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Re: Question about swelling new
      #23997 - 10/20/03 11:49 AM
Saralou

Reged: 10/18/03
Posts: 62
Loc: Maryland

Txs for your kind words, Michele.
It certainly is a never-ending cycle. I know this sounds bad, but sometimes I wish I had a little bit of D! I know that I have had a bit of weight gain because things are going in and they are not coming out. Do you sometimes also have abdominal pain/spasms in one particular area? The kind that can be there, underlying for a while but then sometimes be so knife-like you can't even stand to move, tighten your jeans or be touched?

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Re: Question about swelling new
      #24016 - 10/20/03 12:22 PM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

YEP! Not so much the knife pains that only happens once in a while, more from gas I think! My entire lower belly is where my pain is! In the am its not as bad, I'll exercise and have oatmeal and my meds. I'll have a "safe" lunch and the swelling begins, my pants are almost always unbuttoned after luch. Doesn't matter if I just have a few graham crackers. By the time I get home from work I can't wait to get my clothes off and put on a night shirt(no panties-even that little pressure is too much!) Forget about touching me! The terrible thing is I don't know why this is! Even when I'm having more or less regular BMs I still have this pain and bloating. I'll go to bed like that, usually with the heating pad on my tummy and by morning I feel OK, not great but better, than start the cycle all over. If your still having a lot of C, have you tried switching or uping your fiber supplement? Be sure you are drinking a ton of water! There a lot of others who have complained of the "stabbibg pains" take some time and read through the old posts.

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Taking it one day at a time.....

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Re: Question about swelling new
      #24252 - 10/23/03 12:24 PM
skeeter

Reged: 04/10/03
Posts: 8


I understand what you are talking about when you say you have a swollen spot. I have the same thing on my right side. (It makes my pants fit funny) I have had a colonoscopy done. I have severe IBS and a twisted colon. They had to keep rolling me in order to get the scope around the bends and I ended up waking up in the middle of the proceedure. The doctors I have seen don't seem to know how to handle my colon or IBS. They think since my colon is full (of poo) and twice as long as a normal colon, that's why I can see and feel it sticking out. Just hang in there. I don't know of anyone else around me who has IBS. So my family, work or other people just don't understand. Sometimes I get frustrated cause I hurt so bad and there is noone I can talk to about it. But, if you keep positive, I think you will be fine. Isn't it nice to know you aren't the only one with a weird bump?

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Re: Question about swelling new
      #24255 - 10/23/03 12:43 PM
Jolley

Reged: 10/23/03
Posts: 2


This is my first time on this board. I am surprised at finding all of you with the same problems. My family have always laughed at me when I said I start having swelling and pain within minutes of eating. I can't wait to get home and get into comfortable clothes. Everyone thinks I am just lazy and unkempt I think. No one knows what this amount of pain can do to you. How draining it is physically and emotionally. The heating pad over night works. I take lots of Darvocet for the pain. I know meds can cause bloating and pain too. But, it seems the lesser of the evils for me.

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Skeeter--Question about swelling new
      #24256 - 10/23/03 12:44 PM
Saralou

Reged: 10/18/03
Posts: 62
Loc: Maryland

Oh, Skeeter!
I don't want to say that I am pleased to hear that you have a "bump" as well, but as anything else in this world and as you put it yourself, it is indeed very comforting to know that I am not alone. I think that is the one thing about IBS that I have the most difficulty with, the feeling that no one understands what it is like to deal with this chronic condition. I have been seen by a handful of doctors and although I have not had all the possible tests done, you would think that my flexible sigmoidoscopy would have shown something or that the specialist would have made some reference to it. Instead, they like to think that it is in my head and sometimes, I wonder if it all is.
That colonoscopy sounded horrid; I'm so sorry.
Is this a "malformation" that they said you were born with?
Anyway, thank you very much for taking the time to respond. I was indeed feeling very lonely in that aspect. Might I ask if you feel most of your discomfort, pain and spasms at this location?

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Jolley--Question about swelling new
      #24257 - 10/23/03 12:56 PM
Saralou

Reged: 10/18/03
Posts: 62
Loc: Maryland

Welcome to the board! I fully understand what you are going through and IBS is indeed both physically and emotionally draining. It makes every day, normal things so complicated and painful in many ways. Sometimes, I wonder why this is happening to me, what I did to deserve this but then I remember that everyone has something to deal with and this is just mine. Know that you are not alone. My thoughts are with you!

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Re: Skeeter--Question about swelling new
      #24259 - 10/23/03 01:13 PM
skeeter

Reged: 04/10/03
Posts: 8


Hey swelling buddy. Good to hear from you. I always thought I was the only one with that problem. The doctors always seem to "give up" on me. They tell me all they can do is put me on different pills and let them know how they work. I don't want to be their lab rat. I understand when you say you can't relate to anyone. That's what I have problems with. I am left with no friends since I refuse to run out and get drunk everynight. Therefore, I also have no one to talk to. Anyhow, enough of that. I had seizures for quite a while and they always told me they were in my head also. But then, years later, they figured out I really did have a problem. So don't let them make you think you are nuts! Keep faith and do the best you can to make yourself happy. Stress triggers my colon to do a lot of bad things. If you can be stress-free it is amazing the difference it can make. Also, a diet helps (but I am far from figuring that out yet). I work all the time, so don't eat healthy. When my stomach acts up (which is all the time) I don't like to eat at all, so doctors say to eat anytime I can. I'll get that figured out one day. I used to go to the gym and do kickboxing a lot, but am working 2 jobs and don't have time right now. For my colon, they said it was something I was probably born with. They said they could go in and cut half my colon out, so it is the normal length and then try to straighten it, but they think that will be harder on my body than to just "learn to live with it". My pain normally hits around that area. I feel like there is a midget with a dagger stagging me on the inside. It hurts so bad it makes me want to vomit. There have been numerous times the pain so sharp my legs gave out from under me. Normally, after the pain gets so intense, it spreads across my stomach and up my back. But, to answer your question, yes, the pain does circulate around that area. The doc told me that was because it was swollen, inflamed and full of poo and that is such a tight spot in the body that it hurts cause it is sort of "smooshed". There's not enough room for it to swell the way it wants to. I have had it swell so bad it pops my hips or back out of place as well. Sorry, I'm not trying to tell you horror stories, just sharing and maybe you can relate. Take care of yourself o)

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Re: Jolley--Question about swelling new
      #24272 - 10/23/03 03:57 PM
Jolley

Reged: 10/23/03
Posts: 2


Thanks Saralou,
I wish I had an answer for everyone. It seems that when you need to talk to some one in your family about your condition, they always want to revert it to their problem. So you never feel like anyone is listening. I've been married 30 years, I'm a young, dispite my problems, 54 year old. My husband never understood how I felt about my back problems until he hurt his back. I don't want him to ever have IBS, so he will understand. But, it seems like that is what it takes sometimes. He is a very stressful person and is having I think the beginnings of this problem. He is an A type time three. I call him my triple AAA. His stress just trickles down, and irritates what I already have going on. I'm thinking of taking up meditation, and making the spare room a meditation room.


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Re: Jolley--Question about swelling new
      #24274 - 10/23/03 04:46 PM
maryh

Reged: 10/02/03
Posts: 192
Loc: IL

Jolley: Go for it girlfriend!!! We are need a place to relax and retreat-especially with IBS! Mary

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Whatever doesn't kill me will make me stronger!

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Re: Skeeter--Question about swelling new
      #24304 - 10/24/03 05:40 AM
Saralou

Reged: 10/18/03
Posts: 62
Loc: Maryland

Good morning Skeeter!
I think there is nothing worse than a doctor (and particularly, a specialist) telling you to just try different things and "live with it". You go home, alone, unaware and probably feeling even worse than when you went in!
If that is the case, that it is all sort of squished in there and does not have enough room, why do they think that it wouldn't help to remove some? How swollen are you (shape, size)? Does the swelling change? When did you notice it?
When did this problem begin with you? In that I mean to say that if they think that you were probably born with it, why wouldn't it have been a problem your whole life? Or has it been?
What are your typical trigger foods? Has Heather's diet helped you at all? If IBS is supposed to be related more to your emotions and levels of stress (brain-gut theory) and particularly in those instances, exacerbated by the trigger foods, are the doctors (or you) thinking that for you, it is more a problem of anatomy which has all the IBS symptoms? Did that at all make any sense? I'm sorry to ask so many questions (I'm the daughter of a reformed journalist!)
I hope this email is finding you well (within the "normal" limits of IBS, of course).
2 jobs? You poor thing...been there, done that. ugh!
Saralou

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