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Oh, I'm not laughing.... new
      #245813 - 02/12/06 03:08 PM
Alyson McG

Reged: 05/20/05
Posts: 317
Loc: Vancouver Washington (IBS-A, but D prominant)

because I do the exact same thing! No way no how is a vegetable coming near me without enough Beano to kill the "effects" of them. I've used at least that at times, though haven't tried more than 6 at a time, might need to do that since I am still affected by some things, particularrly PB, my most favorite thing in the world! I try hard to stay away, but sometimes I just can't. I do however give my hubby a warning...."babe, I'm having a PB sandwhich, just be warned"....:) Fortunately he just laughs and tells me to eat whatever I want. The makers of Beano are my heroes!!!!
I like the pet name thing too. We're looking at getting another black lab and I wanted to name it KC or Chief(yes, we are Huge football fans) but I like Beano too.....:) Don't know if I could sell that on the hub though.

I'm glad you checked it out and will benefit on the savings. I couldn't believe it when I saw it, but I got exactly what I ordered and ordered enough to not pay any shipping! I love to find deals like this and am more than happy to share when I do. I think it's the least we can do for each other when we are forced into a situation where we are all spending more on things(prescriptions, supps, specialty products, etc...) the non IBS person doesn't have to. To be quite honest, I was probably skimping a little on the beano to save money before I found this. The things we do...:)

Alyson

--------------------
Everything in life happens for a reason, patience will eventually tell us what that is......

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Long Side Effects of Beano new
      #245821 - 02/12/06 04:01 PM
Gab

Reged: 12/28/05
Posts: 25


What about the long side effects of Beano??

I really worry about this. I take Beano as well. It's a life saver. BUT for how long can we take it without causing something to our bodies?? I"m not sure if there aren't any side effects, but I do worry about it. Anyone knows?

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Re: Oh, I'm not laughing.... new
      #245823 - 02/12/06 04:39 PM
Wind

Reged: 04/02/05
Posts: 3178


A few years ago, my Dad actually introduced me to the product.
He wanted me to eat veggies again (I wasn't eating any, unless you count a leaf of lettuce or a hidden piece of celery!). He just saw the product and said to try it. I could not believe the stuff worked! Seriously, without Beano, a carrot or more than one bite of broccoli or more than 3 green beans would give me the biggest attack. It even works on corn on the cob. I actually had lentil soup, for the first time in years a few weeks ago with only a little stink & no pain. It's great on soy. I suspect it would be fabulous with something gassy like oats or millet or brown rice.

I just ate a safely prepared cauliflower and a pound of portabellas without any pain or hesitation.

Beano is a really good thing.

Kate, IBS-D.



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Re: About the eating disorder new
      #245933 - 02/13/06 11:32 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Quote:

I hate thinking that I can't eat whatever I want. It's like, I restricted myself from so many foods in the past because I "wanted" to due to the ED, but now I have to avoid foods.


Yes!!!! I so beat myself for this too!

Quote:

I don't think our ED's will permanently effect us if we really make sure to change our destructive patterns.


Honestly? Do you really think your symptoms were improving before you got pregnant? From what you say, it sure sounds like yours is more due to the pregnancy. How long did you suffer from your Eating disorder?

I had an eating disorder for about 20 years almost. Yes, I started young and kept at it up until about 1 or 2 years ago...I forget.

I had both anorexia (predominately) and some years of bulimia thrown in there. Bingeing and purging were everyday episodes. My body was either empty and had nothing to digest...or it was coming back up the wrong way and not traveling down through the digestive system normally.

I never abused laxatives, though. That's what my doctor says leads to permanent damage. But I'm afraid the nerves are damaged and that the abnormal eating over the years reinforced the harmful nerve functioning. I read where the longer you are in pain, the more ingrained your system becomes to this pain and it becomes normal for you to have the pain. It "gets used to it" and it is like it is reprogrammed to hurt.

I did have a point of stability in the first half of my Ed when it was getting better. But never since then, even though I don't actively have the ED now. I'm just really, really scared that I have done permanent damage and will always be in pain because of something stupid I did....abusing my body for years. I guess it's payback time. Now is the time the ED is over and I would happily eat a big piece of chocolate cake or a stuffed pizza....and yet, the ED has won. Even if I don't want it...it continues to remind me that food is bad...not because of gaining weight, but now because it means pain.

Sorry for my long reply. I'm just really looking for someone to tell me this isn't the case...and I don't think anyone really can do that without either lying to me or not being 100% sure that the pain will get better. I hope I'm wrong about this...but I doubt it.

I pray for God to heal me and to give me strength. My family still thinks I have an ED...even though I try to explain that I cannot eat some foods because of the pain. That really hurts. I never lose the "ED label" no matter how hard I have worked to beat it.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Good question!-nt new
      #245945 - 02/13/06 12:12 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois



--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Long Side Effects of Beano new
      #245968 - 02/13/06 12:58 PM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Hi Gab, I just googled it. There are no long term bad side
effects of it. It's a digestive enzyme, not a "drug".However,
if you have a rare genetic disorder called Galactosemia, then
it's real bad news. But, since you've been using for a while,
you don't have it.
They also say it's specifically 'designed' to stop intest-
inal gas. The majority of anti-gas agents only target
stomach gas. They even claim it stops flatulence before it
starts. -Bob

--------------------
<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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I'd be worried about all that mannitol going into my digestive system-nt new
      #245976 - 02/13/06 01:09 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois



--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: About the eating disorder new
      #245981 - 02/13/06 01:17 PM
AmberBoBamber

Reged: 12/05/05
Posts: 120
Loc: California

I can completely relate to everything you replied...some of the things I left out in my first post you brought up-
It does suck still having a "bad" relationship with food. Like you said, I use to hate food because of the weight I thought it would make me gain, but now that I have conquered that (mostly at least!) I definitely fear food because of the discomfort or IBS attack it could cause. Having IBS sometimes scares me because I feel like it takes me back into the general mindset of "food is bad". It definitely brings up past feelings I had when I had my ED. And like you, my family always accuses me of not eating enough, and they are only now beginning to grasp that I eat, but I can't eat the crappy/trigger foods they eat. I think we may have to endure that label our whole lives, but I try to tell myself it is just because they care (even though they don't always reference the ED in the nicest way). My boyfriend ordered the new "cheesy bites" stuffed crust pizza from Pizza Hut last night...what torture. Just like you said, I would gladly eat a piece...If I knew I wouldn't feel awful afterwards. Now that I'm finally healthy enough in my mind to let me eat it, my physical body/gut says I can't. After having an ED, I can tell you there is nothing worse than feeling like food controls you. And even now I still feel that way a lot. I use to plan what I would eat, how much I would eat, and when I would exercise everyday when I had the ED. After treatment, I was so looking forward to being able to just "wing" it- eat out when I wanted, eat whatever I wanted with friends, be social again, but IBS has prevented that. Maybe I'm too afraid sometimes. Fear of D or C or just an attack in general rules my life sometimes, and thus controlling my food goes along with it. When you feel bad for so long, it's hard to be optimistic about what the next day or next food for that matter will bring.

I'd say I had disordered eating for 6 years, from about age 14 to 20, I know that is nothing like you're 20 years, but I did abuse laxatives which is pretty awful I know. I can honestly say that before getting pregnant I did get over the bloating and gas and felt perfect. It took time, but it did get better and I began feeling normal. I really don't know about you, but there are days when I can eat anything I want and feel fine. I never do that because I'm now too afraid of the consequences, but I didn't know I had IBS for a few months. I really think one's mindset has a lot to do with how we feel. I know that when I'm stressed, tired, and in a bad mood I expect that I will feel sick and then I do. If I try to occupy myself, stay optimistic, and not worry I feel 100 times better. I can worry myself into a frenzy/panic that makes me sick just because I'm so stressed and worried about getting an attack. I'm not on AD's, but my doctors says it might be good for me after I'm done nursing my son. I took EffexorXR when I was recovering from my ED, but it made me really lightheaded/dizzy and I also tried Zoloft during recovery, but my hair started falling out and I attributed such to the Zoloft. Who knows if it was the ED or the Zoloft, but I'm super paranoid about side effects. I really think taking an AD would make me more nervous/panicky because I fear pain/discomfort/etc and therefore any side effects.

I really think you need to change how you are thinking about things (and I'm really not saying this in a mean way, or that I think you are some dark, depressed person, because I really dont!!) I just mean that you say you hope the pain ends but you "doubt" it will. That's no way to think about things! I don't think you reprogrammed your nerves to feel pain, I think you reprogrammed your mind to expect it. Does that make sense? Again though, I don't think it is all in your head, so I'm NOT trying to imply that. I know that one twinge of pain can send me into a downward spiral if I'm feeling less than perky that day. That twinge then turns into a stomach ache...etc and so forth. Do you ever find that? But if I'm happy and busy the next day and I get that same little twinge, I'll totally dismiss it and go on feeling fine. I don't know if that makes sense. Maybe our bodies will never digest things properly, but if we learn what we can and can't eat and try to stay positive, I think things will get better.

I know I've felt great a lot since my ED...and now I'm trying more and more to feel great since being diagnosed with IBS.

What are you doing for your IBS? SF supplement? Peppermint caps? Peppermint tea? Probiotics? What food do you eat?

Right now I've worked up to 2 tsp of acacia twice a day and I take about 2 peppermint caps a day. I can't believe how much the peppermint caps help me with any gas/stomach cramps. I just started using them and I love them. I know everyone is different though. I drink a cup or two of tea a day. If I'm feeling C, hot tea seems to help "loosen" me up a bit. I'm also taking primal defense right now. Did I read a post that said you tried it? I SLOWLY worked up to 3 a day. I'm not sure how much they are helping yet since I just got to 3, so we'll see. I think I get gassy/bloated when I increase my dose, but then I get better.

As for food, I don't eat a very varied diet, and I haven't eaten out in a LONG time. I'm just too paranoid about getting sick (IBS symptoms). I never cheat from heather's diet, but honestly that's not too difficult since I've restricted a lot more in the past. I wish I could eat more, but at leat I eat more than I use to when I had the ED I guess. I pretty much start the day w/ a little bread or a soft pretzel. I eat a keebler graham cracker to two for a snack. A potato or two baked for lunch. Then I have chicken and rice for dinner. Sometimes for dessert I have a piece of licorice or a slice of heather's cakes. That's about it though. I don't vary much from those things because I'm too afraid too. The pain isn't worth the experimentation in my opinion. Some days I cry though because I wish I could eat more. I know I just said it isn't hard not to cheat, because it isn't hard, I know how to keep myself from eating things, but that doesn't mean it isn't hard to except that I still can't eat like a "normal" person. I want to be normal so bad, but I guess I'm not going to. I just need to take care of myself mentally and physically from now on. And if that means I live on bread, potatoes, and chicken, so be it. It makes me sad, but keeps me from feeling pain...
Again, here I go babbling. I'm sorry!
I can't tell you 100% that the pain will get better, but for me it has before and I can tell now I'm also beginning to stabilize. I still have bad days, but I know that there are times when stress is the culprit. It's not in my head, but the stress or worries disrupt my normal body functions.

I really wish you the best...maybe we could talk more. I'd love to hear what you are doing and eating these days.
I pray for strength and healing for us too!!

Amber


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Re: Long Side Effects of Beano new
      #245996 - 02/13/06 01:38 PM
Wind

Reged: 04/02/05
Posts: 3178


Perhaps radiant health is a "side effect" from Beano & being able to painlessly consume more anti-oxidant nutrients?

Perhaps relatively low stress when confronted with vegetables?

For me, the benefits far outweigh the costs.

Kate, IBS-D.

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Re: About the eating disorder new
      #246020 - 02/13/06 02:46 PM
bounce17

Reged: 11/27/04
Posts: 5
Loc: Los Angeles, CA

Wow, so nice to know that I'm not the only one in this predicament...thanks so much you two for posting.

What we are dealing with is very hard and I totally resonate with your personal frustrations of "well I've been trying to heal from this ED so I should be eating this piece of pizza, scoop of ice cream, etc. but I can't because then I'll have an IBS attack."

So does the mind process this thought as an old ED pattern or a protective health mechanism? A lot of the time it feels like both. But I have to remember that this is ok because ED's are very complex and just as they've taken years to develop so too do they take time to fully heal.

And it's really difficult when friends and family don't understand and think we are just perpetuating our ED. It's like, "so you think I'm making this up to keep an eating disorder? Why don't you step into my shoes for just a day and then we can talk." You know what's best for your body. Don't listen to them. Seriously. And hell yeah, it sucks being 24 and not drinking or having to order a chicken breast and steamed veggies when I go out with friends but it's way better than being alone and stuck to the toilet.

With our situations, I don't think there is one solution but what I've discovered in trying to heal from both ED and IBS is that a lot of my physical symptoms (bulimia, D, nausea, urgency,) stem from deeper emotional issues of grief/trauma, depression, anxiety. It's so important to remind myself that NONE of this is my fault. It is my responsibility though, and sometimes this totally sucks. All these things take time to work through but I KNOW that addressing these issues is a huge factor in healing my ED/IBS and re-teaching/training my body to cope with life in a healthier way.

Besides the IBS diet and psychotherapy, I have just started hypnotherapy which is like, a dream when it comes to letting go and relaxing -- something that I don't do enough. No real significant changes yet, but again, I believe these things take time.

We are going to get through this girls! I have total faith. Nothing is forever if you don't want it to be. Well there's my ramble...feel free to email me anytime. Ciao!

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