49 AM
Kree

Reged: 10/08/03
Posts: 3748
Loc: Northern NY

I also use Beano frequently and have never noticed a single side effect. Great stuff.

--------------------
"Anyone can exercise, but this kind of lethargy takes real discipline." -Garfield

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Re: Kate, here's a website to find it even cheaper than at Costco... new
      #245808 - 02/12/06 02:38 PM
Wind

Reged: 04/02/05
Posts: 3178


Alyson, THANK YOU!!!

This is a HUGE savings. I'm placing an order a.s.a.p.

Okay, you can laugh, but I normally use half a dozen Beano at a time. Yes, I've even used MORE than that, depending on the quantity of veggies being consumed, but taking a few extra really helps.

I think, if I didn't use Beano, I might eat a total of about a cup of veggies at the most, during the day--probably just in the form of spinach or a few mushrooms or a beet or a few lettuce leaves.

For something like broccoli, I usually take half a dozen beano. Ditto for cauliflower. This product really makes a huge difference.

Honestly, I won't even bother entertaining the thought of a vegetable entering my mouth without Beano. The pain just is not worth it.

Okay, how warped is that? I think I'll name my next cat Beano as a joke.

Thanks, again.
Kate, IBS-D.

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Oh, I'm not laughing.... new
      #245813 - 02/12/06 03:08 PM
Alyson McG

Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)

because I do the exact same thing! No way no how is a vegetable coming near me without enough Beano to kill the "effects" of them. I've used at least that at times, though haven't tried more than 6 at a time, might need to do that since I am still affected by some things, particularrly PB, my most favorite thing in the world! I try hard to stay away, but sometimes I just can't. I do however give my hubby a warning...."babe, I'm having a PB sandwhich, just be warned"....:) Fortunately he just laughs and tells me to eat whatever I want. The makers of Beano are my heroes!!!!
I like the pet name thing too. We're looking at getting another black lab and I wanted to name it KC or Chief(yes, we are Huge football fans) but I like Beano too.....:) Don't know if I could sell that on the hub though.

I'm glad you checked it out and will benefit on the savings. I couldn't believe it when I saw it, but I got exactly what I ordered and ordered enough to not pay any shipping! I love to find deals like this and am more than happy to share when I do. I think it's the least we can do for each other when we are forced into a situation where we are all spending more on things(prescriptions, supps, specialty products, etc...) the non IBS person doesn't have to. To be quite honest, I was probably skimping a little on the beano to save money before I found this. The things we do...:)

Alyson

--------------------
Everything in life happens for a reason, patience will eventually tell us what that is......

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Long Side Effects of Beano new
      #245821 - 02/12/06 04:01 PM
Gab

Reged: 12/28/05
Posts: 25


What about the long side effects of Beano??

I really worry about this. I take Beano as well. It's a life saver. BUT for how long can we take it without causing something to our bodies?? I"m not sure if there aren't any side effects, but I do worry about it. Anyone knows?

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Re: Oh, I'm not laughing.... new
      #245823 - 02/12/06 04:39 PM
Wind

Reged: 04/02/05
Posts: 3178


A few years ago, my Dad actually introduced me to the product.
He wanted me to eat veggies again (I wasn't eating any, unless you count a leaf of lettuce or a hidden piece of celery!). He just saw the product and said to try it. I could not believe the stuff worked! Seriously, without Beano, a carrot or more than one bite of broccoli or more than 3 green beans would give me the biggest attack. It even works on corn on the cob. I actually had lentil soup, for the first time in years a few weeks ago with only a little stink & no pain. It's great on soy. I suspect it would be fabulous with something gassy like oats or millet or brown rice.

I just ate a safely prepared cauliflower and a pound of portabellas without any pain or hesitation.

Beano is a really good thing.

Kate, IBS-D.



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Re: About the eating disorder new
      #245933 - 02/13/06 11:32 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Quote:

I hate thinking that I can't eat whatever I want. It's like, I restricted myself from so many foods in the past because I "wanted" to due to the ED, but now I have to avoid foods.


Yes!!!! I so beat myself for this too!

Quote:

I don't think our ED's will permanently effect us if we really make sure to change our destructive patterns.


Honestly? Do you really think your symptoms were improving before you got pregnant? From what you say, it sure sounds like yours is more due to the pregnancy. How long did you suffer from your Eating disorder?

I had an eating disorder for about 20 years almost. Yes, I started young and kept at it up until about 1 or 2 years ago...I forget.

I had both anorexia (predominately) and some years of bulimia thrown in there. Bingeing and purging were everyday episodes. My body was either empty and had nothing to digest...or it was coming back up the wrong way and not traveling down through the digestive system normally.

I never abused laxatives, though. That's what my doctor says leads to permanent damage. But I'm afraid the nerves are damaged and that the abnormal eating over the years reinforced the harmful nerve functioning. I read where the longer you are in pain, the more ingrained your system becomes to this pain and it becomes normal for you to have the pain. It "gets used to it" and it is like it is reprogrammed to hurt.

I did have a point of stability in the first half of my Ed when it was getting better. But never since then, even though I don't actively have the ED now. I'm just really, really scared that I have done permanent damage and will always be in pain because of something stupid I did....abusing my body for years. I guess it's payback time. Now is the time the ED is over and I would happily eat a big piece of chocolate cake or a stuffed pizza....and yet, the ED has won. Even if I don't want it...it continues to remind me that food is bad...not because of gaining weight, but now because it means pain.

Sorry for my long reply. I'm just really looking for someone to tell me this isn't the case...and I don't think anyone really can do that without either lying to me or not being 100% sure that the pain will get better. I hope I'm wrong about this...but I doubt it.

I pray for God to heal me and to give me strength. My family still thinks I have an ED...even though I try to explain that I cannot eat some foods because of the pain. That really hurts. I never lose the "ED label" no matter how hard I have worked to beat it.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Good question!-nt new
      #245945 - 02/13/06 12:12 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois



--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Long Side Effects of Beano new
      #245968 - 02/13/06 12:58 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Hi Gab, I just googled it. There are no long term bad side
effects of it. It's a digestive enzyme, not a "drug".However,
if you have a rare genetic disorder called Galactosemia, then
it's real bad news. But, since you've been using for a while,
you don't have it.
They also say it's specifically 'designed' to stop intest-
inal gas. The majority of anti-gas agents only target
stomach gas. They even claim it stops flatulence before it
starts. -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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I'd be worried about all that mannitol going into my digestive system-nt new
      #245976 - 02/13/06 01:09 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois



--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: About the eating disorder new
      #245981 - 02/13/06 01:17 PM
AmberBoBamber

Reged: 12/05/05
Posts: 120
Loc: California

I can completely relate to everything you replied...some of the things I left out in my first post you brought up-
It does suck still having a "bad" relationship with food. Like you said, I use to hate food because of the weight I thought it would make me gain, but now that I have conquered that (mostly at least!) I definitely fear food because of the discomfort or IBS attack it could cause. Having IBS sometimes scares me because I feel like it takes me back into the general mindset of "food is bad". It definitely brings up past feelings I had when I had my ED. And like you, my family always accuses me of not eating enough, and they are only now beginning to grasp that I eat, but I can't eat the crappy/trigger foods they eat. I think we may have to endure that label our whole lives, but I try to tell myself it is just because they care (even though they don't always reference the ED in the nicest way). My boyfriend ordered the new "cheesy bites" stuffed crust pizza from Pizza Hut last night...what torture. Just like you said, I would gladly eat a piece...If I knew I wouldn't feel awful afterwards. Now that I'm finally healthy enough in my mind to let me eat it, my physical body/gut says I can't. After having an ED, I can tell you there is nothing worse than feeling like food controls you. And even now I still feel that way a lot. I use to plan what I would eat, how much I would eat, and when I would exercise everyday when I had the ED. After treatment, I was so looking forward to being able to just "wing" it- eat out when I wanted, eat whatever I wanted with friends, be social again, but IBS has prevented that. Maybe I'm too afraid sometimes. Fear of D or C or just an attack in general rules my life sometimes, and thus controlling my food goes along with it. When you feel bad for so long, it's hard to be optimistic about what the next day or next food for that matter will bring.

I'd say I had disordered eating for 6 years, from about age 14 to 20, I know that is nothing like you're 20 years, but I did abuse laxatives which is pretty awful I know. I can honestly say that before getting pregnant I did get over the bloating and gas and felt perfect. It took time, but it did get better and I began feeling normal. I really don't know about you, but there are days when I can eat anything I want and feel fine. I never do that because I'm now too afraid of the consequences, but I didn't know I had IBS for a few months. I really think one's mindset has a lot to do with how we feel. I know that when I'm stressed, tired, and in a bad mood I expect that I will feel sick and then I do. If I try to occupy myself, stay optimistic, and not worry I feel 100 times better. I can worry myself into a frenzy/panic that makes me sick just because I'm so stressed and worried about getting an attack. I'm not on AD's, but my doctors says it might be good for me after I'm done nursing my son. I took EffexorXR when I was recovering from my ED, but it made me really lightheaded/dizzy and I also tried Zoloft during recovery, but my hair started falling out and I attributed such to the Zoloft. Who knows if it was the ED or the Zoloft, but I'm super paranoid about side effects. I really think taking an AD would make me more nervous/panicky because I fear pain/discomfort/etc and therefore any side effects.

I really think you need to change how you are thinking about things (and I'm really not saying this in a mean way, or that I think you are some dark, depressed person, because I really dont!!) I just mean that you say you hope the pain ends but you "doubt" it will. That's no way to think about things! I don't think you reprogrammed your nerves to feel pain, I think you reprogrammed your mind to expect it. Does that make sense? Again though, I don't think it is all in your head, so I'm NOT trying to imply that. I know that one twinge of pain can send me into a downward spiral if I'm feeling less than perky that day. That twinge then turns into a stomach ache...etc and so forth. Do you ever find that? But if I'm happy and busy the next day and I get that same little twinge, I'll totally dismiss it and go on feeling fine. I don't know if that makes sense. Maybe our bodies will never digest things properly, but if we learn what we can and can't eat and try to stay positive, I think things will get better.

I know I've felt great a lot since my ED...and now I'm trying more and more to feel great since being diagnosed with IBS.

What are you doing for your IBS? SF supplement? Peppermint caps? Peppermint tea? Probiotics? What food do you eat?

Right now I've worked up to 2 tsp of acacia twice a day and I take about 2 peppermint caps a day. I can't believe how much the peppermint caps help me with any gas/stomach cramps. I just started using them and I love them. I know everyone is different though. I drink a cup or two of tea a day. If I'm feeling C, hot tea seems to help "loosen" me up a bit. I'm also taking primal defense right now. Did I read a post that said you tried it? I SLOWLY worked up to 3 a day. I'm not sure how much they are helping yet since I just got to 3, so we'll see. I think I get gassy/bloated when I increase my dose, but then I get better.

As for food, I don't eat a very varied diet, and I haven't eaten out in a LONG time. I'm just too paranoid about getting sick (IBS symptoms). I never cheat from heather's diet, but honestly that's not too difficult since I've restricted a lot more in the past. I wish I could eat more, but at leat I eat more than I use to when I had the ED I guess. I pretty much start the day w/ a little bread or a soft pretzel. I eat a keebler graham cracker to two for a snack. A potato or two baked for lunch. Then I have chicken and rice for dinner. Sometimes for dessert I have a piece of licorice or a slice of heather's cakes. That's about it though. I don't vary much from those things because I'm too afraid too. The pain isn't worth the experimentation in my opinion. Some days I cry though because I wish I could eat more. I know I just said it isn't hard not to cheat, because it isn't hard, I know how to keep myself from eating things, but that doesn't mean it isn't hard to except that I still can't eat like a "normal" person. I want to be normal so bad, but I guess I'm not going to. I just need to take care of myself mentally and physically from now on. And if that means I live on bread, potatoes, and chicken, so be it. It makes me sad, but keeps me from feeling pain...
Again, here I go babbling. I'm sorry!
I can't tell you 100% that the pain will get better, but for me it has before and I can tell now I'm also beginning to stabilize. I still have bad days, but I know that there are times when stress is the culprit. It's not in my head, but the stress or worries disrupt my normal body functions.

I really wish you the best...maybe we could talk more. I'd love to hear what you are doing and eating these days.
I pray for strength and healing for us too!!

Amber


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Re: Long Side Effects of Beano new
      #245996 - 02/13/06 01:38 PM
Wind

Reged: 04/02/05
Posts: 3178


Perhaps radiant health is a "side effect" from Beano & being able to painlessly consume more anti-oxidant nutrients?

Perhaps relatively low stress when confronted with vegetables?

For me, the benefits far outweigh the costs.

Kate, IBS-D.

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Re: About the eating disorder new
      #246020 - 02/13/06 02:46 PM
bounce17

Reged: 11/27/04
Posts: 5
Loc: Los Angeles, CA

Wow, so nice to know that I'm not the only one in this predicament...thanks so much you two for posting.

What we are dealing with is very hard and I totally resonate with your personal frustrations of "well I've been trying to heal from this ED so I should be eating this piece of pizza, scoop of ice cream, etc. but I can't because then I'll have an IBS attack."

So does the mind process this thought as an old ED pattern or a protective health mechanism? A lot of the time it feels like both. But I have to remember that this is ok because ED's are very complex and just as they've taken years to develop so too do they take time to fully heal.

And it's really difficult when friends and family don't understand and think we are just perpetuating our ED. It's like, "so you think I'm making this up to keep an eating disorder? Why don't you step into my shoes for just a day and then we can talk." You know what's best for your body. Don't listen to them. Seriously. And hell yeah, it sucks being 24 and not drinking or having to order a chicken breast and steamed veggies when I go out with friends but it's way better than being alone and stuck to the toilet.

With our situations, I don't think there is one solution but what I've discovered in trying to heal from both ED and IBS is that a lot of my physical symptoms (bulimia, D, nausea, urgency,) stem from deeper emotional issues of grief/trauma, depression, anxiety. It's so important to remind myself that NONE of this is my fault. It is my responsibility though, and sometimes this totally sucks. All these things take time to work through but I KNOW that addressing these issues is a huge factor in healing my ED/IBS and re-teaching/training my body to cope with life in a healthier way.

Besides the IBS diet and psychotherapy, I have just started hypnotherapy which is like, a dream when it comes to letting go and relaxing -- something that I don't do enough. No real significant changes yet, but again, I believe these things take time.

We are going to get through this girls! I have total faith. Nothing is forever if you don't want it to be. Well there's my ramble...feel free to email me anytime. Ciao!

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Hey Alyson and Kate... new
      #246065 - 02/13/06 07:39 PM
AmandaM

Reged: 10/05/05
Posts: 488


How much do you take for a normal serving of veggies? I usually only follow the reccommended dosage of two tablets and I noticed some things will still give me gas and bloat. I always wondered if taking more was safe.

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Amanda..... new
      #246069 - 02/13/06 07:58 PM
Alyson McG

Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)

I was taking up to five, but I started with 6 the past couple of days and it helps much more. I had salad with tomatoes(which give me tremendous problems) and have had no side effects. Now if I'm eating something that doesn't give me too much trouble or something small then I'll stay with 2 or 3. I just kind of experiment until I know what works best with which food.

HTH Alyson

--------------------
Everything in life happens for a reason, patience will eventually tell us what that is......

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Re: No. of Beanos for AmandaM new
      #246072 - 02/13/06 08:40 PM
Wind

Reged: 04/02/05
Posts: 3178


Hey Amanda!

I usually take 2 extra Beanos to be on the safe-side. I'm one of those anal types that actually measures the amount of veggies & base the number of Beanos in accordance with guidelines, i.e. 1 Beano/1/2 c. veggies. Also, I make sure that my veggies, in general, are very "safely" prepared.

So, for example, if I were eating 2 c. of veggies I'd probably pop 6 Beanos to be on the safe-side. If I'm dining out, I just use my eye as a guide & well swallow a handful!

Kate, IBS-D.



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Thanks guys! -nt new
      #246073 - 02/13/06 08:44 PM
AmandaM

Reged: 10/05/05
Posts: 488




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Re: Alyson, I agree! new
      #246074 - 02/13/06 08:44 PM
Wind

Reged: 04/02/05
Posts: 3178


Alyson, I just read your note & totally agree! I pop 6 Beanos, too, & it really makes a positive impact.

If I'm just using the veg. as a colour or more of a condiment, i.e. 1 c. spinach puree filling for omelette, than 3-4 Beanos does the job, magically!

Kate, IBS-D.

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I'll second that Kate....nt new
      #246083 - 02/13/06 09:51 PM
Alyson McG

Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)



--------------------
Everything in life happens for a reason, patience will eventually tell us what that is......

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Do you only take it when you eat veggies? new
      #246131 - 02/14/06 07:21 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Or do you take it at every meal no matter what you eat? What about snacks of dry cereal or tater chips?

Do you take a digestive enzyme on top of the beano? Thanks!

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Do you only take it when you eat veggies? new
      #246222 - 02/14/06 11:09 AM
Wind

Reged: 04/02/05
Posts: 3178


Vegetables are my carbohydrate of choice, so yes whenever I consume plant-originated food.

If I did consume grains or potatoes, YES, I would take Beano with it--grains are plants and NOTORIOUSLY gassy, with the exception of white rice. Therefore, if I were to consume some dry Cheerios, for example, YES, I would take Beano. If I ate potatoes, I would take Beano. Potato chips are vegetables & therefore GAS potential. If I have a soy latte, YES, I pop a few Beano! If I had soy yogurt, I would take a few Beano. Honestly, it takes away the pain & the punishment feeling--not to mention the embarassment of a public GAS-ATTACK! Seriously, Beth, without Beano I would not consume vegetables beyond a pithy leaf of token lettuce or piece of parsley. If I'm out of Beano (which is rare), I do not eat vegetables. Seriously. The cramps, the gas, the discomfort is just not worth it. In fact, gas attacks make me feel so sick I vomit. I know this is extreme, but I have low gas tolerance. This is why I food process virtually all plant food as well. I'm not kidding re: how extreme I am.

I rarely bother with those foods (grains, potatoes) anymore, though, for personal reasons.

Kate, IBS-D.

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Ah, yes indeed there is mannitol in it! new
      #246255 - 02/14/06 12:30 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Beth, I was just in a pharmacy and picked up a box of beano,
and mannitol is in the ingredients. On their website I didn't
see anything about mannitol. It's seems unusual that all these
beano fans have not had a reaction to the mannitol. At least
I haven't seen anyone mention it. -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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I know! new
      #246257 - 02/14/06 12:33 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

The mannitol scares me....especially in such great amounts. And the liquid version contains Sorbitol. How stupid for a company to put these horrible tummy ingredients into something that is suppose to help the tummy. It's not like I suck on beano or enjoy a drink of beano liquid.

Are you still going to try it? Let me know how you do.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Bobk- what is mannitol? -nt new
      #246269 - 02/14/06 12:44 PM
AmandaM

Reged: 10/05/05
Posts: 488




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It's an artificial sweetner...like sorbitol new
      #246271 - 02/14/06 12:47 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Not good for the tummy...especially if you have D. Here's a link to describe it. Mannitol

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Bobk- what is mannitol? -nt new
      #246275 - 02/14/06 12:50 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Amanda, It's an artificial sweetener that's a trigger for a
lot of IBSer's. I see that Beth mentions it's also got
soribtol, I didn't catch that. Sorbitol is another artificial
sweetener that really tends to irritate D's particularly.
-Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Re: I know! new
      #246277 - 02/14/06 12:53 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

You mean me or Amanda? Boy you post lightning fast.Before I
could blink all these posts popped up. -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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I meant you, Bob...or everyone who is concerned!-nt new
      #246278 - 02/14/06 12:55 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois



--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Why in the world would they do that? new
      #246283 - 02/14/06 01:01 PM
AmandaM

Reged: 10/05/05
Posts: 488


I mean...it just seems odd to put a sweetener into a pill. I'm not tasting the pill! Oh well, luckily I don't take it that often at all. Good to know what's in it though! Thanks guys!

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Re: I meant you, Bob...or everyone who is concerned!-nt new
      #246284 - 02/14/06 01:03 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

I think with the double whammy in it I'll pass for the time
being. I don't mind burping and farting that much. -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Re: I meant you, Bob...or everyone who is concerned!-nt new
      #246290 - 02/14/06 01:11 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

One product doesn't contain both, I don't think. I think one contains mannitol and the other contains sorbitol...but I'm not positive.

I think I remember an old post where Heather said the benefits of beano outweigh the mannitol. But that was just assuming it was a dose of 2 tablets, at the most.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: I meant you, Bob...or everyone who is concerned!-nt new
      #246295 - 02/14/06 01:18 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Oh, wait a minute, you mean there are *two* types of beano?
I didn't catch that either. Gotta run now, time to go home
and take the dog out. -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Re: About the eating disorder new
      #246339 - 02/14/06 03:44 PM
renee21

Reged: 06/02/05
Posts: 486
Loc: Toronto, Ontario, Canada

hi recovering ED girls,
I am also someone who got IBS because of an ED. I just thought you might want to know that a few of us tried to start up a separate chat group to deal specifically with the ED/IBS tangle of issues. It was a Yahoo group called "nopoop". It lasted for a couple of months but didn't seem to keep going for whatever reason. If you are interested in posting there I'd love to continue this discussion. If not, it might still be worthwile for you to read some of the posts there, as they address many of the issues you've raised.
I agree, it is a very tough web to break out of - to get over your ED you are supposed to be "listening to your cravings" and letting go of control, yada yada, but because of the IBS you simply CAN'T.
And I am also not sure about whether we have IBS the same way as other people do. What are your thoughts on this? Do you think we can become stable through diet alone (like Heather's diet)? I am basically following Heather's but am certainly far from stable.
I think, though, that the hardest thing ahout our situation is the feeling of blaming yourself for having caused it. To that end, I think it is critical to FORGIVE yourself. This isn't easy, but I think it is important unless you want a miserable life. Regret and remorse can really eat away at your spirit. I find myself constantly trying to reminding myself that I am only human, we all make mistakes. The important thing is that you are doing the best with the cards in your hand now.
So I just wanted to say, I hear you, it's tough, but don't be too hard on yourself - you've got enough on your plate with the ED and the IBS, you don't need the guilt and blame too! Take care of yourselves, girls!

--------------------
IBS-C, lots of spasm and trapped gas.

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Re: No. of Beanos for AmandaM new
      #246345 - 02/14/06 04:05 PM
Draupadi

Reged: 07/16/05
Posts: 218
Loc: Santa Cruz, California

Hmmm...I just started taking it again, and remembered why I love it...but I always used at least two, sometimes even three tablets. I get pretty painful gas from most everything (like you, Amanda, I'm a recovered/recovering anorexic), and three seems to be just about right for me...never thought about the side effects, but I've had no bad reactions to it that I know of. I recommend just using your judgment, and the trial and error method. Hope they work for you!

--------------------
Julia



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This made me cry, Renee new
      #246381 - 02/14/06 06:39 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

I am always beating myself for "doing this to myself". I can't seem to forgive myself for giving myself this horrible condition. I did this to me!

I don't know if people with ED and IBS will ever find relief with just the diet. That is my greatest fear. Have you gotten any better with this diet? Are you still hurting and symptomatic everyday? Does a SFS help you (us) too?

Maybe we would be better off just eating anything we wanted if we are going to be in pain anyhow?
I just can't believe I treated my body, the body God created, a sacred gift from God....with the abuse and stupid behavior. Honestly...I never thought this would be my life. I didn't choose to have the ED...so why am I still being punished for the rest of my life for this mistake?

I'm really down about this. How can I live with this pain for the rest of my life? Will anything reverse the damage?

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Beth, that was THEN & this is NOW... new
      #246392 - 02/14/06 07:59 PM
Wind

Reged: 04/02/05
Posts: 3178


It's your choice re: how to live. I choose the present.

It's up to you how you decide to nourish yourself, today & all the todays hereafter.

Yes, we are limited by our capacity to accept/absorb nutrients. IBS also impacts our choices. HOWEVER, if a silly product eases a monster-load of food related stress/pain, then I am going to continue to use it & painlessly enjoy vitamin & mineral rich vegetables.

Kate, IBS-D.

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How about you, Amanda and Alyson? new
      #246437 - 02/15/06 06:16 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Do you take Beano whenever you eat anything? Snacks or meals without veggies? If so, how many when with those foods vs the veggies?

Thanks

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Beth, that was THEN & this is NOW... new
      #246439 - 02/15/06 06:18 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

I understand what you are saying. But, the problem is when the past behavior causes pain and consequences in the present. I no longer eat in an Eating Disorder mode or mind set...but I am constantly reminded of my past with the symtptoms I continue to feel in the present. And Beano doesn't "cure" all the pain and symptoms I have now. It doesn't even touch the pain.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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what is Beano?? new
      #246443 - 02/15/06 06:27 AM
Devan

Reged: 02/14/06
Posts: 4


does it get rid of gas or something? like charcoal tablets?

sorry just it sounds like it could be useful. In UK theres so much less stuff to use its frustrating!

D

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Re: Beth, that was THEN & this is NOW... new
      #246449 - 02/15/06 07:23 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Hey Sweetheart, I can understand Renee's post making you cry,
20 yrs. of anorexia must've been pure hell. However, like you
said you have beaten the ED, and as Kate said you have to look
ahead. You have an excellent GI doc who's very pro active,and
we're all here for you! I think there's a good chance Dr.J's
new pain pill will work for you. When does the program start?
Soon, I hope. Has the Buspar been helping any? Keep up the
hope! Big {{HUGS}}. -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Re: what is Beano?? new
      #246451 - 02/15/06 07:26 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Hi Devan, It's a digestive enzyme that prevents gas production
. So in that way, it gets rid of gas. I think charcoal tablets
just work on gas already present. -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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I know, Beth... new
      #246512 - 02/15/06 10:18 AM
Wind

Reged: 04/02/05
Posts: 3178


Beth, I know! I am so sorry, too. Is therapy an option for the psycho-spiritual stuff? E.D.'s are insults to the gut (I know, too, from my past!) and the vortex of suffering still gives me more than nightmares!

I guess, what I am trying to say is you cannot change the facts of what the body deals with presently, but there are options/tools/aids available.

It's hard to live with the realities of bodily damage. There are things we cannot change, however there are ways to effectively manage them.

Kate, IBS-D.

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Actually, Bob, Buspar helps me tons! new
      #246518 - 02/15/06 10:21 AM
Wind

Reged: 04/02/05
Posts: 3178


I know you were directing the question at Beth, however, I take Buspar & it helps me enormously. I've been on it for over a year.

Alternative therapies, i.e. hypno. can be very helpful for mind/body E.D. issues.

Kate, IBS-D.

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You really think so? new
      #246521 - 02/15/06 10:24 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

I just haven't found a way to "remedy" mine yet. Through a diet or a supplement. What other options/tools/aids do you think we can use?

And, Kate, do you think this is permanent damage?

Hugs,

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Thanks Bob new
      #246525 - 02/15/06 10:31 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Yep..wouldn't wish an Eating Disorder on my worst enemy! Horrible existence.

I'm not sure when this new med study is suppose to start. I pray they don't cancel it. Speaking of which, I still need to make a follow up appointment with him that I've been putting off for weeks. I don't know if the Buspar is helping or not. But it's still a shot.

Thanks for the hugs and the continual support.

BTW....I don't think of Dr. J as pro active. He doesn't seem to be ordering many tests and what not for me. How would you say he has been pro active with you?

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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In what way does it help you, Kate? new
      #246527 - 02/15/06 10:33 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

With the pain? Or the anxiety? How much are you taking? I take 1/2 pill twice a day. I think it's a 15 mg pill????

I've only been on it for less than a month. Too early to see any benefits yet?

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: You really think so? new
      #246625 - 02/15/06 06:10 PM
Wind

Reged: 04/02/05
Posts: 3178


Yes, I do. I'm basically stubborn-a$$ed about it. I've gone through therapy, I take Buspar for anxiety issues (and yes, specific foods/food situations trigger E.D. and IBS anxiety, panic) and basically make a choice re: everything that enters my body. I listen to my body. I do not cheat myself of offering nutrients to my body which she finds acceptable. I do not force-feed.

I think the most effective therapy type for my E.D., besides in hospital to get me physically stabilized, was E.M.D.R. (eye movement desensitization reprocessing) I learned the difference between then & now, triggers, memories, etc.

I live within my capacity re: food issues. If it bugs me, I don't consume it. There are tons of food options out there.
If vegetables give me gas/indigestion to the point that they make me throw up, I DO NOT EAT THEM! HOWEVER, if there is a pill/supplement that assists with the assimilation & processing of nutrients (and it's not outrageously expensive), then I USE IT! I cannot tell you how much better I feel & the degree that the plant-food has changed my health status/life/attitude. Until Beano, I had stopped eating vegetables because they HURT & made me ill.

I'm not saying that Beano is the answer for you. I know you have a digestive disorder involving delayed gastric emptying. What kinds of tools would help get you in better form? A food processor? Nutritional counselling? Enzymes?

I don't know. I do know that MIND works WITH MATTER and that more than half the battle takes place in parts of my mind-scape that I am barely acquainted with. Stuff way past
Psych 101.

Being healthy is a lifestyle. We can never really see ourselves truly as we are.

Honestly Beth, you're worth some therapy. You are worth nutritional counselling. You can work with limitations.

Everyday is a choice.

Kate, IBS-D.

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Re: In what way does it help you, Kate? new
      #246626 - 02/15/06 06:17 PM
Wind

Reged: 04/02/05
Posts: 3178


I take 4 x 10mg of Buspar, daily.

It reduces the degree of my INTENSE anxiety & panic. Honestly, I'm so bad that I have panic attacks when I'm alone!
I used to crawl the house at night from every sound. I couldn't shop effectively due to public panic attacks.

Now, my life is more fun. I GO OUT! Shopping, for example, doesn't give me a MAJOR PANIC ATTACK. I go to movies. I get out for dinner. I VISIT MORE. It helped to make me more receptive to therapy. I'm not afraid to eat or sleep or be social, etc. I'm not afraid to move on. Trying new things is not so terror-inducing!

I'm learning to reinterpret anxious energy/physical responses as positive excitement.

Kate, IBS-D.


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Re: How about you, Amanda and Alyson? new
      #246630 - 02/15/06 07:24 PM
AmandaM

Reged: 10/05/05
Posts: 488


I only take it when I eat veggies. I don't get quite as bad of gas as you seem to, so I am ok with skipping the beano if I'm at home. I mainly take it when I am around other people so I don't have to worry about passing gas in public.

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Re: Actually, Bob, Buspar helps me tons! new
      #246661 - 02/16/06 06:36 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Kate, Our GI doc told Beth that the Buspar should help her
with lower abdominal pain. Have you found that it relieves
that kind of pain for yourself? -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Oh you're very welcome! new
      #246672 - 02/16/06 07:04 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Beth, Oh, I doubt they'll cancel it. Part of Dr.J's job is to
do that kind of research. Kate said that the Buspar is a big
help for her. Thus far I have yet to hear anything bad about
it. I just asked her if it specifically helps her with lower
abdomonal pain.
Concerning Dr.J's proactivity. After my first visit last
May, He was very suspicious that I had some kind of pelvic
floor descent, and immediately wrote a letter to my GI doc
up here offering to do the AM and MRI defacography. My GI
doc up here deferred on because he said that if I got bad
results on the tests, that Dr.J was going to want me to
have surgery done in the AR area, and he didn't think it
was a good idea. I don't know where he got that idea
because Dr.J is not pro surgery,i.e., he doesn't rush to
push someone into surgery. Even though I have pelvic floor
descent he did not recommend surgery. Evidentally Dr.J
likes to vacation up here and goes out to dinner with the
GI docs here.
You should him and or Margo about the MRI defacography,
and mention that I had both the AM and MRI, and the MRI
detected the pelvic floor descent that the AM did not.Dr.J
also told that the reason he also recommended the MRI was
that the AM didn't necessarily detect the pelvic floor
descent. -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Re: Beth, Bob - Buspar has worked for my pain. new
      #246701 - 02/16/06 08:30 AM
lalala

Reged: 02/14/05
Posts: 2634


I've been on Buspar for about a year, 15 mg day. About 6-8 weeks into taking it, I realized that my abdominal pain, lower left that has always been there for the last 12 years, was significantly reduced. I actually have days without pain. It's unbelievable. I think I'm still in shock. It's definitely not a cure and I still get those attacks of pain, but it is a tremendous help and a great relief to not have to deal with it on a daily basis.

I was originally prescribed the medication for anxiety (which was triggered, in part, from a bad IBS flare-up and debilitating pain), but when I noticed this side effect my doctor and I looked into it and apparently Buspar is being looked at as an IBS drug. This is what I found on medicinenet.net :

"There are drugs that stimulate another receptor, the 5-HT1 receptor. Examples of this type of drug are sumatriptan (Imitrex) and buspirone. These drugs are believed to reduce the responsiveness (sensitivity) of the sensory nerves to what's happening in the intestine. The 5-HT1 receptor stimulators, however, have not yet been tested for effectiveness in IBS."

I would love to know if clinical trials are being done. Also, I would say it's too soon for Beth to be seeing any results. Your doctor should know if you need to increase the dose, otherwise I'd say you should be seeing the full effect around week eight. Also, make sure you consistently take your dose with or without meals. I take 7.5 mg right after breakfast and the other half after dinner.

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Re: Oh you're very welcome! new
      #246706 - 02/16/06 08:40 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Quote:

You should him and or Margo about the MRI defacography,
and mention that I had both the AM and MRI, and the MRI
detected the pelvic floor descent that the AM did not.Dr.J
also told that the reason he also recommended the MRI was
that the AM didn't necessarily detect the pelvic floor
descent.




I'm pretty sure I already asked and he said I didn't need one.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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thanks Maria new
      #246708 - 02/16/06 08:42 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

He specifically prescribed it for the pain. I will give it time and pray that it brings me the same relief you experienced! That would be wonderful! And, if it helps my intense anxiety, that would be a double bonus!!!!

I'm on the same dosage as you. Thanks for the hint about timing the drug.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Well said..... new
      #246726 - 02/16/06 09:54 AM
Alyson McG

Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)

It has been a hard road for me too. I have been bulimic almost 22 years( my daughter is almost 22, it started right after her birth). It wasn't until these boards that I realized it was probably related. I too blamed myself at first. I have gained 20 pounds since my first attack a little over a year ago and have really struggled with that. However, I have been learning to accept myself the way I am, mostly because i am fortunate enough to have a new hubby that is constantly reminding me to quit "fretting" about my weight and remindning me that feeling better far outweighs anything else. As silly as it sounds, part of it is due to some of the new advertising, particularrly Dove's new campaign. I have used that to remind myself that a few extra pounds is no big deal. I've kept repeating it until I am starting to believe it. And to be quite honest, that is when I was able to relax and become stable. I, for the most part, quit worrying about everything I put in my mouth. I do still avoid things I know are an absolute trigger for me and take Beano when I need to for certain things. I do still have my moments when it bothers me, but it's not all day, everyday anymore.
I thnk what made me realize that I really had to change it(other than getting stable) was my kids. I have spent way to many years on this and missed out on being really happy! I was tired of being miserable and realized there is just so much more to life( wish I could have done this years sooner, but will NOT beat myself up for not) and I want to enjoy every minute thoroughly!
I know this is not something easily realized but I am hoping that maybe one other person, if not more, will be able to do it too. Believe me, I'm not saying I'm completely cured. It will be a very long road. But I truly believe I can do it and I think that's half the battle.
Sorry for rambling. Saying this "outloud" like this is a big help too. Thanks for letting me get this out.

Alyson

--------------------
Everything in life happens for a reason, patience will eventually tell us what that is......

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I wonder... new
      #246730 - 02/16/06 10:04 AM
Lynx

Reged: 04/21/05
Posts: 160


If there is some sort of connection between ED's and IBS? Its the same for me. I always knew, from an earlier age, that I had IBS. However, it was never very bad. Then when I was 19, I really began digging myself a hole into the world of anorexia. My diet became poor and leeched of any nutrients; all the while biking up to 20 miles a day. I was under so much stress and pressure about becoming thinner. It was my obsession. I think that in a way maybe, the IBS is my constant reminder that ED's are not the right way to go. Our bodies have interesting ways of telling us how to take better care of ourselves.

--------------------
Check out my gallery! http://niomie.deviantart.com/

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Allyson, not you too new
      #246733 - 02/16/06 10:11 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

You, too, know the hell of an eating disorder for most of your life! Big Hugs.

Tell me, you do have stability now? You do have days where you are not in pain? Is there no permanent damage? (this is my biggest fear....that I will always have the GI pain because I damaged some nerves or something). How long has it taken you to reach this point of stability?

Just out of curiosity, what are your triggers? What are you able to eat, since you say you pretty much eat whatever yo want? Do you have to take anything besides Beano?

Wow, big hugs, again. I'm so proud of you for coming to this place!!! (I love the Dove commercials too).

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Yes, me too.... new
      #246759 - 02/16/06 10:55 AM
Alyson McG

Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)

Yes, I have a good stability now. But, let me clarify what stability is to me. It means not having D every AM. I still have BMs every AM and have to make sure, if I'm going somewhere, that I eat early enough that I can "clear" my system before I need to leave. But I don't have uncontrollable D anymore.I still have some gas and pains at times, but just deal with it because it's not too bad, it's better than being D and super gassy everyday. Being able to leave my house and not worry that I'll have an accident or not be able to find a bathroom when I get somewhere is a stability for me. I did worry about permaneant damage at first. I accepted that I have IBS and that there is no cure. That meant that I had to live with it, which meant there was no sense in worrying about it anymore, there's no way to change it. I didn't want to waste another minute on stressing about something I can't change, what's done is done. It's actually been over the past 6 months that I have been able to do a complete turn around on my way of thinking.
My triggers, veggies, too much fat, coffee(theres others too, just can't think of them off the top of my head). Obviously, I can avoid the last two. For the veggies, I use the Beano. I also use a papaya enzyme after every meal.
The bottom line to all of it is this: I quit stressing about it all. Once I was able to find peace with myself, I was able to feel tons better.

I sure hope you can get there too Beth. Life is way too short to spend worring about something we can't change. All we can do is find a tolerable way to live with it and I truly believe acceptance of it is the first step.

Alyson

--------------------
Everything in life happens for a reason, patience will eventually tell us what that is......

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pfd or no pfd, that is the question new
      #246766 - 02/16/06 11:40 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Beth, If that's the case, the only thing I can think of is
that he knows you have some pelvic floor descent from the AM
tests and thereby don't need the MRI. Check your AM test
report, if you do have pelvic floor descent, he will have
stated it there. If you don't have a copy of the report,just
ask Margo. You could even just email her and ask her to check
it for pelvic floor descent. If you do have it, that would
jive with why he's emphasizing the Miralax therapy as he
did with me. I think the rationale is that once the Miralax
gets you going, eventually the colonic and anorectal
muscles get in better shape, and you can take down the
amount of Miralax you take, maybe even phase it out. That
would be a best case senario.

Say, I would say that Maria's post is pretty good news!
That should get your hopes up.
-Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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he said the AM could be better.... new
      #246779 - 02/16/06 12:13 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

...but nothing he wanted to pursue (physical therapy) to strengthen it. So, I don't know why he didn't pursue an MRI or the other test to investigate further. Wasn't your AM normal?

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Thank you new
      #246781 - 02/16/06 12:15 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

I still wonder if the gluten intolerance we both tested positive for had something to do with bulimia. It would be interesting to eat gluten now that we haven't purged in a long time, to see if they came back negative. I haven't purged in almost 2 years...so that should be long enough to test that hypothesis...except for the fact that I'm still eating GF out of fear!

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: he said the AM could be better.... new
      #246797 - 02/16/06 01:17 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Yes, it was, but my descent problem is at the anorectal
junction, which the AM test can't detect. Well, the Miralax is
a kind of therapy in that it gets you to poop more, and not
having to srain while doing so. That's what's happening with
me right now.
Well, I think you should flat out ask him,"How come Bob
had to have the MRI, and I don't?" Even tell him I told you
to ask it. If he tells you,"Well Bob had a problem at the
anorectal junction" as he probably would(will). How's he so
sure you don't have it? It's more common in women. Also,
check your time on the balloon expulsion test, if it's
considerably over 12 seconds, like double or triple that.
I see no reason why you shouldn't have the MRI done. By the
way, it's not a painful test. It also dawned on me that a
Sitz Marker test might be in order. I still haven't had
mine done yet, because I'm still improving. You might want
to ask about that. I'll think more about it tonight. -Bob



--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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I noticed the difference after about 2 or 3 months. new
      #246822 - 02/16/06 02:34 PM
Wind

Reged: 04/02/05
Posts: 3178


Yes, after about 2 or 3 months of taking Buspar consistently I noted a significant alleviation of lower g.i. pain.

Maria gets into the "theory" behind this. My current maintenance dose is 40mg/day in 3 divided doses.

Re: the E.D. and Buspar, therapy (especially E.M.D.R.), diet, and supplements/aids (i.e. enzymes, Beano)

I think it's the combination of all of the above that has made a difference. If it bothers me, I eliminate it from my diet. Gluten really destroys my equilibrium & makes me vomit, thus it is eliminated. Ditto for anything containing yeasts. Seriously, I eat very few things unless I am confident that it will digest & not upset me. I do this out of kindness to myself. My body cannot handle sugars, so I don't eat them.

Stability for me is not having violent D and cramping everyday--indeed not having D everyday! It's not having to worry incessantly about explosive gas that brings D attacks, pain, bloating, cramping, D attacks. It's a kind of digestive self-confidence. For example, I haven't eaten veggies in 3 days (serious withdrawal, lol!) because I'm getting over a D spell. So far, so good! So...maybe I'll entertain a 1/2 lb. of mushrooms (food processed)& half cup of spinach puree, tonight, if my guts give me the signal that they like me! If not, it's probably just chicken soup (i.e. organic skinless chicken breast in the water that it was bathed/cooked in, with lots of sea salt).

I more or less food process everything, pop all kinds of pills. Until Beano, I went for a very long time without consuming veggies & really nutritionally suffered. I was literally malnourished with macrocytic anemia.

The pain relief from Buspar is a positive bonus/side effect.

I guess, I can breathe easier and relax about alot of the food issues/IBS issues/E.D. issues that seriously disturbed me for a very long time because of seemingly silly things named Beano & drugs like Buspar, as well as digestive enzymes. Part of anorexia is fear of food/eating. I don't have that to the intense degree that I used to.

Kate, IBS-D.

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Re: This made me cry, Renee new
      #246930 - 02/17/06 06:50 AM
fishnets

Reged: 10/09/03
Posts: 515
Loc: MA

Quote:

I am always beating myself for "doing this to myself". I can't seem to forgive myself for giving myself this horrible condition. I did this to me!

I don't know if people with ED and IBS will ever find relief with just the diet. That is my greatest fear. Have you gotten any better with this diet? Are you still hurting and symptomatic everyday? Does a SFS help you (us) too?

Maybe we would be better off just eating anything we wanted if we are going to be in pain anyhow?
I just can't believe I treated my body, the body God created, a sacred gift from God....with the abuse and stupid behavior. Honestly...I never thought this would be my life. I didn't choose to have the ED...so why am I still being punished for the rest of my life for this mistake?

I'm really down about this. How can I live with this pain for the rest of my life? Will anything reverse the damage?



I don't think any of us with past ED's should blame ourselves over it...remember, an eating disorder is a mental illness! You can't put yourself down for having had a mental illness right? I know personally, it's not like I could have just decided to become anorexic/bulimic, it was all I could do at the time to mentally survive all the stress...just as I'm sure it's all you/anyone else could do to deal with life. Just be glad we're better now
I'm positive my IBS was caused from my ED. The day I started eating/keeping down food was the day my IBS started.


You know it's weird, I just realized taking Beano is awesome!! I bought some the other day and have been using it, it really DOES help! I love eating green apples, but they give me some symptoms, but since I've been taking beano with them I feel fine I'm definitly going to start taking these more often and carry some in my bag.

--------------------
IBS-C

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Re: This made me cry, Renee new
      #246932 - 02/17/06 07:04 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

I agree....I never intended to have an eating disorder. It sort of took a hold of me and I lost all control. It was a very effective coping mechanism during that time of my life...but then it just got out of hand and I had no control over it.

But, it is hard to forgive yourself when the pain reminds me everyday of what my past behaviors led to.

Now about this beano....how many do you take with your meals? Do you take it with snacks? All meals and snacks? Or just ones containing fruits and/or veggies? For example, would you take it if you were snacking on some cereal or potato chips? Or if you ate a meal with non gassy veggies or fruits?

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Kate, here's a website to find it even cheaper than at Costco... new
      #254976 - 03/28/06 12:24 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

I'm the same way. I also use it when I eat fruit! But this stuff doesn't make it to my lips without Beano first (thanks to your previous suggestions in previous posts Kate).

And thank you Alyson for this website! What a super saver *hugs*

HAIL BEANO!

--------------------
Formerly known as Ruchie

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I use it with brown rice and it def helps! n-t new
      #254983 - 03/28/06 12:41 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA



--------------------
Formerly known as Ruchie

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Re: Kate, here's a website to find it even cheaper than at Costco... new
      #254993 - 03/28/06 01:21 PM
stephfolsom

Reged: 03/14/06
Posts: 51
Loc: Texas

Is this better than Gas-X, or are they really different type products?

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Beano and "Gas-X"/simethecone are different new
      #255062 - 03/28/06 06:54 PM
Wind

Reged: 04/02/05
Posts: 3178


Beano and simethecone/Gas-X are 2 different products. Beano has enzymes to help deal with gassy foods. Simethecone or Gas-X is more for gas pressure, bloating, air swallowing, trapped gas/gas cramps--that internal explosive feeling & expression. They give this stuff to babies with colic/gas.

Kate, IBS-D.





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Re: I use it with brown rice and it def helps! n-t new
      #255063 - 03/28/06 06:58 PM
Wind

Reged: 04/02/05
Posts: 3178


That's wonderful, Sarala. The Beano website said that it could be very helpful for notoriously gassy/problematic wholegrains. I cannot believe how amazing it works for legumes (lentils, chickpeas/hummus, blackbeans, etc.) and broccoli/salads (when I'm stable), too!

Rotfl--the queens of Beano! I think I'll name my future cat Beano--or well...Bean/Mr. Bean.

Kate, IBS-D.

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Re: Beano and "Gas-X"/simethecone are different new
      #255074 - 03/28/06 07:51 PM
stephfolsom

Reged: 03/14/06
Posts: 51
Loc: Texas

So, I guess I could use both? Two of my doctors recommended the Gas-X but neither have suggested the Beano.

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Re: Beano and "Gas-X"/simethecone are different new
      #255143 - 03/29/06 10:07 AM
Wind

Reged: 04/02/05
Posts: 3178


I use both. I actually use Beano more than simethecone--it stops food bourne gas before it starts. The simethecone is great though for the gas/cramping that accompanies D. Some days are just plain gassy, though and very uncomfortable--the simethecone really helps with that--to get beyond focussing on the gas and upper g.i. tract cramping. It's weird, but I feel the positive impact of simethecone the day after I take it. Strong fennel and mint tea as well as yoga poses help, too. I know that I swallow tons of air as I'm asthmatic.

However, Beano has been my best friend with food related gassiness. I can actually eat legumes/peas/pulses and safely prepared cruciferous veggies and carrots, etc. when I'm stable and not get a gas attack or experience pain/bloating, etc.

Kate, IBS-D.

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Re: Beano and "Gas-X"/simethecone are different new
      #255146 - 03/29/06 10:10 AM
stephfolsom

Reged: 03/14/06
Posts: 51
Loc: Texas

Thanks. Very helpful.

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Re: I noticed the difference after about 2 or 3 months. new
      #255277 - 03/29/06 11:11 PM
CindyG.

Reged: 01/26/05
Posts: 65
Loc: Mississippi

Hi- I am thinking of asking my doctor about Buspar and trying it out. I am IBS D but sometimes A. I have anxiety about my IBS attacks and I also have panic attacks.
Can I ask what other medications you take besides Buspar?
Right now I take Immodium (generic brand) , gas x, acid reducer (generic brand for acid reflux everyday and ibuprophen when I need to for lower abdominal pain when needed. I am not on anything for the panic attacks or anxiey right now. The last thing I tried was Xanax and I couldnt tell a difference.
I have a little break of time between now until when I will start my job so I want to try some things and see what works. I was just curious as to what all you take.
Thanks Cindy

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Re: I noticed the difference after about 2 or 3 months. new
      #255371 - 03/30/06 11:52 AM
CindyG.

Reged: 01/26/05
Posts: 65
Loc: Mississippi

just wanted to bump- in case WInd didnt see.

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Re: This made me cry, Renee new
      #255398 - 03/30/06 01:46 PM
fishnets

Reged: 10/09/03
Posts: 515
Loc: MA

Quote:


Now about this beano....how many do you take with your meals? Do you take it with snacks? All meals and snacks? Or just ones containing fruits and/or veggies? For example, would you take it if you were snacking on some cereal or potato chips? Or if you ate a meal with non gassy veggies or fruits?



I know this is an older post but just wanted to answer it... I wouldn't take it with cereal that is mostly soluble fiber, or like white bread. Try it with fruits, veggies, beans, and whole grains. Make sure to take it with the first bite though so it works immediatly! I definitly notice a difference, I take it every day now and feel great Augie I think this is definitly something you should try since having an ED may mess up the digestive enzymes...I'm wondering if that's what happened to me.

--------------------
IBS-C

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Re: I use it with brown rice and it def helps! n-t new
      #255432 - 03/30/06 03:45 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

It truly makes a world of difference to use the stuff! (I'm beginning to feel like a commercial LOL!) I highly recommend it for most foods that give you problems!

It's SO great to have a place to go and discuss this with people. Non-IBSers just don't understand

--------------------
Formerly known as Ruchie

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Re: I noticed the difference after about 2 or 3 months. new
      #255452 - 03/30/06 05:56 PM
Wind

Reged: 04/02/05
Posts: 3178


Hi Cindy. I also take Tegretol for epilepsy. If I cannot sleep, I take Temazepam. For high anxiety situations, I take Lorazepam.

Re: D/Buspar--I don't note any D side effect from this medication.

I take digestive enzymes and Beano, with food. I take Immodium for D. If required, I take simethecone (generic Gas-X, without the sorbitol/peppermint oil) before bed. I do not take an SFS. I only take vitamins D & C, currently, as well as B12 via injection (I cannot swallow most vitamins without gagging), and a Cal-Mag. cocktail/Liquid supplement for osteopenia.

IBS and epilepsy do generate a lot of anxiety. There aren't many meds. I can take for anxiety due to potential seizure conflicts with Tegretol and my chronically low sodium/potassium levels. I am impressed with Buspar and how "clean" it is, as a drug! Initially, as I mentioned I experienced nausea and that gag-reflex when taking Buspar, however, crushing/dissolving the pill eliminated this. (Goodness knows that it takes a lot of acid to break down certain chemicals!)

Best wishes, Cindy. Life on the outside isn't half as terrifying as it used to be. Heck, I'm not even ultra reluctant to answer my phone or the door, should it ring.
Things/places that triggered me, formerly, no longer have the same leverage over me. I see movies again. I visit/socialize. I can shop, etc. without a major issue.

It's not fair, to yourself, to be tyrannized by the demon, fear.

Kate, IBS-D.

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Re: About the eating disorder-Amber new
      #296594 - 01/15/07 07:56 AM
feelinggood

Reged: 09/11/06
Posts: 745


Hello, I also had (can still have if I allow it) an ED. I have wondered if I caused my IBS with it but when I think back I had some episodes pre:ED. I really do not think that we did this to ourselves - I really and truly don't. Just like we did not do the ED behaviour to ourselves - it is like a disease that gets inside someone. I know many people who have IBS and they have no ED behaviour.
Debbie IBS

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Re: About the eating disorder-Beth new
      #296734 - 01/15/07 06:45 PM
feelinggood

Reged: 09/11/06
Posts: 745


Hi Beth,

It always amazing me how people are so different and yet so much the same. I too suffered with an ED for many many years. (I still have an exercise compulsion and have to go for short walks almost after every meal that I eat) I could hear my own voice and words echoing in your post. "Oh, how I wish to eat foods now that my ED is in the past and yet my IBS will not let me." I have often wondered if I am totally programmed to be filled with anxiety when I even eat - I had so many year of anxiety over food that I find it hard to beleive that it can just leave me and I can be at peace with food and my body. I do firmly believe that if this is the case that I can overcome this. The hypno tape would probably be a good thing for me to do as I do know that stress and anxiety play a part in my IBS. I do also believe that even with my ED past that I am till prone to IBS and am thankful for the Eating for IBS diet and the help and support that I receive on this board. I hope some of this made sense and hat I did not ramble too much. Debbie IBS-C

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Re: This made me cry, Renee new
      #296735 - 01/15/07 06:51 PM
feelinggood

Reged: 09/11/06
Posts: 745


I agree that the ED is a mental illness - definitely a coping mechanism for me - I can still use it if I let the "voices" take over.

Now about the Beano - I was looking at it today and saw that mannitol was in it. I am told that it is in such a small amount that it will not hurt my IBS (I am avoiding high fructose at the moment) I would love to try it as I want to try and eat some chickpeas - even broccoli. You say that you have good results - did you take liquid or tablets? Debbie IBS-C

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Re: Beano - liquid or tablets? help with low fructose tolerance? new
      #296736 - 01/15/07 06:59 PM
feelinggood

Reged: 09/11/06
Posts: 745


Hi, Does everyone take the liquid or tablets - I saw the tablets in the store but thought that a liquid was also available. I never have gas that comes out but stays trapped - if it helps with this and I can eat more veggies then I am definitely trying it. Does it help with low fructose tolerance? Debbie IBS-C

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