thanks Maria
#246708 - 02/16/06 08:42 AM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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He specifically prescribed it for the pain. I will give it time and pray that it brings me the same relief you experienced! That would be wonderful! And, if it helps my intense anxiety, that would be a double bonus!!!!
I'm on the same dosage as you. Thanks for the hint about timing the drug.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Well said.....
#246726 - 02/16/06 09:54 AM
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Alyson McG
Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)
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It has been a hard road for me too. I have been bulimic almost 22 years( my daughter is almost 22, it started right after her birth). It wasn't until these boards that I realized it was probably related. I too blamed myself at first. I have gained 20 pounds since my first attack a little over a year ago and have really struggled with that. However, I have been learning to accept myself the way I am, mostly because i am fortunate enough to have a new hubby that is constantly reminding me to quit "fretting" about my weight and remindning me that feeling better far outweighs anything else. As silly as it sounds, part of it is due to some of the new advertising, particularrly Dove's new campaign. I have used that to remind myself that a few extra pounds is no big deal. I've kept repeating it until I am starting to believe it. And to be quite honest, that is when I was able to relax and become stable. I, for the most part, quit worrying about everything I put in my mouth. I do still avoid things I know are an absolute trigger for me and take Beano when I need to for certain things. I do still have my moments when it bothers me, but it's not all day, everyday anymore.
I thnk what made me realize that I really had to change it(other than getting stable) was my kids. I have spent way to many years on this and missed out on being really happy! I was tired of being miserable and realized there is just so much more to life( wish I could have done this years sooner, but will NOT beat myself up for not) and I want to enjoy every minute thoroughly!
I know this is not something easily realized but I am hoping that maybe one other person, if not more, will be able to do it too. Believe me, I'm not saying I'm completely cured. It will be a very long road. But I truly believe I can do it and I think that's half the battle.
Sorry for rambling. Saying this "outloud" like this is a big help too. Thanks for letting me get this out.
Alyson
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Everything in life happens for a reason, patience will eventually tell us what that is......
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If there is some sort of connection between ED's and IBS? Its the same for me. I always knew, from an earlier age, that I had IBS. However, it was never very bad. Then when I was 19, I really began digging myself a hole into the world of anorexia. My diet became poor and leeched of any nutrients; all the while biking up to 20 miles a day. I was under so much stress and pressure about becoming thinner. It was my obsession. I think that in a way maybe, the IBS is my constant reminder that ED's are not the right way to go. Our bodies have interesting ways of telling us how to take better care of ourselves.
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Check out my gallery! http://niomie.deviantart.com/
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You, too, know the hell of an eating disorder for most of your life! Big Hugs.
Tell me, you do have stability now? You do have days where you are not in pain? Is there no permanent damage? (this is my biggest fear....that I will always have the GI pain because I damaged some nerves or something).  How long has it taken you to reach this point of stability?
Just out of curiosity, what are your triggers? What are you able to eat, since you say you pretty much eat whatever yo want? Do you have to take anything besides Beano?
Wow, big hugs, again. I'm so proud of you for coming to this place!!!  (I love the Dove commercials too).
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Yes, me too....
#246759 - 02/16/06 10:55 AM
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Alyson McG
Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)
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Yes, I have a good stability now. But, let me clarify what stability is to me. It means not having D every AM. I still have BMs every AM and have to make sure, if I'm going somewhere, that I eat early enough that I can "clear" my system before I need to leave. But I don't have uncontrollable D anymore.I still have some gas and pains at times, but just deal with it because it's not too bad, it's better than being D and super gassy everyday. Being able to leave my house and not worry that I'll have an accident or not be able to find a bathroom when I get somewhere is a stability for me. I did worry about permaneant damage at first. I accepted that I have IBS and that there is no cure. That meant that I had to live with it, which meant there was no sense in worrying about it anymore, there's no way to change it. I didn't want to waste another minute on stressing about something I can't change, what's done is done. It's actually been over the past 6 months that I have been able to do a complete turn around on my way of thinking.
My triggers, veggies, too much fat, coffee(theres others too, just can't think of them off the top of my head). Obviously, I can avoid the last two. For the veggies, I use the Beano. I also use a papaya enzyme after every meal.
The bottom line to all of it is this: I quit stressing about it all. Once I was able to find peace with myself, I was able to feel tons better.
I sure hope you can get there too Beth. Life is way too short to spend worring about something we can't change. All we can do is find a tolerable way to live with it and I truly believe acceptance of it is the first step.
Alyson
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Everything in life happens for a reason, patience will eventually tell us what that is......
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Beth, If that's the case, the only thing I can think of is
that he knows you have some pelvic floor descent from the AM
tests and thereby don't need the MRI. Check your AM test
report, if you do have pelvic floor descent, he will have
stated it there. If you don't have a copy of the report,just
ask Margo. You could even just email her and ask her to check
it for pelvic floor descent. If you do have it, that would
jive with why he's emphasizing the Miralax therapy as he
did with me. I think the rationale is that once the Miralax
gets you going, eventually the colonic and anorectal
muscles get in better shape, and you can take down the
amount of Miralax you take, maybe even phase it out. That
would be a best case senario.
Say, I would say that Maria's post is pretty good news!
That should get your hopes up. 
-Bob
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<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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...but nothing he wanted to pursue (physical therapy) to strengthen it. So, I don't know why he didn't pursue an MRI or the other test to investigate further. Wasn't your AM normal?
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Thank you
#246781 - 02/16/06 12:15 PM
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Augie
Reged: 10/27/04
Posts: 5807
Loc: Illinois
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I still wonder if the gluten intolerance we both tested positive for had something to do with bulimia.  It would be interesting to eat gluten now that we haven't purged in a long time, to see if they came back negative. I haven't purged in almost 2 years...so that should be long enough to test that hypothesis...except for the fact that I'm still eating GF out of fear! 
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Yes, it was, but my descent problem is at the anorectal
junction, which the AM test can't detect. Well, the Miralax is
a kind of therapy in that it gets you to poop more, and not
having to srain while doing so. That's what's happening with
me right now.
Well, I think you should flat out ask him,"How come Bob
had to have the MRI, and I don't?" Even tell him I told you
to ask it. If he tells you,"Well Bob had a problem at the
anorectal junction" as he probably would(will). How's he so
sure you don't have it? It's more common in women. Also,
check your time on the balloon expulsion test, if it's
considerably over 12 seconds, like double or triple that.
I see no reason why you shouldn't have the MRI done. By the
way, it's not a painful test. It also dawned on me that a
Sitz Marker test might be in order. I still haven't had
mine done yet, because I'm still improving. You might want
to ask about that. I'll think more about it tonight. -Bob
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<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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Yes, after about 2 or 3 months of taking Buspar consistently I noted a significant alleviation of lower g.i. pain.
Maria gets into the "theory" behind this. My current maintenance dose is 40mg/day in 3 divided doses.
Re: the E.D. and Buspar, therapy (especially E.M.D.R.), diet, and supplements/aids (i.e. enzymes, Beano)
I think it's the combination of all of the above that has made a difference. If it bothers me, I eliminate it from my diet. Gluten really destroys my equilibrium & makes me vomit, thus it is eliminated. Ditto for anything containing yeasts. Seriously, I eat very few things unless I am confident that it will digest & not upset me. I do this out of kindness to myself. My body cannot handle sugars, so I don't eat them.
Stability for me is not having violent D and cramping everyday--indeed not having D everyday! It's not having to worry incessantly about explosive gas that brings D attacks, pain, bloating, cramping, D attacks. It's a kind of digestive self-confidence. For example, I haven't eaten veggies in 3 days (serious withdrawal, lol!) because I'm getting over a D spell. So far, so good! So...maybe I'll entertain a 1/2 lb. of mushrooms (food processed)& half cup of spinach puree, tonight, if my guts give me the signal that they like me! If not, it's probably just chicken soup (i.e. organic skinless chicken breast in the water that it was bathed/cooked in, with lots of sea salt).
I more or less food process everything, pop all kinds of pills. Until Beano, I went for a very long time without consuming veggies & really nutritionally suffered. I was literally malnourished with macrocytic anemia.
The pain relief from Buspar is a positive bonus/side effect.
I guess, I can breathe easier and relax about alot of the food issues/IBS issues/E.D. issues that seriously disturbed me for a very long time because of seemingly silly things named Beano & drugs like Buspar, as well as digestive enzymes. Part of anorexia is fear of food/eating. I don't have that to the intense degree that I used to.
Kate, IBS-D.
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