IBS - D Supplement Survey
#226737 - 11/22/05 02:59 PM
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Why should we let the C people have all the fun? lol  Maybe we can help out some newbies (and some oldies) by sharing what we all take and what helps us.
I take SFS -- Citrucel caplets. 24 each day. I break it up into 3 different "servings" -- that way I feel like I have my fiber all day long for safety.
I also take a probiotic. Natrol Biobeads. It has a mix of lovlies in it. Lactobacillus acidophilus, Bifodobacterium bifidum, Bifodobacterium longum, and Lactobacillus rhamnosus. It does not have any bad stuff though. No dairy, yeast, wheat, corn, eggs, glutens, etc. It is in a wonderful little bead that keeps it safe from your stomach acids. So - it doesn't have to be kept in the fridge and they survive. 
I also take enzymes. Since I liked my probiotic, I tried the samples I was given by Natrol of their enzymes. They seemed good too. They also have an ingredient that is supposed to help with gas. Not a bad thing for many of us. They are called Digest Support.
I also take the Walmart brand women's multi-vitamin and Oscal 500+D (2). When I have an attack (pretty rare nowdays thanks to Heather's diet and all these lovely supplements) - I take NuLev and usually 1 Immodium AD. Sometimes I may have to take another one, if it doesn't quiet down -- but I have been very lucky so far. 1 usually takes care of it without making me constipated.
So, that's my IBS in a nutshell. Anyone else want to play?
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I was waiting for someone to do a IBS-D survey!! I posted my supplements under the IBS-C, before I realized it ws only for IBS-C!! Sorry!!
Anyway, right now...... at the moment, anyway.....I'm taking the following:
Garden of Life: Primal Defense and FYI
Renew Life: Oilsmart and Intestinew
Enzymedica: Digest Gold, Acid Soothe
Fennel Tea
Chammomile tea
Citrucel "Clear" 3 scoops a day
That's about it!
Michelle
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IBS-D. Hiatal Hernia, GERD
Unstable
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I'm an A but my attacks are D.
For the IBS I take...
2T of Acacia.
For my crappy immune system I take...
1g Vitamin C (from my HFS).
A multivitamin (usually supermarket own brand).
Echinacea (from Holland & Barrett HFS).
For my Fibro I take...
Malic Relief tablets by Country life.
Celexa 20mg.
Elavil 40mg.
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SFS: FiberChoice - currently a total of 4.5 chewables (that's 9g), but still working up.
and that's it. figured the people who don't take lots of supplements should be represented, too.
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jaime
ibs-a (mostly d) // vegetarian
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I'll post my stuff anyway, since it usually works...most of the time! This attack was strictly stress related, I'm pretty sure..... 
Citrocel caplets: have upped to 3 before I eat
FloraSmart probiotic: has pretty much everything, but without the dangerous stuff
Nexium
Librax: one before meals, sometimes one at night if bad day
Nature's Sunshine Intestinal Soothe and Build
Nature's Sunshine Slippery Elm
and.....lots and lots of pretzels!!!!!! lolol
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I'm IBS-A, too. Attacks are D, and fairly rare these days. Mostly aggravated by anxious moments.
I take 2 teaspoons of Acacia every day. Usually just shake it up in a bottle of water and drink it all day. This is my #1 preventative against attacks and my #1 promoter of regular BMs! I struggled with trying to get balanced for over 5 years now, and ever since I started Acacia, things have definitely gotten better.
Fibercon and/or Pamine (antispasmodic) before I eat something questionable.
Multi-vitamin (Kirkland brand). Right now I'm mainly taking it for the Folic Acid because we might be trying to get pregnant soon! And, just to keep the immune system up and running during cold/flu season. I also don't eat enough greens...
Haven't started any other supplements yet, but my physician who focuses on optimal health, has suggested some probiotics and such. I might try them. Interested to see what others have success with and how they impact their symptoms and overall digestive health.
**************************************************
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Happiness is not a goal; it is a by-product. 
--Eleanor Roosevelt
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Hi there,
I take 3 tp.of Acacia a day, usually before each meal. I have fibercon just in case when I'm out to take before eating something questioable.
I take propax vitamins with NT factor that has probiotic type supplement in it. I also take calcium each day.
I take an immodium if I'm going out and feel I'll be stressed as a preventive. I also have lomotil for those bad times.
I just got a prescription for Lexapro which I haven't started taking yet. My biggest factor in IBS is stress. I'm much better though since I watch what I eat more and breathe deeply!
Sandy
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I'm an A, but my attacks are/were almost always D, so I think I fit in better here. 
I take Fiber Choice chewables, 3 or 4 a day, for 6-8g total SF from the supplement. (Yes, that's low, but that's what I stabilized at, so I'm not messing with it!)
And that's it!
When I remember to take them, I take a Flintstones chewable vitamin (the only one that doesn't bother my stomach) and a calcium-plus-D supplement, don't remember the brand. But I rarely remember to take them!
When I have an attack, I typically don't take anything at all anymore, I just eat all SF and ride it out... but if I have somewhere to be, I take an Imodium.
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This is so helpful for me. I am trying to get stable and trying soo hard to follow the diet. My husband is an Italian chef so it is soooo hard. I am glad to have this support. Thanks all!
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IBS-D and hating it
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~3 tbsp Acacia a day (I take this more like food, and just add it to my meals... I always take 1 tbsp in tea in the mornings, and then the rest of the day I get in what I can. It's usually around ~3 tbsp.)
LIFE brand Women's Daily One multivitamin
600mg (elemental) calcium carbonate + vitamin D
That's it. I also drink lots of Traditional Medicinals Eater's Digest tea (peppermint/fennel/ginger and other stuff).
Oh, and Immodium whenever I need it (i.e. if I have D and *need* to go out)
I also have one bottle of peppermint caps left so I take those to calm my stomach whenever I need to eat something iffy or eat during a really stressful situation etc.
...OK *that's* it
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Indeed, it's pretty simple for me, too.
--Immodium for D
--Pepto. for really bad acid/nausea (I have acid reflux and take Nexium)
--I keep GAS-X, DIOVOL PLUS, BEANO on hand for when required
--Digestive Enzymes by SISU DIGESTIVES
--2-4 Tbsp. Benefiber Powder (Like Laurel, I frequently mix it in appropriate foods, i.e. soups/smoothies/applesauce, etc. or in tea)
***I have not found a vitamin I can stomach without a negative reaction, therefore I do not take them***
That's all I can think of at the moment. I used to take COLLIDAL SILICA GEL, but now I eat more than enough silica each day and am getting really HAIRY!
Kate, IBS-D.
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I can't stomach a single vitamin pill. Are those Flinstones ones safe? I used to take chewables as a kid and didn't have a problem...indeed, I recall that they were the Flinstones ones.
I guess my question is, are they safe for you and potentially worth me trying? Do they have added sweeteners?
Kate.
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Immodium as needed
Peppermint tea
Chamomile tea
I was taking Benefiber for the first 4-6 months, but didn't keep up with it once I stabilized. I took a calcium supplement for a few weeks, but didn't keep that up either. I eat Luna Bars, which are vitamin and mineral fortified and contain some SF, so I hope that counts for something - I can tolerate them much better than vitamin pills.
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Hi ya'll!!
Okay, so I have in the past taken a million different things but right now I'm not really taking anything. The last two weeks have been pretty brutal, though, so I think I will definitely have a look at these more closely and see about taking some new stuff.
Right now I take:
-Immodium as needed (which is currently at least 1-2 a day)
-Bucospan as needed for pain and cramps (not very often until lately)
-Peppermint tea (a lot, a lot.. until my herbalist guy told me not to drink it anymore, which upset me. I have been 'sneaking' it lately as it is my only relief  )
-Cammomile tea (drink at night usually to help me sleep and calm tummy down a little)
-I take a chewable children's vitamin as well. I couldn't take the brand name one because it had sorbitol in it, so I take just the drug store brand which doesn't have any "no no" stuff in it.
Oh! And right now I have had really bad reflux but with the D, I haven't been able to take any medication 'cause I end up in the bathroom all day long so I have just been taking tums every day at work to get me through.
In the past I took calcium chews, but they all turned out to have dairy so I shouldn't have them. I want to try more calcium, but all the pills I've seen have been big and I can't swallow large pills so I dunno what to do about that now...
I would LIKE to get back on the fiber wagon to see if it will help this time, and a probiotic. I also need to find something safe to take for nausea that won't make me too drowzy to work as I have been SUPER nauseous at work but can't take the extra strength gravol I have (regular strength doesn't help me) makes me tired. Boo.
Anywho, that's all from me right now!
Cheers!
--Steph
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~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.
Edited by Stephie (11/22/05 07:44 PM)
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You could get a pill cutter for those huge calcium pills. I have one; it was inexpensive, about $4 (US), and it's been really useful.
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Hi there,
I just have a quick question for you about having both reflux and D.
I went on a medication in England for my reflux but it made my D so unbearable that I could literally take immodium and still be in the bathroom over 10 times a day.
I was on lansoprazole (sp??), which is Prevacid over here I think. My doctor here gave me Pariet but I am terrified to take it because if my D gets any worse, I won't be able to work regular hours and I'll just.. fall apart.
Also, do you find that when your reflux gets bad you get really nauseous?
I have just been insanely nauseous the last couple of weeks and my heartburn/indigestion is really awful, so I am wondering if the two are linked.
Cheers!!
--Steph
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~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.
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Hi,
Does it really make them easier to swallow? Or does it make them all rough and hard to take?
I know this is ridiculous, but once pills are wider than a certain amount (like I cannot take pills that are circular usually, only the long skinny ones) or too rough and start to get stuck in my throat, I totally panic.
Thanks!!
Steph
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~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.
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I think they're easier to swallow. The full-size pills make me gag, but I was able to get the 1/2 size ones down without a problem. You know, you might be able to cut them into 1/4.
Some tips I remember (and still use) from taking pills as a child (I was a gagger): I prep/wet my mouth and throat by drinking some water before I take the pill. Sometimes I use a straw when taking a pill, which makes it easier to swallow. If I feel panicky about the pill getting stuck (which is unlikely, I think), I'll drink more water and have a piece of bread to "push the pill down."
Hey, I bet you could crush the calcium pills and mix them with applesauce! I've heard of people doing that with other pills. HTH!
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I've tried Pariet and honestly, it didn't do a thing other than give me MAJOR GAS/BLOATING and dizziness and D.
Nexium is the only thing that effectively works for me. Yes, I do get some D with it. Also, I find that I am just unable to consume as much food, so I'm eating less and less everyday. I am starting to make some serious dietary changes. Immodium generally helps with the D that Nexium gives me. Enzymes, help a lot as well as keeping Gas-X and Dioval Plus on hand.
Yes, I get really NAUSEATED when I have reflux, or if my sodium levels are low. I'm still learning what works and what doesn't, food-wise with Nexium/reflux & IBS-D. All I know right now is just about everything gives me reflux, except for potatoes, rice based cereals, saltines, and only a few vegetables. Applesauce is even "iffy."
Kate, IBS-D.
Edited by Wind (11/22/05 09:11 PM)
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I'm actually a C, but I take meds, too.
17g of Miralax
4tbs Milk of Magnesia
one - two scoops of Citracel a day
These are all used before I go to bed after small meal.
I'm also using the hypnotherapy program from this site which so far is proving to be the best remedy at this point.
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Check out my gallery! http://niomie.deviantart.com/
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Hmm...
#226814 - 11/22/05 09:34 PM
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atomic rose
Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)
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I should preface this by saying that I've never had a vitamin give me IBS problems; my difficulty with vitamins is that they repeat on me something awful. The Flintstones are the only ones that don't. I get the ones without added iron, and I'll be honest, I'm not sure about the sweeteners in them - I just know they don't bother me.
...Ok, I couldn't give that as an answer, so I Googled it. LOL! According to drugs.com, the sweeteners they contain are sucrose and invert sugar, which is a re-processed sugar that has a finer texture. Both of those should be perfectly safe.
I don't believe you're going to find a chewable that doesn't contain some kind of sweetener, because they'd taste absolutely horrible! But if that's a concern for you, try the health food store for the all-natural alternatives. I'm pretty sure those all contain sugars too, but you never know.
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And I cannot stomach them. My reflux is so bad, I cannot take any kind of multi-vitamin right now.....I bought the huge bottle of them, too. So, when my reflux calms down I will see if I can take them, again.
Michelle
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IBS-D. Hiatal Hernia, GERD
Unstable
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I'm not Wind, but I had the same problem. Ask your doctor for samples of Aciphex. (Not sure what it's called in Canada, sorry.) It's the only reflux med I've been on that doesn't aggravate my D, and I think I went through pretty much all of them. I tried to go on the generic to save thirty bucks a month, but the generic didn't work quite as well and did bother my stomach somewhat. That's the ONLY bad thing about Aciphex -- the cost! Without my insurance a month's supply was something like $150 US. Ouch.
My nausea also got bad with the reflux. I even threw up a couple times, and I hardly EVER throw up (it happens so rarely I can literally remember each time). I can't even begin to describe the agony of throwing up when you are refluxing.
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jen
"It's one of the most serious things that can possibly happen to one in a battle -- to get one's head cut off." -- LC
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Hey Jen!
Thank you so much, I really appreciate that! The next time I go to see my doctor, I will ask about it.
Luckily, right now I have very good insurance (my insurance works where you can pick and choose where you want to be covered more or less, it's cool) so I have 100% on prescription meds up to a certain amount (which means it still wouldn't cover all of it, if it is $150 a month) so that will help a lot.
Thanks again, I hope it helps me! I have it so bad that it just hurts and aches in my chest all day. And I totally get food coming back up all day. If I wanted to throw up, I could. But I FEEL like I really want to throw up and the little bits that come up just don't help the nausea at all, it's so brutal.
Blech!
Cheers!
--Steph
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~~I'm not crazy, I'm just a little unwell-I know right now you can't tell~~Matchbox 20
IBS-D,pain.
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I go through this, too. I am on my 3rd week of Nexium, right now and it's FINALLY starting to kick in but I still take tons and tons of antacids everyday. I cannot eat a whole lot in one sitting either, or it will get really bad. So, make sure and eat a little bit throughout the day.....not 3 large meals. It might help your reflux.....
Good Luck~
Michelle
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IBS-D. Hiatal Hernia, GERD
Unstable
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I wondered how you were doing, Michelle! How are you feeling?
Is the Nexium starting to work? I find it increasingly challenging to eat much--i.e. only certain foods! It's frustrating! Like you, the small meals work best. It's just frustrating having to further modify my diet.
I've been using Extra-Strength Gas-X for any pressure/air bubbles that get trapped in my tummy and find it hugely effective. I get reflux, sometimes, from trapped gas. (I have asthma and I KNOW I swallow air! My reflux partially is related to asthma drugs.) Truly, it's a treat to fart!
(Hope that's not too much information)
I just find the foods that I can tolerate with reflux and IBS-D dwindling. It's eerie. Are you experiencing the same thing? Lol, I was up @ 4 a.m., but not for Pepto! I thought of you. I haven't used the stuff in 3 or 4 days.
Kate.
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Hi! I have been doing a little better up until last night. I went to bed hungry and woke up at about 8:00 with major reflux. I actually woke up a couple times before that, but I didn't get up to take anything for it. I just let it get worse!! The Nexium is beginning to kick in......but, I'm like you, I still can't eat much. I eat cream of wheat 3 times a day (it's easier to digest for me, than oatmeal) a little bit of bananas, crackers and pretzels.....that's about it right now. But, at least I CAN eat!! Two weeks ago, I couldn't eat at all!!
I was wondering how you were doing, too! It's good to hear that you haven't had to take pepto in 3-4 days!! That's awesome!! I still take it with every meal!! I can't get away from it, yet. I tried the other day but I got reflux really bad about an hour after I ate.
I also get reflux from trapped gas. I think that's the majority of my problem. After I eat, I get huge gas bubbles that literally make me nauseous if I can't get them up. I will start taking gas-x again and see if that helps. I have been taking charcoal but it's stripping my body of all my nutrients. I don't like taking it all the time.
I took an Oilsmart (Renew Life), yesterday, after eating my morning cream of wheat and about 30 minutes later, it made me really nauseous. Don't take Oilsmart with cream of wheat. There's not enough substance to cushion it....it digested in no time and made me really sick to my stomach!!! I had to go lay down for like 2 hours and took a whole bunch of Pepto!!! That was horrible!! I won't ever do that, again!!
What are you eating for Turkey day??? I'm not cooking.....I'm eating cream of wheat righ now, as a matter of fact. I'm not in the turkey mood, today. My husband doesn't like turkey much, anyway.
This sucks!! I use to love thanksgiving, when I could eat whatever I wanted. I would eat a whole pumpkin pie by myself, just about!! Not anymore!!  Well, I'm still thankful for all of the Blessing in my life and to be alive but I'm not in the whole "food mood".
Happy Thanksgiving!!
Michelle
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IBS-D. Hiatal Hernia, GERD
Unstable
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Do you eat basically the same things I do? Or can you eat more?? I would like to try to incorporate new things but I'm like you......trying to find things that I can eat with IBS-D AND reflux is really hard! And I'm scared to try new things wondering if it will send me to the bottom, where I will have to start all over again.
It sucks!! LOL!! Ain't we just a pair???
Michelle
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IBS-D. Hiatal Hernia, GERD
Unstable
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Well, I'm Canadian, so "Turkey Day" was last month!
Like you I find I can eat less and less! I had a fridge full of veggies/fruits that I had to trash. Most dry cereals and saltines work (rice crispies/crispix), mashed potatoes. The veggies I can tolerate besides mashed potatoes are: green beans, asparagus, pureed spinach, zucchini, and mushrooms. A little celery or carrot is okay, too in a brothy kind of soup (organic & m.s.g.--free). Would a soup agree with you? Perhaps toss some rice or rice noodles in? I tried that the other night and it really soothed my tummy and no reflux.
Most rice based foods totally click and are safe, so I'm going to eat more of those and any veggies I can tolerate--mashed potatoes, zucchini and mushrooms being basically totally the safest.
Fruit just gives me rude reflux--even bananas/applesauce .
I'm going to go shopping later. Like you, I just have such a limited list! Everything has to be ultra-plain, and well...kind of something a baby could eat. Truly, it's hard to get enough calories in! I'm going to see if there's a suitable bread for plain toast at the store and maybe make some plain angelfood cake. I tried oatmeal, but it gave me the most evil reflux/acid/heartburn/gas. Even Cheerios will do it.
A creepy question: How are your teeth impacted by reflux?
Mine are a disaster.
Poor you, that's no fun on turkey day. I mostly focus on the visiting aspect.
Perhaps you might be up to some homemade "no-chicken" soup?
Indeed, we are a pair!
Kate.
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I didn't know you were Canadian! That's awesome!
Thanks for your list of foods that you can eat!! You're right, slim pickins' just like me!! I do often eat baby food, because it's the only thing my tummy will tolerate, sometimes.
You know, I have some crispix in the cupboard that I haven't opened yet. Maybe I will try that. I haven't tried mushrooms in a long time, maybe I will try those, too. I LOVE MUSHROOMS!! Especially portabellos. They don't give you problems??? I would really like to be able to eat those again. Yummy!!! Portabello burgers are the best!!!
I used to make a squash/zucchini stir-fry that I really did well with but I haven't tried it since my IBS flare in August. I have been trying to keep it ultra-safe.
I tried to eat a banana this morning, too and it isn't working out so well. I'm starting to get that "feeling" again.....reflux! NO!!!! I'm sipping on some chamomile tea to try to avoid the Pepto!! I need to stop taking so much of that mess.... I ate some applesauce 3 weeks ago and won't do that ever again, either!! That was horrible! I almost threw up because I couldn't get the acid to calm down in my stomach. It took about 2 hours to get it under control. I cringe when I even look at applesauce, now. Pitiful, isn't it??!!!
You know, I couldn't stop eating oatmeal.....and I kept having horrible, horrible gas.....reflux, all of it. I finally switched to cream of wheat 2 weeks ago and it has really helped. I can't eat oatmeal anymore, either. I hate that because I love my oatmeal but it just hurts too bad now. I am tired of paying the price for foods that I think I just have to eat!! I gotta let them go......
Funny you mentioned the reflux affecting my teeth....when I was stable back in 2004, I lost a filling and within no time it became absessed. I finally went to the dentist in May of 2005 and he said it was absessed and I had to have a root canal and I still have 3 more appts to get it finished. I got the first appt out of the way and then I got really sick with my IBS and have had to cancel my other appts because I get too nauseated in the chair. So, I really need to get this finished.
Have you ever tried Anise tea?? I was looking on heather's website and found that Anise is really good for indigestion and stuff like that.
All of my family is in North Carolina, so no one will be coming to visit me today......it's just me and my hubby. So, I will eat my cream of wheat and he will probably order a pizza. He's not much into turkey.
Does turkey or chicken bother your reflux??? It bothered mine the last time I tried it. (last week). I woke up at 3:00am pounding the Pepto bottle!!! It was horrible!! My whole body felt like an acid pool!!! Yuck!
Michelle
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IBS-D. Hiatal Hernia, GERD
Unstable
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I'm still getting going with this whole thing but:
I'm up to 2 Fibercon Tabs a day (It gets upped once a week)
One Multi-vitamin/mineral a day
Two Probiotics (just acidophilus) a day.
Fortunately, right now, I can get all my pills out of the way in the morning. :-)
And several cups of peppermint tea every day.
--------------------
Jonna, IBS-D
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Happy Thanksgiving, Michelle.
Do you think mashed potatoes might agree with you? They totally agree with me! Mushrooms totally agree with me too, as long as I don't use hot/spicy stuff, i.e. keep it pretty plain and simple with just a little herbs to enhance. I love baking zucchini, too and that totally clicks. Plain/salted green beans agree with me always, as does asparagus. Try a portabella on a 1/2 bun or plain bread!
Re: cereal. It totally agrees with me dry or just splashed with Rice Dream (no soy! soy=reflux for me) to wet it. I can't "drink" the milk that I splash on, though. That would be "bleh!"
Re: tea I love fennel! Camomile, aggravates my hayfever, though. Jasmine green tea works, but not black tea. Rosehip rocks. Tropic of Strawberry by Celestial Seasonings is a favourite.
Soups (homemade work). ANY SORT OF MEAT (i.e. chicken/turkey) CAUSES ME INTENSE REFLUX, spasms, pain, acid and gives me a D attack, too. I can tolerate organic chicken broth, but not meat. To this I'll add a few shitakes, maybe some matchstick carrot slivers, a celery stalk, a few tablespoons of rice, etc. It's rather brothy and tummy warming/soothing.
I haven't tried pretzels. Any favourite brands?
Arrowroot type cookies/fortune cookies agree with me. (I was just nibbling on Teddy Grahams!) I'll find out soon enough re: plain angelfood cake!
Applesauce = reflux for me Bananas just hurt. I suspect, though, that zucchini/mushrooms would probably agree with you when you're ready to give it a shot. Just keep it relatively plain/simple.
I hate this as much as you do. I have to re-learn my food responses and modify my eating. My fridge is embarrasingly empty.
Also, re: protein powders. They end up refluxed, too.
Hmmmm...it's too bad your thanksgiving wasn't a more traditional spread. You could probably have contributed/stomached some safe/skinny mashed potatoes and maybe a few green beans to munch on! I feel left out, too because of acid reflux. And my mother BUGS me about it and doesn't understand/get it and that only gives me WORSE heartburn.
Aaargh.
Kate.
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Awww, thank you, Kate!
I have a brand new box of the Strawberry tea up in my cupboard, too, that I have not opened yet. I was afraid it would trigger my reflux, but if it doesn't bother you.....maybe I will give it a shot.
I probably could have eaten some mashed potatoes and green beans today but I felt too bad to go to the grocery store yesterday and get stuff. So, I just ate what I have in the house which is NOTHING!!! My fridge is embarassingly empty, too.....I wish it could be full of cheesecake!!!!
If I can get to the store tomorrow I will pick up some portabellos, green beans and potatoes and have my thanksgiving dinner tomorrow!!! hehehehe
OH, I cannot have soy milk, anymore either!! I just had a bowl of frosted flakes the other day and I thought I was going to die!!!!!! I cannot even eat frosted flakes dry. They also triggered my reflux but not half as bad as the soy milk. Never again!!!
My favorite brand of pretzels is the unsalted mini's by Snyders (of Hanover). They are the BEST!! They're expensive but I cannot find any other kind of pretzels without salt. The salt hurts my tummy and gives me sores on my tongue. I have a box of teddy grahams, too. Maybe I will go try to eat a few of them, if you can handle them.
Sorry, I'm using you as my guide.....My system is so sensitive right now that I'm afraid to temp things unless I know that someone like you can handle them......I know that I might not still be able to tolerate some things that you can, but it would give me the confidence....at least....to try! Thanks Kate!! You're the Best!!
I can't handle protein powders, either. I bought some type of protein powder (soy protein) from the grocery store and put it in my cereal about a week ago and I almost died!!! Glad to know I'm not alone on that one!!
Hey, I really really want to try Luna bars!! Can you handle those??? They sound sooo good and there's alot of IBS people on here that can handle them. So, I'm not worried about them affecting my BM as much as I am the reflux!!
I totally understand the frustration of living with IBS-D AND Reflux!! It's horrible!! I'm so glad that I have you to help me through all of this, Kate! Seriously!
My dad was just here yesterday and he doesn't understand what I'm going through at all. He says "I get heartburn all the time, I just ignore it and keep going. Why can't you??" He doesn't get it that I have a hiatal hernia!!! My heartburn is sooo much worse than the simple burning-in-the-chest kind of heartburn he's talking about, you know??? Yea, that would be easier to deal with than the constant feeling of "going to throw up all over the place at any minute with no warning!!!" 
Michelle
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Can you eat the chocolate chip Teddy Grahams?? I have a box of those, too......and the honey. Anyway, It says there's cocoa in the chocolate chip ones, but it's so far down the list....it still a significant amount to trigger EITHER reflux or D attack?? Probably so, huh??!!
Michelle
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To prevent waking up in the middle of the night with reflux??? My doctor told me to take another Nexium at night, but I cannot afford to take 2 a day. It's expensive!! And I cannot risk all the side effects of doubling up on it......So, I was just wondering if you take antacids or anything before laying down.
Michelle
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Snyder's of Hanover--I noticed those. Next time, I'll try a few. Teddy Grahams are similar to baby cookies and generally what a baby can tolerate is potentially safe.
I guess the best approach is to give it 3 bites. After 3, I KNOW whether it's yea or nay. Sometimes, though, if something for some inexplicable reason just smells all wrong, it's only a "nay" that day. Probably warped, I know.
I've never tried a Luna. I, too, am dying to test one. I so very much miss HEMP icecream/rice dream, but am too chicken. Hey, maybe I'll give a Luna the 3 nibble test. Yes, that's what I'll do...try 1/4 of a Luna. Sometimes I can only tolerate a miniscule amount, initially. What do you think? I HATE PUKING. I HATE D. I HATE BOTH IN THE SAME HOUR!!! (Has that ever happened? It's happened lots!
Cheesecake, ROTFL (& crying)!!! That was another lifetime ago!
Way to go, Michelle with your belated Thanksgiving. Maybe try 1/2 at Lunch and 1/2 at Dinner. Portabellas are seriously filling!
Can you tummy bread/toast? Just curious. I'm not sure yet.
I bought some organic white mini pitas and thin-sliced weight watcher's bread to try when/if I get the guts.
I tried a few marshmellows and had the most evil heartburn a few days ago. Honey KILLS me. I miss SUSHI--maybe I'll try it without soy sauce (serious reflux & D trigger) and wasabi.
Good luck, tomorrow...and take it bite by bite. Often, I find with acid reflux and IBS-D, less is more, at least initially.
You do sound like you could use some soup, too! Don't ask me why. A really SIMPLE one, too! If I'm making a quick soup, I use IMAGINE broth. The Portabella mushroom one used to be my favourite, but I haven't had it in forever. Maybe I'll try it, again, soon.
Now...if only I can smootch a ride to check out those pretzels!
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I don't know, Michelle. I've only ever had the plain ones!
You could try 3? See how it goes? I know a chunk of chocolate would do me in, reflux-wise--but the size of the ones in Teddy Grahams are negligible. Hmmm...I guess to try 3-5 would be my answer.
Kate, IBS-D.
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No, I don't take anything beyond potentially a couple Pepto. caps. before bed and occaisonally a few Rolaids. Tums, for some odd reason foam too much.
Yes, I know...night time acid really wrecks havoc on the a.m.
Nexium is expensive. 2 a day, now there's a thought! It is expensive, though.
Give it time.
Kate, IBS-D.
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Yea, I cannot afford to take 2 a day. I pay $69.00 copay for these things. I cannot afford to pay that twice a month!! I'm afraid that two would make me nauseated like all the other PPI's have done. At least with the Nexium, I don't get nauseated.
Michelle
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Yea, those pretzels are the best!!! I tried a few Teddy Grahams tonight and they didn't sit right after about 5, so I stopped and it was okay, then. I think if I would have eaten more, I would have gotten sick......maybe I will wait a little longer before breaking those back out again.
I'm going to get a Luna bar, tomorrow, too and try 1 or 2 bites of it and see what happens. I probably won't be able to tolerate it, though, if I can't even tolerate teddy grahams!! I'm going to try though. I need to put on some weight!!
I HATE PUKING, TOO!!! Fortunately, I haven't had both in the same hour!!! But, almost, too many times!!!! I think that's why I am so afraid of trying new things....because it don't take much to make me throw it right back up!!! I HATE REFLUX!!!
I can tolerate mini bagels, but the white bread thing didn't sit well with me last week so I haven't done it again. It just gave me horrible gas.......not really any reflux. I just couldn't sleep because of the rumbling tummy!!
You should be okay with the pitas though. Especially if they are organic. That's so funny, I tried a couple marshmallows yesterday! Maybe that's why I woke up with reflux this morning!! I have a serious sweet tooth and with reflux, I cannot hardly tolerate ANY sugar!!! What am I going to do!?!? I am sooo addicted to sugar......but it's not working out very well right now!! Honey bothers me too...I use Stevia to sweeten my teas.
Good luck to you, too, with your pitas and weight watchers bread!! I agree with you.......take it bite by bite. Seems like I'm doing that with everything these days, even my cream of wheat! Sometimes I can gulp it down and sometimes I can hardly eat it at all.......wierd!!
I'm going to check out that Imagine broth. I don't know if I've seen that before. I also looked for that antacid you told me about. I looked for it at the grocery store, and every pharmacy between my house and the next city and I cannot find it. I will order it on the internet. I saw a website that sells it (canadian website). I guess they don't have it in the states. I'm dying to try it, though.
Thanks for telling me about it!!
Good luck with the pretzels! Let me know how they do for you!! I will let you know how tomorrow goes with my portabella mushrooms!! I made my husband some mashed potatoes this evening and I ate a little bit of them and did okay. Little bit of stomach discomfort, but it was okay......tolerable......
Michelle
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kate - way back when i first got diagnosed w/ ibs, i mentioned to my dr that i'd been taking rolaids occasionally - he said to stay far away from them, as they often cause D. don't know if there's a connection for you, and they might help more than hurt, but i thought i'd mention it.
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jaime
ibs-a (mostly d) // vegetarian
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Well, I just zipped out for Snyder's of Hanover Pretzels and a couple of Lunas. Like you, less is more. I can tummy a babyfood portion of mashed potatoes, i.e. 1/3 c. (think of it in relationship to cream of wheat portions, perhaps?)
When the mood arises, I'll give them a shot, i.e. an inch or two of Luna/3 or 4 pretzels. Thanks for the tips!
It's funny--stevia really bugs my tummy. I think if I try the bread, it would sit best toasted--it's just a hunch. I picked up some organic crap-free jam, too. I hope it works!
I hope, when I make plain angelfood cake it works, too! The Imagine broths are organic and they totally agree with me.
Thanks for the ideas.
Kate, IBS-D.
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Really? Oh dear. Thanks--no more Rolaids.
Kate, IBS-D.
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Do you have the Nexium headache, yet? I get this, often. Nexium-D, too.
Kate, IBS-D.
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I can't go out, tonight and get anything....nothing's open because of Thanksgiving! Well, Walmart is open but it's too far....I might get nauseated. Do you ever get nauseated on the road?? I do all the time and it freaks me out!!
You're right, the bread WOULD probably sit better toasted. I always learned going through college......best food for a hangover was toast. It has always worked for me.....when there's too much acid in my stomach. Well, now there's too much acid in my stomach "just because".....I haven't drank any soft drinks or alcohol since 2003. Well, I drank sprite for my colon prep 3 weeks ago and it nearly killed me!!!
I think the organic "crap-free" (hehehe ) jam on toast should be okay. I can't have anything fruity right now....every kind of fruit bothers me.
OH, let me know how the angelfood cake goes too! I'm gonna check and see if I can find that imagine broths.....I have only ever bought swanson brand and come to find out it has MSG in it!!! So, no more of that!! hehehehe
I really hope the pretzels sit well with you!!
Thanks, girl! What would I do without you??!!
Michelle
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OH, yea, I have the Nexium Headache just about everyday, but I can deal with that over the nausea!! I don't know if I have the Nexium-D, though. I can't tell if it's because of the Nexium or just my nervous colon!! I KNOW it gave me D the first day, but after that, it doesn't seem too much different than it usually is. I take 1/2 imodium every morning, anyway, just in case. It seems like I go every other day. I'm backed up for a day then I get D the next day. It's wiered.......I increased my Citrucel (clear), too, so that might be what's making my BM change. I dunno.... 
Michelle
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Do you ever get these "poop-a-thon" episodes? I pop an Immodium everyday which slows my transit time, thankfully, but sometimes, I get these poop-a-thons, i.e. 4 in an hour! Weird. Without the Immodium, though, it would be D!
I'm just taking Advil for the headache which works.
And yes, I totally get nauseated on the road. Actually, what I feel like is kind of a cross between a hangover and traveller's sickness. I hate shopping because I always always always have to go!
M.S.G. is a really bad thing. Serious personal trigger.
Definitely stick to organic Imagine broth!
You're a Godsend. I hope we both feel increasing improved each day. Babysteps. (I also think it's very interesting that we're both recovered anorectics.)
Kate.
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hehehehehehehe
I woke up at 8:00am this morning having a poop-a-thon!! I'm still having it!! ARGGGGG!!!!!! Stomach hurts, nauseated, 5th BM!! It sucks, big time!
I just took 1/2 imodium, 2 gaviscon and 2 pepto. I think I need to take the other half of the imodium. BM's are normal......very normal...... I just can't get my colon to stop.......
Michelle
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I believe they make liquid vitamins!! I agree with Casey...check out the HFS...and def inquire about liquid vitamins. I take sambucol as an immune booster often (it's basic elderberry extract if I remember correctly) and they DO make a liquid one no sugar added....so maybe they do with vitamins as well!
*hugs* Hope ya find one!
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Formerly known as Ruchie
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I def feel this way often! I actually look forwarding to releasing that terrible pain of a bubble
Seriously....when I was a kid and I was unable to relieve trapped gas....I threw up! The pian actually made me throw up!  I'm SO thankful I know how to help myself now as an adult!! It was just TOO awful for words...
Michelle/Kate how are you ladies now? Any better? I feel your pain 
Love ya
Ruch
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Formerly known as Ruchie
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DEF smell things before eating...it works!!!
I had no idea Teddy Grahms were so safe....yippee!
I have to say...even bread can give me reflux! Am I just not normal? I'm not taking anything for it atm...but I prob need to be.
(I need to see an endocronologist for my super enlarged nodule, a GI for my reflux, gyno for the ladie's probs I've been having...uro for the IC...it never ends!)
*sigh*
Which one to take care of first?
Can having untreated GERS/heartburn/ulcers do damage to a person? If so...I supose i'll start with a GI
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I still throw up if I cannot release the gas!! It sucks sooo bad!......
How you doing???
I have definitely seen better days. But, yesterday was a good day.
Michelle
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That sounds like a good idea! Smell it before eating it....
I don't know, sometimes I just don't have an appetite and have to force myself to eat, whether I want to or not....
Definitely see a GI if you're having reflux. It can get out of control like mine did. I didn't know I had reflux. I don't have the burn-in-the-chest typical heartburn symptoms. I just feel sick and it feels IBS related. Then my GI doc tells me I have reflux and a hiatal hernia. I had no idea!!!
Michelle
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I bought a liquid vitamin and it still upset my stomach......it says to take 2 tablespoons a day and I took 1 teaspoon and it still gave me reflux. So, I think vitamins are out, totally, for me at least for awhile!!
Hope they work better for you guys!!
Michelle
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Yup--I'm farting more! Finally! And it feels good to get it out, to HEAR them resound! Passing WIND--honestly, trapped gas makes me so nauseated that to fart is a joy, a treat and I hope to do more of it! Ode to Gas-X/Dioval Plus. I guess it's akin to the feeling of having a hard crusty "poop" stuck in the pipes. Not a good thing.
Yes, I know, I'm a little weird.
Kate, IBS-D.
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Ditto.
I'm doing better, inspite of my major nausea, this morning (had to grab Pepto. and my retired salad bowl/now barf bucket--noway I'm ever eating a salad again!). I slept it off. Maybe it was trapped gas? I don't know. But, like you, if I have trapped gas, I vomit or have some reflux. Sticking to safe foods really helps/soft foods.
I'm glad you had a good day. I hope today is good for you too! I think my D is finally stabilizing! Yippee!
Kate.
Edited by Wind (11/25/05 07:41 AM)
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I'll check it out, thanks, Ruchie. I'm just at the stage that if I pop another pill I'll hurl. I used to take liquid mineral supplements when recovering from anorexia.
Kate, IBS-D.
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I'm sorry you weren't doing well this morning, either....I didn't know you ate salad, yesterday!!!??? I won't eat salad, yet, either. Have you been able to eat yet, today?? I haven't......I feel like of hungry, kind of nauseated. I can't tell which....... I want to try to eat but at the same time, I want my stomach to calm down a little more before I even try.
This sucks!!!! I took my Nexium at 10:00 and I just feel worse. Took another 1/2 of Imodium at 10:15, don't feel any better. I'm sipping on Chamomile tea right now.....still not feeling better. I hope I don't throw up!!!
Michelle
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Seriously--now if I smell something sulfurous, I get heartburn so bad. The smell of broccoli cooking will give me such an evil D attack! My border was peeling a pail of onions and garlic to put in her lamb stew and I just had to leave the house and open the windows. I instructed her to NEVER do that in my prescence EVER again!!!
Kate, IBS-D.
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Are we all recovering anorexic's ??? I'm not thinking this is just a coincidence, anymore, that A LOT of us with IBS and reflux and all kinds of other health problems are also recovering anorexics/bulimics......I'm definitely not bulimic, butI know some people that are and have IBS, too.
Why did we do this to ourselves???? I would give anything to eat, again!!! I WANT to gain 20 lbs!!!
Michelle
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If I could gain 20 lbs, I would look like I do in my profile picture, again. I have lost 20 lbs since that picture was taken in July of 2004. This sucks!!! I'm sooo freakishly thin, now, that I don't even look like the same person anymore!!
I hate this!!
Michelle
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Ok, will keep it in mind!
I was already diagnosed with GERDS and an ulcer...but by a doc I don't trust...so I shall go for a 2nd opinion.
(I know I have a hiatel hernia cause that was detected years ago during an endoscopy by a doc I trusted...to bad he lives half across country!)
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Formerly known as Ruchie
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I hope you get it figured out, soon!! You feeling okay??? Did you eat some turkey, yesterday???
*hugs*
Michelle
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I WAS anorexic, it's true. BUT I was diagnosed w/ IBS at age FIVE (Didn't become anorexic till like age 10 or 11.)
I know something REALLY stressful happened to me at age 5 that might have triggered it OR it was pure genetics as many ppl in my fam have tummy probs...
P.S. Michelle, you feeling any better? *hugs* thinking about you!!!!
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Wow, 5??? That's horrible!! I really want to have a child, but I am scared that he/she would have IBS at a very early age, too. I wouldn't wish this on my worst enemy, you know??? Let alone my own child who's 5 years old!?!? That's heartbreaking.....
I'm starting to do better, now, that I ate something. It's not sitting very well but I don't feel so sick anymore. I woke up at 8:00 with major reflux and I think it triggered an attack because I couldn't stop the BM's till 10:30!! I went like 8 times in 2 hours. But, none of it was D.....just very painful and the nausea was kicking my butt all over the place!!
But, I think I'm okay for the moment. I had a good day, yesterday. The first day without an attack in 3 months!!!! So, there IS HOPE!!!!!!!! One good day and now today, attack city.......I will take it......even if one good day is far, few and inbetween, I will take it!!!
How are you???? Was thinking about you, yesterday. I didn't see ya on the boards......just me and Kate, trying to figure out stuff we can eat without puking
and Beth later on came on for a minute......that's about it.
*hugs*!!
Michelle
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I wish I could eat MORE, but to do so is painful. Like you, I feel like I'm wasting away. My cheeks look sunken in, my complexion is ghastly! I just don't have the same "joie de vivre." And, I seem to be missing a CHUNK of hair!
Kate.
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I haven't eaten a raw salad in months! What used to be my salad bowl seems to be my "barf bucket." Sorry for the misrepresentation. Lol! I think a bite of raw celery would send me running. I miss my condiments!
I take my Nexium on an empty stomach. I'm not sure if that makes a difference or not. I take enzymes 1/2 an hour before eating, or if I'm not feeling hot only between meals.
I split them, too.
Kate.
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I take mine on an empty stomach, too and eat an hour later. The pharmacist told me to wait AT LEAST an hour before eating. I can barely wait an hour some day, and other days I'm starving in 20 minutes!!!! I take my enzymes right before my meals. Are you feeling better??? I went to the post office and barely made it!! I had sooo much gas, I thought I was gonna die!! But, I made it, thank god!! Have you tried the Luna bar, yet??? I'm anxious to see how it does for you......I just took my fiber, not feeling too hot. I think I'm hungry......
Michelle
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I know, it just hurts too bad to eat, today. I ate some cream of wheat (of course) and a mini bagel and that's it, so far.
OH, no....not hair loss, Kate!! Go get some Rogaine for women!! I have a thick head of hair, thank god. I better knock on wood!!! I just look like a skeleton!! My complexion sucks now, too......I'm really pale.
Michelle
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I'm really nauseated today, too. Maybe it's the lack of sun around here & this dull migraine that just pounds. I'm popping advil every 4-6 hours. I think I get low bloodpressure from the Nexium which makes me dizzy/nauseated.
No, I still haven't tried the Luna. Have you? I confess--I'm really apprehensive re: trying new things.
Kate.
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No, Rogaine won't work/help.
I actually have stress-related/autoimmune hairloss. The scalp is totally healthy so it will fill in. Have you heard of aloepecia aereata? When I'm stressed out, my hair shows it--my immune system stops growing hair, etc. The endocrinologist said I'm in remission. I'll call him if nothing shows signs of filling in. It happened to me alot in University when I was majorly anorectic--chunks would just vanish overnight. I thought I was over this.
Actually both my endocrinologist and dermatologist said Rogaine and most hair growth cures were scams.
Okay--time to meditate--stress begone/serenity now.
Kate.
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AWWW, I'm sorry you're nauseated, too! I have been like this all day......on and off....I don't have a migraine....just icky stomach-achy feeling. Crampy....bloated....nauseated......I don't know. Gas???
I haven't even went to the store to get a luna yet. I want to go get one but I'm too nauseated to drive right now.
Guess I will wait till tomorrow or something!!! Tell you what..... I will try it first, this time. And then I will let you know how I react to it. ???
I didn't even think about the whole low blood pressure thing....I have low blood pressure too. I don't know if it's because of the Nexium and I forgot that it could make me feel dizzy and nauseated!!???!! .......what can we do to bring it (BP) up??? Salt makes my reflux even worse!!!
*HUGS!!*
Michelle
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I've never heard of that.... But, I worked with a girl in the Navy who lost MOST of her hair in about 6 months. I think she may have had what you are talking about. She had something else wrong with her psychologically, though....she was severely bipolar and was on alot of anti-psychotic drugs. She lived with me for a few months and really wigged out on me a couple of times but she was really sweet. I felt bad for her. Her hair never grew back while I knew her. I hope yours fills back in really soon, hon.....I'm sorry.....
Michelle
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Strange Me....
#227331 - 11/25/05 09:48 PM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Okay, I'm a strange one. I can't tolerate ANY SFS, and God knows I tried 'em all -- and for a long time!
Probiotics did nothing for me.
I used to take 1,200mg. Calcium every day for over 20 years, but now my tummy can't tolerate more than 600mg. I had a bone density test which thankfully showed I didn't need more than 600mg. Yaay.
NuLev did nothing for me. Ditto with Hycosyamine (sp?).
I have a problem with UTIs, but discovered that my tummy can't tolerate any antibiotics except one. Oy. I had my worst attack from the antibiotics, far worse than any Snickers attacks or even Dead Cow Carcass (which, BTW, I've discovered I can tolerate quite well now!)....
Now, having said all that, here are my drugs of choice:
Believe it or not, if I'm stressed or anxious about something coming up, I found a little JD -- that's right, a LITTLE -- Jack Daniels calms down the colon. If I'm having a slight attack, then I turn to Equalactin. It's OTC, and although it claims it's for constipation, which I've never had in my life, it settles my tummy when my attacks aren't bad.
Okay, for serious attacks, I pull out the Big Gun -- Donnatal. It's dangerous stuff, 'cause it's Phenobarbital, very addictive, very habit-forming; thus, I reserve it for ONLY those occasions when the Equalactin won't work and I'm doubled over in bed in the fetal position wanting to die. The Donnatal takes 1-1/2 hrs. to "kick in," but it works EVERY SINGLE TIME, without fail.
Thankfully, I haven't had to take Donnatal for a very long time now, and in fact, I had to throw out my old prescription because it had expired.
Isn't this fun!?
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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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There are a few non-dairy chewable calcium supplements out there, I think, though they might be hard to find.
I saw this one at a Whole Foods and tried it:
http://vitaminshoppe.com/browse/sku_detail.jhtml?SkuID=203050
It was okay -- I finished the box, but I didn't buy them again, since I don't mind the big pills all that much.
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I take those!
#227347 - 11/26/05 07:15 AM
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melitami
Reged: 02/23/04
Posts: 1213
Loc: Ewing, NJ, USA (IBS-D, Vegetarian)
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I couldn't find any other calcium pills without magnesium or other mineral I don't need in them! Can't take more magnesium because of my fibro pills, I take two of these chews a day to balance out the mag in the fibro pills, or else I get nasty D.
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Melissa
Friendship is thicker than blood. ~Rent
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When I do a search on probiotics, you always had a lot of good things to say about Jarro. I'm not sure now if they helped you or not because your old posts were so pro-jarro.
Just curious. I don't know if I'm wasting my money on these or not. Did they help any symptoms at all? Why did you decide they weren't working? Thanks for your help!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Beth
#227463 - 11/26/05 02:49 PM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Hi Beth,
You're right. At the time when I was taking that Jarro stuff, I was cutting WAAAAAY back on my SFS. I noticed a big difference in my ... uh..... well, you know  -- but I attributed it to the probiotics, not the SFS.
As it turned out, I can't tolerate ANY SFS at all. So I wasn't getting better because of the probiotics; I was getting better as I cut out the SFS.
Sorry for the confusion.
B.
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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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Hi Kate, Have you ever heard the ld addage(poem);
Beans, beans, good for your heart,
The more you eat, the more you fart,
The more you fart, the better you feel,
So eat beans at every meal!
-Bob P.S. thanks very much for your prayers and consideration!
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<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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Glad to see you back on the boards - you've been missed!
Hope you're doing okay now.
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ROTFL! Bob, I know you're on the mend. You're sense of humour is definitely intact.
Actually, having IBS-D makes me rather anal retentive. Passing gas is really hard. Actually, I get huge bean cravings. WHEN I'm stable again, I'll try 1/4 c. in something--i.e. a sauce. Mmmm...black bean sauce!
Kate.
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